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Experiences with
Lung lobectomy
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Sarcoidosis messed with the wrong woman
After going through weeks of testing,I discovered this week that I am not suitable for a lung transplant. Because I have the sarcoidosis in my liver too,the transplant team at Newcastle decided after looking closely at my case,that my liver wouldn't cope with the transplant and they're 100% certain I
After going through weeks of testing,I discovered this week that I am not suitable for a lung transplant. Because I have the sarcoidosis in my liver too,the transplant team at Newcastle decided after looking closely at my case,that my liver wouldn't cope with the transplant and they're 100% certain I
gothmum
in
Lung Conditions Community Forum
9 years ago
Sir Alex Feguson's cough campaign, did you respond?
Hello all For the last two years Sir Alex Ferguson has featured on a campaign to raise awareness about lung cancer. We have been asked to see if we can find anyone who has been diagnosed with lung cancer, who took action partly because of the campaign. if you want to get in touch email us on info@roycastle.org
Hello all For the last two years Sir Alex Ferguson has featured on a campaign to raise awareness about lung cancer. We have been asked to see if we can find anyone who has been diagnosed with lung cancer, who took action partly because of the campaign. if you want to get in touch email us on info@roycastle.org
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
9 years ago
Heartbroken
Hi I'm 30 years old and over Christmas I was rushed into hospital with a severe chest infection which needed 100% O2 and back to back nebulisers iv antibiotics and steroids for the following 4 days. Within that time I had a chest ct scan and they kindly informed me that I have interstitial lung disease
Hi I'm 30 years old and over Christmas I was rushed into hospital with a severe chest infection which needed 100% O2 and back to back nebulisers iv antibiotics and steroids for the following 4 days. Within that time I had a chest ct scan and they kindly informed me that I have interstitial lung disease
Hidden
in
Lung Conditions Community Forum
9 years ago
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Coughing and IPF
G'day All We have finally had success with Susan's severe wet coughing fits. The Lung transplant Dr has recommended Panadene Forte as a means of reducing the attacks. Susan has been taking 1 tablet 3 times daily and has had very little coughing since. I do not know if it will assist everyone but
G'day All We have finally had success with Susan's severe wet coughing fits. The Lung transplant Dr has recommended Panadene Forte as a means of reducing the attacks. Susan has been taking 1 tablet 3 times daily and has had very little coughing since. I do not know if it will assist everyone but
Hidden
in
Lung Conditions Community Forum
9 years ago
Stage 4
Hi, I'm 41 and was diagnosed with stage 4 lung cancer two weeks ago. I had a lung biopsy yesterday and start chemo next week. I made the mistake of looking at life expectancies on the Internet and made myself insane. Does anyone know of anyone who has lived with stage 4 for a semi long time. My mum says
Hi, I'm 41 and was diagnosed with stage 4 lung cancer two weeks ago. I had a lung biopsy yesterday and start chemo next week. I made the mistake of looking at life expectancies on the Internet and made myself insane. Does anyone know of anyone who has lived with stage 4 for a semi long time. My mum says
Giblets9
in
The Roy Castle Lung Cancer Foundation
9 years ago
Looking for a Surgeon
Hi, I have a fungal ball in my
lung
and have been told that a
lobectomy
is my only option after antifungal drugs have not worked. Can anyone recommend a pulmonary surgeon in the USA that has experience with aspergilloma / fungal ball in lung/ CPA? Thank you
Hi, I have a fungal ball in my
lung
and have been told that a
lobectomy
is my only option after antifungal drugs have not worked. Can anyone recommend a pulmonary surgeon in the USA that has experience with aspergilloma / fungal ball in lung/ CPA? Thank you
goldiemc
in
Fungal Infection Trust
9 years ago
M.O.T?
