Search
Search
About
Log in
Join
Experiences with
Leigh's Disease
Posts
Communities
45,125 public posts
Filter results
Update B12 appointment . help needed
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Thank you all for your advice . Had an appointment yesterday and despite feeling exhausted dizzy and having some pins and needles in my hand. (NHS website says 2_3months with malabsorption issues.) . I was told they cannot go against local NHS guidance and got to wait for 12 weeks for my B12 jab. I
Welshtoffee
in
Pernicious Anaemia Society
4 months ago
Very High blood pressure
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
I had a heartbeat issue last week ( felt a heavy thumping and slight difficulty getting my breath). Saw gp. She said heart sounded fine but has booked me in for bloods and ecg. However my blood pressure was high , so I’m now monitoring t home. I started yesterday evening. All my readings have been
Freshairfiend
in
PMRGCAuk
3 months ago
misdiagnosed cirrhosis?
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
I was diagnosed with cirrhosis approximately a year ago. Had all the classic symptoms with ascites being the worst. Every time the gastroenterologist sent me for an MRI, the ascites has interfered with the test. He reluctantly gave me a diagnosis of cirrhosis when pushed but didn’t seem confident. Been
juneblue
in
British Liver Trust
7 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
Partner
in
Sudden Cardiac Arrest & Heart Attack
3 months ago
March is Blood Clot Awareness Month #BCAM
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
Atrial fibrillation (AF) is the most common arrhythmia (heart rhythm disorder) that can affect 1 in 3 of us. Are you aware of the symptoms, the risks (AF-related strokes caused by a blood clot) and what treatment options are available? Register today to access ‘on demand’ education and information
TracyAdmin
ArrhythmiaAlliance
in
Heart Rhythm Disorders Support
3 months ago
Remission now flare.
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
Hi all, Not been on here for a while. I have sero neg rheumatoid arthritis, diagnosed 2010. Have been luckily in remission for a long time probably 10 years anyway seem to be having a flare, pain in shoulder, both knees and one hip plus pain in jaw. But bloods show no inflammation, not sure what is going
pool0009
in
NRAS
4 months ago
The arrhythmia nurse wants me to reduce my bisoprolol dose after my cardioversion - fear of early relapse.
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
I had a 2nd successful cardioversion 5 days ago, and the arrhythmia nurse told me to reduce my dose of bisoprolol immediately from 7.5mg to 5mg as my heart rate was around 50bpm. However, unless I maintain NSR for 6 weeks after the cardioversion, they won't offer another one, so I'm reluctant to reduce
Belle11
in
Atrial Fibrillation Support
3 months ago
Hello
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Hi I'm under going tests for lupus I have symptoms, I'm just looking for more information at the moment
Tray68
in
LUPUS UK
4 months ago
switching to a carnivore diet has put my PMR into total remission
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
I know the subject may be viewed as sensational or just plain wrong, but that is what I have concluded. At the time I was diagnosed with PMR, I already had diagnoses of psoriatic arthritis and fibromyalgia. My PMR started in 2019, about 8 months prior to covid. I was put on prednisone and experienced
benhemp
in
PMRGCAuk
4 months ago
hashimotos and cortisol testing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Hi there because of the fatigue I am experiencing, I am thinking of having some tests done to see if my cortisol is ok. I am aware of the short synachten test, the straight forwards blood test for cortisol or the 4x a day saliva test. Not really sure where to start or if this will be useful to my healing
Sammy333
in
Thyroid UK
7 months ago
PSA Doubled in 2 Months
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
PSA end of August was 0.12 now 0.24. I met with 2 ROs to discuss treatment when my PSA was 0.20 a week ago . One suggested ADT 18-24 months and prostate bed radiation. Second RO says we can avoid ADT for now as he sees 0.70 as the value he believes requires ADT. I'm scheduled for F18 PSMA scan in early
NJWarrior
in
Advanced Prostate Cancer
7 months ago
lupus
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
hi everyone I’m new on here. Im currently waiting for a lupus diagnosis. I’m due to go in to hospital tomorrow for a skin biopsy on my face. Has any one ever had one ? Also do you think my rash looks like a lupus rash ? Thanks everyone.
