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CLL & Mastectomy / Implants
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
I'm wondering if anyone here with CLL/SLL has undergone a breast reduction or mastectomy since diagnosis. If so, were you on treatment or WW at time of surgery? If you were on treatment, did you have to stop for surgery? How was your healing? If you had a mastectomy, did you get implants after
Amberesque
in
CLL Support
2 years ago
Encouraging results from venetoclax retreatment of patients with chronic lymphocytic leukemia after a previous venetoclax-based regimen
We've heard that re-treatment with venetoclax is possible. Per the attached image, here's some encouraging evidence showing a good response to a second venetoclax treatment, from a trial of 46 CLL patients who relapsed after their initial venetoclax treatment. The overall rate of response (ORR) to Ven2
We've heard that re-treatment with venetoclax is possible. Per the attached image, here's some encouraging evidence showing a good response to a second venetoclax treatment, from a trial of 46 CLL patients who relapsed after their initial venetoclax treatment. The overall rate of response (ORR) to Ven2
AussieNeil
Partner
in
CLL Support
2 years ago
Optical Genome Mapping: a promising new tool to assess genomic complexity - Part Two
Further to https://healthunlocked.com/cllsupport/posts/148409355/optical-genome-mapping-a-promising-new-tool-to-assess-genomic-complexity-in-cll [u]An update from watching the OGM webinar[/u] My impression is that AML cells' DNA has greater structural variation (mutation) than seen in CLL. Some of
Further to https://healthunlocked.com/cllsupport/posts/148409355/optical-genome-mapping-a-promising-new-tool-to-assess-genomic-complexity-in-cll [u]An update from watching the OGM webinar[/u] My impression is that AML cells' DNA has greater structural variation (mutation) than seen in CLL. Some of
bennevisplace
in
CLL Support
2 years ago
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An antibody for myelofibrosis – “that’s a true discovery”
Recently, one of our MATES members showed me this (extract) article (MiaGrace), & I believe that many others might wish to see it too... A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
Recently, one of our MATES members showed me this (extract) article (MiaGrace), & I believe that many others might wish to see it too... A new monoclonal antibody, discovered by accident by Adelaide researchers, could become the world’s first effective treatment for primary myelofibrosis (MF).
socrates_8
in
MPN Voice
2 years ago
Update
just got a call to say that my husband's JAK2 results are back. They wanted to discuss it with him over the phone but I pointed out he has major brain injuries as a result of brain haemorrhage and strokes and he won't cope on the phone. We have an appointment for Friday 5th August late morning.
just got a call to say that my husband's JAK2 results are back. They wanted to discuss it with him over the phone but I pointed out he has major brain injuries as a result of brain haemorrhage and strokes and he won't cope on the phone. We have an appointment for Friday 5th August late morning.
CelticCrow68
in
MPN Voice
2 years ago
E2T2 mutation
Hello everyone one Thank you for reading my second post, I am still trying to get my head around my new diagnosis I have just asked my haematologist dept, What have I been diagnosed with besides ET+JAK2 and they have told me they are going to do a bone marrow test to see if I have …. E2 T2 naturally
Hello everyone one Thank you for reading my second post, I am still trying to get my head around my new diagnosis I have just asked my haematologist dept, What have I been diagnosed with besides ET+JAK2 and they have told me they are going to do a bone marrow test to see if I have …. E2 T2 naturally
Tyray123
in
MPN Voice
2 years ago
NAC (N-Acetylcysteine) at the FDA and vs oral glutathione
Some of us are taking NAC supplement for its antinflammatory effects. It's also subject of this phase 1-2 MPN trial looking for dose and MPN-TSS symptom improvements: https://clinicaltrials.gov/ct2/show/NCT05123365 In the US, FDA had been considering removing it from allowed supplements, but it seems
Some of us are taking NAC supplement for its antinflammatory effects. It's also subject of this phase 1-2 MPN trial looking for dose and MPN-TSS symptom improvements: https://clinicaltrials.gov/ct2/show/NCT05123365 In the US, FDA had been considering removing it from allowed supplements, but it seems
EPguy
in
MPN Voice
2 years ago
Good news on vaccine efficacy for the 80%
Topic: COVID-19 vaccines elicit robust cellular immunity and clinical protection in chronic
lymphocytic
leukemia
Following Minto's principle, I'll start with the conclusion (the news that matters): "In conclusion, SARS-CoV-2 vaccines are currently providing good clinical protection for patients with
Topic: COVID-19 vaccines elicit robust cellular immunity and clinical protection in chronic
lymphocytic
leukemia
Following Minto's principle, I'll start with the conclusion (the news that matters): "In conclusion, SARS-CoV-2 vaccines are currently providing good clinical protection for patients with
Me2AsWell
in
CLL Support
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
ALCALABRUTINIB FAILING
Why are clinical trials our only option for the most part, why does our treatments cause more mutations and a cancer that is harder to treat, at some point, our cancer will outpace our options, and we will have none. We must be very intelligent on our line of treatments and make sure each we choose wisely
Why are clinical trials our only option for the most part, why does our treatments cause more mutations and a cancer that is harder to treat, at some point, our cancer will outpace our options, and we will have none. We must be very intelligent on our line of treatments and make sure each we choose wisely
CAM729
in
CLL Support
2 years ago
rituxan treatment
My CLL has caused a condition called warm autoimmune hemolytic anemia and they are wanting to start Rituximab to keep my hgb counts from tanking. I am not a big fan of treatments and have refused treatments several times for other cancers. I am just wondering about your alls experience with this
My CLL has caused a condition called warm autoimmune hemolytic anemia and they are wanting to start Rituximab to keep my hgb counts from tanking. I am not a big fan of treatments and have refused treatments several times for other cancers. I am just wondering about your alls experience with this
Bluegillking
in
CLL Support
2 years ago
Optical genome mapping: a promising new tool to assess genomic complexity in CLL
In CLL, cytogenetic testing relies on a few well-established techniques https://powerfulpatients.org/2019/10/28/cll-genetic-tests-explained/ while the new method of optical genome mapping (OGM) remains strictly experimental. Preliminary research, though, does suggest that OGM can enhance cytogenomic
In CLL, cytogenetic testing relies on a few well-established techniques https://powerfulpatients.org/2019/10/28/cll-genetic-tests-explained/ while the new method of optical genome mapping (OGM) remains strictly experimental. Preliminary research, though, does suggest that OGM can enhance cytogenomic
bennevisplace
in
CLL Support
2 years ago
chronic lymphocytic leukemia and tooth extraction
hey i am treated with Zanubrutinib (BGB-3111) and have chronic
lymphocytic
leukemia
. Did someone have a tooth pulled out of you during your illness?
