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Update on mums surgery
So my mum underwent a lobectomy and wedge resection 2 weeks ago. She has since suffered a pneumothorax on the right side due to a chest drain not functioning properly and also has an infection but is recovering. She spoke to her surgeon today and was told that the lymph nodes on her right side were showing
So my mum underwent a lobectomy and wedge resection 2 weeks ago. She has since suffered a pneumothorax on the right side due to a chest drain not functioning properly and also has an infection but is recovering. She spoke to her surgeon today and was told that the lymph nodes on her right side were showing
MissyD1
in
Lung Cancer Support
7 years ago
What do lung cancer patients want from our medical teams?
I recently had the opportunity to talk to a group of medical professionals about lung cancer survivorship issues, and a major focus of my talk was telling them what I think lung cancer patients want from our medical teams. I think that it is an important message to deliver because my medical team looks
I recently had the opportunity to talk to a group of medical professionals about lung cancer survivorship issues, and a major focus of my talk was telling them what I think lung cancer patients want from our medical teams. I think that it is an important message to deliver because my medical team looks
scifiknitter
Blogger
in
Lung Cancer Support
7 years ago
Lung cancer
Hi my husband has had a pet scan .awitibg results .he was hospitalized with nvery swollen painful hands. Still suffering is this normal with lung cancer .please
Hi my husband has had a pet scan .awitibg results .he was hospitalized with nvery swollen painful hands. Still suffering is this normal with lung cancer .please
Hidden
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The Roy Castle Lung Cancer Foundation
7 years ago
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Lung transplant!
It's been a while again since my last post. Health update is as follows oxygen while awake, I'm going to try O-fev, pulmonary rehab, and lose weight. I have begun the evaluation process for a lung transplant I think my biggest obstacle will be the weight loss. I've struggled with obesity my entire life
It's been a while again since my last post. Health update is as follows oxygen while awake, I'm going to try O-fev, pulmonary rehab, and lose weight. I have begun the evaluation process for a lung transplant I think my biggest obstacle will be the weight loss. I've struggled with obesity my entire life
docmel
in
Lung Conditions Community Forum
7 years ago
Cyramza/Taxotere
Yesterday was round 2 of Cyramza/Taxotere. All in all, side effects from round one were doable. Worst ones being mouth/tongue sores and major hair loss. Some fatigue but keeping up with life for which I am truly grateful. This is the second line treatment for me after progression on Alimta maintenance
Yesterday was round 2 of Cyramza/Taxotere. All in all, side effects from round one were doable. Worst ones being mouth/tongue sores and major hair loss. Some fatigue but keeping up with life for which I am truly grateful. This is the second line treatment for me after progression on Alimta maintenance
PegD
in
Lung Cancer Support
7 years ago
Bad news
Have been on immunotherapy for 4 treatments, had ct scan done, bad news two tumors have grown by 20%, have been offered a clinical trial,will find out tomorrow if i qualify
Have been on immunotherapy for 4 treatments, had ct scan done, bad news two tumors have grown by 20%, have been offered a clinical trial,will find out tomorrow if i qualify
Collinjo1
in
Lung Cancer Support
7 years ago
Advice requested on Pseudomonas / Bronchiectasis
Hi all, This is my first visit to this site and I have come across some great advice already. I have had Bronchiectasis for a good few year now and can normally control infections with various different oral antibiotics. However for the last 4 / 5 weeks I have not been able to 'Shift it' and have felt
Hi all, This is my first visit to this site and I have come across some great advice already. I have had Bronchiectasis for a good few year now and can normally control infections with various different oral antibiotics. However for the last 4 / 5 weeks I have not been able to 'Shift it' and have felt
Moonbeamsblessings
in
Lung Conditions Community Forum
7 years ago
Brain met
Hi unfortunately I had a seizure whilst bathing Sunday night, luckily help quickly at hand, got to hospital quickly unluckily I now have a diagnosis of cerebral met ,only one area that is good ,bad news initial treatment was curable intent right upper lobectomy and adjuvant chemo. in March 2015 .High
Hi unfortunately I had a seizure whilst bathing Sunday night, luckily help quickly at hand, got to hospital quickly unluckily I now have a diagnosis of cerebral met ,only one area that is good ,bad news initial treatment was curable intent right upper lobectomy and adjuvant chemo. in March 2015 .High
Hidden
in
The Roy Castle Lung Cancer Foundation
7 years ago
FDA Approves Keytruda Combo for Lung Cancer
The Food and Drug Administration has granted approval for a combination therapy with Keytruda (pembrolizumab) for patients with non–small cell lung cancer. This is the first time an immunotherapy has been approved for use with chemotherapy. Patients will not need to be tested for PD-L1 before starting
The Food and Drug Administration has granted approval for a combination therapy with Keytruda (pembrolizumab) for patients with non–small cell lung cancer. This is the first time an immunotherapy has been approved for use with chemotherapy. Patients will not need to be tested for PD-L1 before starting
FtB_Travis
in
Lung Cancer Support
7 years ago
Living in England and want to raise awareness about lung cancer?