Pea_m
in
LUPUS UK
4 months ago
Lupie Diary - International 4+Syamsi Dhuha Foundation
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
This FREE Application is developed to help people with lupus (and also people with other diseases) to record and monitor her/his medication, treatment received from her/his doctor, or other consultation with medical professionals (such as pharmacist). Personal medical record will help both patient and
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
4 months ago
Pain when breathing and short of breathe post ablation update
Thanks guys fir all your advice .I ended up at a n e after ringing 111 for advice. They red flagged me and did an immediate ecg to rule out a heart attack. Followed by bloods and a xray of my lungs .. All tests can back normal and they couldn't find and concerns . So I was sent hone and it's a mystery
Thanks guys fir all your advice .I ended up at a n e after ringing 111 for advice. They red flagged me and did an immediate ecg to rule out a heart attack. Followed by bloods and a xray of my lungs .. All tests can back normal and they couldn't find and concerns . So I was sent hone and it's a mystery
Sunnyann
in
Atrial Fibrillation Support
3 months ago
help !
last couple days Iv had serve chest pains it’s right in the middle of my chest and now it’s round my back like ribs feels all tight! When I press down it hurts so much and I’m getting shortness of breathe but I don’t think it’s a heart attack but I’m panicking it is! When I google it says it could be
last couple days Iv had serve chest pains it’s right in the middle of my chest and now it’s round my back like ribs feels all tight! When I press down it hurts so much and I’m getting shortness of breathe but I don’t think it’s a heart attack but I’m panicking it is! When I google it says it could be
Kaaayla
in
Anxiety Support
3 months ago
Whats high PSA? ( when you havent been diagnosed with prostate cancer)
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
After father was diagnosed. Several family member went and tested themselves with PSA tests. My husband was 39 years old and his PSA test came back 1,9 and this year at 40 years his PSA was 1,6, free PSA added 0,4 ( which was good). I read somewhere that PSA 1,5 and higher is of concern. I feel
Daddysgirl83
in
Advanced Prostate Cancer
7 months ago
Bisoprolol and Mechanism of Action- Breathlessness
So I am on a tiny, baby dose of Bisporolol (1.25mg) after taking 2.5/made me dizzy and have pauses after PACs. I am getting this weird breathlessness. It is so hard to explain. I hiked a trail in our woods today with ko problem, but then sat on the couch and watched a movie and felt like I couldnt
So I am on a tiny, baby dose of Bisporolol (1.25mg) after taking 2.5/made me dizzy and have pauses after PACs. I am getting this weird breathlessness. It is so hard to explain. I hiked a trail in our woods today with ko problem, but then sat on the couch and watched a movie and felt like I couldnt
MeganMN
in
Atrial Fibrillation Support
3 months ago
Medication for Vasculitis
Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset of my illness I now have to use a wheeled walker to get around and can no longer drive a motor vehicle.
Hi. I have had Vasculitis for four years and my current medication is Prednisolone 5.5 mg daily and Methotextrate Injection 25mg weekly. Following the onset of my illness I now have to use a wheeled walker to get around and can no longer drive a motor vehicle.
oscar294
in
Vasculitis UK
3 months ago
PSA level six months Eligard
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
I was diagnosed with PC in September 2022 with PSA level of 35 and had my prostate removed in January 2023. Since then, I started ADT in June 2023 and went through 39 sessions of SRT. My current PSA is 0.008 ng/mL. My doctor gave me a choice of continue with ADT for another six months which I already
toyman79912
in
Advanced Prostate Cancer
7 months ago
Options After Pluvicto.................
Pluvicto is dropping my PSA, and i will be having my fourth infusion on December 4th, 2023. Has anyone in my situation know what their next option will be ?? What comes after Pluvicto to maintain a low PSA ??
Pluvicto is dropping my PSA, and i will be having my fourth infusion on December 4th, 2023. Has anyone in my situation know what their next option will be ?? What comes after Pluvicto to maintain a low PSA ??
Kian28
in
Advanced Prostate Cancer
7 months ago
1
...
71
72
73
...
100
Next page
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
Thyroid UK
5880 results
British Liver Trust
4473 results
Advanced Prostate Cancer
4373 results
View top 10 communities
Sort by
Most Relevant
Newest