hey i am treated with Zanubrutinib (BGB-3111) and have chronic
lymphocytic
leukemia
. Did someone have a tooth pulled out of you during your illness?
BART4
in
CLL Support
2 years ago
what do you think
It's about my girlfriend who has had chronic
lymphocytic
leukemia
since the end of 2020, knowing that she didn't tell me that until recently (a month). After insisting on seeing her she had symptoms which I suspected abnormal.
It's about my girlfriend who has had chronic
lymphocytic
leukemia
since the end of 2020, knowing that she didn't tell me that until recently (a month). After insisting on seeing her she had symptoms which I suspected abnormal.
Buhber
in
CLL Support
2 years ago
Anyone out there living with Polycythaemia Rubra Vera + Multiple Myeloma?
Does anybody out there have more My friend has PRV and MM which appear to be unrelated. Polycythaemia Rubra Vera since c2005 (well-controlled with Hydrea) Multiple Myeloma (more specifically: Multiple Plasmacytoma) diagnosed 2018/2019. PRV remains in remission but MM relapsed some months ago.
Does anybody out there have more My friend has PRV and MM which appear to be unrelated. Polycythaemia Rubra Vera since c2005 (well-controlled with Hydrea) Multiple Myeloma (more specifically: Multiple Plasmacytoma) diagnosed 2018/2019. PRV remains in remission but MM relapsed some months ago.
SolasChoir
in
MPN Voice
2 years ago
Covid Vax Long Term T-cell Immunity
I posted this in a thread, but it seems worth a top post with recent info as there are many discussions on the vaxes, immunity and boosters. "Acquired Immunity" occurs by vax or infection. A large portion of the world has acquired immunity and likely T-cell protection. We saw last Spring in Hong
I posted this in a thread, but it seems worth a top post with recent info as there are many discussions on the vaxes, immunity and boosters. "Acquired Immunity" occurs by vax or infection. A large portion of the world has acquired immunity and likely T-cell protection. We saw last Spring in Hong
EPguy
in
MPN Voice
2 years ago
Dr Mesa on MF prognostics, Rux and SCT
Some detailed info in Dr Mesa's thoughts in a 2020 interview I came across: -For some MF patients Rux is working well and long term: <<There are patients from the phase 1 study of ruxolitinib [i](this dates to early as 2007) [/i]at our centers that are still on the therapy. These are individuals that
Some detailed info in Dr Mesa's thoughts in a 2020 interview I came across: -For some MF patients Rux is working well and long term: <<There are patients from the phase 1 study of ruxolitinib [i](this dates to early as 2007) [/i]at our centers that are still on the therapy. These are individuals that
EPguy
in
MPN Voice
2 years ago
has anybody had blood test results with 35% elevated urea level?
has anybody had blood test results with 35% elevated urea level and the doctors said to ignore it. The Creatinine & EGFR that matters. thank you for sharing your thoughts. Kind regards.
has anybody had blood test results with 35% elevated urea level and the doctors said to ignore it. The Creatinine & EGFR that matters. thank you for sharing your thoughts. Kind regards.
catherine1712
in
LUPUS UK
2 years ago
Advances in Targeted Therapy for R/R CLL OncLive videos & transcripts by Nirav Shah MD & Nicole Lamanna MD
. #1: Chronic
Lymphocytic
Leukemia
Treatment Landscape Nicole Lamanna, MD, and Nirav N.
. #1: Chronic
Lymphocytic
Leukemia
Treatment Landscape Nicole Lamanna, MD, and Nirav N.
lankisterguy
Volunteer
in
CLL Support
2 years ago
A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia
Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov
Hello The paper below recently came out in May. I thought member would be interested. Apologies if this is old news. “A randomized phase 3 trial of interferon-α vs hydroxyurea in polycythemia vera and essential thrombocythemia” It is freely downloadable from PubMed at https://pubmed.ncbi.nlm.nih.gov
LongETinUS
in
MPN Voice
2 years ago
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