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Lung transplant
My new Pulmonologist mentioned lung transplant as something for me to consider . I am open to advice from anyone with experience in this . I am exploring information on it but would like to hear from anyone who has had one or know of someone who has had one .
My new Pulmonologist mentioned lung transplant as something for me to consider . I am open to advice from anyone with experience in this . I am exploring information on it but would like to hear from anyone who has had one or know of someone who has had one .
bcat9251
in
COPD Friends
7 years ago
Lung Cancer Quality Performance Indicators Focus Group Invite
Hello all We have been contacted by West of Scotland Cancer Network for an enquiry of undertaking a focus group on the subject of the revised Lung Cancer Cancer Quality Performance Indicators (QPIs). “These QPIs have been developed collaboratively with the three Regional Cancer Networks, Information
Hello all We have been contacted by West of Scotland Cancer Network for an enquiry of undertaking a focus group on the subject of the revised Lung Cancer Cancer Quality Performance Indicators (QPIs). “These QPIs have been developed collaboratively with the three Regional Cancer Networks, Information
InformationTeam
Roy Castle
in
The Roy Castle Lung Cancer Foundation
8 years ago
Anyone on Pembrolizumab (Keytruda) Immunotherapy
Hi, I have NSC Adenocarcinoma lung cancer, stage 4, diagnosed in Jan 2016. My first treatment was Tarceva, a targeted oral chemotherapy. That was working well until recently and now have switched to Pem/Keytruda, a targeted Immunotherapy . Wondering if others out there have experienced Pembrolizumab?
Hi, I have NSC Adenocarcinoma lung cancer, stage 4, diagnosed in Jan 2016. My first treatment was Tarceva, a targeted oral chemotherapy. That was working well until recently and now have switched to Pem/Keytruda, a targeted Immunotherapy . Wondering if others out there have experienced Pembrolizumab?
Lubelle
in
Lung Cancer Support
8 years ago
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Recurrence of lung cancer
I was diagnosed with stage 2B Adinocarcinoma had a open lobe removed in 2014 did 4 rounds of Altman/cisplatin and scans were ok till Sept 2026 now have a recurrence in the lymph nodes had a byopsy of the mediastinum and supaclavical one was begine the mediastinum the clavical had cells they are testing
I was diagnosed with stage 2B Adinocarcinoma had a open lobe removed in 2014 did 4 rounds of Altman/cisplatin and scans were ok till Sept 2026 now have a recurrence in the lymph nodes had a byopsy of the mediastinum and supaclavical one was begine the mediastinum the clavical had cells they are testing
kookieannie
in
Lung Cancer Support
8 years ago
I'm new
Hello, I'm an active 67 year old male who gave up smoking 10 years ago. I got a cough which wouldn't go away so had a chest X-ray which showed a small left pleural effusion. I've has CT and PET scans and a bronchoscopy, but no official diagnosis. Today is my appointment to find out what the future holds
Hello, I'm an active 67 year old male who gave up smoking 10 years ago. I got a cough which wouldn't go away so had a chest X-ray which showed a small left pleural effusion. I've has CT and PET scans and a bronchoscopy, but no official diagnosis. Today is my appointment to find out what the future holds
Razzhead
in
The Roy Castle Lung Cancer Foundation
8 years ago
New here....my story so far
In April this year, I did my local Parkrun. It took over an hour and I did wonder if something wasn't right. In July, I had a collapsed lung, which led to lung surgery, which led to a diagnosis of a rare lung disease. My goal is to be able to run 5k within a respectable time so I started the Couch to
In April this year, I did my local Parkrun. It took over an hour and I did wonder if something wasn't right. In July, I had a collapsed lung, which led to lung surgery, which led to a diagnosis of a rare lung disease. My goal is to be able to run 5k within a respectable time so I started the Couch to
twolungs
in
Couch to 5K
8 years ago
Living with copd I'm a 62 year old female
I am 62 and have had copd since 2009.. They did lung surgery about a year. Ago because they thought I had cancer they removed part of my lung and found I did not have it
I am 62 and have had copd since 2009.. They did lung surgery about a year. Ago because they thought I had cancer they removed part of my lung and found I did not have it
Roessner541
in
