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The Journey Begins 7th August 2023
Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT scan. 12th August. Suspected lung cancer to right upper lobe .!! Early staging suggests T3/N2/M0 this now May have been a bit premature as Bronchoscopy
Nasty cough with shortness of breath , Local GP suspected chest infection, prescribed antibiotics and chest x ray, this picked up a issue so had chest CT scan. 12th August. Suspected lung cancer to right upper lobe .!! Early staging suggests T3/N2/M0 this now May have been a bit premature as Bronchoscopy
Beatthisthing2023
in
The Roy Castle Lung Cancer Foundation
8 months ago
The Wind Beneath My Wings Caregiver Award
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Behind every lung cancer patient stands a caregiver walking together with their loved one diagnosed with lung cancer. Whether it’s a shoulder to cry on or a ride to the doctor — caregivers are there to help. The caregiver is often the person behind the curtain, ensuring their loved one has everything
Miranda_GO2
Partner
in
Lung Cancer Support
8 months ago
post surgery recovery
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
I had lung surgery five weeks ago, lower left hand lobe The tumour was removed completely and the test results came back that it hasn’t spread to the lymph nodes which is fantastic news The problem I’m having is, I am still in excruciating pain in the area where the chest drain was , at the hospital
Rosegarden100
in
The Roy Castle Lung Cancer Foundation
8 months ago
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Lymphocytes still low
I know having
lung
disease
can cause a lot of aches and pains but I am a bit concerned now 😕
I know having
lung
disease
can cause a lot of aches and pains but I am a bit concerned now 😕
Carkaisabellacolin
in
Lung Conditions Community Forum
1 year ago
Feel like giving up.
A shadow area was found on my
lung
with suspected interstitial
lung
disease
( possibly RA related) , breathing tests and CT Scan ordered, which I had in January.
A shadow area was found on my
lung
with suspected interstitial
lung
disease
( possibly RA related) , breathing tests and CT Scan ordered, which I had in January.
3LittleBirds2
in
NRAS
2 months ago
colonoscope
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
Just wondering if anybody had deep sedation with this procedure and how was it thanks Sue. Just anxious about it all with Emphysema.
soul-123
in
Lung Conditions Community Forum
6 months ago
ILD and pulmonary hypertension caused by sjogrens
sjogrens and
lung
disease
. I have alveolitis, asthma and now interstitial
lung
disease
(ILD). My doc has now diagnosed pulmonary hypertension. My doc can find no cause for this. They did a bronchoscopy and my lungs were so inflamed they couldn’t take a sample for fear my lung would collapse.
sjogrens and
lung
disease
. I have alveolitis, asthma and now interstitial
lung
disease
(ILD). My doc has now diagnosed pulmonary hypertension. My doc can find no cause for this. They did a bronchoscopy and my lungs were so inflamed they couldn’t take a sample for fear my lung would collapse.
Xxxxxxx
in
The Australian Sjögren's Syndrome Association
1 year ago
Please Join Us! Tuesday September 12th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, September 12th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
9 months ago
Asbestos
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
Hi, everybody I had breathing problems last year. Went to my doctor & had a blood test that night I got a call to go straight to local hospital. Was there for14 hours but excellent service. Found build up of liquid in lungs & my ankles & lower legs were bigger. I had been cutting my socks as I thought
wimbledon
in
Lung Conditions Community Forum
6 months ago
#AskChatGPT - Top ADC Treatment for prostate cancer
The median duration of response was 4.4 months, with notable toxicities including interstitial
lung
disease
and cytopenia (https://www.onclive.com/view/adcs-novel-targets-represent-next-wave-of-treatment-advances-in-mcrpc).
The median duration of response was 4.4 months, with notable toxicities including interstitial
lung
disease
and cytopenia (https://www.onclive.com/view/adcs-novel-targets-represent-next-wave-of-treatment-advances-in-mcrpc).
