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Lynch syndrome
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sjogrens
Hi, I have RA. and Sjögren’s syndrome was wondering if anyone is taking any medication for this, mainly dry mouth , I read somewhere that Hydroxychloroquine helps, any advise would be grateful , thankyou x
Hi, I have RA. and Sjögren’s syndrome was wondering if anyone is taking any medication for this, mainly dry mouth , I read somewhere that Hydroxychloroquine helps, any advise would be grateful , thankyou x
Swanfull
in
NRAS
2 years ago
Who here have the same problems with their legs?
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
More than 20 years ago I was awakened by the worst pain I have ever had and it’s been hell ever since then. As long as I’m standing, I’m fine. But as soon as I lay down it feels like I’m laying next to the devil. To give you an idea how intense the pain is, it will wake me up even if I’m sedated.
Pain_in_the_legs
in
Restless Legs Syndrome
2 years ago
Acai, Quercetin, and Ashwagandha promote Nrf2. Do Not Overdose!
Acai has received a positive report, in a study using a mouse model of Parkinson's: Açai Berry Mitigates Parkinson’s Disease Progression Showing Dopaminergic Neuroprotection via Nrf2 HO1 Pathways https://link.springer.com/content/pdf/10.1007/s12035-022-02982-5.pdf In this study, treatment with açai
Acai has received a positive report, in a study using a mouse model of Parkinson's: Açai Berry Mitigates Parkinson’s Disease Progression Showing Dopaminergic Neuroprotection via Nrf2 HO1 Pathways https://link.springer.com/content/pdf/10.1007/s12035-022-02982-5.pdf In this study, treatment with açai
park_bear
in
Cure Parkinson's
2 years ago
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Restless legs or Periodic limb movement
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Hi everyone , I think I have restless legs but not been diagnosed, doctor has treated it as restless legs , my legs don’t just move around they intensely kick or jerk out at force in the air , but I do have the sensation before that happens , like my leg is getting ready to fire! Which it does then builds
Catslover-1
in
Restless Legs Syndrome
2 years ago
GP suggesting alternative to citalopram to reduce PMR pain??
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
My GP has just suggested that I consider changing from 20mg daily citalopram (that I’ve been taking for last 3.5 years to combat menopause symptoms) to Duloxerine because “it will help reduce some of PMR pain”. I’m confused. I know she is concerned because I’m having trouble reducing from 17-20mg
Lyra42
in
PMRGCAuk
2 years ago
Gabapentin for RLS
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
I was diagnosed with RLS around three weeks ago and have now been prescribed Gabapentin by my GP having rejected his initial prescription of Ropinirole. My RLS symptoms were initially very severe at night but I was generally symptom free during the day. This has now altered and I am now experiencing
DonWilliams
in
Restless Legs Syndrome
2 years ago
Depressed, hopeless and sleep deprived with RLS. HELP??
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
I’ve had RLS for 40 years and have been on almost every medicine out there. I’ve been in Requip for 6 years - 2 mg XL, 2 2mg Requip along with clonopin & methadone. My neurologist of 15 years has given up on me. I saw another one a few weeks ago and she said everything she’d prescribe, I’ve already
SleeplessinDenver
in
Restless Legs Syndrome
2 years ago
anxious
hi all Im looking for stories of people who took ages to get pregnant but then had a normal pregnancy and birth please. From their first bfp. I’ve finally (after 5 long years) got my first ever BFP. (Could barely believe it but nearly 2 weeks and 5 tests later it’s slowly sinking in) I just can’
hi all Im looking for stories of people who took ages to get pregnant but then had a normal pregnancy and birth please. From their first bfp. I’ve finally (after 5 long years) got my first ever BFP. (Could barely believe it but nearly 2 weeks and 5 tests later it’s slowly sinking in) I just can’
Lily4yrttc
in
Fertility Network UK
2 years ago
Insomnia add CBD oil
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
CBD oil acts on different receptors than Opioids and THC . If you are taking low dose CBD with THC or medical marijuana and you still suffer insomnia add extra pure CBD oil. If you suffer from opioid insomnia add PURE CBD OIL always sublingual it has some many health benefits a great nights sleep
Shumbah
in
Restless Legs Syndrome
2 years ago
Thalassemia and PA
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
Hello, I've been telling everyone I know about PA, and so far two friends quite possibly have it. One definitely. But my nieces husband and daughter have Thalassemia. A very rare genetic blood disorder. When i googled it, I was surprised to see it can be linked to b12d and PA. Does anyone here have this
EllaNore
in
Pernicious Anaemia Society
2 years ago
Does half dose of sertraline make any difference?
