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ASH 2019
Hi, Off to ASH soon with about 20 interviews with top researchers already scheduled, scores of oral and poster sessions to attend and a chance to present our own research: Poster # 4716: An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic
Lymphocytic
Leukemia
(CLL).
Hi, Off to ASH soon with about 20 interviews with top researchers already scheduled, scores of oral and poster sessions to attend and a chance to present our own research: Poster # 4716: An Innovative Telemedicine Platform to Provide Expert Access to Patients with Chronic
Lymphocytic
Leukemia
(CLL).
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Why Is the Immunoglobulin Heavy Chain Gene Mutation Status a Prognostic Indicator in CLL? - Dr Keating
A complex but interesting read Acta Haematol August 2018;140:51–54 The immunoglobulin heavy chain gene (IgHV) mutation status correlates with the clinical outcome of patients with CLL treated with chemoimmunotherapy. Why the survival rate of patients with unmutated IgHV is worse than that of patients
A complex but interesting read Acta Haematol August 2018;140:51–54 The immunoglobulin heavy chain gene (IgHV) mutation status correlates with the clinical outcome of patients with CLL treated with chemoimmunotherapy. Why the survival rate of patients with unmutated IgHV is worse than that of patients
Jm954
Administrator
in
CLL Support
4 years ago
going downhill
My husband has CLL dx in 2013. Ok until this last year. Now has gone downhill. He is not to computer friendly so I am doing this. He was started on VENETOCLAX and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of
My husband has CLL dx in 2013. Ok until this last year. Now has gone downhill. He is not to computer friendly so I am doing this. He was started on VENETOCLAX and is on week 3 of the ramping up. Extremely fatigued. Poor appetite. Sleeps a lot. The doc thinks this is a combo of the CLL and the s/e of
Gogldn
in
CLL Support
4 years ago
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Acute lymphoblastic leukaemia
Hi is the forum still active for Acute lymphoblastic leukaemia on this site. I can only see CLL posts. Thanks Hayley
Hi is the forum still active for Acute lymphoblastic leukaemia on this site. I can only see CLL posts. Thanks Hayley
Cyprusfan
in
Leukaemia CARE
4 years ago
News about V+O and Acalabrutinib from EHA
See https://cllsociety.org/2019/11/eha-2019-dr-peter-hillman-on-venetoclax-and-obinutuzumab-in-cll-chronic-
lymphocytic
-
leukemia
/ At EHA 2019, Dr.
See https://cllsociety.org/2019/11/eha-2019-dr-peter-hillman-on-venetoclax-and-obinutuzumab-in-cll-chronic-
lymphocytic
-
leukemia
/ At EHA 2019, Dr.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
New Clinical Trail EA9161 with great results!
“A Randomized Phase III Study of the addition of Venetoclax to Ibrutinib and Obinutuzumab versus Ibrutinib and Obinutuzumab in Untreated Younger Patients with Chronic
Lymphocytic
Leukemia
(CLL)”. I had a new CT scan and bone marrow biopsy the week before I started treatment.
“A Randomized Phase III Study of the addition of Venetoclax to Ibrutinib and Obinutuzumab versus Ibrutinib and Obinutuzumab in Untreated Younger Patients with Chronic
Lymphocytic
Leukemia
(CLL)”. I had a new CT scan and bone marrow biopsy the week before I started treatment.
Riven8
in
CLL Support
4 years ago
New Need Advice please
Hello, I am new here and so confused. I saw a hematologist in October due to swollen lymph nodes and high eosinophils he ordered bone marrow biopsy. Which came back showing MPN he stated, but nothing to do but wait no further testing recommend. My grandfather had myelofibrosis. I am not comfortable just
Hello, I am new here and so confused. I saw a hematologist in October due to swollen lymph nodes and high eosinophils he ordered bone marrow biopsy. Which came back showing MPN he stated, but nothing to do but wait no further testing recommend. My grandfather had myelofibrosis. I am not comfortable just
chefwife8
in
MPN Voice
4 years ago
Winter blues
Hi I've got hypersensitivity pneumonitis with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Hi I've got hypersensitivity pneumonitis with fibrosis. I've been diagnosed for 3 years now. But have suffered in the winter for a long time. Does anyone know of any tips to help me manage when I am outside? Almaz65
Almaz65
in
Lung Conditions Community Forum
4 years ago
Hair transplant and CLL
Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but am not sure if the CLL makes no difference or the trauma encourages it.....
Has anyone here with CLL had a hair transplant (after early stage diagnosis?) Is that safe or crazy? I'm relatively young to have it and I guess a bit vain but am not sure if the CLL makes no difference or the trauma encourages it.....
Research123
in
CLL Support
4 years ago
1 week update into Imbruvica
My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy with yogurt or digestive enzymes, and temporary intestinal cramps.
My first 7 days of Imbruvica 420 mg haven't been as bad as expected. No fatigue to speak of. The only side effects are temporary stomachs which I can remedy with yogurt or digestive enzymes, and temporary intestinal cramps.
