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Experiences with
Leflunomide
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How long for Leflunomide to work?
I had a gap of about 6 weeks with no medication, and symptoms re-started.. then started on
Leflunomide
a month ago.
I had a gap of about 6 weeks with no medication, and symptoms re-started.. then started on
Leflunomide
a month ago.
Sapphire1701
in
NRAS
4 months ago
reducing Prednisolone
I’m worried about taking
leflunomide
and feel confused as to what I should do?
I’m worried about taking
leflunomide
and feel confused as to what I should do?
Bobbikins
in
PMRGCAuk
4 months ago
Leflunomide thanks
Thank you allfor replies on
Leflunomide
and peripheral neuropathy. I did look on forum but didn't find anything that seemed as alarming as I felt mine was, with the muscle wasting and skeletal hands.
Thank you allfor replies on
Leflunomide
and peripheral neuropathy. I did look on forum but didn't find anything that seemed as alarming as I felt mine was, with the muscle wasting and skeletal hands.
Steal
in
PMRGCAuk
6 months ago
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Leflunomide neuropathy
Various initial tests, and I plucked up courage to mention
Leflunomide
without sounding as if I had been seeing Dr Google or was encroaching on his area of expertise.
Various initial tests, and I plucked up courage to mention
Leflunomide
without sounding as if I had been seeing Dr Google or was encroaching on his area of expertise.
Steal
in
PMRGCAuk
6 months ago
Still trying to keep up the optimism
She’s added
Leflunomide
and said to try it and see how it goes and be optimistic! Whilst I am usually a sunny and optimistic person I feel my glass of optimism is actually quite empty at the moment so I’m looking for a refill.
She’s added
Leflunomide
and said to try it and see how it goes and be optimistic! Whilst I am usually a sunny and optimistic person I feel my glass of optimism is actually quite empty at the moment so I’m looking for a refill.
HeadInASpin
in
NRAS
1 month ago
Cogentyx
I've tried Actemra,
Leflunomide
and Rinvoq without much luck.
I've tried Actemra,
Leflunomide
and Rinvoq without much luck.
winfong
in
PMRGCAuk
6 months ago
Coopersmummy7
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or
leflunomide
,and now looks like I will be starting on Tocilzumab.Am
Hi,I am new to this awful condition.Had nearly a year of being undiagnosed and finally rushed into hospital Dec.22 with GCAand loss of sight in one eye.Long story short,2 relapses,yo yo ing of f prednisilone,could not tolerate Metho, or
leflunomide
,and now looks like I will be starting on Tocilzumab.Am
Angelsmummy
in
PMRGCAuk
1 day ago
Side Effects Damaging Kidneys and Liver
I have been on
Leflunomide
, which is supposed to be kinder to liver and kidneys, for six months. So far that drug has the most side effects and has been the least effective controlling symptoms.
I have been on
Leflunomide
, which is supposed to be kinder to liver and kidneys, for six months. So far that drug has the most side effects and has been the least effective controlling symptoms.
MaryinFL
in
NRAS
4 months ago
Finally a little light!
A few weeks ago I had another steroid injection and
leflunomide
added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so much that I put my wedding ring back on yesterday!
A few weeks ago I had another steroid injection and
leflunomide
added to my MTX. I hardly dare say this but I'm actually starting to feel better. My joints have gone down so much that I put my wedding ring back on yesterday!
HeadInASpin
in
NRAS
3 days ago
DAS score increase
I was on MTX for nearly a year, but couldn’t tolerate side effects.. then been on
Leflunomide
for 5 months. Rheumy now wants me to start on biologic. I have always had low CRP but have active disease and swollen right hand, and very painful knees.
I was on MTX for nearly a year, but couldn’t tolerate side effects.. then been on
Leflunomide
for 5 months. Rheumy now wants me to start on biologic. I have always had low CRP but have active disease and swollen right hand, and very painful knees.
Sapphire1701
in
NRAS
1 month ago
10 year PMR anniversary! A new drug for me called Etanercept being advised.
Kevzara (Sarilumab) IL-6 blocker was discussed by my Rheumatologist after the
Leflunomide
trial.
Kevzara (Sarilumab) IL-6 blocker was discussed by my Rheumatologist after the
Leflunomide
trial.
MC60
in
PMRGCAuk
1 month ago
Finally got my Neurosurgeon appointment!
