Itp treatment

[s00rena]

Hi . I developed Itp 5.5 month ago. I know I have it after a stressful episode of my life 😐

Now , during this time I've been reading articles about Itp. They suggest to wait e years before doing splenectomy. Personally , I know a woman in my relatives who had it during pregnancy and took 2 years of steroids to reach 70k off treatment .

I've tried rituxrituximab that didn't work for me . Now starting nplate. That have me 121k (I've also taken 25mg steroids during this time)

My first question is does mode of treatment, steroids or nplate , effect the chance of getting better in this disease ?

My second question is that if there's going to be an improvement that is meaningful, how is that ? I've been on 8k for a month and around 10k for rest of the time , but I've been around 20k and also had 31k too . Does this have a meaning ?

Personally, 10k is enough for me off treatment ☺

[alice_sportyauthor]

When they suggested splenectomy many, many years ago, I didn’t like the fact that every year for the ten years of follow ups people would have their ITP return & the initial success rate was not great. So I decided that as I had relatively mild symptoms I would not have the splenectomy.

Do some research, what are success rates now for this procedure? Etc

I’ve lived okay for twenty years with between 15 & 30 platelets per unit, with no treatment or intervention. They did try steroids but they didn’t help my blood count, so we agreed to do no treatment and I’ve been okay.

[s00rena in reply to alice_sportyauthor]

15-30k is so great ! I've been living with 8k for two month while also taking 25mg prednisolone . even 8k is enough for me . but OFF TREATMENT :(((

[alice_sportyauthor in reply to s00rena]

15-30 is my average. My lowest was 7, they still didn’t treat, and I was happy with that.