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Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia
https://healthunlocked.com/cllsupport/posts/148382798/study-that-detects-early-seeding-of-richter-transformation-in-chronic-
lymphocytic
-
leukemia
-could-lead-to-new-strategies-and-therapies [i]Updated 18 Aug 2022[/i]
https://healthunlocked.com/cllsupport/posts/148382798/study-that-detects-early-seeding-of-richter-transformation-in-chronic-
lymphocytic
-
leukemia
-could-lead-to-new-strategies-and-therapies [i]Updated 18 Aug 2022[/i]
Jm954
Administrator
in
CLL Support
5 years ago
Blood tests high platelets
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
So me again I have now received blood work to get done prior to my haematologist app and one of them is a test for cml which has set me off of is this normal
Irishgal12
in
MPN Voice
4 years ago
Hello, I'm transitioning from hydroxyurea to jakafi and would like here from others who are on jakafi. What should I expect?
Should I be worried? Are the side effects bad?
Should I be worried? Are the side effects bad?
Cbreeze0182
in
MPN Voice
4 years ago
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Dr. O'Brien on how she treats CLL frontline and Dr. Pagel on new ways to block BTK
Pagel discusses new ways being researched to block BTK in CLL (chronic
lymphocytic
leukemia
). https://cllsociety.org/2019/11/eha-2019-dr-john-pagel-on-new-ways-to-block-brutons-tyrosine-kinase-in-cll/ Stay strong. We are all in this together.
Pagel discusses new ways being researched to block BTK in CLL (chronic
lymphocytic
leukemia
). https://cllsociety.org/2019/11/eha-2019-dr-john-pagel-on-new-ways-to-block-brutons-tyrosine-kinase-in-cll/ Stay strong. We are all in this together.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Doctor- patient relationship, MBL (Not major league baseball) and looking for a JCAR14 or 17 CAR-T patient
Watch the interview here: https://cllsociety.org/2019/10/eric-2018-barcelona-dr-aliki-xochelli-on-the-doctor-patient-relationship-in-cll-chronic-
lymphocytic
-
leukemia
/ Also from ERIC 2018, Dr. John Seymour talks about Monoclonal B-cell Lymphocytosis (MBL), a precursor of CLL.
Watch the interview here: https://cllsociety.org/2019/10/eric-2018-barcelona-dr-aliki-xochelli-on-the-doctor-patient-relationship-in-cll-chronic-
lymphocytic
-
leukemia
/ Also from ERIC 2018, Dr. John Seymour talks about Monoclonal B-cell Lymphocytosis (MBL), a precursor of CLL.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
the YUK Factor & Controversy Over Gene Editing for Cancer & Other Cures???
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
Post by MPN-MATE Admin » Thu Dec 26, 2019 11:43 pm Hey everyone... :-) Trusting that you have all enjoyed some happy times with family & friends over Christmas etc... As many oy you might be aware, I am always scouring through research hoping to find that illusive 'Silver Bullet Cure' where perhaps
socrates_8
in
MPN Voice
5 years ago
Losing weight with Viagra.
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
A woman asks her husband at breakfast time, "Would you like some bacon and eggs, a slice of toast and maybe some grapefruit juice and coffee?" He declines. "Thanks for asking but I'm not hungry right now. It's this Viagra," he says. "It's really taken the edge off my appetite." At lunchtime, she asks
Johnem
in
Lung Conditions Community Forum
5 years ago
Negative for CLL and lymphoma panel
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Hi. I just received my bmb negative for CLL or lymphoma panel. My dr stated he believes I do have some form of leukemia but the final diagnosis is not in. The flow cytometry was inconclusive as well. He said my prognosis should be could and certain life style changes should help me possibly
Jenny2020
in
CLL Support
4 years ago
MF and mutations
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
Hi I am 79 and have been diagnosed with MF. Blood tests have confirmed I have the following mutations EZH2 x 2, ASXL1, ETV6 in addition to Jak2. I am currently under the care of Prof Harrison at Guys, and she states these mutations make me a high risk patient. I am not experiencing any symptoms apart
billybrock
in
MPN Voice
5 years ago
A nervous wreck.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
I have been referred to Hematology for Lymphocytosis (symptomatic). He is in the process of checking to see if it is Leukemia. I'm trying to find out as much as I can before I go back on Monday 1/6/20. I do have Ebstein Bar Virus that is active. I am a bundle of nerves at this point.
Adnor
in
CLL Support
4 years ago
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
5 years ago
2018 study explains why Green Tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) work against CLL
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
HowardR
in
CLL Support
4 years ago
Vaccines, Ibrutinib toxicity,Dr. Rai on a cure, Dr Ghia on TP563 testing and ERIC
Kanti Rai talks both the elusive cure in CLL: https://cllsociety.org/2019/10/e-r-i-c-barcelona-2018-dr-kanti-rai-on-the-unmet-need-in-cll-chronic-
lymphocytic
-
leukemia
-a-cure/ And Dr.
Kanti Rai talks both the elusive cure in CLL: https://cllsociety.org/2019/10/e-r-i-c-barcelona-2018-dr-kanti-rai-on-the-unmet-need-in-cll-chronic-
lymphocytic
-
leukemia
-a-cure/ And Dr.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Mapping Comorbidity in CLL: Impact on Prognostic Factors, Treatment Patterns and Causes of Death
[i]"In chronic
lymphocytic
leukemia
(CLL), very few randomized clinical trials include patients who are older or have significant comorbidity, despite this group constituting a large proportion of the CLL-population.
[i]"In chronic
lymphocytic
leukemia
(CLL), very few randomized clinical trials include patients who are older or have significant comorbidity, despite this group constituting a large proportion of the CLL-population.
Jm954
Administrator
in
CLL Support
5 years ago
Bone Pain
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
kiwitraveller
in
MPN Voice
5 years ago
Targeting stem cells that drive aggressive blood cancer
Post by MPN-MATE Admin » Tue Dec 17, 2019 3:45 am DEC. 12, 2019 Targeting stem cells that drive aggressive blood cancer by Peter MacCallum Cancer Centre As many of you may already know, the Fundraiser that I am doing intends to provide the funds raised to the Peter MAC Cancer Foundation in Victoria,
Post by MPN-MATE Admin » Tue Dec 17, 2019 3:45 am DEC. 12, 2019 Targeting stem cells that drive aggressive blood cancer by Peter MacCallum Cancer Centre As many of you may already know, the Fundraiser that I am doing intends to provide the funds raised to the Peter MAC Cancer Foundation in Victoria,
socrates_8
in
MPN Voice
5 years ago
Jak 2positive MPN treatment Ruxolitinib
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
waddles22
in
MPN Voice
5 years ago
Scared !!!
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Madison1995
in
CLL Support
4 years ago
low dose naltrexone
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hidden
in
CLL Support
4 years ago
Drug trial
Hi every body. I wondered if anybody with PV has been asked if they would like to take part in a drug trial. I've had PV for 4 years and was on Hydroxy for3 years. I've just had to stop taking it because I was having regular cellulitis on my legs and was virtually living on antibiotics. My haemo took
Hi every body. I wondered if anybody with PV has been asked if they would like to take part in a drug trial. I've had PV for 4 years and was on Hydroxy for3 years. I've just had to stop taking it because I was having regular cellulitis on my legs and was virtually living on antibiotics. My haemo took
Splb3317
in
MPN Voice
5 years ago
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