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Livedo reticularis
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Fibroscan update
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Update on my fibroscan.Hi All Just a quick update from last month, since then I've had a CT scan and a biopsy yesterday, so now just waiting for the results I'm worried but know they will try everything to see what's going on, As I'm only one year post transplant. Is it possible that the bile buct
Refs
in
British Liver Trust
2 years ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
Acamprosate and Liver Cirrhosis
I have had cirrhosis for five years. Recently I was prescribed Acamprosate to prevent the urge to drink (I fell off the wagon three months ago). I have been taking Acamprosate for the last three months and find them very effective. The instructions state that I can take this medication for up to
I have had cirrhosis for five years. Recently I was prescribed Acamprosate to prevent the urge to drink (I fell off the wagon three months ago). I have been taking Acamprosate for the last three months and find them very effective. The instructions state that I can take this medication for up to
Beauport
in
British Liver Trust
2 years ago
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Mould and mycotoxins as root cause of hashimotos/ hypothyroidism!!!
Hello, I have just joined this group and want to share my journey over this past year including my new revelation for those who might be interested or it could help. I was diagnosed with subclinical hypothyroidism a year ago and offered levothyroxine by my GP due to my symptoms but that was and is
Hello, I have just joined this group and want to share my journey over this past year including my new revelation for those who might be interested or it could help. I was diagnosed with subclinical hypothyroidism a year ago and offered levothyroxine by my GP due to my symptoms but that was and is
LucyYoga
in
Thyroid UK
1 year ago
any help plz
just had been diagnosed with Cirrhosis after very high fibroscan results I was told by letter and I won’t be seeing liver specialist until January I have no idea what stage it is at or anything is this normal to be told and then have to wait so long ?
just had been diagnosed with Cirrhosis after very high fibroscan results I was told by letter and I won’t be seeing liver specialist until January I have no idea what stage it is at or anything is this normal to be told and then have to wait so long ?
Liver007123
in
British Liver Trust
2 years ago
Hope and so determind
Hello all. Consultant advised me on 22/10/22(Tattooed in my head) I am F4 with Cirrhosis (not sure level of Cirrhosis) My Fibroscan was 23.6, 18.6 is the start of F4. Prior to the appointment not had a drink in 3.5 weeks at all. Had Bloods on same day of appointment, received results Friday 28/10
Hello all. Consultant advised me on 22/10/22(Tattooed in my head) I am F4 with Cirrhosis (not sure level of Cirrhosis) My Fibroscan was 23.6, 18.6 is the start of F4. Prior to the appointment not had a drink in 3.5 weeks at all. Had Bloods on same day of appointment, received results Friday 28/10
55spenc
in
British Liver Trust
2 years ago
Caring for Dad with liver cancer........
My Dad is 82, and was diagnosed in August this year. He'd been unwell for most of the year, then caught Covid in June and thankfully this led to some blood tests from his GP. He then collapsed and got taken into hospital where he was diagnosed with liver cancer. He has got 3 metastatic tumours, and
My Dad is 82, and was diagnosed in August this year. He'd been unwell for most of the year, then caught Covid in June and thankfully this led to some blood tests from his GP. He then collapsed and got taken into hospital where he was diagnosed with liver cancer. He has got 3 metastatic tumours, and
JulesVee70
in
British Liver Trust
2 years ago
Unsure how to proceed
so first , I’m in the US not UK so every single little thing medical is $$$. I’ve had pain in the liver area off and on honestly about 3 years now . More towards the back and it’s not really pain as much as heaviness feeling or fullness idk if that makes sense. The last few months seems like it’s getting
so first , I’m in the US not UK so every single little thing medical is $$$. I’ve had pain in the liver area off and on honestly about 3 years now . More towards the back and it’s not really pain as much as heaviness feeling or fullness idk if that makes sense. The last few months seems like it’s getting
Mom23dds
in
British Liver Trust
2 years ago
Listed but improving UKELD
This is a bit of a strange one. Partner has decompensated cirrhosis, listed about 4 weeks ago. We cried with relief when he was listed - he has been so poorly and had a heart scare (that turned out to be nothing when investigated) so were SO SO grateful to be listed. However UKELD has improved slowly
This is a bit of a strange one. Partner has decompensated cirrhosis, listed about 4 weeks ago. We cried with relief when he was listed - he has been so poorly and had a heart scare (that turned out to be nothing when investigated) so were SO SO grateful to be listed. However UKELD has improved slowly
Rshc
in
British Liver Trust
2 years ago
korsakoff
my husband was diagnosed in June 2020 with alcohol related brain damage and alcohol related liver desease in May this year. it would be lovely to speak with people who understand these conditions and share experiences.
my husband was diagnosed in June 2020 with alcohol related brain damage and alcohol related liver desease in May this year. it would be lovely to speak with people who understand these conditions and share experiences.
