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Update on my CLL diagnosis
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
Hello, I was diagnosed with CLL in Oct 2022 and was told I had # CLL/SLL with extensive bone marrow involvement, trisomy 12, p53 wild-type, IgHV-mutated, Rai stage 3. My oncologist at the Cancer Center put me on the O and V treatment which started in Dec 2022. I finished the O in May 2023 and the
tenniselbowz
in
CLL Support
4 months ago
New to the group. Should I worry concerning my latest blood results?
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
New to the group. First post even if I regularly read what is posted. Dx in March 2023. But CLL for at least 2 years. Unmutated, triso 12 and q (14,19). On W&W. 53 years old. I had an appointment with my Cll doctor one month ago and a bit worried. Wbc 48 000 Monocytes 12000 ALC 29 000 LDH 550 I understood
povhgc
in
CLL Support
7 months ago
Value of LDH
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
I've been dealing with PCA 11 years and I've seen a number of doctors along the way but never have discussed or had my LDH tested. A young oncologist where I had my PSMA scan requested PSA, testosterone and LDH tests to go along with the scan. My LDH was at the low end of the "range" (but we still didn't
fourputt
in
Advanced Prostate Cancer
1 year ago
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High Ferritin, LDH & ALT
Hi Friends, I’m ETJ2+ My last bloods showed Ferritin- 490 (says max normal is 200) LDH- 268 (says max normal is 220) ALT- 99 (says max normal is 55) I was just after increasing my knowledge of the above blood readings and their relationship with ET/MPN I’ll speak to Guys in due course at my next
Hi Friends, I’m ETJ2+ My last bloods showed Ferritin- 490 (says max normal is 200) LDH- 268 (says max normal is 220) ALT- 99 (says max normal is 55) I was just after increasing my knowledge of the above blood readings and their relationship with ET/MPN I’ll speak to Guys in due course at my next
Threelions
in
MPN Voice
3 months ago
late ovulation low progesterone
I’ve just done my first round of OI on letrozole for PCOS 2.5mg OD. Was scanned once and no dominant follicles. Told to keep having sex and on day 18 tested with Mira machine. Had big LH surge and both oestrogen and progesterone were higher than previously. Did d21 progesterone blood test today (too
I’ve just done my first round of OI on letrozole for PCOS 2.5mg OD. Was scanned once and no dominant follicles. Told to keep having sex and on day 18 tested with Mira machine. Had big LH surge and both oestrogen and progesterone were higher than previously. Did d21 progesterone blood test today (too
tarka123
in
Fertility Network UK
12 days ago
is this positive or indent/evap lines? 10dpo
took these with my second morning pee today 10 or 11dpo (got my peak LH on june 28th P.M.) i’ve never thought i’ve had a positive test before and i’m 8 months on our TTC journey, but today i’m unsure. i’m hoping so badly it’s positive, my period is expected friday or saturday. what do you think, indent
took these with my second morning pee today 10 or 11dpo (got my peak LH on june 28th P.M.) i’ve never thought i’ve had a positive test before and i’m 8 months on our TTC journey, but today i’m unsure. i’m hoping so badly it’s positive, my period is expected friday or saturday. what do you think, indent
oliviaj17
in
Fertility Network UK
13 days ago
Endo and spotting
I got diagnosed with endometriosis over 10 years ago when I was 17, stage 1 in my pelvis and on my left ovary it was ablated. I was giving the pill, and told it won’t effect my life keep taking the pill until I want a baby and discharged. So I was on the pill for over 10 years. I came off the pill due
I got diagnosed with endometriosis over 10 years ago when I was 17, stage 1 in my pelvis and on my left ovary it was ablated. I was giving the pill, and told it won’t effect my life keep taking the pill until I want a baby and discharged. So I was on the pill for over 10 years. I came off the pill due
Pinkendo21
in
Endometriosis UK
13 days ago
Blood Tests
Hello, I was just wondering, when people have had the CA125 test, have they had a number of other blood tests along side it? I’ve been sent for CA125, CEA, AFP, LDH and HCG. I had an ultrasound three weeks ago which showed a large cyst and bigger endometriomas than my previous scan last summer,
Hello, I was just wondering, when people have had the CA125 test, have they had a number of other blood tests along side it? I’ve been sent for CA125, CEA, AFP, LDH and HCG. I had an ultrasound three weeks ago which showed a large cyst and bigger endometriomas than my previous scan last summer,
karena90
in
Endometriosis UK
8 months ago
Mental Health TTC
