Search
Search
About
Log in
Join
Experiences with
Lymphocytic leukemia
Posts
Communities
3,100 public posts
Filter results
Christmas message 2019 from the team at MPN Voice
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Hello everyone We really have had another fantastic year and would like to thank all of you for your support and involvement, not just in attending forums, completing surveys, organizing and taking part in fundraising events, but for your very kind and generous donations which we have received throughout
Mazcd
MPNVoice
in
MPN Voice
5 years ago
2018 study explains why Green Tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) work against CLL
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
I just found a fabulous 2018 study which explains why green tea, pomegranates, strawberries and other foods containing elegitannins (and thus EA) could reduce your lymphocyte counts: https://www.sciencedirect.com/science/article/pii/S2213231715001111
HowardR
in
CLL Support
5 years ago
Vaccines, Ibrutinib toxicity,Dr. Rai on a cure, Dr Ghia on TP563 testing and ERIC
Kanti Rai talks both the elusive cure in CLL: https://cllsociety.org/2019/10/e-r-i-c-barcelona-2018-dr-kanti-rai-on-the-unmet-need-in-cll-chronic-
lymphocytic
-
leukemia
-a-cure/ And Dr.
Kanti Rai talks both the elusive cure in CLL: https://cllsociety.org/2019/10/e-r-i-c-barcelona-2018-dr-kanti-rai-on-the-unmet-need-in-cll-chronic-
lymphocytic
-
leukemia
-a-cure/ And Dr.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Mapping Comorbidity in CLL: Impact on Prognostic Factors, Treatment Patterns and Causes of Death
[i]"In chronic
lymphocytic
leukemia
(CLL), very few randomized clinical trials include patients who are older or have significant comorbidity, despite this group constituting a large proportion of the CLL-population.
[i]"In chronic
lymphocytic
leukemia
(CLL), very few randomized clinical trials include patients who are older or have significant comorbidity, despite this group constituting a large proportion of the CLL-population.
Jm954
Administrator
in
CLL Support
5 years ago
Bone Pain
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
Recently I have been experiencing a dull ache in my feet but only when in bed and not moving around. If I get up and walk around it goes away. Is this the onset of bone pain. I have Prefibrotic Myelofibrosis. It is not what I would describe as painful just very uncomfortable and prevents me from sleeping
kiwitraveller
in
MPN Voice
5 years ago
Targeting stem cells that drive aggressive blood cancer
Post by MPN-MATE Admin » Tue Dec 17, 2019 3:45 am DEC. 12, 2019 Targeting stem cells that drive aggressive blood cancer by Peter MacCallum Cancer Centre As many of you may already know, the Fundraiser that I am doing intends to provide the funds raised to the Peter MAC Cancer Foundation in Victoria,
Post by MPN-MATE Admin » Tue Dec 17, 2019 3:45 am DEC. 12, 2019 Targeting stem cells that drive aggressive blood cancer by Peter MacCallum Cancer Centre As many of you may already know, the Fundraiser that I am doing intends to provide the funds raised to the Peter MAC Cancer Foundation in Victoria,
socrates_8
in
MPN Voice
5 years ago
Jak 2positive MPN treatment Ruxolitinib
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
My husband was diagnosed as above 3years ago and started Ruxolitinib 15mg twice a day 30 months ago. Has anyone with same illness experienced any lack of concentration and possibly slight memory problems. He had no problems until he started treatment on Ruxolitinib.. other than this his treatment has
waddles22
in
MPN Voice
5 years ago
Scared !!!
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Hi. I went to my gyn last week for female issues and I had blood work drawn. My CBC was 28.10 then a week later 28.4 with smudge cells present each time which is very suggestive of CLL. My mom just passed this April at barely 66 with multiple myeloma with del 17 and I’m petrified as I’m only 46
Madison1995
in
CLL Support
5 years ago
low dose naltrexone
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hi - I am new to the forum, have had cll for over 10 years, still at stage zero. I have tried various supplements and treatments, have been on ldn 4.5 mg for about a year. My white blood cell count went down 30% in this last year. I had taken it before and stopped, tried a few other things and it crept
Hidden
in
CLL Support
5 years ago
Drug trial
Hi every body. I wondered if anybody with PV has been asked if they would like to take part in a drug trial. I've had PV for 4 years and was on Hydroxy for3 years. I've just had to stop taking it because I was having regular cellulitis on my legs and was virtually living on antibiotics. My haemo took
Hi every body. I wondered if anybody with PV has been asked if they would like to take part in a drug trial. I've had PV for 4 years and was on Hydroxy for3 years. I've just had to stop taking it because I was having regular cellulitis on my legs and was virtually living on antibiotics. My haemo took
Splb3317
in
MPN Voice
5 years ago
The Winter issue of Leukaemia Matters will soon be landing at your door or in your inbox!