Lung Conditions Community Forum
8 years ago
My experience 48 hours post full thyroidectomy
Hi guys! I had surgery on Thursday afternoon (2 days ago) and I am pleased to say that everything went well and the care I received from doctors, nurses, HCAs to student nurses were faultless. I was asked to come to the Day Care Unit at Darent Valley Hospital in Dartford at noon for an afternoon operation
Hi guys! I had surgery on Thursday afternoon (2 days ago) and I am pleased to say that everything went well and the care I received from doctors, nurses, HCAs to student nurses were faultless. I was asked to come to the Day Care Unit at Darent Valley Hospital in Dartford at noon for an afternoon operation
Tamzin27
in
Thyroid UK
8 years ago
UPDATE!! Hope
Hi all Im just updating you all that on the 12th November in the small hours I was called but Newcastle to say that they had found a match for me for some lungs, I had been given two weeks to live prior to this call so you can imagine how I felt! so they put me in the ambulance and my.daughter woke
Hi all Im just updating you all that on the 12th November in the small hours I was called but Newcastle to say that they had found a match for me for some lungs, I had been given two weeks to live prior to this call so you can imagine how I felt! so they put me in the ambulance and my.daughter woke
Hidden
in
Lung Conditions Community Forum
8 years ago
New here -boyfriend had ileostomy 10 weeks ago
Following a flare up of UC (5 years in remission no problems) my boyfriend had an emergency subtotal colectomy and now has an ileostomy. Hadn't had any build up or preparation for this op so all a big shock. Had been in hospital for 2 weeks before operation so had lost a lot of weight and was very
Following a flare up of UC (5 years in remission no problems) my boyfriend had an emergency subtotal colectomy and now has an ileostomy. Hadn't had any build up or preparation for this op so all a big shock. Had been in hospital for 2 weeks before operation so had lost a lot of weight and was very
Bec_carer1
in
Living with a Stoma
8 years ago
Im new :-) pain when breathing deeply
0 Replies Hey everyone. im new. came here as ive lurked alot. and you all seem like a knowledgable bunch :-). So about two weeks ago I suddenly devolped apain in my top left rib. under my breast. if I lay lie on the sofa with my back against the arm rest it hurts when I breath in if I lean over to tie
0 Replies Hey everyone. im new. came here as ive lurked alot. and you all seem like a knowledgable bunch :-). So about two weeks ago I suddenly devolped apain in my top left rib. under my breast. if I lay lie on the sofa with my back against the arm rest it hurts when I breath in if I lean over to tie
Freshsmellingmustard
in
Lung Conditions Community Forum
8 years ago
IPF
Hi, my name is Adelaide and was diagnosed April 2016 with Pulmonary Fibrosis. My Dr. Sent for a lung transplant evaluation but I was not a suitable recipient due to several health issues. So I take it one day at a time. I have 2 Dr.'s one in NewYork City and one here in the Hudson Valley. I will be
Hi, my name is Adelaide and was diagnosed April 2016 with Pulmonary Fibrosis. My Dr. Sent for a lung transplant evaluation but I was not a suitable recipient due to several health issues. So I take it one day at a time. I have 2 Dr.'s one in NewYork City and one here in the Hudson Valley. I will be
Adela123
in
Lung Conditions Community Forum
8 years ago
Transcript: Ask Us Anything about lung cancer with Adam Marcus, PhD, & Suresh Ramalingam, MD
Welcome everyone to the very first Ask Me Anything on the HealthUnlocked Free to Breathe community. We are excited to have all of you here! Adam Marcus is an Associate Professor in the Dept. of Hematology and Oncology, a former Georgia Cancer Coalition Scholar, and directs a federally funded cancer research
Welcome everyone to the very first Ask Me Anything on the HealthUnlocked Free to Breathe community. We are excited to have all of you here! Adam Marcus is an Associate Professor in the Dept. of Hematology and Oncology, a former Georgia Cancer Coalition Scholar, and directs a federally funded cancer research
FtB_Travis
in
Lung Cancer Support
8 years ago
New here
I am new year so here goes I am a amputee in a wheel chair and also have end stage COPD and Asthma and enthasima my doctor says there is no more they can do for me I am on oxygen 24/7 and nebulizer treatments all day I stop going out because I seem to have attacks that sometimes are very bad they scare