Hi! I’m new to the forum. I’m still not sure if this is the right place for me, as I am relatively new to all this. But maybe there’s someone out there who feels what I’m feeling and understands. I’m coming up to 34 years old, married my lovely Husband last year. I’ve been on BC since I was 15, and
Hi! I’m new to the forum. I’m still not sure if this is the right place for me, as I am relatively new to all this. But maybe there’s someone out there who feels what I’m feeling and understands. I’m coming up to 34 years old, married my lovely Husband last year. I’ve been on BC since I was 15, and
LanaLoo742
in
Fertility Network UK
21 days ago
Opinions / Evidence on Natural Modified FET
Hi lovely ladies and gents, I had a second consultation with my clinic consultant today about next steps and i fear im loosing trust. You’d hope with the amount of money you pay care would be more person centred although i feel its not … anyway. 2 recent failed FET on standard HRT protocol. I have
Hi lovely ladies and gents, I had a second consultation with my clinic consultant today about next steps and i fear im loosing trust. You’d hope with the amount of money you pay care would be more person centred although i feel its not … anyway. 2 recent failed FET on standard HRT protocol. I have
Sunshine92
in
Fertility Network UK
1 month ago
Recurrent implantation failure next steps. ERA + Emma & Alice / PGT / Do nothing and hope for the best.
I was fortunate enough to yield 6 too grade embryos at the age of 27, one of which resulted in my little boy who is now 3.5years (fresh transfer). This year i have had x2 frozen transfers, perfect lining, perfect progesterone levels and perfect embryos but BFN. Consultant very disappointed and baffled
I was fortunate enough to yield 6 too grade embryos at the age of 27, one of which resulted in my little boy who is now 3.5years (fresh transfer). This year i have had x2 frozen transfers, perfect lining, perfect progesterone levels and perfect embryos but BFN. Consultant very disappointed and baffled
Sunshine92
in
Fertility Network UK
1 month ago
Very low LH after miscarriage
It's been a bit kore than 2 weeks since I passed clot and miscarried in my first time pregnancy. I have taken few ovulation tests, just curious on how my body is doing and I'm saying very very low LH levels. In one test it came out to be 0. Is this something normal? This is all very new to me so I want
It's been a bit kore than 2 weeks since I passed clot and miscarried in my first time pregnancy. I have taken few ovulation tests, just curious on how my body is doing and I'm saying very very low LH levels. In one test it came out to be 0. Is this something normal? This is all very new to me so I want
Hope_1996
in
Fertility Network UK
3 months ago
help ! Ovulation nightmare 😩😩
please ladies help me out as my clinic are as ever absolutely useless !!!! I was using the clear blue advanced purple test .. the one with flashing smileys turning into a solid when lh is detected . Been using once every morning since day 8 and have flashing smileys from day 10. Had 3 days of flashing
please ladies help me out as my clinic are as ever absolutely useless !!!! I was using the clear blue advanced purple test .. the one with flashing smileys turning into a solid when lh is detected . Been using once every morning since day 8 and have flashing smileys from day 10. Had 3 days of flashing
Natasha2012
in
Fertility Network UK
3 months ago
ovulation
I have an irregular cycle due to PCOS. I have tried to use the LH strips with no success. Wonder what other people with PCOS have done to track ovulation? Background: TTC 12 months. Wait list for fertility clinic. On myoinositol, vit d, folic acid and co10q
I have an irregular cycle due to PCOS. I have tried to use the LH strips with no success. Wonder what other people with PCOS have done to track ovulation? Background: TTC 12 months. Wait list for fertility clinic. On myoinositol, vit d, folic acid and co10q
Melsunshine
in
Fertility Network UK
4 months ago
Period after miscarriage
Hi guys, I had surgical management for my missed miscarriage on 9th Feb, and was told my period would return 4-8 weeks afterwards. I thought I felt ovulation end of Feb but I guess as my pregnancy tests were still a little light maybe that's why they showed positive on an LH strip. Eventually my pregnancy
Hi guys, I had surgical management for my missed miscarriage on 9th Feb, and was told my period would return 4-8 weeks afterwards. I thought I felt ovulation end of Feb but I guess as my pregnancy tests were still a little light maybe that's why they showed positive on an LH strip. Eventually my pregnancy
Esb27
in
Fertility Network UK
4 months ago
SWOLLEN FINGERS & BLEEDING AT THE CUTICLE?
