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Confused
Hi Everyone I have had PMR for about 4months now , I take 15mg ofSteroids lowered down to 14 mg now, have had blood tests every 4 weeks and see doctor also every 4weeks . saw doc today and tests for my white cells have gone up each month ,he thinks that I have
Leukaemia
and have been referred to a
Hi Everyone I have had PMR for about 4months now , I take 15mg ofSteroids lowered down to 14 mg now, have had blood tests every 4 weeks and see doctor also every 4weeks . saw doc today and tests for my white cells have gone up each month ,he thinks that I have
Leukaemia
and have been referred to a
Annecath
in
PMRGCAuk
6 years ago
Does anyone know whether you can take vitamin B12 whilst taking hydroxycarbamide?
I have read that vitamin B12 can help anaemia and some cancers, I've been taking hydroxycarbamide for nearly a year, is it safe to take vitamin B12?
I have read that vitamin B12 can help anaemia and some cancers, I've been taking hydroxycarbamide for nearly a year, is it safe to take vitamin B12?
lizl
in
MPN Voice
6 years ago
https://www.sanger.ac.uk/ From eye drops to potential Leukaemia treatment.
I am speechless and full of hope for the future.
I am speechless and full of hope for the future.
Kelly2
in
MPN Voice
6 years ago
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Myelofibrosis
My ‘crossover’ MPN has transformed to Myelofibrosis ( confirmed by BMB) and my new consultant has decided that the only medication is Ruxolitinib. Can anyone reassure me as to its efficacy, and if they have suffered side effects..... it all sounds quite toxic. My HB has also plunged to 60, and
My ‘crossover’ MPN has transformed to Myelofibrosis ( confirmed by BMB) and my new consultant has decided that the only medication is Ruxolitinib. Can anyone reassure me as to its efficacy, and if they have suffered side effects..... it all sounds quite toxic. My HB has also plunged to 60, and
skipperL
in
MPN Voice
6 years ago
VIT B12 deficiency
Hi - just wondered if anyone else had this and if it's linked to HCL? I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you
Hi - just wondered if anyone else had this and if it's linked to HCL? I had treatment 5 years ago with Cladribine. I'm seeing GP on Wednesday following a blood test which said I was low in VIt B12 so just curious and want to go informed! Thank you
emmieb-UK
in
Leukaemia Support
6 years ago
Deborah Sims and Professor Peter Hillmen discuss data presented at ASH. Exciting new CLL treatments emerge as data matures
Fantastic job by our friend and CLL patient Deborah Sims, interviewing Professor Peter Hillmen at the American Society of Hamatology Conference (ASH) in San Diago. Prof Hillmen presented key UK trial data at the conference and shared insights with Deborah about new combination therapies, the MURANO
Fantastic job by our friend and CLL patient Deborah Sims, interviewing Professor Peter Hillmen at the American Society of Hamatology Conference (ASH) in San Diago. Prof Hillmen presented key UK trial data at the conference and shared insights with Deborah about new combination therapies, the MURANO
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Hope
Being diagnosed a year and a half ago at age 55 I have like everyone on this forum wake up trying to fin my way within this new world of cll. I have followed this forum which has provided me with so much information, appreciation an gratitude. For those that have shared their personal experiences thank
Being diagnosed a year and a half ago at age 55 I have like everyone on this forum wake up trying to fin my way within this new world of cll. I have followed this forum which has provided me with so much information, appreciation an gratitude. For those that have shared their personal experiences thank
Superdad3
in
CLL Support
6 years ago
Yet another Low-Dose Aspirin study.
Compared with patients who had not been prescribed aspirin, aspirin usage led to significant reduction of cancers in liver (RR:0.49); stomach (RR:0.42); colorectum (RR:0.71); lung (RR:0.65); pancreas (RR:0.54); oesophagus (RR:0.59); and
leukaemia
(RR:0.67).
Compared with patients who had not been prescribed aspirin, aspirin usage led to significant reduction of cancers in liver (RR:0.49); stomach (RR:0.42); colorectum (RR:0.71); lung (RR:0.65); pancreas (RR:0.54); oesophagus (RR:0.59); and
leukaemia
(RR:0.67).
pjoshea13
in
Advanced Prostate Cancer
6 years ago
Cll and being breathless.
About 4 years ago I was diagnosed with cll. I've noticed over a few years I'm getting breathless more often and it's lead to panic attacks. A doctor Darren Schmidt on YouTube said the condition could be due to a lack of vitamin B . I've just started taking vitamin B and the difference is incredible.
About 4 years ago I was diagnosed with cll. I've noticed over a few years I'm getting breathless more often and it's lead to panic attacks. A doctor Darren Schmidt on YouTube said the condition could be due to a lack of vitamin B . I've just started taking vitamin B and the difference is incredible.
Marktruckingkelly
in
CLL Support
6 years ago
For The First Time In My Life I Am Feeling Totally Broken!
I try to think of my friend who has spent the last year fighting
leukaemia
and who has been critically ill for the last six weeks, whom I am now only able to support remotely.
I try to think of my friend who has spent the last year fighting
leukaemia
and who has been critically ill for the last six weeks, whom I am now only able to support remotely.
