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Leflunomide
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Leflunomide
He mentioned
Leflunomide
, if I continued to have problems with cutting down the steroids. By 22/02/2023 I was back up to 15mg, and the question of
Leflunomide
cropped up again.
He mentioned
Leflunomide
, if I continued to have problems with cutting down the steroids. By 22/02/2023 I was back up to 15mg, and the question of
Leflunomide
cropped up again.
Foxie52
in
PMRGCAuk
1 year ago
Wrist pain and MRI
Moved off methotrexate onto
leflunomide
as a result of this and liver enzymes, taken alongside sulphasaliazine.
Moved off methotrexate onto
leflunomide
as a result of this and liver enzymes, taken alongside sulphasaliazine.
Saesae
in
NRAS
1 year ago
medication after open heart surgery
I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to
leflunomide
). I’ve had an Inspiris resilia bioprosphetic bovine valve put in to replace it.
I was born with a bicuspid aortic valve which needed replacing in June (an event hastened by a toxic reaction to
leflunomide
). I’ve had an Inspiris resilia bioprosphetic bovine valve put in to replace it.
Emye343
in
NRAS
10 months ago
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ALLERGIC REACTION TO LEFLUNOMIDE?
I have had PMR for five years and have tried to come down on the steroids with methotrexate but that didn't suit me so now I am trying
Leflunomide
. I am currently on a dose of 12mg of Prednisolone and my rheumy said that I have to get a lot lower than that.
I have had PMR for five years and have tried to come down on the steroids with methotrexate but that didn't suit me so now I am trying
Leflunomide
. I am currently on a dose of 12mg of Prednisolone and my rheumy said that I have to get a lot lower than that.
Wallydb
in
PMRGCAuk
1 year ago
Sulfasalazine...3rd time lucky I hope!
They are, thankfully, increasing the dose very gradually this time as MTX caused Gastritis and then
Leflunomide
a month of diarreah. Will it be 3rd time lucky? I do hope so. 🤞🤞🤞🤔
They are, thankfully, increasing the dose very gradually this time as MTX caused Gastritis and then
Leflunomide
a month of diarreah. Will it be 3rd time lucky? I do hope so. 🤞🤞🤞🤔
Haz58
in
NRAS
1 year ago
NOT PMR, says the Rheumy, after almost 7 years! YOU WHAT?
I put a lot of pressure on the young Registrar when my symptoms began to worry me after tapering with great difficulty to 6.5mg and rejected
leflunomide
which was the only thing to come out of my last appointment at the same hospital two years ago.
I put a lot of pressure on the young Registrar when my symptoms began to worry me after tapering with great difficulty to 6.5mg and rejected
leflunomide
which was the only thing to come out of my last appointment at the same hospital two years ago.
Zebedee44
in
PMRGCAuk
1 year ago
Can’t walk. X-ray OK.
An update is that after four weeks on
Leflunomide
my LFTs went up so I have to stop
Leflunomide
for two weeks, then retest, then start every other day if OK. This hip thing started when I had been on
Leflunomide
4 weeks when the hip went. I just don’t know what to do.
An update is that after four weeks on
Leflunomide
my LFTs went up so I have to stop
Leflunomide
for two weeks, then retest, then start every other day if OK. This hip thing started when I had been on
Leflunomide
4 weeks when the hip went. I just don’t know what to do.
Nightingales
in
PMRGCAuk
1 year ago
Anyone else on Pred. plus Sulfasalazine?
I've noticed that others are also on Methotrexate or
Leflunomide
along with their daily dose of prednisone. My dr. tried both of those at various times but I had unwelcome side effects from each.
I've noticed that others are also on Methotrexate or
Leflunomide
along with their daily dose of prednisone. My dr. tried both of those at various times but I had unwelcome side effects from each.
G-Jo
in
PMRGCAuk
1 year ago
feeling very down
hi all, I posted on here some weeks ago when I felt that the combination of infliximab infusions and
leflunomide
was no longer working and I was hopeful my rheumatologist would change my medication. I live in Guernsey so only see her occasionally when she flies across.
hi all, I posted on here some weeks ago when I felt that the combination of infliximab infusions and
leflunomide
was no longer working and I was hopeful my rheumatologist would change my medication. I live in Guernsey so only see her occasionally when she flies across.
Emye343
in
NRAS
1 year ago
leflunomide/eye monitoring?
Not the methotrexate, and not
leflunomide
. hello, I have an appointment today for specialist eye monitoring. This has been done at regular intervals since I started methotrexate, HOWEVER…. I no longer take methotrexate as I’ve recently changed to
leflunomide
.
Not the methotrexate, and not
leflunomide
. hello, I have an appointment today for specialist eye monitoring. This has been done at regular intervals since I started methotrexate, HOWEVER…. I no longer take methotrexate as I’ve recently changed to
leflunomide
.
girli1111
in
NRAS
2 years ago
Total Hip Replacement
Hi All, I have had RA since 2013 and have been well-controlled for the last 7 years with Arava (
Leflunomide
) and Sulfasalazine. I am having a THR in a month's time and I am concerned about stopping these drugs for 2 weeks either side of the op. in case I have a flare while recovering.