I am new year so here goes I am a amputee in a wheel chair and also have end stage COPD and Asthma and enthasima my doctor says there is no more they can do for me I am on oxygen 24/7 and nebulizer treatments all day I stop going out because I seem to have attacks that sometimes are very bad they scare
corkie65
in
COPD Friends
8 years ago
Finally having surgery on Thursday
Hi guys! Just wanted to give you all an update. After 9 months of seeing 2 GPs, 1 ENT specialist, 2 endocrinologists, I finally saw the surgeon last week. 9 months of pain (possibly due to recurrent thyroiditis). Had a biopsy on my nodules and it came back inconclusive and MRI scan showed that my trachea
Hi guys! Just wanted to give you all an update. After 9 months of seeing 2 GPs, 1 ENT specialist, 2 endocrinologists, I finally saw the surgeon last week. 9 months of pain (possibly due to recurrent thyroiditis). Had a biopsy on my nodules and it came back inconclusive and MRI scan showed that my trachea
Tamzin27
in
Thyroid UK
8 years ago
Update
Hi all, I'm not sure how many of you are aware but I'll give a brief summary and then an update . I'm 31 years old and was diagnosed with IPF nearly a year ago now, well to cut a very long story short I deteriorated very quickly and in may was placed on the transplant list for a double lung transplant
Hi all, I'm not sure how many of you are aware but I'll give a brief summary and then an update . I'm 31 years old and was diagnosed with IPF nearly a year ago now, well to cut a very long story short I deteriorated very quickly and in may was placed on the transplant list for a double lung transplant
Hidden
in
Lung Conditions Community Forum
8 years ago
A Lung Cancer Blogger's Story
I’m a long-time blogger who will celebrate the 10th anniversary of writing my first blog post this coming Christmas Day. My blog used to be about work, my family’s adventures on our sailboat, the things I knit, my daughter’s growth from teenage years through college. When I was diagnosed with stage IV
I’m a long-time blogger who will celebrate the 10th anniversary of writing my first blog post this coming Christmas Day. My blog used to be about work, my family’s adventures on our sailboat, the things I knit, my daughter’s growth from teenage years through college. When I was diagnosed with stage IV
scifiknitter
Blogger
in
Lung Cancer Support
8 years ago
Anybody Here Have A Lobectomy?
I am a basket case right now. I went for my surgery consult (after many tests) and it is suggested that my upper left lobe be removed, with a 10% chance that he might have to remove my whole left lung. Has anyone had this done? A quick background; two years ago I was diagnosed with stage 2 NSCLC on
I am a basket case right now. I went for my surgery consult (after many tests) and it is suggested that my upper left lobe be removed, with a 10% chance that he might have to remove my whole left lung. Has anyone had this done? A quick background; two years ago I was diagnosed with stage 2 NSCLC on
Kmkat
in
Lung Cancer Support
8 years ago
Lung Volume Reduction using Pulmonary Valves. (Revisited)
Back in November 2012, I wrote an article "Lung Volume Reduction using Pulmonary Valves. My experiences as a patient." The content of that post is still relevant, and may help some of the new members. So I decided to re-post it; Here it is:- Lung Volume Reduction using Pulmonary Valves. My experiences
Back in November 2012, I wrote an article "Lung Volume Reduction using Pulmonary Valves. My experiences as a patient." The content of that post is still relevant, and may help some of the new members. So I decided to re-post it; Here it is:- Lung Volume Reduction using Pulmonary Valves. My experiences
johnwr
in
Lung Conditions Community Forum
8 years ago
Ask Us Anything | Talk with Lung Cancer Researchers on Nov. 16 on HealthUnlocked
We are excited to share that Adam Marcus PhD and Suresh Ramalingam MD will be hosting an "Ask Us Anything" session on November 16 from 1 - 2pm Eastern Time. During this hour, be sure to join us here on the Free to Breathe HealthUnlocked community for the opportunity to ask questions and get live answers
We are excited to share that Adam Marcus PhD and Suresh Ramalingam MD will be hosting an "Ask Us Anything" session on November 16 from 1 - 2pm Eastern Time. During this hour, be sure to join us here on the Free to Breathe HealthUnlocked community for the opportunity to ask questions and get live answers
FtB_Travis
in
Lung Cancer Support
8 years ago
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