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Efficient control of leukaemia with treatment by dual immune-checkpoint blockade
https://www.lih.lu/blog/our-news-1/post/efficient-control-of-
leukaemia
-with-treatment-by-dual-immune-checkpoint-blockade-190
https://www.lih.lu/blog/our-news-1/post/efficient-control-of-
leukaemia
-with-treatment-by-dual-immune-checkpoint-blockade-190
Medabouhedi
in
CLL Support
6 years ago
Thoughts on CLL treatment and watch and wait
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
I’d be really interested in other people’s thought processes about this. I’m not a haematologist, and this is all in the realm of theory and so may not stand up to clinical trials or the real world. I guess in a way I’m trying to synthesize a philosophy of treatment. 1. Why do we watch and wait? As
AdrianUK
in
CLL Support
6 years ago
An exercise pill would be prescribed to every cancer patient worldwide and viewed as a major breakthrough in cancer treatment
Today, Australia’s peak body representing health professionals who treat people with cancer, has joined 25 other cancer organisations [u]to call for exercise to be prescribed to all cancer patients as part of routine cancer care[/u]. [i]"Published today in the Medical Journal of Australia, our plan is
Today, Australia’s peak body representing health professionals who treat people with cancer, has joined 25 other cancer organisations [u]to call for exercise to be prescribed to all cancer patients as part of routine cancer care[/u]. [i]"Published today in the Medical Journal of Australia, our plan is
AussieNeil
Administrator
in
CLL Support
6 years ago
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CALR Type 1 & 2 Have Contrasting OS Outcomes
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
Hey everyone, As an update, since my last post (ASXL1 Mutation Detected), I recently came across some very useful articles concerning the CALR mutations & ASXL1 and their ability to be included as Prognostically significant, and naturally wanted to share those findings hopefully to the benefit of others
socrates_8
in
MPN Voice
6 years ago
Concerning blood results
Hi was wanting some support and advice from everyone on here. My blood platelets are elevated, my mean cell volume is down. After looking at blood under the microscope it’s been said that I have lymphocytosis with occasional abnormal lymphocytes and hypochromic microcytosis. These levels have been slowly
Hi was wanting some support and advice from everyone on here. My blood platelets are elevated, my mean cell volume is down. After looking at blood under the microscope it’s been said that I have lymphocytosis with occasional abnormal lymphocytes and hypochromic microcytosis. These levels have been slowly
Hanneesweedie
in
CLL Support
6 years ago
CLL: FLAIR Trial site list and update to design
More information on the FLAIR trial as it is currently set up can be found here: http://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-ibrutinib-rituximab-chronic-lymphocytic-
leukaemia
-flair ---------------------------------------------- Email received this morning from organisers
More information on the FLAIR trial as it is currently set up can be found here: http://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-ibrutinib-rituximab-chronic-lymphocytic-
leukaemia
-flair ---------------------------------------------- Email received this morning from organisers
AdrianUK
in
Leukaemia CARE
6 years ago
The History of BMT
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
BMTInfonet’s video on the history of bone marrow and stem cell transplant. I have always been aware of the Anthony Nolan registry but never knew just what a profound impact it had worldwide. https://www.bmtinfonet.org/transplant-article/what-blood-stem-cell-transplant
MFBMT2011
in
MPN Voice
6 years ago
Myelofibrosis & Yransplant Symposium
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
Currently in Denver where Lesley, my better half, and I attended a two day Bone Marrow Transplant Symposium and met fellow survivors. Have pasted my MPNForum Facebook post here to share. Day one at the BMTinfonet symposium in Denver. A couple of hundred present but the Myelofibrosis break out group
MFBMT2011
in
MPN Voice
6 years ago
It's Official! Curing Patients Is Bad for Business! Milton Packer describes the end result of profit-dominated drug development
and-it-keeps-getting-pricier/2016/03/09/4fff8102-c571-11e5-a4aa-f25866ba0dc6_story.html The history of Gleevec is particularly relevant to us, as this was the first instance of a custom developed monoclonal antibody (like Rituxan) achieving success in changing the life expectancy of patients with Chronic Myelogenous
Leukaemia
and-it-keeps-getting-pricier/2016/03/09/4fff8102-c571-11e5-a4aa-f25866ba0dc6_story.html The history of Gleevec is particularly relevant to us, as this was the first instance of a custom developed monoclonal antibody (like Rituxan) achieving success in changing the life expectancy of patients with Chronic Myelogenous
Leukaemia
AussieNeil
Administrator
in
CLL Support
6 years ago
Ten days to watch, wait, worry? Campaign launch
During the campaign and coming months
Leukaemia
Care will be working with the UK clinical community and patient groups supporting blood cancer patients living on Watch and Wait, The outcome we hope, will be creation and implementation of improved clinical supportive care guidance for the Watch
During the campaign and coming months
Leukaemia
Care will be working with the UK clinical community and patient groups supporting blood cancer patients living on Watch and Wait, The outcome we hope, will be creation and implementation of improved clinical supportive care guidance for the Watch
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
6 years ago
Why does everyone you talk to have arthritis?
I know someone who has
leukaemia
, their is no way I would presume to know how her body feels when she’s in pain or having treatment. Let us true arthritic individuals have our say. Having this disease is no fun and I’d like to be able to say this without everyone assuming they know how I feel.
I know someone who has
leukaemia
, their is no way I would presume to know how her body feels when she’s in pain or having treatment. Let us true arthritic individuals have our say. Having this disease is no fun and I’d like to be able to say this without everyone assuming they know how I feel.