I’m currently taking
Leflunomide
and Hydroxychloroquine and spoke to the Rheumy nurse yesterday about whether I stop them for surgery. She suggested I ask at the pre-op assessment which is next week.
I’m currently taking
Leflunomide
and Hydroxychloroquine and spoke to the Rheumy nurse yesterday about whether I stop them for surgery. She suggested I ask at the pre-op assessment which is next week.
Kati66
in
NRAS
2 months ago
chillblains.. what to do?
I was diagnosed with RA 15 months ago, was well controlled with sub MTX but side effects bad so was taken off, now on
Leflunomide
and symptoms have returned, but am due to see consultant in 6 weeks ish for review.
I was diagnosed with RA 15 months ago, was well controlled with sub MTX but side effects bad so was taken off, now on
Leflunomide
and symptoms have returned, but am due to see consultant in 6 weeks ish for review.
Sapphire1701
in
NRAS
3 months ago
NASH & yellow diarrhea
I then started on
leflunomide
for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since then I've been getting really yellow diarrhea (sorry for TMI)! I'm going 4-5 times per day!
I then started on
leflunomide
for my rheumatoid arthritis around a month ago, and my ALT shot up to 100. I've been stopped the drug for about 2 weeks now but since then I've been getting really yellow diarrhea (sorry for TMI)! I'm going 4-5 times per day!
Natbat87
in
British Liver Trust
5 months ago
Changing meds.
And if
Leflunomide
isn’t working for me is it going to be another 12 weeks before we see if that works as the tell me at the clinic all RA medications do? Don’t think I could stand it.
And if
Leflunomide
isn’t working for me is it going to be another 12 weeks before we see if that works as the tell me at the clinic all RA medications do? Don’t think I could stand it.
Sprite60A
in
NRAS
8 months ago
short on leflunomide
Looks like I'm going to be short on
leflunomide
as there was a mix up with my prescription. Waiting to hear back from my doc, but was wondering if this is something that I could skip for a day or two. Any advice? Anyone else been in the same situation? Thanks
Looks like I'm going to be short on
leflunomide
as there was a mix up with my prescription. Waiting to hear back from my doc, but was wondering if this is something that I could skip for a day or two. Any advice? Anyone else been in the same situation? Thanks
winfong
in
PMRGCAuk
8 months ago
Flare or reaction to Leflunomide Dmard
Hello everyone, I've had diagnosis of PMR & GCA since 2012 (@45) on maintenance steroids and HYXQ since. Rheumatologist did hand ultrasound scan to see if possible RA . Was surprised when told I had, as I hadn't really had probs with hands . She suggested I had and to take MTX and have had a reaction
Hello everyone, I've had diagnosis of PMR & GCA since 2012 (@45) on maintenance steroids and HYXQ since. Rheumatologist did hand ultrasound scan to see if possible RA . Was surprised when told I had, as I hadn't really had probs with hands . She suggested I had and to take MTX and have had a reaction
Warrior4JC
in
NRAS
6 months ago
ra associated eye ulcers
I was off all medication for 3 months after open heart surgery in the summer caused by a toxic reaction to
leflunomide
which had seriously worsened my congenital bicuspid aortic valve .
I was off all medication for 3 months after open heart surgery in the summer caused by a toxic reaction to
leflunomide
which had seriously worsened my congenital bicuspid aortic valve .
Emye343
in
NRAS
3 months ago
choosing an alternative to Actemra
She is now offering me three choices of alternative drugs - Mycophenolate, Azathioprine and
Leflunomide
. Reading the leaflets, they look very similar. How to decide and how to uncover the lesser known/advertised side effects?
She is now offering me three choices of alternative drugs - Mycophenolate, Azathioprine and
Leflunomide
. Reading the leaflets, they look very similar. How to decide and how to uncover the lesser known/advertised side effects?
Japsquar
in
PMRGCAuk
3 months ago
Side effects of Leflunomide?
So he has added
Leflunomide
on top, since April 2023. It seems to be doing the trick and I haven't had any flares since but there are a couple of side effects which I wondered were common: Increase in small sebatious cysts particulalry on my face.
So he has added
Leflunomide
on top, since April 2023. It seems to be doing the trick and I haven't had any flares since but there are a couple of side effects which I wondered were common: Increase in small sebatious cysts particulalry on my face.
DenMum
in
NRAS
8 months ago
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