Search
Search
About
Log in
Join
Experiences with
Lymphocytic leukemia
Posts
Communities
3,100 public posts
Filter results
Any IL-6 inhibitor or IL6 receptor inhibitor situation and Liver total protein issue
I would like to ask whether there are such patients with myelofibrosis. Even if they take Ruxolitinib, and take interferon at the same time. The total protein in the biochemistry of the liver continues to decline slowly. This decline is continuous and may be the trend of slow decline for several years
I would like to ask whether there are such patients with myelofibrosis. Even if they take Ruxolitinib, and take interferon at the same time. The total protein in the biochemistry of the liver continues to decline slowly. This decline is continuous and may be the trend of slow decline for several years
merlisa
in
MPN Voice
3 years ago
AbbVie Pharm--positive phase 3 for CLL!
The pharmaceutical company said the trial showed that previously untreated patients with chronic
lymphocytic
leukemia
with coexisting conditions who were treated with Venclyxto/Venclexta venetoclax plus obinutuzumab continued to show longer progression-free survival and higher rates of undetectable minimal
The pharmaceutical company said the trial showed that previously untreated patients with chronic
lymphocytic
leukemia
with coexisting conditions who were treated with Venclyxto/Venclexta venetoclax plus obinutuzumab continued to show longer progression-free survival and higher rates of undetectable minimal
Vlaminck
in
CLL Support
3 years ago
Different IGHV mutation tests?
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
Are there different tests for IGHV mutation? PCR? Sanger? NGS? My PCR test report says no mutations detected. Should I retest with other methods? Also, is IGHV mutation status innate or developed during the lifetime? If it’s innate and genetic, since I’m unmutated, should I get my children tested for
nuji
in
CLL Support
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Long-Term Data Showcase the Clinical Utility of Fixed-Duration Venetoclax/Obinutuzumab in Treatment-Naïve CLL
[i]
Fixed-duration venetoclax plus obinutuzumab demonstrated prolonged remissions compared with chemoimmunotherapy in elderly patients with previously untreated chronic
leukemia
and comorbidities.
[i]
Fixed-duration venetoclax plus obinutuzumab demonstrated prolonged remissions compared with chemoimmunotherapy in elderly patients with previously untreated chronic
leukemia
and comorbidities.
lankisterguy
Volunteer
in
CLL Support
3 years ago
Not diagnosed, but suspected
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
Edit: letter from haematologist- BCR/ABL and JAK2 are negative m, awaiting rarer test results, but he thinks could be related to infection / endocrine issues. Relieved, but puzzled! Thank you everyone for replying, I guess I was premature in posting!! Hi. I’m just struggling today as I’m in that waiting
KayS68
in
MPN Voice
3 years ago
Oh dear
Well last night I decided to go to the beach again on my quad sit on beach for an hour . Unfortunately things didn't turn out that way ! Going down the beach road and wasn't concentrating mind not on what I was doing anything I had a seizure and lost control of the quad it went one way upside down my
Well last night I decided to go to the beach again on my quad sit on beach for an hour . Unfortunately things didn't turn out that way ! Going down the beach road and wasn't concentrating mind not on what I was doing anything I had a seizure and lost control of the quad it went one way upside down my
Hidden
in
Lung Conditions Community Forum
3 years ago
Hairy cell leukaemia - 3 months after chemo
Hi, Telephone consultation with my haematologist this morning, rather stunning blood test results - haemoglobin up from 110 to 135 so now normal... white cell count up from 1.7 to 4.1 so now normal, neutrophils up from 1.2 to 2.4 so now normal, although platelets down from 138 to 106 so still not in
Hi, Telephone consultation with my haematologist this morning, rather stunning blood test results - haemoglobin up from 110 to 135 so now normal... white cell count up from 1.7 to 4.1 so now normal, neutrophils up from 1.2 to 2.4 so now normal, although platelets down from 138 to 106 so still not in
frankmok
in
Leukaemia Support
3 years ago
Any Knowledge of CLL in the eyes?
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
A biopsy confirmed a diagnosis of CLL in both lower eyelids. This is a rare event. Neither my hematologist-oncologist or CLL Specialist have ever had a patient with it. They tell me that acalabrutinib, which I'll start next week, is sufficient treatment. From what I've read, I'm still uncomfortable
cll2013
in
CLL Support
3 years ago
Side Effects of Bendamustine?
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
I am asking for a friend who has follicular lymphoma and has been W&W for nine years. They start Rituxan and Bendamustine next week. With all the treatment I have had, I have never had this one, so I am wondering if you could share what your experiences were. Thanks much.