God_Loves_Me
in
Advanced Prostate Cancer
18 days ago
Bed hair
Well I've had all my tests, I'm now severe, got pulmonary hypertension so the lung reduction is out of the question, apparently. I can go forward for a lung transplant but you know, I caused this with smoking, I gave up 2 years ago. And I don't fancy having my ribcage opened and someone else's blood
Well I've had all my tests, I'm now severe, got pulmonary hypertension so the lung reduction is out of the question, apparently. I can go forward for a lung transplant but you know, I caused this with smoking, I gave up 2 years ago. And I don't fancy having my ribcage opened and someone else's blood
Zand60
in
Lung Conditions Community Forum
9 months ago
GENETIC MUTATION SUPPORT GROUP
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
[u][i]
THE NEW GENETIC MUTATION GROUP STARTS THIS EVENING!
[/i][/u] If you have a genetically mutated lung cancer and wish to take part in a group that is aimed specifically at your diagnosis and meet others in a similar situation then this group could be of great benefit. The group is hosted
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
9 months ago
LUNG CANCER TREATMENT SUPPORT
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
[i]
NEW ONLINE SUPPORT GROUP STARTING UP!!
[/i]
This new support group is aimed at those in active treatment whatever that may be, surgery, chemo, immunotherapy, radiotherapy, targeted therapy.
A space to chat about your experiences, find out how others managed, emotional & practical support
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
9 months ago
Would you like to get more involved?
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
Hello community members, Roy Castle Lung Cancer Foundation often get asked for input to advisory groups, surveys and information on how diagnosis and treatment has impacted on peoples' lives. If you would like to become more involved or find out more about different ways of sharing your experiences
LorraineD
Roy Castle
in
The Roy Castle Lung Cancer Foundation
9 months ago
GET INVOLVED! - Lung Cancer Support
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
This is the week that a new round of our groups kick starts. If you are thinking of joining please reach out, the groups have benefitted people massively and could really give valuable help during a difficult time.
Immunotherapy & Treatment
- Tuesday evening 5th September 7-8pm - fortnightly
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
9 months ago
blood tests
So I had my blood results back and the long and the short of it is that I have certain antibodies which means I have an autoimmune
disease
-an antisynthetase syndrome which has
lung
disease
and skin problems,arthritis as part of it .
So I had my blood results back and the long and the short of it is that I have certain antibodies which means I have an autoimmune
disease
-an antisynthetase syndrome which has
lung
disease
and skin problems,arthritis as part of it .
Bronte007
in
Lung Conditions Community Forum
1 year ago
Actinic keratosis & Lung cancer
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Hi, Dad is in 5th week of taking Erlotinib and corresponding face rash appears to be under control with prescribed cream / antibiotics. Also good to see that his cough has reduced in frequency by around 90% and no increase in fatigue. My question is- dad has actinic keratosis ( for around 25 years +
Adaughter
in
The Roy Castle Lung Cancer Foundation
9 months ago
Lung nodule thanks every one who replied
I recently had a cardiac ct scan for chest tightness i have 3 stents stents the results showed that as well as copd which i also have there is now have a 20 mm lung nodule in my left lung Has anyone else have a nodule and how is it treated I have to have a repeat scan in 3 months and have been referred
I recently had a cardiac ct scan for chest tightness i have 3 stents stents the results showed that as well as copd which i also have there is now have a 20 mm lung nodule in my left lung Has anyone else have a nodule and how is it treated I have to have a repeat scan in 3 months and have been referred
Chrissca71
in
Lung Conditions Community Forum
7 months ago
Rib pain after breathing test
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
On 22nd I took respiratory test. Ribs in area of LUNG SURGERY in 2019 are very painful upon effort; front, side, and back. I'm taking tylenol and rubbing creams with little improvement. Any one experience this after test?
Lyubov
in
Lung Conditions Community Forum
2 months ago
Pembrolizumab & CLL
Greetings, has anyone got experience of taking Pembrolizumab while also having CLL. I have secondary lung cancer (non small cell) as a matatsisation of Squamous Cell Carcinoma.
Greetings, has anyone got experience of taking Pembrolizumab while also having CLL. I have secondary lung cancer (non small cell) as a matatsisation of Squamous Cell Carcinoma.
Meic13
in
Lung Conditions Community Forum
7 months ago
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