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Hydroxychloroquine and Azithromycin.
I also have Bronchiectasis, which is a
lung
disease
and recently have had breathing problems.
I also have Bronchiectasis, which is a
lung
disease
and recently have had breathing problems.
Biddy47
in
LUPUS UK
1 year ago
Bands pulmonary fibrosis tomography
disease
, post-covid 19 sequelae, I was not given any treatment, now I started having breathing difficulties again, the pulse oximeter shows spo2 97-98%, it doesn't matter if I make an effort or sit, I have difficulties.
disease
, post-covid 19 sequelae, I was not given any treatment, now I started having breathing difficulties again, the pulse oximeter shows spo2 97-98%, it doesn't matter if I make an effort or sit, I have difficulties.
Petre84
in
Lung Conditions Community Forum
6 months ago
PMR and Parkinson's Disease
I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial
lung
disease
(now resolved). Current situation: My GP suspects I now also have Parkinson’s Disease (PD). I saw the Neurologist on Friday.
I used to also take 25mg Methotrexate weekly but this was stopped in 2022 when I was hospitalised with Methotrexate-induced interstitial
lung
disease
(now resolved). Current situation: My GP suspects I now also have Parkinson’s Disease (PD). I saw the Neurologist on Friday.
JanetRosslyn
in
PMRGCAuk
7 months ago
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Lung Transplant appointment 28/11/23 Cancellled for the 2nd time due to Failure of Patient Transport
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
I was supposed to be having my lung transplant assessment today (28/11) at 2.45 but as before the NWAS didnt turn up. The manager at the Transplant section phoned & told me if I didnt come to the hospital they wouldn't see me. We had to explain we were waiting for the ambulance - he then cancelled the
Sara_2611
in
Lung Conditions Community Forum
7 months ago
Newly Diagnosed
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Mindini1964
in
The Roy Castle Lung Cancer Foundation
7 months ago
Intestinal Lung Disease
Has anyone had scarring of the lungs due to Scleroderma?
Has anyone had scarring of the lungs due to Scleroderma?
Athena2023
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
lung cancer
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Sally789
in
The Roy Castle Lung Cancer Foundation
7 months ago
Please Join us tomorrow, November 16th for our Coming Together Globally to Combat Stigma Living Room
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Michelezeh
Partner
in
Lung Cancer Support
7 months ago
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
7 months ago
International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
7 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
7 months ago
immunotherapy damaging kidneys
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
SharonTan
in
The Roy Castle Lung Cancer Foundation
7 months ago
Please Join Us! Tuesday November 14th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
7 months ago
Nintedanib
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Hi, I am absolutely useless with technology…… I wrote a lengthy update about myself, this drug, other drugs, hospital stay, decline of lung transplant at Harefield, referral to palliative care, oxygen - sorry goes on and on, just wanted to share the year’s overall experience. I can’t find the update
Bonchops10
in
Living with Interstitial Lung Disease (ILD)
8 months ago
Waiting game
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
Hi everyone, I don't have the flu jab, mainly because I have so much pain in my arm and it makes me feel so unwell, doctor not happy as I have severe COPD, not had the jab for last 3 years, touch wood do not suffer from colds flu etc. No covid follow ups either. Call me stupid, but we all do what is
purdeyspringer
in
Lung Conditions Community Forum
8 months ago
just advice support
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
I don’t really know what I want from this post only that it’s nearly 2am and I feel completely broken and wanted to put it down somewhere. I feel like I am breaking and I don’t want to upset anyone else with my worries, because they are worrying to and I don’t want sympathy from people I love because
Helpplease_
in
ICUsteps
8 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Conditions Community Forum
8 months ago
Lung Cancer Treatment
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
Have been diagnosed with lung cancer again (but now on the right), 6 years later, but this time they think caused by the radiotherapy I had for the breast cancer! Inoperable (have COPD), so I had the option of 'doing nothing' and was informed today may have 5 months left or agree to treatment, which
younginmind
in
Lung Cancer Support
8 months ago
Care oncology
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Hi I have stage 4 lung cancer and today have just found out that they are going to stop my immunotherapy as I have had to many side effects anyway my choices are to go back on chemo for a bit or I might be able to go a clinical trial. I've heard and read up a bit care oncology has anyone on here had
Leni22
in
The Roy Castle Lung Cancer Foundation
8 months ago
Severe heartburn after lobectomy
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
Hello,2/14/23 I had a lower rt lung lobectomy. Since that time I have horrific heartburn. Not just a little but debilitating. Has anyone else experienced this? I have had an endoscopy done and the dr reports that he can see no reason for my symptoms. I am now being referred to other Dr's one being a
MeLyndi
in
The Roy Castle Lung Cancer Foundation
8 months ago
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