SWOLLEN FINGERS AT CUTICLE? Sun Jun 04, 2023 12:14 pm Afternoon all... Been a while since my last Post on Voice, and it's also been an interesting last month... Seemed to reach a point of excellent strength & fitness w/ my cycling & then "CRASHED"! Not literally, however, my Platelets shot
SWOLLEN FINGERS AT CUTICLE? Sun Jun 04, 2023 12:14 pm Afternoon all... Been a while since my last Post on Voice, and it's also been an interesting last month... Seemed to reach a point of excellent strength & fitness w/ my cycling & then "CRASHED"! Not literally, however, my Platelets shot
socrates_8
in
MPN Voice
1 year ago
Period after pessaries
So I've completely confused myself with dates. My last period was due on 13th Feb but it was delayed due to the progesterone pessaries. My bleed started on 17th Feb - I based my next period date (25 day cycle) on that. Is that correct? So instead of 9th March it'll be due 13th March? I'm only concerned
So I've completely confused myself with dates. My last period was due on 13th Feb but it was delayed due to the progesterone pessaries. My bleed started on 17th Feb - I based my next period date (25 day cycle) on that. Is that correct? So instead of 9th March it'll be due 13th March? I'm only concerned
Greenleaves1
in
Fertility Network UK
5 months ago
Cyclogest pessaries
We are due to go for our FET on Saturday this week. I had my LH surge this Sunday at 10:30am. I always thought that the transfer was 5 days after? Which would be Friday? I am just wondering why our transfer is Saturday/ Not Friday? Or have I got that wrong? Also, I’ve been advised to take my progesterone
We are due to go for our FET on Saturday this week. I had my LH surge this Sunday at 10:30am. I always thought that the transfer was 5 days after? Which would be Friday? I am just wondering why our transfer is Saturday/ Not Friday? Or have I got that wrong? Also, I’ve been advised to take my progesterone
BethanyDavey
in
Fertility Network UK
5 months ago
ovulation after failed medicated fet
hi everyone , Did anyone else experience no ovulation after a medicated fet ? Im literally getting no hint of a line on my ovulation tests , I always have some lh in my system . I am meant to be going for a natural fet so desperately want to get my natural cycles back. Im normally like clockwork but
hi everyone , Did anyone else experience no ovulation after a medicated fet ? Im literally getting no hint of a line on my ovulation tests , I always have some lh in my system . I am meant to be going for a natural fet so desperately want to get my natural cycles back. Im normally like clockwork but
Natasha2012
in
Fertility Network UK
5 months ago
Can you use Low Dose Naltrexone (LDN) for Parkinson's?
Can you use Low Dose Naltrexone (LDN) for Parkinson's? Answered by Dr. Sarah Zielsdorf https://youtu.be/RChju9mEPVQ For information on LDN, go to https://linktr.ee/ldnrt How do you recommend tapering of botanicals? Our webinars and training courses can be purchased from https://www.ldnrtevents.com
Can you use Low Dose Naltrexone (LDN) for Parkinson's? Answered by Dr. Sarah Zielsdorf https://youtu.be/RChju9mEPVQ For information on LDN, go to https://linktr.ee/ldnrt How do you recommend tapering of botanicals? Our webinars and training courses can be purchased from https://www.ldnrtevents.com
Shewulf
Administrator
in
LDN Research Trust
15 hours ago
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