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Cellular and humoral immune response to SARS-CoV-2 mRNA vaccines in patients treated with either Ibrutinib or Rituximab
In this study, we tested serological and cellular response to SARS-CoV-2 mRNA vaccines in 16 patients treated with Ibrutinib, 16 treated with maintenance Rituximab, 18 patients with chronic lymphocytic
leukaemia
(CLL) with watch and wait status and 21 healthy volunteers.
In this study, we tested serological and cellular response to SARS-CoV-2 mRNA vaccines in 16 patients treated with Ibrutinib, 16 treated with maintenance Rituximab, 18 patients with chronic lymphocytic
leukaemia
(CLL) with watch and wait status and 21 healthy volunteers.
gardening-girl
in
CLL Support
2 years ago
Questions about Jakafi
Good morning everyone, I have PV. I am 75 and was diagnosed about 5 years ago. For the most part I feel fine. My Hematologist would like me to try Jakafi. I had a bad reaction to Hydroxy and Anagrelide. Currently on aspirin and clopidigrel (Plavix) and other than lots of bruising, no other issues
Good morning everyone, I have PV. I am 75 and was diagnosed about 5 years ago. For the most part I feel fine. My Hematologist would like me to try Jakafi. I had a bad reaction to Hydroxy and Anagrelide. Currently on aspirin and clopidigrel (Plavix) and other than lots of bruising, no other issues
Bluetoday1
in
MPN Voice
2 years ago
Hydroxyurea-induced ankle ulcers
85, been on 1000 mg/day of Urea for five years fighting essential thrombocytosis. Now have a nasty ankle ulcer and my doc wants me to switch to Jakafi....disinclined to do that until I exhaust all the alternatives (cost, worry about taking a drug that kills RBC when I'm already ~40% below the lower
85, been on 1000 mg/day of Urea for five years fighting essential thrombocytosis. Now have a nasty ankle ulcer and my doc wants me to switch to Jakafi....disinclined to do that until I exhaust all the alternatives (cost, worry about taking a drug that kills RBC when I'm already ~40% below the lower
veryoldman
in
MPN Voice
2 years ago
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Anyone with Exon 12 mutation out there?
Hi Everyone, I was diagnosed a year and a half ago with polycythemia vera with a negative v617f mutation and a positive Exon 12 mutation. The literature says that about 95% of the p-vera cases are positive for v617f while 3% have one of many Exon 12 mutations. The disease presents itself a little
Hi Everyone, I was diagnosed a year and a half ago with polycythemia vera with a negative v617f mutation and a positive Exon 12 mutation. The literature says that about 95% of the p-vera cases are positive for v617f while 3% have one of many Exon 12 mutations. The disease presents itself a little
gvibes
in
MPN Voice
2 years ago
World Blood Cancer Day May 28th
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Please help promote knowledge about Blood Cancers and Stem Cell Transplant Matching. Help support the become a donor campaigns! Global event! Please see link for more information They have various downloads that can be used on social media like Facebook https://www.worldbloodcancerday.org/en/media
Dovme
in
MPN Voice
2 years ago
2022 NCCN Guidelines for MPNs
Another good resource posted by our friends from the MPN Research Foundation. 2022 National Comprehensive Cancer Network Guidelines - Myeloproliferative Neoplasms. Nice summary on a number of MPN topics written for patients. Great for someone new to MPNs, and a good review for all. https://www.nccn.org
Another good resource posted by our friends from the MPN Research Foundation. 2022 National Comprehensive Cancer Network Guidelines - Myeloproliferative Neoplasms. Nice summary on a number of MPN topics written for patients. Great for someone new to MPNs, and a good review for all. https://www.nccn.org
hunter5582
in
MPN Voice
2 years ago
Jakafi (Rux) vs Besremi Side Effects
Edited to show PV - Rux (rather than MF-Rux ) effects info I started Besremi INF last Feb, as discussed in recent posts. My Dr said it is good medicine. But his 1st choice is Rux. He said it has fewer side effects and is best for symptom relief. I have PV Dx with ET features. I opted to go with
Edited to show PV - Rux (rather than MF-Rux ) effects info I started Besremi INF last Feb, as discussed in recent posts. My Dr said it is good medicine. But his 1st choice is Rux. He said it has fewer side effects and is best for symptom relief. I have PV Dx with ET features. I opted to go with
EPguy
in
MPN Voice
2 years ago
Green tea
A 2020 database reviewTrusted Source of epidemiological and experimental studies in humans produced inconsistent results as well as limited evidence of the benefit of green tea consumption for lowering the risk of cancer. The researchers assessed 142 completed studies, including 1.1 million participants
A 2020 database reviewTrusted Source of epidemiological and experimental studies in humans produced inconsistent results as well as limited evidence of the benefit of green tea consumption for lowering the risk of cancer. The researchers assessed 142 completed studies, including 1.1 million participants
Mostew
in
MPN Voice
2 years ago
Acalabrutinib versus Covid19?