Diamondbabe
in
British Liver Trust
2 years ago
Decompensated liver
Hi my husband was diagnosed with decompensated liver in October 22, he's abstained from alcohol, has lost 3 stone,and looks and feels well!Past few days he's noticed his feet swelling again, it's hard to put his shoes on! He's on spironolactone 100mg everyday with 20mg furosemide in morning and 40mg
Hi my husband was diagnosed with decompensated liver in October 22, he's abstained from alcohol, has lost 3 stone,and looks and feels well!Past few days he's noticed his feet swelling again, it's hard to put his shoes on! He's on spironolactone 100mg everyday with 20mg furosemide in morning and 40mg
Tulip1973
in
British Liver Trust
1 year ago
referred
just been referred to QE Birmingham to transplant team yesterday really worried about it all my brother wants to give me half of his liver and don't want for him to go through with it. anyone out there who can't stop drinking I urge them to stop straight away the stress of it all, is not worth it, I
just been referred to QE Birmingham to transplant team yesterday really worried about it all my brother wants to give me half of his liver and don't want for him to go through with it. anyone out there who can't stop drinking I urge them to stop straight away the stress of it all, is not worth it, I
lonmallin50
in
British Liver Trust
2 years ago
Moderate Fatty Liver with normal liver enzymes
I was diagnosed with NAFLD in 2018 while undergoing gallbladder removal surgery. I had been thin most of my life and had only “packed on the pounds” in the last 4-5 years, and wasn’t overweight at the time of the surgery, so she thought it was odd to see my liver so fatty. My PCP sent me for ultrasounds
I was diagnosed with NAFLD in 2018 while undergoing gallbladder removal surgery. I had been thin most of my life and had only “packed on the pounds” in the last 4-5 years, and wasn’t overweight at the time of the surgery, so she thought it was odd to see my liver so fatty. My PCP sent me for ultrasounds
Tr33cy
in
British Liver Trust
2 years ago
Terrible sleep - What do I need cortisol, liver, adrenals, perimenopause testing- all of them? Any advice please?
Hi All I'm having a bit of a crash at the moment and having to cancel so many social events, which is frankly quite depressing! I need a bit of help and am wondering if some kind soul might advice me. I've been doing lots of trawling and it is quite a minefield working out what we need given that the
Hi All I'm having a bit of a crash at the moment and having to cancel so many social events, which is frankly quite depressing! I need a bit of help and am wondering if some kind soul might advice me. I've been doing lots of trawling and it is quite a minefield working out what we need given that the
clarityforest
in
Thyroid UK
2 years ago
compensated cirrhosis
I know I’m the past year I’ve had lots of questions and concerns with the possibility of liver disease/cirrhosis. And this group has been very helpful. I’ve had multiple ultrasounds in the past few years. Some noting a minimally heterogeneous liver and the latest two note a normal appearing liver. I’
I know I’m the past year I’ve had lots of questions and concerns with the possibility of liver disease/cirrhosis. And this group has been very helpful. I’ve had multiple ultrasounds in the past few years. Some noting a minimally heterogeneous liver and the latest two note a normal appearing liver. I’
rupertj
in
British Liver Trust
2 years ago
Experience of benign liver tumours or liver cysts?
A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them. Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would
A reminder that we are also starting work on updating our information about these conditions and would really like to hear from you if you have experienced them. Please get in touch by emailing Kirsty.sharrock@britishlivertrust.org.uk if you have, or have had, any of the conditions below and would
BritishLiverTrust1
Partner
in
British Liver Trust
1 year ago
liver transplant
i might be getting referred to the QE hopspital soon for transplant review my brother come to see me yesterday and offered 1/2 of his liver which was quite a shock he said he would take no for a answer but he got young kids and would not to live with myself if some thing went wrong with him how successful
i might be getting referred to the QE hopspital soon for transplant review my brother come to see me yesterday and offered 1/2 of his liver which was quite a shock he said he would take no for a answer but he got young kids and would not to live with myself if some thing went wrong with him how successful
lonmallin50
in
British Liver Trust
2 years ago
No figures
Reading all your helpful posts I realise I have no facts about my husband's condition. You quote test results, levels etc, and we have nothing. Could be England vs Scotland or USA vs UK,private vs NHS, but we've not been given anything. He went into hospital recently with ascites and I think
Reading all your helpful posts I realise I have no facts about my husband's condition. You quote test results, levels etc, and we have nothing. Could be England vs Scotland or USA vs UK,private vs NHS, but we've not been given anything. He went into hospital recently with ascites and I think
MrsWorried
in
British Liver Trust
2 years ago
Food question
Hello everyone I have been diagnosed with pbc for almost 2 years now. I am not sure which stage I am as I am too scared to get the biopsy. I am guessing its an early stage as my bilirubin and albumin are in the normal range and my doctor said so far my liver is ok. My problem is that I am struggling
Hello everyone I have been diagnosed with pbc for almost 2 years now. I am not sure which stage I am as I am too scared to get the biopsy. I am guessing its an early stage as my bilirubin and albumin are in the normal range and my doctor said so far my liver is ok. My problem is that I am struggling
Sara978
in
PBC Foundation
2 years ago
Court of Protection
Hi guys, I was wondering if anyone in this group had any information on the Court of protection process. I am helping my freind appeal his DOLs through the COP and his anxiety is through the roof and is worrying himself sick about what will be asked of him. He has cirrhosis and Hepatic Encephalopathy
Hi guys, I was wondering if anyone in this group had any information on the Court of protection process. I am helping my freind appeal his DOLs through the COP and his anxiety is through the roof and is worrying himself sick about what will be asked of him. He has cirrhosis and Hepatic Encephalopathy
CHanse
in
British Liver Trust
2 years ago
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