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Leflunomide
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Thank you to all the people who responded to my post on Leflunomide.
Most people were of the opinion that I tapered off far too quickly, and that I would be better off, getting back on an even keel again, before trying again much more slowly. I have now been on the increased 15 mg for 12 days. The discomfort I experienced has eased, but unfortunately, I now feel very
Most people were of the opinion that I tapered off far too quickly, and that I would be better off, getting back on an even keel again, before trying again much more slowly. I have now been on the increased 15 mg for 12 days. The discomfort I experienced has eased, but unfortunately, I now feel very
Foxie52
in
PMRGCAuk
1 year ago
Leflunomide update
Just wanted to share my experience with my fellow PMR sufferers who may be pressured as I was to take either methotrexate or
leflunomide
.
Just wanted to share my experience with my fellow PMR sufferers who may be pressured as I was to take either methotrexate or
leflunomide
.
Alebeau
in
PMRGCAuk
2 years ago
Not sure what to expect?
I was put on Methotrexate, Sulphasalazine and Hydroxy last October after having the biggest flare ever trying
Leflunomide
. I cut out hydroxychloroquine in Feb due to stomach problems.
I was put on Methotrexate, Sulphasalazine and Hydroxy last October after having the biggest flare ever trying
Leflunomide
. I cut out hydroxychloroquine in Feb due to stomach problems.
Akaka
in
NRAS
1 year ago
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I think I Might Have PMRGCA. Worried
I was given
leflunomide
which I recently stopped, didn't like it but in the last couple of weeks I've had these symptoms which are driving me nuts: pain in jaw, pain in temples, a couple of short migraines, pain in ears.I also have pain in hips, pain in lower abdomen left.
I was given
leflunomide
which I recently stopped, didn't like it but in the last couple of weeks I've had these symptoms which are driving me nuts: pain in jaw, pain in temples, a couple of short migraines, pain in ears.I also have pain in hips, pain in lower abdomen left.
priss58
in
PMRGCAuk
2 years ago
2nd Update re Giving up
On
Leflunomide
10mg for 2 weeks now but not working yet. Taking morphine slow release plus liquid for breakthrough pain given by gp. I could happily take it all in one go at the mo. Sorry for such a downer first thing. You all 'get it' though.
On
Leflunomide
10mg for 2 weeks now but not working yet. Taking morphine slow release plus liquid for breakthrough pain given by gp. I could happily take it all in one go at the mo. Sorry for such a downer first thing. You all 'get it' though.
Haz58
in
NRAS
2 years ago
Consultant rang me
She says diarrhea this long after stopping
Leflunomide
isn't common but yes it can happen. So of course it would happen to me! Story of my life basically.
She says diarrhea this long after stopping
Leflunomide
isn't common but yes it can happen. So of course it would happen to me! Story of my life basically.
Haz58
in
NRAS
2 years ago
Adalimumab
Hi, I've had psoriatic arthritis for years ,
Leflunomide
is no longer working for me so I have been put on Adalimumab - did my first injection one week ago and have started feeling quite dizzy and nauseous, Just wondered if any one else has experienced this early on with this drug ? Thanks
Hi, I've had psoriatic arthritis for years ,
Leflunomide
is no longer working for me so I have been put on Adalimumab - did my first injection one week ago and have started feeling quite dizzy and nauseous, Just wondered if any one else has experienced this early on with this drug ? Thanks
cavapoomum
in
NRAS
1 year ago
Leflunomide - in hind sight
Reduced to 10 mg/day
leflunomide
in Sept 2022. However, the worst side effect was increasing neuropathy in my hands and feet. Rheumatologist told me to stop in Nov 2022 and take Olestyr for 10 days to speed up the flushing of
leflunomide
.
Reduced to 10 mg/day
leflunomide
in Sept 2022. However, the worst side effect was increasing neuropathy in my hands and feet. Rheumatologist told me to stop in Nov 2022 and take Olestyr for 10 days to speed up the flushing of
leflunomide
.
Alebeau
in
PMRGCAuk
2 years ago
Pain in ears, temples, on and off. TMJ, anyone?
I started
Leflunomide
end November last year but felt generally awful on it so stopped three weeks ago. I did have a massive flare up afterwards (but my grandson was born then and it was a bit stressful for a few days) My question is, did/do any of you have anything like this?
I started
Leflunomide
end November last year but felt generally awful on it so stopped three weeks ago. I did have a massive flare up afterwards (but my grandson was born then and it was a bit stressful for a few days) My question is, did/do any of you have anything like this?
priss58
in
NRAS
2 years ago
Here I go again! 😔
Now I can't start to take the
Leflunomide
now either as I have a chest infection and should get antibiotics delivered today. Arms hurting again, fingers swelling again, ribs hurting again. I had 5 days where I had some relief. Don't think a this dampness with the rain is helping either.
