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Germline genetic factors influence the outcome of interferon-α therapy in polycythemia vera
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
« Interferon-α (IFN-α)–based therapies can induce sustained hematologic responses (HRs) and durable molecular responses (MRs) in polycythemia vera (PV) and other myeloproliferative neoplasms (MPNs). During treatment of PV, an HR reflects normalization of blood values, whereas a MR marks a substantial
Manouche
in
MPN Voice
3 years ago
WEBINAR - Immunisations and living with the challenges of a compromised immune system – “top tips for staying safe”
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
at
Leukaemia
Care To join via Zoom, all you need to do is register your attendance before the webinar starts.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Has anyone had more than one FISH test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
I’ve been on IB for two years and 17p deleted and was wondering if the genetic mutations could change? I asked my oncologist and he said if I did the stem cell transplant he would request it but have any of you had a second test?
steve_canada
in
CLL Support
3 years ago
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Ropeginterferon alfa-2b versus phlebotomy in low-risk patients with polycythaemia vera (Low-PV study)
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
There is no evidence that phlebotomy alone is sufficient to steadily maintain haematocrit on target level in low-risk patients with polycythaemia vera. This study aimed to compare the efficacy and safety of ropeginterferon alfa-2b on top of the standard phlebotomy regimen with phlebotomy alone. https
Manouche
in
MPN Voice
3 years ago
Covid trial in UK examines mixing different vaccines
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
A UK trial has been launched to see if giving people different Covid vaccines for their first and second doses works as well as the current approach of using the same type of vaccine twice. The idea is to provide more flexibility with vaccine rollout and help deal with any potential disruption to supplies
Jm954
Administrator
in
CLL Support
3 years ago
NICE approves venetoclax with obinutuzumab for patients with untreated CLL
You can read the full article and supportive information here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/nice-approves-venetoclax-with-obinutuzumab-for-patients-with-untreated-chronic-lymphocytic-
leukaemia
-cll/ A good day for CLL Onwards and upwards
You can read the full article and supportive information here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/news/nice-approves-venetoclax-with-obinutuzumab-for-patients-with-untreated-chronic-lymphocytic-
leukaemia
-cll/ A good day for CLL Onwards and upwards
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Acalabrutinib exhibits comparable efficacy, superior safety to ibrutinib for CLL (finally!)
[i]Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating non-inferior progression-free survival (PFS) for adults with previously treated, high-risk chronic lymphocytic
leukaemia
(CLL) compared to ibrutinib
[i]Positive high-level results from the ELEVATE-RR Phase III trial showed AstraZeneca’s Calquence (acalabrutinib) met the primary endpoint demonstrating non-inferior progression-free survival (PFS) for adults with previously treated, high-risk chronic lymphocytic
leukaemia
(CLL) compared to ibrutinib
avzuclav
in
CLL Support
3 years ago
Fertility and essential thrombocythemia
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
Hey I’m 32 year of age Iv currently have essential thrombocythemia , diagnosed over 10 years ago with blood readings of 1,800 Currently takin Pegasy Been trying to conceive for over a year now , suffered for years with bad periods heavy and very very painful . Just wondering if having this condition
BeckyG88
in
MPN Voice
3 years ago
New mutation
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Morning all I haven’t posted for a while as have been struggling along nicely on peg ...... My platelets have remained steady although my HCT has been creeping up. My specialist arranged a red cell mass scan and my red volume is normal so he is not too concerned about HCT being raised. The letter from
Graham7694
in
MPN Voice
3 years ago
Strange case of CLL remission
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
Hello wonderful people! I have shared my father's second treatment of CLL with BR over a year ago. His case was interesting and i would like to share what happened and if anyone can comment or shed some light on it. He was diagnosed with CLL in 2007. W&W till early 2011. He was supposed to do the regular
mkawass
in
CLL Support
3 years ago
Updated shielding guidance for blood cancer patients
After a rollercoaster weekend of changes, we've updated our guidance for those living with a blood cancer You can find all the latest updates here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/shielding-for-people-with-blood-cancers-faqs/
After a rollercoaster weekend of changes, we've updated our guidance for those living with a blood cancer You can find all the latest updates here: https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/shielding-for-people-with-blood-cancers-faqs/
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
3 years ago
MF
I’m 67 and about 2 years ago was diagnosed with Myelofibrosis with no real symptoms it was picked up with a routine blood test. Still in a bit of shock even now. I have avoided google and the like. Stem cell replacement had been ruled out I guess because of my age. But I can’t except that there is no
I’m 67 and about 2 years ago was diagnosed with Myelofibrosis with no real symptoms it was picked up with a routine blood test. Still in a bit of shock even now. I have avoided google and the like. Stem cell replacement had been ruled out I guess because of my age. But I can’t except that there is no
Grizly
in
MPN Voice
3 years ago
Scottish Medicines Agency has decided in favour of Venetoclax plus Obintuzumab for some patients.