Hello all We have been contacted by the Public Health team in England. We are pleased there is to be a new campaign on health including raising awareness of lung cancer and the importance of early detection. The team supporting this are keen to involve people with lung cancer who would feature as case
Hello all We have been contacted by the Public Health team in England. We are pleased there is to be a new campaign on health including raising awareness of lung cancer and the importance of early detection. The team supporting this are keen to involve people with lung cancer who would feature as case
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
7 years ago
Gabapentin
Just wondered if everyone after a lobectomy takes gabapentin and how long they have stayed on them for. Was reading something that made it sound like you could be left with permanent nerve dam age and would need to just stay on them!
Just wondered if everyone after a lobectomy takes gabapentin and how long they have stayed on them for. Was reading something that made it sound like you could be left with permanent nerve dam age and would need to just stay on them!
webbs8
in
The Roy Castle Lung Cancer Foundation
7 years ago
Lost my Mum to Lung Cancer in 2005, now my Dad has been diagnosed with the same
Feeling a little shell shocked this morning, my Dad was diagnosed with Lung Cancer yesterday. We had suspected something was not right, and over the last few weeks he's been for various tests etc. Yesterday he received the results. His cancer is too advanced for Chemo. He was offered Radiotherapy, but
Feeling a little shell shocked this morning, my Dad was diagnosed with Lung Cancer yesterday. We had suspected something was not right, and over the last few weeks he's been for various tests etc. Yesterday he received the results. His cancer is too advanced for Chemo. He was offered Radiotherapy, but
Andrew-Stoke-Poges
in
The Roy Castle Lung Cancer Foundation
7 years ago
Asbestosis
Hi guys. 4 weeks ago my father died suddenly in hospital at the age of 60... a post mortem was carried out and came back unatural death and now gone to inquest. He went in hospital severly short of.breath and each day got worse and worse untilk he couldnt tolerate the oxygen mask and was put on ventilator
Hi guys. 4 weeks ago my father died suddenly in hospital at the age of 60... a post mortem was carried out and came back unatural death and now gone to inquest. He went in hospital severly short of.breath and each day got worse and worse untilk he couldnt tolerate the oxygen mask and was put on ventilator
Zoe7978
in
Lung Conditions Community Forum
7 years ago
2 PRIMARY Lung Cancer
Have y'all heard of this 1st Dx 9/2015 Had RU lobectomy, Stg 1b, Adincarcinoma, 12 wkly chemo cicplatin, rotating with cicplatin & Navelbin 6 mths after chemo Jan 2017 Another Primary , UL lobectomy, Adincarcinoma , Stg 2a Advice, thoughts,
Have y'all heard of this 1st Dx 9/2015 Had RU lobectomy, Stg 1b, Adincarcinoma, 12 wkly chemo cicplatin, rotating with cicplatin & Navelbin 6 mths after chemo Jan 2017 Another Primary , UL lobectomy, Adincarcinoma , Stg 2a Advice, thoughts,
Gmassa13
in
Lung Cancer Support
7 years ago
Lung Transplant
Hi, I have just been to Wythenshaw Hospital for Assessment tests for a Lung Transplant. I will know next week if its a Yes or No. Can anyone advise me if they have had a transplant and if life IS better for them. I have Severe Emphysema and I am not well at all, I want to go for it if they say Yes,
Hi, I have just been to Wythenshaw Hospital for Assessment tests for a Lung Transplant. I will know next week if its a Yes or No. Can anyone advise me if they have had a transplant and if life IS better for them. I have Severe Emphysema and I am not well at all, I want to go for it if they say Yes,