Various reports suggest that CLL patients in clinical trials prescribed Acalabrutinib who contract covid 19 are surviving well due the anti inflammatory impact on the covid 19 virus as a result of the Acalabrutinib? It will be greatly appreciated if CLL patients who are taking Acalabrutinib and contracted
Various reports suggest that CLL patients in clinical trials prescribed Acalabrutinib who contract covid 19 are surviving well due the anti inflammatory impact on the covid 19 virus as a result of the Acalabrutinib? It will be greatly appreciated if CLL patients who are taking Acalabrutinib and contracted
spanish36
in
CLL Support
2 years ago
Introduction with questions - MPNs & Crispr Cas9 Gene editing
Hello everyone, I am new here. I am 27 Male and as of last week Jak2 positive. I have my bone marrow biopsy tomorrow to see whats what. My Platelets fluctuate between 550 & 600 and I have really no other symptoms other then the platelets, I wouldn't have known if not for random blood work. I am going
Hello everyone, I am new here. I am 27 Male and as of last week Jak2 positive. I have my bone marrow biopsy tomorrow to see whats what. My Platelets fluctuate between 550 & 600 and I have really no other symptoms other then the platelets, I wouldn't have known if not for random blood work. I am going
Hello94
in
MPN Voice
2 years ago
Understanding mechanisms of resistance to Pirtobrutinib in Chronic Lymphocytic Leukaemia
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
Covalent Bruton Tyrosine Kinase inhibitors (BTKi) like ibrutinib, acalabrutinib and zanubrutinib have completely changed the treatment landscape for CLL. However, a group of patients can develop resistance (most commonly as a result of a BTK C481S mutation) to these effective treatments and require further
CLLerinOz
Administrator
in
CLL Support
2 years ago
Hello, new diagnosed Cll and have questions
I am 50. B cell. Swollen lympnodes in stomach area. 15.5 cm swollen spleen. Non Hodgkins. Indolent? I think I heard. I'm not clear on "living a long time" but the oncologist isn't doing anything... but on the same tone, makes this sound like a 5 year death sentence. What about Richter syndrome
I am 50. B cell. Swollen lympnodes in stomach area. 15.5 cm swollen spleen. Non Hodgkins. Indolent? I think I heard. I'm not clear on "living a long time" but the oncologist isn't doing anything... but on the same tone, makes this sound like a 5 year death sentence. What about Richter syndrome
Diagnosedat50
in
CLL Support
2 years ago
What genetic / genomic information does a BMB give that bloods don’t?