The NICE decision was possible thanks to the efforts of charities including CLL Support, Lymphoma Action,
Leukaemia
Care and clinical experts.
The NICE decision was possible thanks to the efforts of charities including CLL Support, Lymphoma Action,
Leukaemia
Care and clinical experts.
Jm954
Administrator
in
CLL Support
3 years ago
Enjoy our Live Well With CLL video
On this rainy winters day, I have just been watching this short film a few CLL friends made with
Leukaemia
Care , CLL Support and AbbVie. Wish it was still summer :-) Happy Christmas https://youtu.be/xW5yP6L7F4Y Nick
On this rainy winters day, I have just been watching this short film a few CLL friends made with
Leukaemia
Care , CLL Support and AbbVie. Wish it was still summer :-) Happy Christmas https://youtu.be/xW5yP6L7F4Y Nick
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
CML Webinar - Treatment Free Remission (TFR) in chronic myeloid leukaemia
Please join us at 3:30pm on January the 27th You can register in advance here: https://us02web.zoom.us/webinar/register/WN_Fr5TUsuXQ-OhdP7H6uyyBg Treatment Free Remission (TFR) has been a hot topic in CML for the last few years, but it may not be for everyone. This webinar will explore what TFR
Please join us at 3:30pm on January the 27th You can register in advance here: https://us02web.zoom.us/webinar/register/WN_Fr5TUsuXQ-OhdP7H6uyyBg Treatment Free Remission (TFR) has been a hot topic in CML for the last few years, but it may not be for everyone. This webinar will explore what TFR
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
3 years ago
Richter’s Transformation - Results of my Pseudo Richter Human Genome study
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Hi. As I mentioned earlier, Professor Elias Campo did a study of my Ricther to try to understand the behavior I copy and paste the result Our cases are helping that Richter's transformation is not the great unknown within the world of CLL. We have sequenced the entire genome of the CLL and the lymph
Priss69
in
CLL Support
3 years ago
Leukemia
Hello, my dad just got diagnosed with leukemia yesterday. He is in the hospital now getting a biopsy. Can anyone please let me know how long the process takes and when can he come home? He is very anxious and miss the family very much. With the coronavirus we cannot visit him. I am wondering between
Hello, my dad just got diagnosed with leukemia yesterday. He is in the hospital now getting a biopsy. Can anyone please let me know how long the process takes and when can he come home? He is very anxious and miss the family very much. With the coronavirus we cannot visit him. I am wondering between
Sam510
in
Leukaemia CARE
3 years ago
Vaccinate or not?
I have just spoken with my haematologists office and asked what is recommended for those taking Hydroxy etc. We are advised to have a vaccination, it doesn't matter which one. If you have Aplastic Anemia then he would speak with you first. So pleased I've been given the go ahead!
I have just spoken with my haematologists office and asked what is recommended for those taking Hydroxy etc. We are advised to have a vaccination, it doesn't matter which one. If you have Aplastic Anemia then he would speak with you first. So pleased I've been given the go ahead!
Jennytheb
in
MPN Voice
3 years ago
One for Prof Harrison via Maz?
While I was having my transfusion today I overheard a nurse telling a patient that if they were on any type of immunosuppressive treatment that that should be discontinued before receiving covid vaccine. I am taking 20mg Ruxolitinib twice daily and have a consistently low white count with neutrophils
While I was having my transfusion today I overheard a nurse telling a patient that if they were on any type of immunosuppressive treatment that that should be discontinued before receiving covid vaccine. I am taking 20mg Ruxolitinib twice daily and have a consistently low white count with neutrophils
beetle
in
MPN Voice
3 years ago
Surviving Covid
Hi everyone. I have PV and early MF. I take Ruxolitinib . I am 44. I have shielded as many of us have. As a family with 3 children, we have been very careful to avoid places and people but yet contracted Covid the week before Christmas. I am still recovering from terrible fatigue and also developed panic
Hi everyone. I have PV and early MF. I take Ruxolitinib . I am 44. I have shielded as many of us have. As a family with 3 children, we have been very careful to avoid places and people but yet contracted Covid the week before Christmas. I am still recovering from terrible fatigue and also developed panic
MamPRV
in
MPN Voice
3 years ago
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