Hi All, I have had RA since 2013 and have been well-controlled for the last 7 years with Arava (
Leflunomide
) and Sulfasalazine. I am having a THR in a month's time and I am concerned about stopping these drugs for 2 weeks either side of the op. in case I have a flare while recovering.
Pat64
in
NRAS
1 year ago
Update - Had to stop Leflunomide
Has anyone else had this and how long did the diarrhea last after stopping the
Leflunomide
? She also got me an urgent appointment with my consultant and I go next Wednesday.
Has anyone else had this and how long did the diarrhea last after stopping the
Leflunomide
? She also got me an urgent appointment with my consultant and I go next Wednesday.
Haz58
in
NRAS
2 years ago
Post leflunomide update
While on
leflunomide
I got to 5.5 so I think I should try to get back down quickly to below 10 hut not sure how quickly I should reduce. I went to 13 so far but have the hunch I could probably get away with less ASAP. Any advice welcome.
While on
leflunomide
I got to 5.5 so I think I should try to get back down quickly to below 10 hut not sure how quickly I should reduce. I went to 13 so far but have the hunch I could probably get away with less ASAP. Any advice welcome.
Alebeau
in
PMRGCAuk
2 years ago
Thank you all! Plus update
One indicator is up so they have doubled my
Leflunomide
to 20mg a day. The other indicator has dropped slightly so she said the
Leflunomide
I've had for 2 weeks is starting to work although it can take up to 3onths to notice a real difference.
One indicator is up so they have doubled my
Leflunomide
to 20mg a day. The other indicator has dropped slightly so she said the
Leflunomide
I've had for 2 weeks is starting to work although it can take up to 3onths to notice a real difference.
Haz58
in
NRAS
2 years ago
Post Leflunomide Update
After coming off
Leflunomide
in November 2022, I am now up from 5.5 to 15 mg Prednisone. Finally the pain is subsiding in my left shoulder- it was constantly painful and was not able to get dressed or wash properly.
After coming off
Leflunomide
in November 2022, I am now up from 5.5 to 15 mg Prednisone. Finally the pain is subsiding in my left shoulder- it was constantly painful and was not able to get dressed or wash properly.
Alebeau
in
PMRGCAuk
2 years ago
My latest six-month review with a (2nd) locum.
Also, I am to continue with 10mg daily
Leflunomide
. The locum will be writing to me to confirm the way forward. Sighs of relief!
Also, I am to continue with 10mg daily
Leflunomide
. The locum will be writing to me to confirm the way forward. Sighs of relief!
123-go
in
PMRGCAuk
1 year ago
A tale of PMR, pred and DMARDs (azathioprine, methotrexate and leflunomide)
We decided on
leflunomide
and, after coming off methotrexate which took a month or two, I started on 20mg. along with, I think, 8mg pred. Nothing happened for about six weeks when, over the course of a weekend, I was aware of a magical change.
We decided on
leflunomide
and, after coming off methotrexate which took a month or two, I started on 20mg. along with, I think, 8mg pred. Nothing happened for about six weeks when, over the course of a weekend, I was aware of a magical change.
PMRpro
Ambassador
in
PMRGCAuk
1 year ago
Does anyone have information about or has tried the biologic Sarilumab (Kevzara) for PMR?
I'm guessing she will mention
Leflunomide
. Thus far I've reduced my MTX from 25mg weekly to 15mg every 10 days and am currently tapering from 7.5 down to 7mg pred.
I'm guessing she will mention
Leflunomide
. Thus far I've reduced my MTX from 25mg weekly to 15mg every 10 days and am currently tapering from 7.5 down to 7mg pred.
PMRCanada
in
PMRGCAuk
1 year ago
Low dose of Pred long term for GCA
Just wondered if anyone with GCA has stayed on low dose prednisilone long term as they couldn't tolerate any of the drugs like MTX and
Leflunomide
and what dose was used please. Also whether it was possible to get off steroids eventually. Thanks
Just wondered if anyone with GCA has stayed on low dose prednisilone long term as they couldn't tolerate any of the drugs like MTX and
Leflunomide
and what dose was used please. Also whether it was possible to get off steroids eventually. Thanks
HappyDiamonds
in
PMRGCAuk
2 years ago
Leflunomide question
I'm starting
Leflunomide
this month, sooner rather than later but am unsure when it would be best for me to take it daily. At the mo I'm on the following meds schedule: Prednisolone 30mg after breakfast ( got a week left on this) Zomorph 30mg after breakfast and before bed.
I'm starting
Leflunomide
this month, sooner rather than later but am unsure when it would be best for me to take it daily. At the mo I'm on the following meds schedule: Prednisolone 30mg after breakfast ( got a week left on this) Zomorph 30mg after breakfast and before bed.
Haz58
in
NRAS
2 years ago
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