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Rituxan, taken alone
I was on Imbruvica for 6 months but had to stop it because of afib and flutter, a common side effect of the drug. I have heart issues, including fast heartbeat and ventricular tachycardia. I am over 80 years old. My oncologist is recommending a Rituxan drip. He is hesitant to use some of the newer
I was on Imbruvica for 6 months but had to stop it because of afib and flutter, a common side effect of the drug. I have heart issues, including fast heartbeat and ventricular tachycardia. I am over 80 years old. My oncologist is recommending a Rituxan drip. He is hesitant to use some of the newer
umpireman
in
CLL Support
6 years ago
A message to you all from Dave - Manofmendip
I Just had a chat with Dave, at some point he will hopefully come back as an Administrator that door is left wide open for him, he asked me to tell you this: 'Please tell them that I took time out when Liza, my partner was in hospital for six months being treated for
Leukaemia
.
I Just had a chat with Dave, at some point he will hopefully come back as an Administrator that door is left wide open for him, he asked me to tell you this: 'Please tell them that I took time out when Liza, my partner was in hospital for six months being treated for
Leukaemia
.
MaryF
Administrator
in
Hughes Syndrome APS Forum
6 years ago
Guidelines Myeloproliferative Neoplasms and Articles of Interest
Hello I have listed some links for MPN articles of interest. Kind regards Anna The 2016 revision to the World Health Organization (WHO) classification of myeloid neoplasms and acute leukemia https://www.researchgate.net/publication/301276550_The_2016_revision_to_the_World_Health_Organization_WHO_classification_of_myeloid_neoplasms_and_acute_leukemia
Hello I have listed some links for MPN articles of interest. Kind regards Anna The 2016 revision to the World Health Organization (WHO) classification of myeloid neoplasms and acute leukemia https://www.researchgate.net/publication/301276550_The_2016_revision_to_the_World_Health_Organization_WHO_classification_of_myeloid_neoplasms_and_acute_leukemia
Hidden
in
MPN Voice
6 years ago
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Our new Living well series
It can be downloaded on the
Leukaemia
Care website and you can order free copies too. Later this year, we will launch Living well with CML, Living well with CLL and Living well with ALL. Are there any burning questions or topics you'd like explored in those booklets?
It can be downloaded on the
Leukaemia
Care website and you can order free copies too. Later this year, we will launch Living well with CML, Living well with CLL and Living well with ALL. Are there any burning questions or topics you'd like explored in those booklets?
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
6 years ago
11 Q deletion? Mutated or unmutated?
I asked our CLL doctor if my husband with 11 q deletion was unmutated which is what I had assumed, but he said he was mutated. I am confused. He also tested positive for ZAP 70. I got his FISH results, but that did not clear this up. Help??
I asked our CLL doctor if my husband with 11 q deletion was unmutated which is what I had assumed, but he said he was mutated. I am confused. He also tested positive for ZAP 70. I got his FISH results, but that did not clear this up. Help??
kathymac52
in
CLL Support
6 years ago
Concern about another cancer
On trial of Ibrutinib and venetoclax for 3 months. Very concerned because I got called to have a diagnostic mammogram and ultrasound after my routine mammogram. Is it common to have another cancer with Cll. Thank you
On trial of Ibrutinib and venetoclax for 3 months. Very concerned because I got called to have a diagnostic mammogram and ultrasound after my routine mammogram. Is it common to have another cancer with Cll. Thank you
Ninagram
in
CLL Support
6 years ago
Night sweats
Since diagnosis and commencing on hydroxycarbamide I have suffered from nightsweats. I would wake in the night with my pillow soaking wet and my hair like I'd just got out of the shower. This has been ongoing since 2008. A couple of weeks ago I invested in a new mattress and pillows that have a gel layer
Since diagnosis and commencing on hydroxycarbamide I have suffered from nightsweats. I would wake in the night with my pillow soaking wet and my hair like I'd just got out of the shower. This has been ongoing since 2008. A couple of weeks ago I invested in a new mattress and pillows that have a gel layer
Val_P
in
MPN Voice
6 years ago
New 17P- w questions about EGCG and normal 2nd 17th chromosome
Hello, Thank you all for your insightful posts and support! I'm relatively new to this forum- diagnosed in April 2018 with 17P- CLL on abnormal bloodwork. Initially saw my internist, then a private hematologist. Subsequently had CT and new bloodwork at UC Health (Colorado) and on their recommendation
Hello, Thank you all for your insightful posts and support! I'm relatively new to this forum- diagnosed in April 2018 with 17P- CLL on abnormal bloodwork. Initially saw my internist, then a private hematologist. Subsequently had CT and new bloodwork at UC Health (Colorado) and on their recommendation
TJG_CLL17P-
in
CLL Support
6 years ago
10 years ago today I received my allogeneic hematopoietic stem cell transplant (HSCT) for my CLL
Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since
Hi, I just posted a very brief blog update on my 10 year anniversary of my first radical move to save my life. You can read it about here: https://cllsociety.org/2018/07/10-years-ago-today-i-received-my-allogeneic-hematopoietic-stem-cell-transplant-hsct-for-my-cll-chronic-lymphocytic-leukemia/ Since
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Financial help from LLS for US patients
Hi, Got this today from friends at LLS These funds open and close quickly at time, so if you qualify and have the need, move fast. This is for Medicare and private insurance. Very good news. See below for details. Stay strong. We are all in this together. Brian http://cllsociety.org Dear Health Care
Hi, Got this today from friends at LLS These funds open and close quickly at time, so if you qualify and have the need, move fast. This is for Medicare and private insurance. Very good news. See below for details. Stay strong. We are all in this together. Brian http://cllsociety.org Dear Health Care
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
Dr. Wiestner on Combos and fixed duration ibrutinib (he doesn't like the idea) and a webinar with Dr. Byrd and me
Hi everyone, Dr. Wiestner always has a fresh perspective on CLL treatment, and my interview at ASH was no exception. I+V in the CAPTIVATE trial is looking very potent and quite safe and the data from EHA was amazing. On Aug 15, at 2 PM ET, Dr. Byrd and I will be doing an innovative free webinar on CLL
Hi everyone, Dr. Wiestner always has a fresh perspective on CLL treatment, and my interview at ASH was no exception. I+V in the CAPTIVATE trial is looking very potent and quite safe and the data from EHA was amazing. On Aug 15, at 2 PM ET, Dr. Byrd and I will be doing an innovative free webinar on CLL
bkoffman
CLL CURE Hero
in
CLL Support
6 years ago
MPN horizons conference
I received some of this information at my local patient haemotology group, where we had a visit from the regional
leukaemia
care representative.
