Gutted. Chased my urgent appointment as I was told to do if I didn't get a call this morning. No urgent f2f this week! They want a blood test (yes i can get that to see my levels). Luckily I had one today anyway. Then they said 'then we'll review the situation'. Let's hope and pray the Leflunomide kicks in! Thanks for all your support the past few days. It's helped a lot!
Rheumy nurse just called. They are trying to get me an urgent f2f appointment with my Rheumatologist for Tuesday or Wednesday next week! 🙏🙏
Rang the Rheumy help line and left a message at half 6 this morning in tears as I always am in the morning now. I'm not coping at all. Hands are useless, so much pain. Upper arms are not working again and so much pain. My hip, not RA, is hurting and is giving way. If I was a dog I'm sure they would do the kind thing and put me down. I'm not 'living' I'm alive but that's all. On Leflunomide 10mg for 2 weeks now but not working yet. Taking morphine slow release plus liquid for breakthrough pain given by gp. I could happily take it all in one go at the mo. Sorry for such a downer first thing. You all 'get it' though.
You know I think the doctors once you get a certain age they don't care. I'm really sorry to here you storey I hope things work out for you. It winds me up on access to them.
That's harsh as I'm 76 and get great care.
Me too , and I'm in my 80s . Rheumatology always helpful and encouraging. You have to be your own advocate , though , and play your part . Work with the medics , do your own research and you'll find the right path for your particular journey.