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Stills disease or other arthritis pain
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief and self management by living within the boundaries of what the condition allows. 2023 brought stress and may be the cause of worsening joint pain and new symptoms possible down to autoimmune thyroiditis
Adult onset Stills disease diagnosed aged 17 in 1979 now 62 and not on RA drugs just pain relief and self management by living within the boundaries of what the condition allows. 2023 brought stress and may be the cause of worsening joint pain and new symptoms possible down to autoimmune thyroiditis
Stills
in
NRAS
7 days ago
Can pernicious anaemia be caused by long term use of lansoprazole?
Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or would virtually say I was a hypocondriac. I nagged and got sent to a consultant who said I had neurological problems caused by fibromylgia and
Hello everyone, I am a lady of 67. Ive been taking lansoprazole for years. Then I began to feel ill with various symptoms the doctor was not interested in or would virtually say I was a hypocondriac. I nagged and got sent to a consultant who said I had neurological problems caused by fibromylgia and
wiserlady
in
Pernicious Anaemia Society
7 days ago
chronic pain interview
In case these might be of use, here’s a very good interview with Kirsty Young (who has fibromyalgia and rheumatoid arthritis) to coincide with the International Association for the Study of Pain World Congress in Amsterdam. And a link to a useful site on living with chronic pain. The interview is only
In case these might be of use, here’s a very good interview with Kirsty Young (who has fibromyalgia and rheumatoid arthritis) to coincide with the International Association for the Study of Pain World Congress in Amsterdam. And a link to a useful site on living with chronic pain. The interview is only
Sibelius5
in
PMRGCAuk
8 days ago
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4 years post EBRT (44) PSA 0.1 Up from undetectable.
MO thinks it will go up hopefully slowly. Recheck psa in 3 months. Dumb question maybe. Stage 4?
MO thinks it will go up hopefully slowly. Recheck psa in 3 months. Dumb question maybe. Stage 4?
Chasu
in
Advanced Prostate Cancer
5 months ago
Pet Scan = "disease not detected"
Ok folks, has anyone come across something like this?...early 2018, PSA in the 50's, biopsy came back negative, a few months later PSA in the 60's, again, another biopsy and a negative finding, 3rd time in the 80's with yet another negative biopsy, then nuclear imaging and bam...stage 4 metastatic, this
Ok folks, has anyone come across something like this?...early 2018, PSA in the 50's, biopsy came back negative, a few months later PSA in the 60's, again, another biopsy and a negative finding, 3rd time in the 80's with yet another negative biopsy, then nuclear imaging and bam...stage 4 metastatic, this
GreyDragon55
in
Advanced Prostate Cancer
5 months ago
The Wren Project
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
If you are feeling distressed and have a diagnosis of Autoimmune Thyroiditis, Hashimoto’s disease or Grave’s disease, you can receive free, ongoing emotional listening support with a volunteer at The Wren Project, a charity supporting people living with autoimmune disease. For more information and to
TUKOffice
Thyroid UK
in
Thyroid UK
9 days ago
Is this real? Prevent & Reverse Autoimmune disease
Have you read, or do you know anyone who has, this book: 'Top 20 Foods to Help Prevent & Reverse Autoimmune Disease' ? It's available free as a download from Eric, Wisdom for Life if you enter your name and email address. It sounds too good to be true but perhaps you know better?
Have you read, or do you know anyone who has, this book: 'Top 20 Foods to Help Prevent & Reverse Autoimmune Disease' ? It's available free as a download from Eric, Wisdom for Life if you enter your name and email address. It sounds too good to be true but perhaps you know better?
thyr01d
in
Thyroid UK
10 days ago
Adrenal Insufficiency or GCA or both?
I have looked at the FAQs but cannot readily find an answer so here goes.By way of quick update I restarted pred about 3 months at 10mg because my PMR symptoms came back. I have been tapering at 1mg every 5 weeks using Dorset Lady's slow taper (thank you again). I am shortly to reduce from 7mg to 6.5mg
I have looked at the FAQs but cannot readily find an answer so here goes.By way of quick update I restarted pred about 3 months at 10mg because my PMR symptoms came back. I have been tapering at 1mg every 5 weeks using Dorset Lady's slow taper (thank you again). I am shortly to reduce from 7mg to 6.5mg
SudsSuds
in
PMRGCAuk
5 months ago
New Drug May Repair Myelin
I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting
I received an article about clinical trials at the University of California San Francisco on a drug that can repair myelin. It uses venom from the green mamba snake. I'm wondering if the side effects include developing a lissssssp? 🤣 It's a long way from being available, but it sounds interesting
NanciG
in
My MSAA Community
10 days ago
Joint pain very common in lupus, affects patients’ life quality: Study
Joint pain very common in lupus, affects patients’ life quality: Study SLE marked by ache, discomfort, numbness in hands, wrists and knees by Patricia Inacio, PhD The vast majority of people with systemic lupus erythematosus (SLE) experience musculoskeletal symptoms, marked by pain, ache, discomfort
Joint pain very common in lupus, affects patients’ life quality: Study SLE marked by ache, discomfort, numbness in hands, wrists and knees by Patricia Inacio, PhD The vast majority of people with systemic lupus erythematosus (SLE) experience musculoskeletal symptoms, marked by pain, ache, discomfort
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
11 days ago
The Queen is here!
