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Lynch syndrome
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Ashwaganda?
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
I just saw someone posting on another site that Ashwaganda has really helped their RLS. Does anyone have any thoughts on this please? I currently take Tramadol but only when desperate as I don't really want to be dependent on any drug if I can avoid it. However I have had to appreciate that I am taking
Seaview20
in
Restless Legs Syndrome
2 years ago
Do you want you doctor to prescribe an opioid instead of DA ?John Hopkins statistics on both.
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
This may help you when requesting an opioid verses the doctor wishing to prescribe DA https://www.hopkinsmedicine.org/neurology_neurosurgery/centers_clinics/restless-legs-syndrome/what-is-rls/treatment.html I am typing this information direct from John hopkins treatment article. An estimated 85%
Shumbah
in
Restless Legs Syndrome
2 years ago
Herbal remedies
Hi All, has anyone had any feedback or tried various natural remedies. A friend of mine recommended Muccuna l dopa capsules and Tumeric root extract capsules to help with rls. Only started taking these for a few weeks so no real progress yet. Just want to come off the prescribed medication. Currently
Hi All, has anyone had any feedback or tried various natural remedies. A friend of mine recommended Muccuna l dopa capsules and Tumeric root extract capsules to help with rls. Only started taking these for a few weeks so no real progress yet. Just want to come off the prescribed medication. Currently
Sailingdude
in
Restless Legs Syndrome
2 years ago
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Lining update!
Just a quick update for those of you with lining issues 😆. I've managed to get to 6.6 today on my first scan which is a record for me on the first scan! Just waiting to see whether we will go ahead with an FET or they want to see me again in a few days. I've been taking 4x progynova, 1 x patch every
Just a quick update for those of you with lining issues 😆. I've managed to get to 6.6 today on my first scan which is a record for me on the first scan! Just waiting to see whether we will go ahead with an FET or they want to see me again in a few days. I've been taking 4x progynova, 1 x patch every
Pebbles345
in
Fertility Network UK
2 years ago
Restless Legs using sleeping pill
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
I have had RLS for years. It started getting irritating in my 40's and continued to get worst. I am now 85 and on Methadone, trying to withdraw from it because it is hard to get in Las Vegas. I am down to .5mg at night. I gave up my noon pill because of constipation.. I was getting very little sleep
McClintok
in
Restless Legs Syndrome
2 years ago
Sertraline
I think I know what everyone is going to say but does anyone have anything positive to say about sertraline and restless legs? If anybody followed my previous post I have stage 4 breast cancer and need a mild antidepressant to help me cope. Having chatted with my GP we both feel I would benefit more
I think I know what everyone is going to say but does anyone have anything positive to say about sertraline and restless legs? If anybody followed my previous post I have stage 4 breast cancer and need a mild antidepressant to help me cope. Having chatted with my GP we both feel I would benefit more
Pam34
in
Restless Legs Syndrome
2 years ago
Neupro patch stopped working
I have been on a 2mg Neupro patch for the last few years, I have had good success with it and it has given me great relief in the past. In the last few weeks they have stopped working and I now find I have to take an opiate every night to get any sleep I can.I am thinking of trying Buprenorphine ....
I have been on a 2mg Neupro patch for the last few years, I have had good success with it and it has given me great relief in the past. In the last few weeks they have stopped working and I now find I have to take an opiate every night to get any sleep I can.I am thinking of trying Buprenorphine ....
banjololapoppy
in
Restless Legs Syndrome
2 years ago
Quinidine Sulphate
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
About 11 years ago I was diagnosed with Brugada Syndrome and had a de-fib fitted as well as prescibed Quinidine and Bisoloprol which I have taken ever since. 4 years ago my de-fib activated so my Consultant increased the levles of Quinidine. However I am told by my Consultant & Pharmacy that they cannot
LeeLowry1
in
Arrhythmia Alliance
2 years ago
Asking if anyone can recommend a topical Magnesium spray for legs. Thanks!
I get temporary relief from hot epsom salts baths so thought I'd try a topical spray for the in between times . Thanks!
I get temporary relief from hot epsom salts baths so thought I'd try a topical spray for the in between times . Thanks!
Reb0013
in
Restless Legs Syndrome
2 years ago
Great news. Bone biopsy negative. Back to just dealing with GCA which seems a blessing now!