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
[i]Hello,[/i] [i]Welcome to the Winter issue of our magazine![/i] http://bit.ly/LeukaemiaMattersWinter2019 [i]It’s been another busy year for Leukaemia Care as we celebrated our [/i][i]50th anniversary. We spent much of the year working harder than ever to [/i][i]provide support and advice to those
HAIRBEAR_UK
in
Leukaemia Support
5 years ago
A conundrum for use v. non-use of specific amino acids in muscle atrophy and immune support for CLL patients
• Targeting Glucose Metabolism and Compensatory Metabolic Resistance in CLL, Nov. 16, 2012, Blood https://ashpublications.org/blood/article/120/21/1801/102978/Targeting-Glucose-Metabolism-and-Compensatory • Metabolic rewiring beyond Warburg in chronic
lymphocytic
leukemia
: How much do we actually
• Targeting Glucose Metabolism and Compensatory Metabolic Resistance in CLL, Nov. 16, 2012, Blood https://ashpublications.org/blood/article/120/21/1801/102978/Targeting-Glucose-Metabolism-and-Compensatory • Metabolic rewiring beyond Warburg in chronic
lymphocytic
leukemia
: How much do we actually
Higsby
in
CLL Support
5 years ago
SMC decision regarding Ruxolitinib (Jakavi) for PV patients in Scotland
We are very pleased to announce that following a full submission made to the SMC (Scottish Medicines Consortium), a decision has been made to accept Ruxolitinib (Jakavi) for use by NHS Scotland for patients with PV (polycythaemia vera) who are intolerant to, or cannot be treated with Hydroxycarbamide
We are very pleased to announce that following a full submission made to the SMC (Scottish Medicines Consortium), a decision has been made to accept Ruxolitinib (Jakavi) for use by NHS Scotland for patients with PV (polycythaemia vera) who are intolerant to, or cannot be treated with Hydroxycarbamide
Mazcd
MPNVoice
in
MPN Voice
5 years ago
Lots of news
Watch the interview: https://cllsociety.org/2019/10/ash-2018-dr-wiestner-on-the-immune-system-in-cll-chronic-
lymphocytic
-
leukemia
/ In no particular order, Dr.
Watch the interview: https://cllsociety.org/2019/10/ash-2018-dr-wiestner-on-the-immune-system-in-cll-chronic-
lymphocytic
-
leukemia
/ In no particular order, Dr.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Richter Transformation Testimonials. Survivors
Ayose was diagnosed with chronic
lymphocytic
leukemia
in November 2018 after two months with multiple cervical adenopathies. He went to the doctor's office because of an abdominal discomfort and his doctor found these adenopathies strange.
Ayose was diagnosed with chronic
lymphocytic
leukemia
in November 2018 after two months with multiple cervical adenopathies. He went to the doctor's office because of an abdominal discomfort and his doctor found these adenopathies strange.
Priss69
in
CLL Support
4 years ago
Ashwagandha?
Hi Folks Wonder if anyone here tried this Indian ginseng? I’m keen to take it for reducing anxieties and improve quality of sleep. It may cause increase in T-lymphocytes when I googled; not sure if it will also increase our absolute lymphocytes? Seok
Hi Folks Wonder if anyone here tried this Indian ginseng? I’m keen to take it for reducing anxieties and improve quality of sleep. It may cause increase in T-lymphocytes when I googled; not sure if it will also increase our absolute lymphocytes? Seok
Seok
in
CLL Support
5 years ago
CLL Horizons 2019 - Edinburgh 19-21 September - video of speaker sessions
Hi all we are now pleased to start releasing videos from CLL Horizons, *PRESS RELEASE*13th December 2019 CLL Advocates Network would like to announce the initial release of videos from the CLL HORIZONS 2019 Conference held in Edinburgh, Scotland, 19-21 September 2019. This event was held during the
Hi all we are now pleased to start releasing videos from CLL Horizons, *PRESS RELEASE*13th December 2019 CLL Advocates Network would like to announce the initial release of videos from the CLL HORIZONS 2019 Conference held in Edinburgh, Scotland, 19-21 September 2019. This event was held during the
HAIRBEAR_UK
Administrator
in
CLL Support
5 years ago
Advice please....
It's been 3 weeks since my diagnosis for Hairy Cell Leukaemia and I'm slowly coming to terms with it, however I am confused. My consultant at the hospital has put me on 'Wait and Watch' but said I would be monitored regularly and would need regular blood tests and scans. Since then I havent heard anything
It's been 3 weeks since my diagnosis for Hairy Cell Leukaemia and I'm slowly coming to terms with it, however I am confused. My consultant at the hospital has put me on 'Wait and Watch' but said I would be monitored regularly and would need regular blood tests and scans. Since then I havent heard anything
TM1972
in
Leukaemia Support
5 years ago
Sequential And Combination Treatments With Novel Agents (Oct. 2019)
"Chemoimmunotherapy has been standard of care in patients with chronic
lymphocytic
leukemia
for a long time. Over the last years, novel agents have produced unprecedented outcomes in treatment-naive and relapsed/refractory chronic
lymphocytic
leukemia
.
"Chemoimmunotherapy has been standard of care in patients with chronic
lymphocytic
leukemia
for a long time. Over the last years, novel agents have produced unprecedented outcomes in treatment-naive and relapsed/refractory chronic
lymphocytic
leukemia
.
avzuclav
in
CLL Support
5 years ago
Webinar - Oral Therapies and Adherence in Lymphoma and CLL Jan 23 2020, 2:00-3:00 PM EST
Register at: https://beacon360.content.online/xbcs/S1791/catalog/product.xhtml?eid=16215
Register at: https://beacon360.content.online/xbcs/S1791/catalog/product.xhtml?eid=16215
wmay13241
in
CLL Support
5 years ago
1
...
69
70
71
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1944 results
MPN Voice
793 results
Leukaemia Support
168 results
View top 10 communities
Sort by
Most Relevant
Newest