Experiences with

Leukaemia

When someone is diagnosed with CLL they have at least one clone of B lymphocytes that are growing faster than they should and/or dying less than they should. As a result we are diagnosed with cancer. But the illness may be slow growing, not even needing treatment initially, but may develop to a point

She checked her medicine book and there were no contraindications for leukaemia but just wondered if anyone else had any knowledge or experience? I've always been someone who said I'd never have it but I'm having severe issues and benefits may outweigh the risks. Thanks. I have HCL.

The Canadian lymphoma association says that the likelihood of ET progressing to MF or leukaemia is about 1%. My haematologist says maybe 3 to 5%. In any case very very low. I am assuming that is the experience with most of those on this forum – – even the long-termers. Is my assumption correct?

I’ve been told by my GP that he can no longer prescribe Fentanyl lozenges for my breakthrough pain. I’ve always known they are palliative care drugs. They worked for me. Now I’m stressed about how I’ll cope when my last two are gone. Has anyone else had medicinal cannabis prescribed? If so did it work

My wife had an inject of Nplate 5 days ago Her platelets count was 76 before inject Now after 5days of inject she has 72 count of platelete It seem Nplate didn't has any effect on my wife, what is reason? She had treatment with ivig and rituximub in the past, and those drugs didn't has complete effect

Well it’s all happing pain in arms when trying to open packet crisp even holding carrying milk is pain full. That’s with out dexterity issues .. Today received other letter of people who referred me for NCS/EMG Neurophysiology Test guess it’s going to be for results of Sunday’s going’s on ... It’s just

I went for a bone biopsy and the doctor thinks I might have it please let me how you’re dealing with it

TAMARIN STUDY The TAMARIN study is a very exciting study based on UK science and is now open in 13 hospitals across the UK. The study is a multicentre phase II clinical trial which will assess the safety and activity of Tamoxifen in MPNs. Many people with MPNs have mutations (changes) to certain

Dr. Wierda is my doctor and in the short time I met with him in 2017, I didn’t get the impression he was the type to sugar coat anything. He tells it like it is. That’s why this video struck me. I’ve seen the level of excitement increase in the short time I’ve been on W&W not only with his interviews

Hi all Just an update. As you know I was denied Ibrutinib as I was in remission for 3.8 years and NHS England put a cap at 3 years before relapse. Anyway I've been really struggling and I saw the consultant on Tuesday and he got me in today for the first of 3 strong dosage IV Steriods. The original

For our USA members, the CLL Society Alerts & site https://cllsociety.org/upcoming-cll-patient-education-programs/ often include notices of upcoming LRF ( Lymphoma Research Foundation ) and LLS ( Leukemia & Lymphoma Society ) events. There are some interesting opportunities recently announced

Firstly the report does not specify what type of chronic leukaemia is being investigated, so is it CML (chronic myloid leukaemia) or CLL (Chronic Lymphacytic Leukaemia)? It also seems to confuse the pre-leukaemic state with a fully diagnosed condition.

Greetings: I am a 73yo male with a CLL diagnosis about 6 or 7 years ago. Currently my hematologist has me on a Wait & Watch routine and seeing me every 6 months. He has given me brief overview of how CLL progresses and the chemical treatments available, none of which I'm currently on as I have some ways

Hello. I have had CLL since 2012. Recently diagnosed with Chronic Central Serous Retinopathy in my right eye, which is a permanent build-up of fluid behind the macula causing sight distortion. There is medical research suggesting that leukemic infiltration is a possibility, albeit a rare one. Have any

Leukaemia Care are running a series of days to help with coping with fatigue. The next one is in Cardiff on 15th September and then there is one in Sheffield and another in Edinburgh. There will be talks from a fatigue expert, Dr Anne Johnson and the agenda looks really interesting.

The Changing Landscape of Lymphoma National Conference - VANCOUVER, BC https://mailchi.mp/lymphoma/sance-dducation-sur-le-lymphome-ville-de-qubec-2555481?e=7b399e8498 Lymphoma Canada invites you to attend the second annual national conference on lymphoma featuring specialists from across Canada.

A new tool to improve stem cell transplant outcomes was announced today by the MPN Research Foundation (MPNRF). The SCT Spectrum Transplant Timing tool (SSTT) was created to facilitate communication between myelofibrosis patients and their physicians. The SSTT is a portable on-line tool based on a

Cll specialist called and told me to urgently go to hospital for Antibiotics in case of bacteria infection .... this is my first fever w cll and neutropenia- said I will be there are least 72 hrs 👎. There goes my beach vacation:( ugh so annoying this cancer !!!!!!

Hello again, I have transferred to the Marsden, I was told at my local hospital of my CLL I have received “copying of letters” but flummoxed 😶 don’t understand what a immunoglobulin gene mutation status is? Also immunophenotyping? Tried looking it up, but not sure familiar with this. Also the doctor

Hello HealthUnlocked Community, I wanted to reach out to everyone and give you an update on Mark’s progress with his BMT, today is Day +250 – can I get a YAHOO!!! We just got back from our clinic appointment down at PMH in Toronto and once again we are thrilled to advise that blood counts are normal