My MOT has begun. Had Ecg passed, 6/8 not sure how many bottles blood taken,at least 6. Had contrast CT scan last Thursday, Buccaneers swab, still to go heart scan (echocardiogram or multi gated acquisition - MUGA scan, then the usual height, weight, temperature, BP, pulse ,oxygen in blood. Next appointment
My MOT has begun. Had Ecg passed, 6/8 not sure how many bottles blood taken,at least 6. Had contrast CT scan last Thursday, Buccaneers swab, still to go heart scan (echocardiogram or multi gated acquisition - MUGA scan, then the usual height, weight, temperature, BP, pulse ,oxygen in blood. Next appointment
Suzy6
in
Lung Conditions Community Forum
9 years ago
Roflumilast
Has anyone any experience of using Roflumilast? I know that it is not "licensed" as a prescription drug in Britain unless you are taking part in a clinical trial, but is used in Europe and America. The 'obstructive' element of my COPD seems to be getting worse and I wondered if it was worth getting
Has anyone any experience of using Roflumilast? I know that it is not "licensed" as a prescription drug in Britain unless you are taking part in a clinical trial, but is used in Europe and America. The 'obstructive' element of my COPD seems to be getting worse and I wondered if it was worth getting
BelleBea
in
Lung Conditions Community Forum
9 years ago
IPF
I take Esbriet has anyone ever heard of taking hemp oil for IPF? and does anyone know how well esbriet works. I've been on it for 6mths. Seems to help with cough. On oxygen 24/7
I take Esbriet has anyone ever heard of taking hemp oil for IPF? and does anyone know how well esbriet works. I've been on it for 6mths. Seems to help with cough. On oxygen 24/7
lmcfee
in
Lung Conditions Community Forum
9 years ago
Had a operation now suffering with insomnia
Hi all, I had a lung operation back in October and since I came home in November I've been having problems sleeping how this started was the pain keeping me up at night but now where I'm so tired and falling asleep in the daytime I can't sleep at night but I'm still tierd I've tried going to bed early
Hi all, I had a lung operation back in October and since I came home in November I've been having problems sleeping how this started was the pain keeping me up at night but now where I'm so tired and falling asleep in the daytime I can't sleep at night but I'm still tierd I've tried going to bed early
Wintersbite
in
Epilepsy Action
9 years ago
Humour - Something to cheer senior citizens up.
I am a Seenager. (Senior teenager) I have everything that I wanted as a teenager, only 60 years later. I don’t have to go to school or work, in fact anywhere I don’t want to. I get an allowance every month. I have my own house. I don’t have a curfew. I have a driver’s license and my own car. The people
I am a Seenager. (Senior teenager) I have everything that I wanted as a teenager, only 60 years later. I don’t have to go to school or work, in fact anywhere I don’t want to. I get an allowance every month. I have my own house. I don’t have a curfew. I have a driver’s license and my own car. The people
Hidden
in
Lung Conditions Community Forum
9 years ago
Harefield Hospital. Review
Hi everyone, Went to Harefield Hospital for a NIPPY review. I have severe COPD, on 1 litre oxygen and borderline CO2 retention. Several months ago, I was given a Bi-Pap machine (Positive Airways Pressure) The idea is that this machine keeps your airwaves open at the correct level while you sleep.
Hi everyone, Went to Harefield Hospital for a NIPPY review. I have severe COPD, on 1 litre oxygen and borderline CO2 retention. Several months ago, I was given a Bi-Pap machine (Positive Airways Pressure) The idea is that this machine keeps your airwaves open at the correct level while you sleep.