Marilyn1959
in
PMRGCAuk
6 years ago
Cancer update
Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage is too much . He is starting chemotherapy tomorrow but this is just as a palliative measure. Once again thank you everyone for your support
Sorry not on for a while. I had to rush my husband into hospital yesterday. We were told that his cancer has spread all over his abdominal organs. The damage is too much . He is starting chemotherapy tomorrow but this is just as a palliative measure. Once again thank you everyone for your support
Josieswolf
in
LUPUS UK
6 years ago
Living with blood cancer related fatigue
Further information that may help can be found on our website, Living With and Combating fatigue https://www.leukaemiacare.org.uk/support-and-information/information-about-blood-cancer/living-well-with-
leukaemia
/fatigue/ or https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care
Further information that may help can be found on our website, Living With and Combating fatigue https://www.leukaemiacare.org.uk/support-and-information/information-about-blood-cancer/living-well-with-
leukaemia
/fatigue/ or https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care
HAIRBEAR_UK
in
Leukaemia Support
6 years ago
Polycythemia and Jakafi
I have had ET for 13 years and then PV for a year. I am a 74 YO white male. I have been taking 1000mg of hydra every day for 14 years. I got some bad mouth sores and my doctor put me on Jakafi. My CBC showed platelets at 340 10(3), White cells at 14.1 10(3), and RBC at 4.31 10(6) when I started 10mg/
I have had ET for 13 years and then PV for a year. I am a 74 YO white male. I have been taking 1000mg of hydra every day for 14 years. I got some bad mouth sores and my doctor put me on Jakafi. My CBC showed platelets at 340 10(3), White cells at 14.1 10(3), and RBC at 4.31 10(6) when I started 10mg/
ccsial
in
MPN Voice
6 years ago
What is the relevance of "Atypical Lymphocyte count"
The US Veterans Administration has recently added the parameter called "atypical lymphocyte count" to my periodic CBC blood test. I have CLL currently on a w & w protocol. My last blood test reported a WBC of 17,310/uL and my absolute lymphocyte count was 6,060/uL and my " lymphocyte count plus
The US Veterans Administration has recently added the parameter called "atypical lymphocyte count" to my periodic CBC blood test. I have CLL currently on a w & w protocol. My last blood test reported a WBC of 17,310/uL and my absolute lymphocyte count was 6,060/uL and my " lymphocyte count plus
markjeep51
in
CLL Support
6 years ago
I'm new to Essential Thrombocythemia
Is there anyone out there to talk about ET experience, doubts and futures? I was diagnosed this summer but I've probably had it at least 2 years since bleeding symptoms first attracted attention. I'm a CALR mutation and taking hydroxycarbamide/hydroxyurea. I find researching it really interesting and
Is there anyone out there to talk about ET experience, doubts and futures? I was diagnosed this summer but I've probably had it at least 2 years since bleeding symptoms first attracted attention. I'm a CALR mutation and taking hydroxycarbamide/hydroxyurea. I find researching it really interesting and
Jdogs
in
MPN Voice
6 years ago
“Closing One Door, Opening Another” by Dr. Brian Koffman from CLL Society
Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote himself full time to the CLL community. Below is his touching letter he posted on his CLLSociety blog: Today was a monumental day for me. A huge transition
Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote himself full time to the CLL community. Below is his touching letter he posted on his CLLSociety blog: Today was a monumental day for me. A huge transition
Anastasia1
in
CLL Support
6 years ago
CLL
Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range as well 11.2 latest one, I have smudge cells present , Today was first time my MCH was low , now outrageously low but low. It scared me , I know
Diagnosed On Dec 11 2017 , I go every 3 months for blood work,My WBC is always out of range 16.7 asof latest one, and my lymphocytes are always out of range as well 11.2 latest one, I have smudge cells present , Today was first time my MCH was low , now outrageously low but low. It scared me , I know
Shellcanada71
in
CLL Support
6 years ago
CLL Society Alert -USA Patient Support Groups & Educational Meetings - Free 2nd Opinions by Video conference & Financial Assistance
See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote
See http://campaign.r20.constantcontact.com/render?m=1120967015548&ca=b6383392-2aad-42b8-b327-03126332eac0 for a more readable image with active links. Dear Friends and Supporters of the CLL Society, This week Dr. Koffman shares a huge change in his life as he retires from family medicine to devote
lankisterguy
Volunteer
in
CLL Support
6 years ago
Daily Smokers Have a More than 3 Times Increased Risk for MPN
Daily Smokers Have a More than 3 Times Increased Risk for MPN NOVEMBER 28, 2018 Einav Keet The results of a new study conducted by investigators in Denmark suggest that smoking may be a risk factor for the development of myeloproliferative neoplasms (MPN), a rare group of blood cancers. Chronic myeloproliferative
Daily Smokers Have a More than 3 Times Increased Risk for MPN NOVEMBER 28, 2018 Einav Keet The results of a new study conducted by investigators in Denmark suggest that smoking may be a risk factor for the development of myeloproliferative neoplasms (MPN), a rare group of blood cancers. Chronic myeloproliferative
shiftzz
in
MPN Voice
6 years ago
PV diet and excercise in addition to hydroxycarbamide
I had my bloods checked yesterday and my platelets have increased dramatically over the last few months. I was told by my haematologist that I would have to increase the dosage I take of hydroxycarbamide. I said I really didn’t want to take anymore tablets and said would it not help if I excercised more
I had my bloods checked yesterday and my platelets have increased dramatically over the last few months. I was told by my haematologist that I would have to increase the dosage I take of hydroxycarbamide. I said I really didn’t want to take anymore tablets and said would it not help if I excercised more
Hughley
in
MPN Voice
6 years ago
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