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Cll and chemo this is my first
I have cll my and now the test show bile duk dilated.my first treatment og chemo is this week my count is 154.000. Is tge bile duck another issue. Will i get sick from chemo i have no fever or night sweat. Sjould i get second opinion before chemo
I have cll my and now the test show bile duk dilated.my first treatment og chemo is this week my count is 154.000. Is tge bile duck another issue. Will i get sick from chemo i have no fever or night sweat. Sjould i get second opinion before chemo
christrom
in
CLL Support
6 years ago
Take part in a user-testing workshop for a new website around clinical trials.
Sense about Science is currently organising a user-testing workshop on a new website around stem cell therapy clinical trials, and they would like someone from our community to join them on the day.
It will be on Tuesday 4th September from 1pm to 3.30pm in their office at 14A, Clerkenwell Green,
Sense about Science is currently organising a user-testing workshop on a new website around stem cell therapy clinical trials, and they would like someone from our community to join them on the day.
It will be on Tuesday 4th September from 1pm to 3.30pm in their office at 14A, Clerkenwell Green,
Paul_Howard
LUPUS UK
in
LUPUS UK
6 years ago
Itp treatment
Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode of my life š Now , during this time I've been reading articles about Itp. They suggest to wait e years before doing splenectomy. Personally , I know a woman in my relatives who had it during pregnancy and took 2 years
Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode of my life š Now , during this time I've been reading articles about Itp. They suggest to wait e years before doing splenectomy. Personally , I know a woman in my relatives who had it during pregnancy and took 2 years
Lman96
in
ITP Support Association
6 years ago
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Recent SLL/CLL Patient Question
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
Hello. I found out I have SLL/CLL earlier this year at 31. I had Rituxan treatment shortly after since I have neutropenia I can't seem to shake. I will save this for another post. My lymph nodes are visible but not huge yet. Since I have 11q I have read it can become a bulky disease. Not sure if they
DriedSeaweed
in
CLL Support
6 years ago
CAR T-Cell Developments in Lymphoma Dr. Ian Flinn Highlights
Flinn Highlights CAR T-Cell Developments in Lymphoma by Brandon Scalea Published: Thursday, Aug 09, 2018 - https://www.onclive.com/web-exclusives/flinn-highlights-car-tcell-developments-in-lymphoma?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%20NHL%20CC%20eNews%20%20Zydelig
Flinn Highlights CAR T-Cell Developments in Lymphoma by Brandon Scalea Published: Thursday, Aug 09, 2018 - https://www.onclive.com/web-exclusives/flinn-highlights-car-tcell-developments-in-lymphoma?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%20NHL%20CC%20eNews%20%20Zydelig
lankisterguy
Volunteer
in
CLL Support
6 years ago
Results of flow
What does this mean regarding cll? PATHOLOGICAL DIAGNOSIS A. Peripheral blood, flow only: - CD5+, CD23 + (subset) B-cell lymphoproliferative disorder, see flow
What does this mean regarding cll? PATHOLOGICAL DIAGNOSIS A. Peripheral blood, flow only: - CD5+, CD23 + (subset) B-cell lymphoproliferative disorder, see flow
Pat351v
in
CLL Support
6 years ago
Potential unrelated donor found
Hi All, A bit of an update. My local transplant unit has advised that a potential unrelated donor has been found for me on the German bone marrow registry. Looking at a mid September transplant, depending on the availability and health of my potential donor and me. A series of appointments have been
Hi All, A bit of an update. My local transplant unit has advised that a potential unrelated donor has been found for me on the German bone marrow registry. Looking at a mid September transplant, depending on the availability and health of my potential donor and me. A series of appointments have been
Simon96
in
MPN Voice
6 years ago
CLL Treatment Sequencing by Dr. Susan O'Brien
O'Brien Shares Overview of CLL Sequencing OncLive: by Brandon Scalea Published: Friday, Aug 10, 2018 ( poster comment; mostly a USA perspective) https://www.onclive.com/web-exclusives/obrien-shares-overview-of-cll-sequencing?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%
O'Brien Shares Overview of CLL Sequencing OncLive: by Brandon Scalea Published: Friday, Aug 10, 2018 ( poster comment; mostly a USA perspective) https://www.onclive.com/web-exclusives/obrien-shares-overview-of-cll-sequencing?eKey=bGVua2Vja0Bjb21jYXN0Lm5ldA==&utm_medium=email&utm_campaign=ONCSS%
lankisterguy
Volunteer
in
CLL Support
6 years ago
Feeling really lost and scared.