Now I can't start to take the
Leflunomide
now either as I have a chest infection and should get antibiotics delivered today. Arms hurting again, fingers swelling again, ribs hurting again. I had 5 days where I had some relief. Don't think a this dampness with the rain is helping either.
Haz58
in
NRAS
2 years ago
Tables.
Hi.just wondering when you get to half of steroids,and when I been taking for a month do you just come of them.taking.am taking 10mgs
leflunomide
,been on them since August 2022.am doing well moment,only get a few headaches and aches and pains,but if I do I take paracetamol they seem to help.l have been
Hi.just wondering when you get to half of steroids,and when I been taking for a month do you just come of them.taking.am taking 10mgs
leflunomide
,been on them since August 2022.am doing well moment,only get a few headaches and aches and pains,but if I do I take paracetamol they seem to help.l have been
Flosy
in
PMRGCAuk
2 years ago
Wandering Scot presently living in Mexico and recently diagnosed with PMR
Do any of you disagree with me about the
leflunomide
? Is there anything else I should/could be doing? Thank you.
Do any of you disagree with me about the
leflunomide
? Is there anything else I should/could be doing? Thank you.
emsscot
in
PMRGCAuk
1 year ago
Leflunomide
I am worried about going on to Leflunmide. Anyone had exprience of it?
I am worried about going on to Leflunmide. Anyone had exprience of it?
allotment-lover
in
PMRGCAuk
2 years ago
absence from work
I’ve now been give
leflunomide
too to try and help but everything takes so long to build up. I’ve now had so much time off work I’m at risk of losing my job. has anyone else’s been through this? I’m just not sure what I’m supposed to do.
I’ve now been give
leflunomide
too to try and help but everything takes so long to build up. I’ve now had so much time off work I’m at risk of losing my job. has anyone else’s been through this? I’m just not sure what I’m supposed to do.
Natikins
in
NRAS
2 years ago
advice on what next !
I have an appointment with my RA consultant on the 31st Jan and I would like advice as to what “ could “ be offered as I have crashed and burned on Methotrexate , Sulfasalazine and
Leflunomide
😳 ! I’m also taking 5mgs daily for Polymyalgia Rheumatica and have osteoporosis .
I have an appointment with my RA consultant on the 31st Jan and I would like advice as to what “ could “ be offered as I have crashed and burned on Methotrexate , Sulfasalazine and
Leflunomide
😳 ! I’m also taking 5mgs daily for Polymyalgia Rheumatica and have osteoporosis .
Geordieland
in
NRAS
2 years ago
Ongoing frustration re obtaining my blood test results
I’m on low dose Pred and for the past year or so on
Leflunomide
after LVV was diagnosed.
I’m on low dose Pred and for the past year or so on
Leflunomide
after LVV was diagnosed.
123-go
in
PMRGCAuk
2 years ago
Leflunomide and travelling stress!
I wrote recently about starting
Leflunomide
but I reckon I can't stay on it. It's given me itchy skin on my throat, a tingly nose and fingers and very loose bowels! Tired but unable to sleep. I travel by train a lot to see my daughter which has been very difficult anyway.
I wrote recently about starting
Leflunomide
but I reckon I can't stay on it. It's given me itchy skin on my throat, a tingly nose and fingers and very loose bowels! Tired but unable to sleep. I travel by train a lot to see my daughter which has been very difficult anyway.
priss58
in
NRAS
2 years ago
Stopping Lansoprazol
Leflunomide
affects my guts a bit but only minor nuisance Down Below.
Leflunomide
affects my guts a bit but only minor nuisance Down Below.
Roltuba
in
PMRGCAuk
2 years ago
Pains.
Hi.hope everyone coping with cold weather.would like to ask about pains in shoulders,legs,arms,very sore tongue,and pains in my head not all time.eyes are watery.i am on 1mgs.dont know if I go up abit.also on
leflunomide
10mgs.some advice would be very helpful.thank you.
Hi.hope everyone coping with cold weather.would like to ask about pains in shoulders,legs,arms,very sore tongue,and pains in my head not all time.eyes are watery.i am on 1mgs.dont know if I go up abit.also on
leflunomide
10mgs.some advice would be very helpful.thank you.
Flosy
in
PMRGCAuk
2 years ago
does leflunomide affect my antidepressant, venlafaxine?
i have just started a prescription of
leflunomide
two weeks and two days ago. i take a serotonin-norepinephrine reuptake inhibitor (snri) as well, that I've been on for... six years?
i have just started a prescription of
leflunomide
two weeks and two days ago. i take a serotonin-norepinephrine reuptake inhibitor (snri) as well, that I've been on for... six years?
hazmatrec
in
NRAS
1 year ago
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