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BMB (Bone Marrow Biopsy)
I had a series of blood tests over the course of 12 months between gp and then my referral into my local hospital haemotology department . As all tests turned up negative for mutations, while my platelets continued to stay up/increase Haemotologist explained BMB (Bone Marrow Biopsy) was necessary
I had a series of blood tests over the course of 12 months between gp and then my referral into my local hospital haemotology department . As all tests turned up negative for mutations, while my platelets continued to stay up/increase Haemotologist explained BMB (Bone Marrow Biopsy) was necessary
Woodlandgarden
in
MPN Voice
4 years ago
CHANGE OF DATE for the webinar for MPN patients relating to government guidance on COVID-19
We would like to thank
Leukaemia
Care for their support, help and assistance with this webinar.
We would like to thank
Leukaemia
Care for their support, help and assistance with this webinar.
Mazcd
MPNVoice
in
MPN Voice
4 years ago
Ibutrinib plus venetoclax?
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
As I told you my brother is in the rump up with venetoclax. Now he is in 100 mg now. This month he start relapsing his treatment with imbruvica monotherapy. He was 18 months with very good results with imbruvica, but as I said his cll start relapsing. And his doctors consider add venetoclax. He put
Cgr2018
in
CLL Support
4 years ago
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Latest blood results
only things highlighted was the white blood count at 15 and the lymphocytes count at 9.96 This is of course a slight rise since December .I'm wondering if that's the test I was told to have by the hematology consultant in December and again by a different consultant in February .do they check the
leukaemia
only things highlighted was the white blood count at 15 and the lymphocytes count at 9.96 This is of course a slight rise since December .I'm wondering if that's the test I was told to have by the hematology consultant in December and again by a different consultant in February .do they check the
leukaemia
pet-lamb
in
CLL Support
4 years ago
Venetoclax, acalabrutnib, obitunzimab
Good morning all! Hope you are all doing well today. I’ve been reading a lot, but not posted much, so hear it goes! I have b en struggling with fatigue for years, I will not go through all the details of the past 6 years, but it’s been a ride, I only found out last year I have Cll, 11q del (although
Good morning all! Hope you are all doing well today. I’ve been reading a lot, but not posted much, so hear it goes! I have b en struggling with fatigue for years, I will not go through all the details of the past 6 years, but it’s been a ride, I only found out last year I have Cll, 11q del (although
Tton46
in
CLL Support
4 years ago
Unmutated patients on venetoclax?
I just watched the video "Evolving Front-Line Therapy in Chronic Lymphocytic Leukemia" posted by EugeneL2. In it, she refers to the trial where patients on venetoclax + obinutuzumab had much better results than those on chlorambucil + obinutuzumab. However, she also noted that mutated patients on both
I just watched the video "Evolving Front-Line Therapy in Chronic Lymphocytic Leukemia" posted by EugeneL2. In it, she refers to the trial where patients on venetoclax + obinutuzumab had much better results than those on chlorambucil + obinutuzumab. However, she also noted that mutated patients on both
HikerBiker
in
CLL Support
4 years ago
Azathioprine side effects (worried!)
However, as I had elevated IgG levels and autoimmune hepatitis is said to be a life long disease requiring life long treatment, I’m quite scared about my life in the future with the risk of getting
leukaemia
and myeloma?
However, as I had elevated IgG levels and autoimmune hepatitis is said to be a life long disease requiring life long treatment, I’m quite scared about my life in the future with the risk of getting
leukaemia
and myeloma?
Charlie_B99
in
British Liver Trust
4 years ago
Lost my Haematologist to Covid19
I am so shocked and deeply saddened by the awful news that my consultant haematologist, Dr Tariq Shafi has been taken by Covid19. Coronavirus: 'Greatly respected and loved' hospital doctor dies https://www.bbc.co.uk/news/uk-england-kent-52578715 I have been with Dr Shafi for under 2 years but he has
I am so shocked and deeply saddened by the awful news that my consultant haematologist, Dr Tariq Shafi has been taken by Covid19. Coronavirus: 'Greatly respected and loved' hospital doctor dies https://www.bbc.co.uk/news/uk-england-kent-52578715 I have been with Dr Shafi for under 2 years but he has
MrDeanC
in
MPN Voice
4 years ago
How long does Neupogen effects like fever go away?
My brother had 3 shots of neopogen on Monday, Tuesday and Wednesday this week, and he has fever, no more than 38 for 3 days. He takes paracetamol and the fever get away for hours, but cone back. How long that’s usually take to go away the fever with Neupogen He hasn’t got another side effect, just a
My brother had 3 shots of neopogen on Monday, Tuesday and Wednesday this week, and he has fever, no more than 38 for 3 days. He takes paracetamol and the fever get away for hours, but cone back. How long that’s usually take to go away the fever with Neupogen He hasn’t got another side effect, just a
Cgr2018
in
CLL Support
4 years ago
COVID-19 and shielding update for CLL
Leukaemia
Care are hosting this webinar in collaboration with CLL Support. We will be joined by Dr Piers Patten, of Kings College London, and Marc Auckland, Chair of Trustees at CLL Support and CLL patient. This webinar provides another opportunity for CLL patients to ask questions.