12Caine12
in
CLL Support
4 years ago
Remission
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
So the PETSCAN and the bone marrow biopsy say no leukemia or lymphoma for me. That means total remission but they still want me to have a transplant waiting for an appointment from MD Anderson in Texas.
SwiftT
in
CLL Support
4 years ago
EHA 2019: Dr. Maloney on CAR-T and Dr. Davids of Chemo-Immunotherapy combinations
See: https://cllsociety.org/2019/11/eha-2019-dr-maloney-on-car-t-therapy-for-cll-chronic-
lymphocytic
-
leukemia
/ A recent post of mine spurred some controversy about the role of chemo-immunotherapy (CIT) in CLL.
See: https://cllsociety.org/2019/11/eha-2019-dr-maloney-on-car-t-therapy-for-cll-chronic-
lymphocytic
-
leukemia
/ A recent post of mine spurred some controversy about the role of chemo-immunotherapy (CIT) in CLL.
bkoffman
CLL CURE Hero
in
CLL Support
5 years ago
Need some info please.
Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a week for a goodwill shop. I was diagnosed with cll just over 2 years ago. I saw a haematologist twice and put on watch and wait. I opted to see
Hi there, I am a 75 year old female. From Adelaide in South Australia. I have still managed to manage all my everyday life,drive and I volunteer 20 hours a week for a goodwill shop. I was diagnosed with cll just over 2 years ago. I saw a haematologist twice and put on watch and wait. I opted to see
JanEyre
in
CLL Support
4 years ago
Dr. Siddiqi on Rationale for the TRANSCEND CAR-T CLL 004 Trial in CLL/SLL
trial (NCT03331198) investigating the use of the CAR T-cell therapy lisocabtagene maraleucel (liso-cel; JCAR017) in patients with relapsed/refractory chronic
lymphocytic
leukemia
(CLL) or small
lymphocytic
lymphoma (SLL).
trial (NCT03331198) investigating the use of the CAR T-cell therapy lisocabtagene maraleucel (liso-cel; JCAR017) in patients with relapsed/refractory chronic
lymphocytic
leukemia
(CLL) or small
lymphocytic
lymphoma (SLL).
AussieNeil
Partner
in
CLL Support
5 years ago
Generosity
I’m doing the worlds greatest shave here in Australia for my husband and all you CLLers. The generosity of people- especially in light of the drought and bushfire appeals - is astounding. $4,000 in 2 weeks. The Leukaemia Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable
I’m doing the worlds greatest shave here in Australia for my husband and all you CLLers. The generosity of people- especially in light of the drought and bushfire appeals - is astounding. $4,000 in 2 weeks. The Leukaemia Foundation is aiming for zero deaths from blood cancer by 2035. It sure feels achievable
catnapcrew
in
CLL Support
4 years ago
Survey for CLL patients having taken Venetoclax or Acalabrutinib
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
CLL/SLL Patient Survey If you have CLL or SLL and have been treated with the following therapies, you can help by completing our survey: Venetoclax (Venclexta) + obinutuzumab (Gazyva) for first-line treatment of CLL/SLL Acalabrutinib (Calquence) with or without obinutuzumab (Gazyva) for first-line
cllpag_canada
in
CLL Support
4 years ago
ASH 2019 CLL highlights and 'hot' topics - Drs Nicole Lamanna & Florence Cymbalista
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
Prof Nicole Lamanna - ASH 2019 - Maturing CLL clinical trial data Dr. Nicole Lamanna, Associate Clinical Professor of haematological malignancies at Columbia University Medical Centre discusses the maturing CLL clinical trial data presented at ASH 2019. Phenomenal 3 and 4 year results from trials
HAIRBEAR_UK
Administrator
in
CLL Support
4 years ago
Managing Side Effects and More
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
The following site is Cleveland Clinic's presentation. Please do not get hung up on the name Chemocare. Here is the statement regarding the name of the site: [i]'Chemotherapy, or "chemical treatment," has been around since the days of the ancient Greeks. However, chemotherapy for the treatment of cancer
cllady01
Volunteer
in
CLL Support
4 years ago
Life with ET
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
I am the person flying through the air. At 39 I discovered I had ET (CALR). I also started Brazilian Jiu Jitsu. Almost 4 years later I still have ET and I take 2 pills of Hydroxyurea 5 days per week. Today I received my purple belt. The test was two hours of nonstop movement and grappling. My point
MJL1977
in
MPN Voice
4 years ago
Leukaemia Care Updated Patient Information - Richter's Syndrome in Chronic Lymphocytic Leukaemia
https://healthunlocked.com/cllsupport/posts/148382798/study-that-detects-early-seeding-of-richter-transformation-in-chronic-
lymphocytic
-
leukemia
-could-lead-to-new-strategies-and-therapies [i]Updated 18 Aug 2022[/i]
https://healthunlocked.com/cllsupport/posts/148382798/study-that-detects-early-seeding-of-richter-transformation-in-chronic-
lymphocytic
-
leukemia
-could-lead-to-new-strategies-and-therapies [i]Updated 18 Aug 2022[/i]
Jm954
Administrator
in
CLL Support
5 years ago
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