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Experiences with
Livedo reticularis
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LIVER FUNCTION TESTS RESULTS
I have haemochromatosis and my liver function tests show ALP, AST and GGT are all high and have been for some time. Ferritin and folate low. I stopped drinking last November. Please can I have some advice. X
I have haemochromatosis and my liver function tests show ALP, AST and GGT are all high and have been for some time. Ferritin and folate low. I stopped drinking last November. Please can I have some advice. X
carriecatlady
in
British Liver Trust
2 years ago
Medication
Hi is carvedilol safe to take if you have liver disease portal hypertension Thanks for any information
Hi is carvedilol safe to take if you have liver disease portal hypertension Thanks for any information
Lippy42
in
British Liver Trust
2 years ago
Should I test? After a tattoo
I recently got my kids names tattooed on my wrist. I went to a clean shop one I’ve been to before and I used vegan ink. I still have this growing fear that came after about hep C and Hep b.
I recently got my kids names tattooed on my wrist. I went to a clean shop one I’ve been to before and I used vegan ink. I still have this growing fear that came after about hep C and Hep b.
mtk0925
in
Liver4Life
2 years ago
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Enlarged liver
Hi I have been told I have a mildly enlarged liver and fatty liver. The ultrasound was private and wasn't the best at relaying information. I knew I had a fatty liver but the enlarged bit has got me really worried. I don't know what it means. I've googled it but had to stop because it was taking me down
Hi I have been told I have a mildly enlarged liver and fatty liver. The ultrasound was private and wasn't the best at relaying information. I knew I had a fatty liver but the enlarged bit has got me really worried. I don't know what it means. I've googled it but had to stop because it was taking me down
Rawdy
in
British Liver Trust
2 years ago
Prednisolone Withdrawal Symptoms
I was taking 15mg of Prednisolone and was then put on 9mg of Budesonide at the same time with the idea of stopping Pred & staying on Bud. Trouble is they told me to stop Pred abruptly after one week without tapering. Last night & today I feel very, very rough. The only way to describe it is like I've
I was taking 15mg of Prednisolone and was then put on 9mg of Budesonide at the same time with the idea of stopping Pred & staying on Bud. Trouble is they told me to stop Pred abruptly after one week without tapering. Last night & today I feel very, very rough. The only way to describe it is like I've
Bigbluemonkey
in
British Liver Trust
2 years ago
Any advice about being a alcholic confused.
Hi people i sorry i feel abit let down by my hospital and doctors atm. I went into hospital last year may liver had failed, it was fouch and go 4 abit, so they say coz i cannot remember being in hospital. I was as in for a month and got let out on 5th of dec last year, since then i have seen my consultant
Hi people i sorry i feel abit let down by my hospital and doctors atm. I went into hospital last year may liver had failed, it was fouch and go 4 abit, so they say coz i cannot remember being in hospital. I was as in for a month and got let out on 5th of dec last year, since then i have seen my consultant
November13
in
British Liver Trust
2 years ago
Endoscopy
Hi, my hubby is newly diagnosed with decompensated cirrhosis, he had ascites in legs and abdomen a few weeks ago which has now gone. He had an endoscopy today which showed no sign of cancer or varices. However may I ask a few questions. His tummy still seems a little bloated from the endoscopy, how do
Hi, my hubby is newly diagnosed with decompensated cirrhosis, he had ascites in legs and abdomen a few weeks ago which has now gone. He had an endoscopy today which showed no sign of cancer or varices. However may I ask a few questions. His tummy still seems a little bloated from the endoscopy, how do
Moux1
in
British Liver Trust
2 years ago
Decompensated cirrhosis help for a drinker who can’t/won’t stop.
Hi A family member has decompensated cirrhosis, he is jaundice and has swelling of the legs. He can’t sleep at night constant wake ups saying he needs to go for a pee but nothing there, he walks so slowly and is getting bad leg cramps. He drinks 3-5 pints of lager a day - more at weekend. Socially he
Hi A family member has decompensated cirrhosis, he is jaundice and has swelling of the legs. He can’t sleep at night constant wake ups saying he needs to go for a pee but nothing there, he walks so slowly and is getting bad leg cramps. He drinks 3-5 pints of lager a day - more at weekend. Socially he
Pink1day
in
British Liver Trust
2 years ago
Use of Hep C infected Organs
Hiya partner nrly on transplant list last call on Monday from consultant for consent. Co- ordinators have asked him to read up about receiving a liver with hep C/B has any members got advice or had transplant with this? Thanks
Hiya partner nrly on transplant list last call on Monday from consultant for consent. Co- ordinators have asked him to read up about receiving a liver with hep C/B has any members got advice or had transplant with this? Thanks
Arms-1
in
British Liver Trust
2 years ago
Delusions/Hallucinarions
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
I became very sick 5 years ago with all the symptoms of PA but was undiagnosed. I got to the point where I started having delusions of parasitosis and hallucinations. Has anyone else experienced delusions or halluconations? I'm afraid my brain may have been permanently damaged?
