It has been a while since I posted.
Things have been going well on the Ruxolitinib and my platelets have been coming down steadily.
I have been feeling a bit light headed the last few days but experienced serious brain fog for the first time today.
I went to do the shopping and firstly couldn’t remember what I needed and when I did get to the til I couldn’t remember my PIN number to pay!! Fortunately I had another card which I had the pin in my phone for but it was very frustrating to say the least.
I am coming up to 10 weeks on the Ruxolitinib - anyone else experience this?
The good news is I have been on the internet and found my pin - been using the same number for 10 years......
Hi Graham , pleased your doing well, apart from the forgetfulness. I'm on Rux and my short term memory is dreadful, but then I've had so much therapy one way and another I can't blame the Rux but it might contribute. Age might also have a bearing. It drives me mad when I leave a room or go outside to do something 'important' only to forget what the heck it was when I get there.
I hope you don't get as bad as me.
By the way is your pin 7694 😉.
Cheers Chris
Haha Chris - perhaps I should change all my numbers to that! Sadly it is just my eBay name and as I couldn’t think of anything more exciting then I thought it would do 😀 I am feeling a little better this evening - had a few bottles of water so perhaps I was a little dehydrated? I have been trying to do 3 litres of water a day but it isn’t easy and looking back over the last few days I have let it slip a bit. Not to self - must try harder 👍
Gee 3 litres can be a chore atop cups of tea , a beer or 2 maybe , I would think 2 litres ought to be enough and achievable but don't beat yourself up over it life's hard enough.
Keep well . . .