ross-35_
in
Lung Conditions Community Forum
7 years ago
Advice please
Hi I've not posted before on this site although I've 'lurked'for a while. I am 60 yrs old. In 1991, 26 yrs ago , I had a right hemi colectomy which included the ileum. Right from the word go, I was given B12 inj. Six loading doses, then two monthly, then three monthly. No questions, told that I would
Hi I've not posted before on this site although I've 'lurked'for a while. I am 60 yrs old. In 1991, 26 yrs ago , I had a right hemi colectomy which included the ileum. Right from the word go, I was given B12 inj. Six loading doses, then two monthly, then three monthly. No questions, told that I would
Ccupcakes
in
Pernicious Anaemia Society
7 years ago
Re: Status of KRAS gene mutation research
I'm new to this group. Am a two year 4 month lung cancer survivor in remission from a small slow-growing BAC (now called NSCLC). At 9 mm x 7 mm tumor removed from lower left lobe by composite basilar segmentectomy. Genomic testing showed KRAS mutation, p.G12A. Even at stage 1aTN0, 40-45% chance of reocurrence
I'm new to this group. Am a two year 4 month lung cancer survivor in remission from a small slow-growing BAC (now called NSCLC). At 9 mm x 7 mm tumor removed from lower left lobe by composite basilar segmentectomy. Genomic testing showed KRAS mutation, p.G12A. Even at stage 1aTN0, 40-45% chance of reocurrence
Linshom
in
Lung Cancer Support
7 years ago
TRANSCRIPT: Ask Us Anything about Precision Medicine and Lung Cancer with Dr. Howard Jack West and Janet Freeman-Daily
Hello everyone and welcome to the 2nd Free to Breathe HealthUnlocked Ask Me Anything event! We also want to welcome our very special guests Dr. Howard Jack West and Janet Freeman-Daily. Go ahead and start typing your questions as a reply in this thread below. You can either ask a question to both of
Hello everyone and welcome to the 2nd Free to Breathe HealthUnlocked Ask Me Anything event! We also want to welcome our very special guests Dr. Howard Jack West and Janet Freeman-Daily. Go ahead and start typing your questions as a reply in this thread below. You can either ask a question to both of
FtB_Travis
in
Lung Cancer Support
7 years ago
lobectomy
Hello everyone - Jules here. Thank you so very much to all those wonderful people who responded to this post. The stories are all different, but all give me faith that my mum too can 'join the ranks' of you guys 'survived it'. I think you will remember me telling you that both my mum and me both ha
Hello everyone - Jules here. Thank you so very much to all those wonderful people who responded to this post. The stories are all different, but all give me faith that my mum too can 'join the ranks' of you guys 'survived it'. I think you will remember me telling you that both my mum and me both ha
Julesgettingthere
in
The Roy Castle Lung Cancer Foundation
7 years ago
LUNG TRANSPLANTATION SURVIVAL RATE
Mornin' everyone...thought my reply to a member on another site may be of some use to anyone waiting for a transplant.....G'day Mxxxxxxx..sensible reply to Pxxxx'S post...intrigued about your comments re...the survival rate after 1 year. My wife had a bilateral Tx in July last year, aged 65. We reside
Mornin' everyone...thought my reply to a member on another site may be of some use to anyone waiting for a transplant.....G'day Mxxxxxxx..sensible reply to Pxxxx'S post...intrigued about your comments re...the survival rate after 1 year. My wife had a bilateral Tx in July last year, aged 65. We reside
Hidden
in
Lung Conditions Community Forum
7 years ago
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