I’ve spoken to a GP this morning (not my usual one, sadly) about my restless legs having returned since taking sertraline. She mentioned other antidepressants as an alternative but all of them are listed as having restless legs as side effects. She suggested halving the dose. As I’m only on the lowest
I’ve spoken to a GP this morning (not my usual one, sadly) about my restless legs having returned since taking sertraline. She mentioned other antidepressants as an alternative but all of them are listed as having restless legs as side effects. She suggested halving the dose. As I’m only on the lowest
NJB71
in
Restless Legs Syndrome
2 years ago
3 years Buprenorphine Success.
BUPRENORPHINE Hi everyone as you know know October 29th will be 3rd anniversary for 2mg Buprenorphine. Although the Buprenorphine worked from night one what I did not expect was the PTSD . I did struggled with PTSD I continued on helping other access buprenorphine in as many countries as possible
BUPRENORPHINE Hi everyone as you know know October 29th will be 3rd anniversary for 2mg Buprenorphine. Although the Buprenorphine worked from night one what I did not expect was the PTSD . I did struggled with PTSD I continued on helping other access buprenorphine in as many countries as possible
Shumbah
in
Restless Legs Syndrome
2 years ago
Compression boots w/heat
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Hello, So far the only the only things I have found to help my severe RLS is 15 mgs of methodone w/400 mgs of magnesium (long term fix about 24 hrs), hot baths with epsom salt (short term fix, maybe 30 mins.) Being how I do NOT want to be on methodone for ever. I am looking for other solutions.
Anguished
in
Restless Legs Syndrome
2 years ago
best products
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
Hello,can I pick your brains please. recently diagnosed with sjorgrens.after a fight my drs gave agreed to supply some products on prescription. My first trip to the pharmacy cost me £50 and I top of this I purchase eye drops online and pay for my prescription for hydroxy. The drops I buy online
BonnyB
in
LUPUS UK
2 years ago
Here we go again!!
I just wanted to say hi to all the wonderful women on this forum. I've been following peoples journeys and I'm always inspired by everyone's stories and support for each other. I've just been for my scratch as I hope to start treatment again in a few days time. Weirdly the scratch wasn't as painful
I just wanted to say hi to all the wonderful women on this forum. I've been following peoples journeys and I'm always inspired by everyone's stories and support for each other. I've just been for my scratch as I hope to start treatment again in a few days time. Weirdly the scratch wasn't as painful
Pebbles345
in
Fertility Network UK
2 years ago
constipation
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
Hi folks Taking Levodopa Gabapentin and Tramadol for Parkinson and Restless legs and get bad constipation can you suggest any good things to take to help this .
auldreekie18
in
Restless Legs Syndrome
2 years ago
alternative to sertraline due to restless legs
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
I have suffered restless legs all my life. A few years ago my dr checked my ferritin level. It was very low and I took iron. My legs got better and I was elated. No one had ever told me there was such a simple solution in all my 71 years. I have also taken sertraline in the past but never associated
NJB71
in
Restless Legs Syndrome
2 years ago
Very high IgE levels
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
Does anyone else with autoimmune PA have a sky high IgE level as I do? Since diagnosis mine has been around 2000 KIU/L (normal range <20). I don’t suffer from any of the conditions usually associated with very high serum IgE such as aspergillosis, Hodgkin’s Disease etc, so whatever has caused it is
summersj
in
Pernicious Anaemia Society
2 years ago
Living in the PUPO bubble...10dp5dt *sensitive - updated...bfp*
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Hi everyone! Not posted on here in a while but have never stopped lurking 😅 Sorry in advance for the long post and update! My last post was about thinking of moving to a clinic abroad, which we did early this year. Since then we've had 2 cycles in Spain. 1st cycle there (3rd overall after 2 x NHS cycles
Moonbeam8511
in
Fertility Network UK
2 years ago
RLS and THC oil
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Hello everyone Im a 37 yo male who has suffered from RLS for around 9 years or so. During this time I have worked through every single possible treatment afforded to us such as iron supplements, less alcohol, no sugar dieting (ketogeneic diet), eating at varied times during the day - non of which changed
Geordie-sailor
in
Restless Legs Syndrome
2 years ago
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