I received some of this information at my local patient haemotology group, where we had a visit from the regional
leukaemia
care representative.
EleanorPV
in
MPN Voice
6 years ago
Bone barrow biopsy in cml
I am describing my fathers report below can anyone tell me what that mean Microscopic Description: Bone marrow biopsy : Hypercellular bone marrow showing myeloid preponderance with adequate maturation. Megakaryocytes are increased and shows dyspoietic changes included micromegakaryocytes. Erythroid
I am describing my fathers report below can anyone tell me what that mean Microscopic Description: Bone marrow biopsy : Hypercellular bone marrow showing myeloid preponderance with adequate maturation. Megakaryocytes are increased and shows dyspoietic changes included micromegakaryocytes. Erythroid
sumit-dubey
in
CLL Support
6 years ago
One Million CLL Society Website Page-views! CLL Society in person support groups
Dear Friends and Supporters of the CLL Society, On July 2nd the CLL Society website surpassed 1 million page-views. You searched. We delivered. Thank you for your continued confidence in our work! Please check out the good health news about Brian's CAR-T treatment here. https://cllsociety.org/
Dear Friends and Supporters of the CLL Society, On July 2nd the CLL Society website surpassed 1 million page-views. You searched. We delivered. Thank you for your continued confidence in our work! Please check out the good health news about Brian's CAR-T treatment here. https://cllsociety.org/
lankisterguy
Volunteer
in
CLL Support
6 years ago
unmutated cll patient treatment with fcr
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
hi there. i would like pls to know if unmutated cll patients as i am have complete remision for several years after FCR treatment or they all relaps after 2 to 3 years .fish test necative to 17p deletion. [i]Image of overall survival comparison with FC and FCR for IGHV mutated and unmutated added by
Neoklis
in
CLL Support
6 years ago
Advocacy caseworker now available
A little update from
Leukaemia
Care - we now have an advocacy case worker within the office. What does this mean?
A little update from
Leukaemia
Care - we now have an advocacy case worker within the office. What does this mean?
NicoleLeukaemiaCare
Administrator
in
Leukaemia CARE
6 years ago
NEWS - Scottish Medicines Consortium (SMC) recommended the use of inotuzumab ozogamicin
The Scottish Medicines Consortium (SMC) issues restricted recommendation for use of inotuzumab ozogamicin in the treatment of adults with relapsed/refractory acute lymphoblastic
leukaemia
(ALL) in Scotland.
The Scottish Medicines Consortium (SMC) issues restricted recommendation for use of inotuzumab ozogamicin in the treatment of adults with relapsed/refractory acute lymphoblastic
leukaemia
(ALL) in Scotland.
HAIRBEAR_UK
Administrator
in
Leukaemia CARE
6 years ago
Concernef
i had yearly mammogram June 11 was about a month late because of wreck , recalled July 2 with concerns of finding lymph node they said 4 inches but think they meant 4 cm , my concern is my sister passed away from breast cancer metastasis , is their a blood test that can show if cancer cells present
i had yearly mammogram June 11 was about a month late because of wreck , recalled July 2 with concerns of finding lymph node they said 4 inches but think they meant 4 cm , my concern is my sister passed away from breast cancer metastasis , is their a blood test that can show if cancer cells present
Rjbp1950
in
CLL Support
6 years ago
Ruxolitinib
Had my first haemo appointment today since starting Ruxolitinib 2 1/2 weeks ago. My bloods were all good and my platelets have moved down (albeit slowly) to 800. It is going in the right direction. Symptoms have improved particularly the itching (unless I have a very hot bath and even then is far better
Had my first haemo appointment today since starting Ruxolitinib 2 1/2 weeks ago. My bloods were all good and my platelets have moved down (albeit slowly) to 800. It is going in the right direction. Symptoms have improved particularly the itching (unless I have a very hot bath and even then is far better
Graham7694
in
MPN Voice
6 years ago
efsa assesses safety of green tea catechins
https://www.efsa.europa.eu/en/press/news/180418 It's been been noted here before that too much green tea may cause some liver damage. Here is a European study that verifies that. Strangely for me is that I take four capsules of 200 mg EGCG and that is the exact exact amount - 800 mg per day - the study
https://www.efsa.europa.eu/en/press/news/180418 It's been been noted here before that too much green tea may cause some liver damage. Here is a European study that verifies that. Strangely for me is that I take four capsules of 200 mg EGCG and that is the exact exact amount - 800 mg per day - the study
gemit2000
in
CLL Support
6 years ago
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