Hi. I’ve been dipping getting in and out of this friendly and helpful group since I discovered it I have PMF, diagnosed 5 years ago and am having a hard time getting accurate information about my mutation status. The last two BMBs were poor samples - short or crushed cores. Only found out when
Hi. I’ve been dipping getting in and out of this friendly and helpful group since I discovered it I have PMF, diagnosed 5 years ago and am having a hard time getting accurate information about my mutation status. The last two BMBs were poor samples - short or crushed cores. Only found out when
Rachelthepotter
in
MPN Voice
2 years ago
MPN Advocacy & Education international - Patient & Caregivers Conference April 15, 2022
For those who could not attend, here are the links to the presentations. Topic: The 4 W's of Enrolling in a Clinical Trial, Laura Michaelis, MD https://www.youtube.com/watch?v=5W9L104Xr6M Topic: New Approved MPN Drugs and Others, Ruben Mesa, MD https://www.youtube.com/watch?v=WdtM0CA-17A Topic: Demystifying
For those who could not attend, here are the links to the presentations. Topic: The 4 W's of Enrolling in a Clinical Trial, Laura Michaelis, MD https://www.youtube.com/watch?v=5W9L104Xr6M Topic: New Approved MPN Drugs and Others, Ruben Mesa, MD https://www.youtube.com/watch?v=WdtM0CA-17A Topic: Demystifying
hunter5582
in
MPN Voice
2 years ago
Canadian Access to COVID-19 Treatments for Persons Living with CLL
Each province and territory in Canada has its own set of rules and procedures to access treatments for COVID 19, both preventative treatments (Evusheld) and post exposure treatments (Paxlovid, Remdisivir, etc.) . CLL Canada has prepared a document which describes the treatments available and how to
Each province and territory in Canada has its own set of rules and procedures to access treatments for COVID 19, both preventative treatments (Evusheld) and post exposure treatments (Paxlovid, Remdisivir, etc.) . CLL Canada has prepared a document which describes the treatments available and how to
CLL_Canada_Group
in
CLL Support
2 years ago
Possible causes that could have triggered my CLL
I'm trying to figure out what was the cause for my CLL.
It's not a sort of
[i]why me? [/i]
Or
[i]what I did wrong?[/i]
It's just a kind of scientific exploration around the possible causes of this mysterious disease, a research of confirmation from you guys, who
I'm trying to figure out what was the cause for my CLL.
It's not a sort of
[i]why me? [/i]
Or
[i]what I did wrong?[/i]
It's just a kind of scientific exploration around the possible causes of this mysterious disease, a research of confirmation from you guys, who
Nikotati
in
CLL Support
2 years ago
The battles we fight
The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can challenge it, with medications we can treat it. We wait until CLL has full control of the bone marrow and started presenting what the doctors call
The incurable disease CLL, silently creeps into our bodies, and gently starts launching an attack on the bone marrow. Wait and watch says the doctor, we can challenge it, with medications we can treat it. We wait until CLL has full control of the bone marrow and started presenting what the doctors call
AmCLL
in
CLL Support
2 years ago
Paraneoplastic disorder associated with MF
I was diagnosed with MF last year and from around that time I've suffered tingling which has spread from my extremities to most of my body. In case it was made worse by ruxolitinib, I've paused that but the tingling has continued. I've had most of the other tests to make sure it is not due to vitamin
I was diagnosed with MF last year and from around that time I've suffered tingling which has spread from my extremities to most of my body. In case it was made worse by ruxolitinib, I've paused that but the tingling has continued. I've had most of the other tests to make sure it is not due to vitamin
Scaredy_cat
in
MPN Voice
2 years ago
Jakavi and Paxlovid interaction
Jakavi and Paxlovid interaction I have been trying unsuccessfully to find information online to my question. Does anybody know if a patient currently taking Jakafi can be prescribed Paxlovid in case of a Covid infection? My husband had intermediate Myelofibrosis. So far the Jakafi has done wonders
Jakavi and Paxlovid interaction I have been trying unsuccessfully to find information online to my question. Does anybody know if a patient currently taking Jakafi can be prescribed Paxlovid in case of a Covid infection? My husband had intermediate Myelofibrosis. So far the Jakafi has done wonders
Ticotopia
in
MPN Voice
2 years ago
Richter's Transformation - Update 11-05-2022
Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases
Richter's Transformation Hello partners. I want to update the status of the Richter transform group. Three weeks ago my hematologist told me that after insisting so much that all Richter's cases be shared between doctors, it has finally been achieved. He told me that they had managed to collect 52 cases
Priss69
in
CLL Support
2 years ago
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