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1 week update into Imbruvica
My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy with yogurt or digestive enzymes, and temporary intestinal cramps.
My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy with yogurt or digestive enzymes, and temporary intestinal cramps.
12Caine12
in
CLL Support
4 years ago
Remission
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
SwiftT
in
CLL Support
5 years ago
EHA 2019: Dr. Maloney on CAR-T and Dr. Davids of Chemo-Immunotherapy combinations
See: https://cllsociety.org/2019/11/eha-2019-dr-maloney-on-car-t-therapy-for-cll-chronic-
lymphocytic
-
leukemia
/ A recent post of mine spurred some controversy about the role of chemo-immunotherapy (CIT) in CLL.
See: https://cllsociety.org/2019/11/eha-2019-dr-maloney-on-car-t-therapy-for-cll-chronic-
lymphocytic
-
leukemia
/ A recent post of mine spurred some controversy about the role of chemo-immunotherapy (CIT) in CLL.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
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Need some info please.
Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a week for a goodwill shop. I was diagnosed with cll just over 2 years ago. I saw a haematologist twice and put on watch and wait. I opted to see
Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a week for a goodwill shop. I was diagnosed with cll just over 2 years ago. I saw a haematologist twice and put on watch and wait. I opted to see
JanEyre
in
CLL Support
4 years ago
Dr. Siddiqi on Rationale for the TRANSCEND CAR-T CLL 004 Trial in CLL/SLL
trial (NCT03331198) investigating the use of the CAR T-cell therapy lisocabtagene maraleucel (liso-cel; JCAR017) in patients with relapsed/refractory chronic
lymphocytic
leukemia
(CLL) or small
lymphocytic
lymphoma (SLL).
trial (NCT03331198) investigating the use of the CAR T-cell therapy lisocabtagene maraleucel (liso-cel; JCAR017) in patients with relapsed/refractory chronic
lymphocytic
leukemia
(CLL) or small
lymphocytic
lymphoma (SLL).
AussieNeil
Partner
in
CLL Support
5 years ago
Generosity
I’m doing the worlds greatest shave here in Australia for my husband and all you CLLers. The generosity of people- especially in light of the drought and bushfire appeals - is astounding. $4,000 in 2 weeks. The Leukaemia Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable
I’m doing the worlds greatest shave here in Australia for my husband and all you CLLers. The generosity of people- especially in light of the drought and bushfire appeals - is astounding. $4,000 in 2 weeks. The Leukaemia Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable
catnapcrew
in
CLL Support
5 years ago
Survey for CLL patients having taken Venetoclax or Acalabrutinib
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
cllpag_canada
in
CLL Support
5 years ago
ASH 2019 CLL highlights and 'hot' topics - Drs Nicole Lamanna & Florence Cymbalista
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
HAIRBEAR_UK
Administrator
in
CLL Support
5 years ago
Managing Side Effects and More
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
cllady01
Volunteer
in
CLL Support
5 years ago
Life with ET
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
MJL1977
in
MPN Voice
5 years ago
Blood tests high platelets
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
Irishgal12
in
MPN Voice
5 years ago
Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia
https://healthunlocked.com/cllsupport/posts/148382798/study-that-detects-early-seeding-of-richter-transformation-in-chronic-
lymphocytic
-
leukemia
-could-lead-to-new-strategies-and-therapies [i]Updated 18 Aug 2022[/i]
https://healthunlocked.com/cllsupport/posts/148382798/study-that-detects-early-seeding-of-richter-transformation-in-chronic-
lymphocytic
-
leukemia
-could-lead-to-new-strategies-and-therapies [i]Updated 18 Aug 2022[/i]
Jm954
Administrator
in
CLL Support
5 years ago
Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
5 years ago
the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
socrates_8
in
MPN Voice
5 years ago
Dr. O'Brien on how she treats CLL frontline and Dr. Pagel on new ways to block BTK
Pagel discusses new ways being researched to block BTK in CLL (chronic
lymphocytic
leukemia
). https://cllsociety.org/2019/11/eha-2019-dr-john-pagel-on-new-ways-to-block-brutons-tyrosine-kinase-in-cll/ Stay strong. We are all in this together.
Pagel discusses new ways being researched to block BTK in CLL (chronic
lymphocytic
leukemia
). https://cllsociety.org/2019/11/eha-2019-dr-john-pagel-on-new-ways-to-block-brutons-tyrosine-kinase-in-cll/ Stay strong. We are all in this together.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Doctor- patient relationship, MBL (Not major league baseball) and looking for a JCAR14 or 17 CAR-T patient
Watch the interview here: https://cllsociety.org/2019/10/eric-2018-barcelona-dr-aliki-xochelli-on-the-doctor-patient-relationship-in-cll-chronic-
lymphocytic
-
leukemia
/ Also from ERIC 2018, Dr. John Seymour talks about Monoclonal B-cell Lymphocytosis (MBL), a precursor of CLL.
Watch the interview here: https://cllsociety.org/2019/10/eric-2018-barcelona-dr-aliki-xochelli-on-the-doctor-patient-relationship-in-cll-chronic-
lymphocytic
-
leukemia
/ Also from ERIC 2018, Dr. John Seymour talks about Monoclonal B-cell Lymphocytosis (MBL), a precursor of CLL.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Losing weight with Viagra.
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
Johnem
in
Lung Conditions Community Forum
5 years ago
Negative for CLL and lymphoma panel
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Jenny2020
in
CLL Support
5 years ago
MF and mutations
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
billybrock
in
MPN Voice
5 years ago
A nervous wreck.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
Adnor
in
CLL Support
5 years ago
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