Hi all, it's been a while but I'm still going strong 😁 I didn't look back to see what was up the last time I was here. I am still not on dialysis and I've had my fistula for several months now. It's become so thick and strong. I think it's doing well. I've tried not to worry every day about having to
Hi all, it's been a while but I'm still going strong 😁 I didn't look back to see what was up the last time I was here. I am still not on dialysis and I've had my fistula for several months now. It's become so thick and strong. I think it's doing well. I've tried not to worry every day about having to
HipHopQueen
in
Kidney Dialysis
5 months ago
Hashimoto's and gut
Hi there, I have really sluggish digestion that's been getting worse and now I realise I have Hashi's it's starting to make sense. I've also discovered from this forum that we often have low stomach acidity and I'd like to understand more about this...how do we find out if that's definitely something
Hi there, I have really sluggish digestion that's been getting worse and now I realise I have Hashi's it's starting to make sense. I've also discovered from this forum that we often have low stomach acidity and I'd like to understand more about this...how do we find out if that's definitely something
LifeintheMed
in
Thyroid UK
12 days ago
feeling unwell
hello I have underactive thyroid , but now it is overactive I’ve been told , since reducing my meds , I have had such an awful feeling oh painful sensitive throat , wierd flutter with tounge and very sensitive gums , I have hashimotos and have nodules, keep getting hot and cold , any advise on what I
hello I have underactive thyroid , but now it is overactive I’ve been told , since reducing my meds , I have had such an awful feeling oh painful sensitive throat , wierd flutter with tounge and very sensitive gums , I have hashimotos and have nodules, keep getting hot and cold , any advise on what I
Prosecco1997
in
Thyroid UK
12 days ago
Test Results - How bad is it?
Hi all, I went to the GP as I keep getting sharp pains in my right abdomen (upper quadrant) and multiple bruises appearing beneath my ribcage area, mostly on the right side but sometimes left. The doctor ordered a whole bunch of tests, including thyroid. My results came back abnormal for thyroid. Everything
Hi all, I went to the GP as I keep getting sharp pains in my right abdomen (upper quadrant) and multiple bruises appearing beneath my ribcage area, mostly on the right side but sometimes left. The doctor ordered a whole bunch of tests, including thyroid. My results came back abnormal for thyroid. Everything
LeanneMK
in
Thyroid UK
13 days ago
Botox and autoimmune illness
Hi all I was always under the impression that Botox is something to be avoided with autoimmune illnesses such as Hashi’s. However my hygienist suggested it to help with my jaw clenching at night, I said I didn’t think I can because of my illness however she says her mum and sister both have hashi’s
Hi all I was always under the impression that Botox is something to be avoided with autoimmune illnesses such as Hashi’s. However my hygienist suggested it to help with my jaw clenching at night, I said I didn’t think I can because of my illness however she says her mum and sister both have hashi’s
Topes009
in
Thyroid UK
14 days ago
EU Approves Subcutaneous Formulation of Ocrelizumab for Multiple Sclerosis Treatment
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (Ocrevus; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS). The subcutaneous injection was designed
According to a recent announcement, the European Commission (EU) has granted market authorization for a new subcutaneous formulation of ocrelizumab (Ocrevus; Roche), administered twice-yearly as a 10-minute injection for patients with multiple sclerosis (MS). The subcutaneous injection was designed
BettysMom
in
My MSAA Community
14 days ago
Just Asking For Advice/ Opinions.
I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed arent available in primary care. Basically I had early severe pre eclampsia in my first pregnancy in 1991. I was very unwell and sadly my son died
I'm in the process of possibly being investigated for APS. MyGP is seeking advice and guidance from haematology as she seems to think the blood tests needed arent available in primary care. Basically I had early severe pre eclampsia in my first pregnancy in 1991. I was very unwell and sadly my son died
Sparklingsunshine
in
Hughes Syndrome APS Forum
15 days ago
T3 affecting sex hormones
Hi, I was diagnosed with an underactive thyroid earlier this year. I am currently taking 25mg T4 (50mg caused significant bloating) and 30mg T3 as split doses. I'm on a high dose of adrenal support as my Cortisol & DHEA were shown to be very low in a Dutch test earlier this year. Since starting T3
Hi, I was diagnosed with an underactive thyroid earlier this year. I am currently taking 25mg T4 (50mg caused significant bloating) and 30mg T3 as split doses. I'm on a high dose of adrenal support as my Cortisol & DHEA were shown to be very low in a Dutch test earlier this year. Since starting T3
Sunnyyellowlady
in
Thyroid UK
16 days ago
Is there a alternative to levothyroxine?
I am Wondering if I can treat my underactive thyroid naturally as I really do not get on with levothyroxine. I am only on 37.5mg a day as anything higher and I get so many nasty side effects. My thyroid was at 32 then 26 then dropped to 12 but now it has gone back up to 25.9. I have attached my results
I am Wondering if I can treat my underactive thyroid naturally as I really do not get on with levothyroxine. I am only on 37.5mg a day as anything higher and I get so many nasty side effects. My thyroid was at 32 then 26 then dropped to 12 but now it has gone back up to 25.9. I have attached my results
Beth1701
in
Thyroid UK
16 days ago
PAS blog post - Psychology in Wellness – Pernicious Anaemia
Hi All, New PAS blog post...apologies if already posted. Psychology in Wellness – Pernicious Anaemia https://pernicious-anaemia-society.org/blog/hope-and-psychology-in-wellness-pernicious-anaemia/
Hi All, New PAS blog post...apologies if already posted. Psychology in Wellness – Pernicious Anaemia https://pernicious-anaemia-society.org/blog/hope-and-psychology-in-wellness-pernicious-anaemia/
Sleepybunny
in
Pernicious Anaemia Society
16 days ago
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