sunshinebee
in
Pernicious Anaemia Society
2 years ago
Nutritionist denial
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
Got my formal denial from Medicare for a nutritionist today. Liver was not covered even when asking for an exception, nor was liver transplant. Only things listed were; diabetes, kidney and transplant, weightloss. Nothing about heart although I know there is a heart diet and exercise program, I know
ThyroidDeb
in
Living with Fatty Liver and NASH
2 years ago
Diet for fibrosis
Hi I still haver liver fibrosis through alcohol and haven’t touched a drop for 2 years now, but my ELF score has gone up from 9.8, 10.1, 9.1, now 10.1 again (all done at 6 monthly intervals) I don’t understand why? I lost two stone in weight although I have put a stone back on, but my ultrasound last
Hi I still haver liver fibrosis through alcohol and haven’t touched a drop for 2 years now, but my ELF score has gone up from 9.8, 10.1, 9.1, now 10.1 again (all done at 6 monthly intervals) I don’t understand why? I lost two stone in weight although I have put a stone back on, but my ultrasound last
kippy2
in
British Liver Trust
2 years ago
The latest on my partner and a thanks for all the support on here!!
After his Ultra Sound scan on Friday the results came in they have confirmed that all his organs are in tip top condition apart from the Liver of course. However they have confirmed that there is no Cirrhosis and that it is in fact Fibrosis which he has been told that if he carries on with the hard work
After his Ultra Sound scan on Friday the results came in they have confirmed that all his organs are in tip top condition apart from the Liver of course. However they have confirmed that there is no Cirrhosis and that it is in fact Fibrosis which he has been told that if he carries on with the hard work
Bibbs
in
British Liver Trust
2 years ago
4 years post transplant and now a fibro scan of happy liver
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
Received a Liver Transplant 12/2017. 4 years later ... Life has been good. However, today I go to my Hepatologist for a Fibro scan of my Happy Liver. Checking for Fiberosous. Fibro scan is similar to Ultra Scan but it is supposed to give better image. Saying a prayer all good. I feel good with
meme7
in
British Liver Trust
2 years ago
To continue or not....that is the question
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
I started treatment in July 2021 after 18 months on W&W. Initially I was treated with Obinutuzumab but I had a severe reaction to the first 20mg and ended up in the A&E resuscitation ward. I was then swopped to Rituximab and Venetoclax, which was explained as normally being a second line treatment which
Dawson21
in
CLL Support
2 years ago
Waiting for blood and ultrasound results, suspected cirrhosis and portal hypertension
Had bloods taken February and Ultrasound March and am awaiting results. I gave up alcohol in February which I haven't found too difficult. The sonographer told me quite a bit, apparently pancreas, kidneys, spleen and gall bladder seem to be okay. There is some scarring on my liver but he said he'd seen
Had bloods taken February and Ultrasound March and am awaiting results. I gave up alcohol in February which I haven't found too difficult. The sonographer told me quite a bit, apparently pancreas, kidneys, spleen and gall bladder seem to be okay. There is some scarring on my liver but he said he'd seen
eileenet49
in
British Liver Trust
2 years ago
Moorefields Consultant
I had an appointment at Moorefields on the 14th February this year and my Consultant said i had pernicious anemia and that my GP was to give me B12 injections - well she will not do it - this is the third time in eighteen months that she has refused what the consultants say and they even send her letters
I had an appointment at Moorefields on the 14th February this year and my Consultant said i had pernicious anemia and that my GP was to give me B12 injections - well she will not do it - this is the third time in eighteen months that she has refused what the consultants say and they even send her letters
xeena
in
Glaucoma UK
2 years ago
Tests before a liver transplant
Hi everyone. I'm Mark. I'm new to all this. I've been told that I will have a liver transplant. I've been told also that I need test done.... heart.... lungs ect. Can anyone tell me what the test are and length of time doin the tests please. As you can imagine I'm s%%ting it. Lol. Thanks x
Hi everyone. I'm Mark. I'm new to all this. I've been told that I will have a liver transplant. I've been told also that I need test done.... heart.... lungs ect. Can anyone tell me what the test are and length of time doin the tests please. As you can imagine I'm s%%ting it. Lol. Thanks x
marknash67
in
British Liver Trust
2 years ago
Is this Terry's Nails? Am i Suffering from any of the Liver Diseases?
I am 23 right now, and have had this color of pale nails since birth. I have never ever thought about it earlier thinking that it's normal and since I am non-alcoholic I had a misconception that only drinkers get liver diseases... But today i came accross Terry's nails in internet and felt that the pictures
I am 23 right now, and have had this color of pale nails since birth. I have never ever thought about it earlier thinking that it's normal and since I am non-alcoholic I had a misconception that only drinkers get liver diseases... But today i came accross Terry's nails in internet and felt that the pictures
Soorajv
in
British Liver Trust
2 years ago
A Good Day
Saw my new consultant today & my new liver nurse & they were both fantastic. He explained everything clearly to me. He is trying me on Budesonide 9mg a day which is a corticosteroid & stays in the liver longer than pred. I didnt fancy using 6MP after the nightmare I had with Azathioprine. There was
Saw my new consultant today & my new liver nurse & they were both fantastic. He explained everything clearly to me. He is trying me on Budesonide 9mg a day which is a corticosteroid & stays in the liver longer than pred. I didnt fancy using 6MP after the nightmare I had with Azathioprine. There was
Bigbluemonkey
in
British Liver Trust
2 years ago
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