Leukaemia
Care are hosting this webinar in collaboration with CLL Support. We will be joined by Dr Piers Patten, of Kings College London, and Marc Auckland, Chair of Trustees at CLL Support and CLL patient. This webinar provides another opportunity for CLL patients to ask questions.
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
ET
I am worried i may have
leukaemia
and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .
I am worried i may have
leukaemia
and not et as symptoms are similar, but it is only my platelets that are raised other bloods seem ok .
glyndale
in
MPN Voice
4 years ago
CAR-NK and using Interlukin-27 to boost the cytotoxic effect of NK cells on CLL in the bone marrow
[i]"A chimeric antigen receptor (CAR) construct using transduced natural killer cells instead of T cells was associated with a high complete remission rate without the cytokine release syndrome (CRS) frequently seen with CAR T cell therapy, early clinical trial results show.[/i] [i]:[/i] [i]..there were
[i]"A chimeric antigen receptor (CAR) construct using transduced natural killer cells instead of T cells was associated with a high complete remission rate without the cytokine release syndrome (CRS) frequently seen with CAR T cell therapy, early clinical trial results show.[/i] [i]:[/i] [i]..there were
AussieNeil
Partner
in
CLL Support
4 years ago
How long does a blood test take to comeback. Health anxiety
I had a blood test today early morning for a full blood count and thyroid etc as I’m worried that I have
Leukaemia
as it runs in the family. I’m wondering if my bloods showed anything serious how long would it take to receive the results? These were taken at the GPS Very anxious here
I had a blood test today early morning for a full blood count and thyroid etc as I’m worried that I have
Leukaemia
as it runs in the family. I’m wondering if my bloods showed anything serious how long would it take to receive the results? These were taken at the GPS Very anxious here
Amykay121
in
Anxiety Support
4 years ago
Thoughts on Covid
Or rather, what I’m watching out for! A vaccine is clearly not a short term solution. It appears likely there will be a vaccine but not a given. Hence world can’t wait in lockdown without destroying economies. Our best hopes for a quick return to the ‘new’ normal are therefore game changing therapeutics
Or rather, what I’m watching out for! A vaccine is clearly not a short term solution. It appears likely there will be a vaccine but not a given. Hence world can’t wait in lockdown without destroying economies. Our best hopes for a quick return to the ‘new’ normal are therefore game changing therapeutics
Paul123456
in
MPN Voice
4 years ago
Social Distancing
This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers of the blood or bone marrow such as
leukaemia
who are at any stage of treatment' This seems to suggest that all of us MPN patients will fall
This is an extract from the UK Government's Coronavirus website detailing who will have to take more stringent social distancing measures; 'People with cancers of the blood or bone marrow such as
leukaemia
who are at any stage of treatment' This seems to suggest that all of us MPN patients will fall
Trueblue8
in
MPN Voice
4 years ago
Coronavirus and returning back to work
I have Hairy Cell
Leukaemia
and have been recovering from chemotherapy treatment since 18th January. Apart from the fatigue i’ve been contemplating returning back to work, however i work in a busy office environment and am confused with the information i’m reading.
I have Hairy Cell
Leukaemia
and have been recovering from chemotherapy treatment since 18th January. Apart from the fatigue i’ve been contemplating returning back to work, however i work in a busy office environment and am confused with the information i’m reading.
TM1972
in
Leukaemia Support
4 years ago
Richter syndrome - Resonance result of the breast
Hello friends. I want to update my status. Yesterday they gave me the results of my breast tumors. They told me they were totally clean of cancer. I was diagnosed with two breast tumors after being treated with Ibrutinib for eight months. In August I have a consultation with the hematologist to control
Hello friends. I want to update my status. Yesterday they gave me the results of my breast tumors. They told me they were totally clean of cancer. I was diagnosed with two breast tumors after being treated with Ibrutinib for eight months. In August I have a consultation with the hematologist to control
Priss69
in
CLL Support
4 years ago
So sick of it all!
I always feel awful in some way which then leads me to then panic that I have covid 19 my father recently passed away from
leukaemia
just over a month ago.
I always feel awful in some way which then leads me to then panic that I have covid 19 my father recently passed away from
leukaemia
just over a month ago.
Meyer_Gdmnx
in
Anxiety and Depression Support
4 years ago
COVID-19 and Food Safety
In this blog, our Nurse Advisor has answered your most frequent questions > https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-19-and-food-safety/
In this blog, our Nurse Advisor has answered your most frequent questions > https://www.leukaemiacare.org.uk/support-and-information/latest-from-
leukaemia
-care/blog/covid-19-and-food-safety/
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
Leukaemia Matters Newsletter - Coping with COVID
We’ve produced a free interim edition of our magazine,
Leukaemia
Matters. Online-only, this issue features articles from patients on how they’re coping, along with the latest advice on your finances from our Advocacy team > https://bit.ly/LeukaemiaMattersApril…
We’ve produced a free interim edition of our magazine,
Leukaemia
Matters. Online-only, this issue features articles from patients on how they’re coping, along with the latest advice on your finances from our Advocacy team > https://bit.ly/LeukaemiaMattersApril…
HAIRBEAR_UK
in
Leukaemia Support
4 years ago
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