Nicole2000
in
NRAS
6 years ago
How not to get your blood results .....
I have chronic lymphocyte
leukaemia
and it is quite important to me to study any progression in my disease Receptionist: You will have to ring the results line and it is closed Me: Yes, but actually the results line is no good for me as they are not clinicians and are merely going to say that I have
I have chronic lymphocyte
leukaemia
and it is quite important to me to study any progression in my disease Receptionist: You will have to ring the results line and it is closed Me: Yes, but actually the results line is no good for me as they are not clinicians and are merely going to say that I have
TAS50
in
Thyroid UK
6 years ago
More treatment confusion?!
Hi CLL'ers, I am very grateful for this forum. I'm on line a lot but this is the only place I go for CLL info. I saw my Dr. about a week ago and we have the same friendly debate-he wants to begin treatment and I don't. My white count is at 30 thousand, no doubling of the Absolute count, lots of fatigue
Hi CLL'ers, I am very grateful for this forum. I'm on line a lot but this is the only place I go for CLL info. I saw my Dr. about a week ago and we have the same friendly debate-he wants to begin treatment and I don't. My white count is at 30 thousand, no doubling of the Absolute count, lots of fatigue
lorna222
in
CLL Support
6 years ago
NEVER GIVE UP!
I’m a 71 year old female of Irish decent. I was diagnosed with CLL in 1991. It remained in remission until January 2017. My oncologist started me on IMBRUVICA (3 capsules, 140mg each) in March 2017. The only “side effect” was bone pain in the beginning. Dr. H assured me that it was temporary & was
I’m a 71 year old female of Irish decent. I was diagnosed with CLL in 1991. It remained in remission until January 2017. My oncologist started me on IMBRUVICA (3 capsules, 140mg each) in March 2017. The only “side effect” was bone pain in the beginning. Dr. H assured me that it was temporary & was
maowen46
in
CLL Support
6 years ago
Questions for consultant?
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
49 Years old, in UK (Yorkshire) Diagnosed 2 years ago, blood counts steadily rising. I am no longer working (As a p/t Teacher) due to fatigue. Started FCR Chemo due to fatigue (On Cycle 1) . No swollen lymph nodes etc but CT scan showed Spleen enlarged and lesions on Liver. Biopsy revealed CLL progression
AntonMB
in
CLL Support
6 years ago
New potential therapeutic target for MF
Possible new breakthrough re MF. Early days but one to watch.... https://www.nature.com/articles/s41467-018-03627-9 “To summarize, using two murine models of myelofibrosis, we show that a specific HSP27 inhibitor, OGX-427, limits the progression of myelofibrosis by (i) reducing both spleen weight and
Possible new breakthrough re MF. Early days but one to watch.... https://www.nature.com/articles/s41467-018-03627-9 “To summarize, using two murine models of myelofibrosis, we show that a specific HSP27 inhibitor, OGX-427, limits the progression of myelofibrosis by (i) reducing both spleen weight and
Paul123456
in
MPN Voice
6 years ago
Leukaemia and Memory.
Hi, me again, DH has had his regular CLL monitoring recently, and met his Clinical Nurse Specialist. He has also been referred to the memory clinic. I had definitely noticed his memory getting a lot worse. Obviously, the memory clinic is there to help, and support such issues, but, of course, it is a
Hi, me again, DH has had his regular CLL monitoring recently, and met his Clinical Nurse Specialist. He has also been referred to the memory clinic. I had definitely noticed his memory getting a lot worse. Obviously, the memory clinic is there to help, and support such issues, but, of course, it is a
DrunkJam_UK
Administrator
in
Leukaemia CARE
6 years ago
Food, Glorious Food 🥘
Hello dear friends, Quite proud of myself 😉 Started this new antiacid, anti-inflammatory diet last week. It was time I started a new hobby, as I can’t do my embroidery anymore at least I can cook. It is also good for Bea and her post shingles chronic fatigue. And it keeps me active, shopping for strange
Hello dear friends, Quite proud of myself 😉 Started this new antiacid, anti-inflammatory diet last week. It was time I started a new hobby, as I can’t do my embroidery anymore at least I can cook. It is also good for Bea and her post shingles chronic fatigue. And it keeps me active, shopping for strange
Hidden
in
Lung Conditions Community Forum
6 years ago
Transplant in sight
It's been a while since I last posted but I finally feel that the transplant is in reach. Ibruitinib and Venetoclax combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL
It's been a while since I last posted but I finally feel that the transplant is in reach. Ibruitinib and Venetoclax combination is having an amazing impact with WBC now in the normal range at 8.90. Lymphocytes down to 5.90 and once they reach 4.50 or below, my bone marrow will be checked for % of CLL
KAS8
in
CLL Support
6 years ago
Anyone have bizarre auto-immune issue connected to CLL?
Looking to see if anyone else out there has dx of CLL yet not the typical cll picture. I’m inquiring for my dearest friend whom was dx 3 years ago. Was w/w for 1.5 years, had to start treatment. Did ibrutinib, now started rutuxin.... multiple blood/platlets transfusions, nuelasta shots for extreme neutropenia
Looking to see if anyone else out there has dx of CLL yet not the typical cll picture. I’m inquiring for my dearest friend whom was dx 3 years ago. Was w/w for 1.5 years, had to start treatment. Did ibrutinib, now started rutuxin.... multiple blood/platlets transfusions, nuelasta shots for extreme neutropenia
Lauriesue4
in
CLL Support
6 years ago
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