KevinCLLITP
in
CLL Support
3 years ago
Understanding High Iron
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
Hi everyone. For those diagnosed with Leukemia, can you tell me what your Iron and Ferritin levels are? These are typically elevated in Leukemia patients. I have a follow-up and consultation with my doctor coming in a few weeks but am gathering a bit of information (aside from google searches) on my
UhOhCKD
in
Leukaemia Support
3 years ago
immunohistochemistry need help understanding
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
I am seeing my doctor on Tuesday but was able to get some results online from my bone marrow biopsy - Additional tests ordered: Cytogenetics and FISH (CLL panel) Can someone help me understand the findings below - thank you Marker Result Description CD20 Positive Pan B Cell Antigen (L26) CD3 T-cells
kp58ny
in
CLL Support
3 years ago
Cost for treatment
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Hi everyone, i am hoping you can help. My dad was diagnosed with CLL about a month ago. He just received his information package in the mail from the specialist which indicated that he requires insurance to cover any medical expenses. We are from Ontario Canada so wondering what the cost is for the
Rubymom
in
CLL Support
3 years ago
Just joined
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Hi, I am about to start treatment with acalabrutinib for my cll, I was originally told I would be treated with venetoclax and Obinutuzumab but I also receive treatment for my bladder cancer so my consultant said I wouldn’t be able to receive the v+o while also receiving the BCG for bladder cancer. I
Mtk1
in
CLL Support
3 years ago
World CLL Day
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
Good morning, 1st September, where is the year going. Getting used to it being dull now, longing for some sun. Blood tests this morning and then possibly a journalist in conjunction with Leukaemia Care calling to do an interview for Spot Leukaemia Early campaign month. Have already made a video which
kitchengardener2
in
CLL Support
3 years ago
Red painful Feet
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
I have been on WOW for 6 years now with blood results relatively OK. However for last 2 years I have painful feet, soles and side and base of toe. Feet do not like heat. Cycles of socks on; to heat feet and socks off: to stop pain and red/purple colour. GP suggested fungus or venous leaking or dermititis
Marchmouse
in
CLL Support
3 years ago
Richter Transformation Update 21-06-2021
Chronic
lymphocytic
leukemia
, two breast cancers, and a Ricther transformation. In remission of all four. A miracle. A hug colleagues and to all those who are diagnosed with Ricther's Transformation, you can contact our group to have contact with other people who have the same disease.
Chronic
lymphocytic
leukemia
, two breast cancers, and a Ricther transformation. In remission of all four. A miracle. A hug colleagues and to all those who are diagnosed with Ricther's Transformation, you can contact our group to have contact with other people who have the same disease.
Priss69
in
CLL Support
3 years ago
Myelofibrosis worsened so going to start ruxolitinib
I've had my second consultant appointment since being diagnosed with post ET myelofibrosis about 1 month ago. Then I was intermediate level 1 with platelet count 117 which gave me a median survival of 14 years. Now my platelets have gone down to about 70 do I'm now intermediate level 2 with a median
I've had my second consultant appointment since being diagnosed with post ET myelofibrosis about 1 month ago. Then I was intermediate level 1 with platelet count 117 which gave me a median survival of 14 years. Now my platelets have gone down to about 70 do I'm now intermediate level 2 with a median
Scaredy_cat
in
MPN Voice
3 years ago
First results of a head-to-head trial of acalabrutinib versus ibrutinib in previously treated chronic lymphocytic leukemia.
We conducted an open-label, randomized, noninferiority, phase 3 trial to compare Aca vs Ib in patients (pts) with chronic
lymphocytic
leukemia
(CLL).
We conducted an open-label, randomized, noninferiority, phase 3 trial to compare Aca vs Ib in patients (pts) with chronic
lymphocytic
leukemia
(CLL).
Jm954
Administrator
in
CLL Support
3 years ago
HLH & CLL
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Hi All, CLL diagnosed in 2014 and HLH on top of that in 2018. HLH makes CLL look like a cold it's nasty and I thank God for every day that I'm still here and as of yet not needed a transplant. I'm now 43 years of age. Is anyone out there in the same boat? Have a great weekend all! 😊
Shirty78
in
CLL Support
3 years ago
New Diagnosis - Everything Normal except cytology
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Just diagnosed this month, age 49. My lymphocytes are elevated and my cytology shows “atypical” CLL. All my other labs were good and I am mutated with normal FISH results. My doc says this is all good but I feel like I’m waiting for the other shoe to drop. Like someone is going to come to me and say,
Keggs2020
in
CLL Support
3 years ago
1
...
39
40
41
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
CLL Support
1944 results
MPN Voice
793 results
Leukaemia Support
168 results
View top 10 communities
Sort by
Most Relevant
Newest