Just wanted to let everyone know that my bone biopsy and bone scan were negative and the lesions visualized on my spine are not malignant. Thank the Lord! Now I can go back to just dealing with the GCA and MS. Seems like a blessing to me! Thank you all for your good thoughts and wishes which meant a
Just wanted to let everyone know that my bone biopsy and bone scan were negative and the lesions visualized on my spine are not malignant. Thank the Lord! Now I can go back to just dealing with the GCA and MS. Seems like a blessing to me! Thank you all for your good thoughts and wishes which meant a
Kt1943
in
PMRGCAuk
2 years ago
UK CBD GOOD NEWS
I saw this post and took a screen shot for the good people of the UK Earlier this year I was on holidays in Amsterdam , I was in desperate need of pain relief my lower back needs a 3 level fusion bones are crumbling so fusion is not an option. I bought good quality CBD oil the man who sold it to me
I saw this post and took a screen shot for the good people of the UK Earlier this year I was on holidays in Amsterdam , I was in desperate need of pain relief my lower back needs a 3 level fusion bones are crumbling so fusion is not an option. I bought good quality CBD oil the man who sold it to me
Shumbah
in
Restless Legs Syndrome
2 years ago
Pregabalin + Ropinirole or Opioids
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
After a recent post from Amrob explaining that they add 0.125mg or 0.25mg Clonazepam to 300 mg Pregabalin when the Pregabalin does not cut ... I do the same with Ropinirole, adding 0.125mg nightly to 300 mg Pregabalin, because I will never get to sleep otherwise ..... I wonder what the thoughts are
67Waterman
in
Restless Legs Syndrome
2 years ago
Dopamine agonists
Why does https://www.rls-uk.org/faqs still say under Treatments for RLS "Dopamine agonists are often recommended for people with more frequent symptoms. These include ropinirole, pramipexole and rotigotine." No mention in that answer of problems with augmentation and that Gabapentin/ Pregabalin is the
Why does https://www.rls-uk.org/faqs still say under Treatments for RLS "Dopamine agonists are often recommended for people with more frequent symptoms. These include ropinirole, pramipexole and rotigotine." No mention in that answer of problems with augmentation and that Gabapentin/ Pregabalin is the
ChrisColumbus
in
Restless Legs Syndrome
2 years ago
pregabelin side effects
I explained to my dr that sertraline had caused my restless leg to return. Previously it was under control with iron. She put me on a low dose of pregabelin, 25mg to take at night and continue with sertraline in the morning. The first night was ok…ish. I did sleep much better. but the second night
I explained to my dr that sertraline had caused my restless leg to return. Previously it was under control with iron. She put me on a low dose of pregabelin, 25mg to take at night and continue with sertraline in the morning. The first night was ok…ish. I did sleep much better. but the second night
NJB71
in
Restless Legs Syndrome
2 years ago
Back to square one but grateful
Hello friends, having already reported that I’d attempted to reduce my Ropinirole medication prior to my visit to see the GP one back on 6mg tablets spread throughout the day and night, Sue agreed that it was probably the best course of action and I’m again getting some much needed sleep and the pains
Hello friends, having already reported that I’d attempted to reduce my Ropinirole medication prior to my visit to see the GP one back on 6mg tablets spread throughout the day and night, Sue agreed that it was probably the best course of action and I’m again getting some much needed sleep and the pains
HipHop1972
in
Restless Legs Syndrome
2 years ago
Today I feel great!
Yesterday I had some minor surgery but under general anaesthetic. I don’t know if it is the anaesthetic, the oramorph glug I had post op or the day of complete rest, but today, I feel like I did before FMS, RLS and PLMD came to stay! I even slept completely between wee breaks! Long may it last!!!
Yesterday I had some minor surgery but under general anaesthetic. I don’t know if it is the anaesthetic, the oramorph glug I had post op or the day of complete rest, but today, I feel like I did before FMS, RLS and PLMD came to stay! I even slept completely between wee breaks! Long may it last!!!
Theonlypetied
in
Restless Legs Syndrome
2 years ago
ropinirole
I have been taking ropinirole for more than 40 years. 1 mg at night. It works for me but now I am terrified because apparently it has been withdrawn and I can’t get it in any of the farmacias in the Valencia region. I tried gabapentin - no effect at wll. I gave just been prescribed pregabalin and didn
I have been taking ropinirole for more than 40 years. 1 mg at night. It works for me but now I am terrified because apparently it has been withdrawn and I can’t get it in any of the farmacias in the Valencia region. I tried gabapentin - no effect at wll. I gave just been prescribed pregabalin and didn
Pensionistaspain
in
Restless Legs Syndrome
2 years ago
DET fail, 6th transfer attempt - what now?
Help! I have just found out my sixth transfer of my 7th and 8th embryos has failed. I have had one pregnancy that ended in miscarriage at 7 weeks and the rest have all been failed implantations. For the last two transfers i have been on an immune protocol so doctor thinks we have that side covered.
Help! I have just found out my sixth transfer of my 7th and 8th embryos has failed. I have had one pregnancy that ended in miscarriage at 7 weeks and the rest have all been failed implantations. For the last two transfers i have been on an immune protocol so doctor thinks we have that side covered.
darkbuthappyplace
in
Fertility Network UK
2 years ago
Now on Gabapentin, not sure about it.
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
I have had rls for over 30 years, and many years ago I was given Pramipexole. I refused to increase the dose, so my GP begrudgingly gave me Tramadol. Like the Prami it worked for a while, then stopped working. GP offered my Ropinerole, I declined, he said there was no other option. Long story short
Gmc54
in
Restless Legs Syndrome
2 years ago
symptoms of pmr returning have managed on 2mg for 2 months have asked for gp phone consultation tomorrow just wanted to talk to you folks fi
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Hi I have had pmr for nearly 2 years . Because inflammation was high initially gp put me on 30 mg . I was able to reduce to lower quite quickly and felt well though experienced side effects of poor sleep being hot , being very active probably a bit elated, constipated and my face made me look in my
Mofred
in
PMRGCAuk
2 years ago
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