My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his Consultant said his platelets are too low (50) to have the 6th and final planned dose. She does not plan to do a scan for a few weeks, has no other
My husband did have CLL but had Richters Transformation to Lymphoma. He has been having Rituximab with Gemcitabine and Oxaliplatin. However yesterday his Consultant said his platelets are too low (50) to have the 6th and final planned dose. She does not plan to do a scan for a few weeks, has no other
krisskross
in
CLL Support
6 years ago
FLAIR Study Site List Map / UK CLL Expert Centres
FLAIR study is available at the following link (but note that the Ibrutinib plus rituxamab arm because it opened first has now closed as they have already recruited enough patients) https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-ibrutinib-rituximab-chronic-lymphocytic-
leukaemia
-flair
FLAIR study is available at the following link (but note that the Ibrutinib plus rituxamab arm because it opened first has now closed as they have already recruited enough patients) https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-trial-ibrutinib-rituximab-chronic-lymphocytic-
leukaemia
-flair
AdrianUK
in
CLL Support
6 years ago
Brain fog
It has been a while since I posted. Things have been going well on the Ruxolitinib and my platelets have been coming down steadily. I have been feeling a bit light headed the last few days but experienced serious brain fog for the first time today. I went to do the shopping and firstly couldnāt remember
It has been a while since I posted. Things have been going well on the Ruxolitinib and my platelets have been coming down steadily. I have been feeling a bit light headed the last few days but experienced serious brain fog for the first time today. I went to do the shopping and firstly couldnāt remember
Graham7694
in
MPN Voice
6 years ago
Results not yet diagnosed
My dad and his brother died of a type of
leukaemia
and Iāve been found to have an excessive amount of cervical lymph nodes.
My dad and his brother died of a type of
leukaemia
and Iāve been found to have an excessive amount of cervical lymph nodes.
HeatherS-UK
in
CLL Support
6 years ago
Being told you have cll or any kind of cancer is a shock to most people ..
I first learned that I had cll in 2016 ā¦.I have read were ginger , chamomile , and turmeric are all good for cll ..I was wondering if any one has tried these and if they feel like they are helping ..other than eating a will balanced meal and getting enough rest as will as staying as stress free as possible
I first learned that I had cll in 2016 ā¦.I have read were ginger , chamomile , and turmeric are all good for cll ..I was wondering if any one has tried these and if they feel like they are helping ..other than eating a will balanced meal and getting enough rest as will as staying as stress free as possible
maddog47
in
CLL Support
6 years ago
feeling rotten
I am new here. At the moment my red blood cells are low. Fortunately the white blood cells are normal. I have been diagnosed with myelofibrosis in May 2018 just by chance. It was caught in the early stages. The worse thing for me is the lack of energy and bruises. It has been a learning
I am new here. At the moment my red blood cells are low. Fortunately the white blood cells are normal. I have been diagnosed with myelofibrosis in May 2018 just by chance. It was caught in the early stages. The worse thing for me is the lack of energy and bruises. It has been a learning
home1970
in
MPN Voice
6 years ago
Ibrutinib vs FCR: does order of therapy matter?
Time for a really specific question that is at the nub of the decision faced by doctors and patients when it is time to initiate first treatment. Does it matter which treatment we choose first? If you are a younger patient then clearly one of the critical issues is that sadly our disease is rarely cured
Time for a really specific question that is at the nub of the decision faced by doctors and patients when it is time to initiate first treatment. Does it matter which treatment we choose first? If you are a younger patient then clearly one of the critical issues is that sadly our disease is rarely cured
AdrianUK
in
CLL Support
6 years ago
Green tea with SLE
Hi there I have recently started drinking green tea only once a day in evening. Today I feel like I'm going to have an anxiety attack weird sensations. Has anyone else experienced these symptoms??
Hi there I have recently started drinking green tea only once a day in evening. Today I feel like I'm going to have an anxiety attack weird sensations. Has anyone else experienced these symptoms??
Hidden
in
LUPUS UK
6 years ago
Any ideas?
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all
Hi. I have joined this community to seek some idea as to what to expect for my friend. He was diagnosed with ALL earlier this year. All very sudden. He went through chemo regimes and subsequent stem cell transplant two months ago. All bloods and recovery going well. Last bloods about a week ago - all
Marilyn1959
in
Leukaemia Support
6 years ago
Response and Survival Rates for FCR and Ibrutinib
Those of you who waded through my post yesterday on clonal evolution will be glad to know this is a much more simple one! I am going to break a statistical rule today but am in good company as the information below is based in part on a table found in the UK CLL 2018 guidelines: https://onlinelibrary.wiley.com
Those of you who waded through my post yesterday on clonal evolution will be glad to know this is a much more simple one! I am going to break a statistical rule today but am in good company as the information below is based in part on a table found in the UK CLL 2018 guidelines: https://onlinelibrary.wiley.com
AdrianUK
in
CLL Support
6 years ago
HRT
She checked her medicine book and there were no contraindications for
leukaemia
but just wondered if anyone else had any knowledge or experience? I've always been someone who said I'd never have it but I'm having severe issues and benefits may outweigh the risks. Thanks. I have HCL.
She checked her medicine book and there were no contraindications for
leukaemia
but just wondered if anyone else had any knowledge or experience? I've always been someone who said I'd never have it but I'm having severe issues and benefits may outweigh the risks. Thanks. I have HCL.
emmieb-UK
in
Leukaemia Support
6 years ago
Clonal Evolution, mutations and resistance to CLL treatment
When someone is diagnosed with CLL they have at least one clone of B lymphocytes that are growing faster than they should and/or dying less than they should. As a result we are diagnosed with cancer. But the illness may be slow growing, not even needing treatment initially, but may develop to a point
When someone is diagnosed with CLL they have at least one clone of B lymphocytes that are growing faster than they should and/or dying less than they should. As a result we are diagnosed with cancer. But the illness may be slow growing, not even needing treatment initially, but may develop to a point
AdrianUK
in
CLL Support
6 years ago
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