2malinka
in
Lung Conditions Community Forum
9 years ago
Any one taking Iressa
Hi ,my name is martin I am 59 yrs old non smoker.I was diagnosed with NSCLC adenocarcinoma 28082015 stage four which had spread to my pelvis and spine .I developed slight pain in my lower back which started to stop me sleeping properly so went to the doctor.I was was sent for xray and a lytic lesion
Hi ,my name is martin I am 59 yrs old non smoker.I was diagnosed with NSCLC adenocarcinoma 28082015 stage four which had spread to my pelvis and spine .I developed slight pain in my lower back which started to stop me sleeping properly so went to the doctor.I was was sent for xray and a lytic lesion
brodey
in
The Roy Castle Lung Cancer Foundation
9 years ago
Cold sores/Herpes simplex
I have read lately that some of you are suffering from cold sores. Aren't they not the most horrible things to suffer from ? I have had them often since childhood and at times they have been so bad that I can't even eat and have had to drink through a straw. At times I have had them very close to my
I have read lately that some of you are suffering from cold sores. Aren't they not the most horrible things to suffer from ? I have had them often since childhood and at times they have been so bad that I can't even eat and have had to drink through a straw. At times I have had them very close to my
PollyP
in
Lung Conditions Community Forum
9 years ago
Esmaleyla
Hi i am new to this site and so happy i came across it i had a lobectomy 17 month ago and i still experience pain in my chest and pain between my shoulder blades i am told it is nothing to worry about its due to the surgery nerve damage but i still worry that the cancers back can anyone relate
Hi i am new to this site and so happy i came across it i had a lobectomy 17 month ago and i still experience pain in my chest and pain between my shoulder blades i am told it is nothing to worry about its due to the surgery nerve damage but i still worry that the cancers back can anyone relate
esmaleyla
in
The Roy Castle Lung Cancer Foundation
9 years ago
Has anyone had a lung transplant?
They are starting to talk to my husband about lung transplant, just starting the pre-transplant listing testing period. Has anyone had a lung transplant? If so, what was it like for you? Suggestions of things to consider?
They are starting to talk to my husband about lung transplant, just starting the pre-transplant listing testing period. Has anyone had a lung transplant? If so, what was it like for you? Suggestions of things to consider?
WhiteTara
in
PCD Family Support Group (UK)
9 years ago
Cabergoline
Hello - I've been following this ?forum on & off for some months hoping to come across someone else who has/had a macroprolactinoma. Mine was discovered during routine staging following a lobectomy. It's being treated by an endocrinologist (!) with Cabergoline. At the moment it's stable, but would like
Hello - I've been following this ?forum on & off for some months hoping to come across someone else who has/had a macroprolactinoma. Mine was discovered during routine staging following a lobectomy. It's being treated by an endocrinologist (!) with Cabergoline. At the moment it's stable, but would like
emcee
in
The Roy Castle Lung Cancer Foundation
9 years ago
Thank God ive found you.
My Dad has been diagnosed with Lung Cancer, he is 75 and as all of you probably know you think thats it, or dad and I did until i watched the DVD that the nurse gave us from the Roy Castle Lung Cancer Foundation, it was like a breath of fresh air, after all the doom and gloom from the Doctors it was
My Dad has been diagnosed with Lung Cancer, he is 75 and as all of you probably know you think thats it, or dad and I did until i watched the DVD that the nurse gave us from the Roy Castle Lung Cancer Foundation, it was like a breath of fresh air, after all the doom and gloom from the Doctors it was
frankiedarv
in
The Roy Castle Lung Cancer Foundation
9 years ago
Update, Good News
Went for my post op out patients appointment today after my surgery in September for upper left
lung
lobectomy
and I got the all clear no lymph nodes involved no chemo needed and the cancer was in the early stages, I am over the moon, as you may know from my past posts I have also had my right upper
Went for my post op out patients appointment today after my surgery in September for upper left
lung
lobectomy
and I got the all clear no lymph nodes involved no chemo needed and the cancer was in the early stages, I am over the moon, as you may know from my past posts I have also had my right upper
littlenanny
in
The Roy Castle Lung Cancer Foundation
9 years ago
TO LOSE WEIGHT
HI not sure if anyone as the same problem as me when I go to the hospital for my appointment with doctor they said that I have put weight on I told that it was the steroids and that with my Fibromyalgia and lots of other problem I cannot Exercise which does not help me as they did a CT on my lungs and
HI not sure if anyone as the same problem as me when I go to the hospital for my appointment with doctor they said that I have put weight on I told that it was the steroids and that with my Fibromyalgia and lots of other problem I cannot Exercise which does not help me as they did a CT on my lungs and
Angels2810
in
Lung Conditions Community Forum
9 years ago
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