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Am I headed for Radiation
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
hello all. Wishing the best to everyone. Just a quick question that I think I know the answer to. After RP in June 2023 pathology was Gleason 4~3 with SVI, clear margins, lymph node dissection negative, prostate 30% involved. First PSA test all at quest was an ultra sensitive post prostatectomy test
Elkguide
in
Advanced Prostate Cancer
2 months ago
HRT question
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Hello, I've been on oestrogen and progesterone HRT since last summer and it's making me feel a great deal better generally. But I've found that during the two weeks of the cycle where I'm not on the progesterone, I get very anxious. Is there any way of taking the progesterone all month? I'm on two progesterone
Amikatari
in
Menopause and Perimenopause Support
6 months ago
Anybody experience post treatment bowel issues after being ok prior ?
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Brachytherapy seeds early November , LINAC radiation boost ending early Jan .. ADT ending beginning March.. had space ore ..was totally ok except for urgency to pee sporadically.. other mild side effect and started to notice .. odd bowel issues.. one time had some gas and was careful but soon notice
Yokohama2023
in
Prostate Cancer Network
6 months ago
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Side effects from Xtandi monotherapy?
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
after failing multiple times on regular ADT plus SBRT and finally failing LU– 177 and Provenge, my PSA went on the rise again. I’ve been on mono Xtando for six weeks and not feeling well despite trying to exercise heavily. Going in for bloodwork tomorrow. What kind of labs should I ask for? Anyone
SViking
in
Advanced Prostate Cancer
6 months ago
Is this something that needs investigating/Or Thoughts on cause?
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Im 46 F. Mild on/off non bothering pain for 2 year's. If it was a serious problem, would it have got worse by now as it hasnt and just comes and goes since then? It's more the not knowing the cause, than the pain that bothers me. It started in the left breast and armpit. (I've put the breast pain down
Milky99
in
Women's Health
8 months ago
Embark study
Hi friends, When the Embark study came out, and the FDA approved Xtandi for its use, my MO was enthusiastic that I add Xtandi to my intermittent ADT treatment. What I'm wondering is, I can certainly understand that adding Xtandi to the intermittent ADT treatment delays average time to metastasis, but
Hi friends, When the Embark study came out, and the FDA approved Xtandi for its use, my MO was enthusiastic that I add Xtandi to my intermittent ADT treatment. What I'm wondering is, I can certainly understand that adding Xtandi to the intermittent ADT treatment delays average time to metastasis, but
billfenley2
in
Advanced Prostate Cancer
6 months ago
Losing so much weight
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
My husband who has had his prostate removed, radiation, chemo, hormone therapy and 5 treatments of pluvicto (this is during 8 years) is now about to either get more radiation or chemo. He is just not eating and losing so much weight! I'm giving hime Ensure and whatever else he might eat but it's just
LaRue44
in
Advanced Prostate Cancer
6 months ago
Prostate cancer radiotherapy side effects.
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
I’m a seventy seven year old who had a radical prostatectomy eight years ago. Following one of my regular PSA tests the result showed, after scans in September 2023, a return in the prostate bed and adjacent lymph nodes. Began hormone implants straight away followed by twenty doses of targeted radiotherapy
Gingerurgent
in
Pelvic Radiation Disease Association
6 months ago
Zoladex - pre-fibroid removal
I've got a fibroid removal date through for just over 4 weeks' time. It'll be under GA (last local procedure wasn't so effective, not all fibroid was removed, and it's since continued to grow). I'm on 2 x daily mini-pill, but have had almost daily bleeding since last September. Periods of very heavy
I've got a fibroid removal date through for just over 4 weeks' time. It'll be under GA (last local procedure wasn't so effective, not all fibroid was removed, and it's since continued to grow). I'm on 2 x daily mini-pill, but have had almost daily bleeding since last September. Periods of very heavy
Fueofvodn
in
Women's Health
6 months ago
When is PARP introduced?
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
Hi My husband is currently on triple therapy ( Docetaxel chemo , Zoladex every 3 months and nubeqa) he has one more chemo round left next week. He is responding well so far as PSA is declining ( see profile for PSA) . I have seen some men are talking a PARP inhibitor and nubeqa and zoladex ( or ADT
positive-thinking
in
Advanced Prostate Cancer
6 months ago
Why do MO's continue to prescribe Lupron ADT for Castrate-Resistant men?
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
I've never understood why MO's continue to prescribe Lupron ADT (or equivalent ) for men who are
castrate-resistant (CRPC
). Isn't that the definition of CRPC, namely, that ADT is no longer working for those men? Why continue to prescribe a drug that no longer works and that causes such suffering
janebob99
in
Advanced Prostate Cancer
6 months ago
Losing my pubic hair
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
Recently I noticed that the skin on my inner legs in the crotch area under my scrotum turned brown and then started to peel like a sunburn. The exposed skin is a healthly pink hue and no longer brown but I lost my pubic hair from this area. Surprisingly the size and shape on the brown spots was very
skiingfiend
in
Advanced Prostate Cancer
6 months ago
length of zoladex and tobelone- side effects felt?
I have been having zoladex injections since November once a month. They advised HRT in Jan due to me experiencing headaches/hot flushes and brain fog (which at the time was the worst) . Since then the mood changes have been a lot to deal with feeling unhappy and down. My sleep pattern is interrupted
I have been having zoladex injections since November once a month. They advised HRT in Jan due to me experiencing headaches/hot flushes and brain fog (which at the time was the worst) . Since then the mood changes have been a lot to deal with feeling unhappy and down. My sleep pattern is interrupted
Homelove
in
Endometriosis UK
6 months ago
question for those who have stopped Lupron after many years of ADT
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
I have been on Lupron for 8 years with the short-term exception of a high/T clinical trial,( but even during the trial I stayed on Lupron). Anyway I’m undetectable and decided to stop Lupron. 3 months after not getting my shot my T is now a whopping 37. I am curious to hear from some of you who
Chugach
in
Advanced Prostate Cancer
6 months ago
A cause for concern or?
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
For the past couple of months i started getting notifications via my Samsung 6 watch that my HR was anything from 44 to 52,for more than 10 minutes, numerous times a day or night . I am taking various medications, Bu trans patch, HRT co-codamol 30/500 Pregabalin tramadol & citalopram 40mg. They are
caz1967
in
British Heart Foundation
6 months ago
Sylvia Plath and B12?
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
bookish
in
Pernicious Anaemia Society
8 months ago
Stopping meds before operation. 😏
Hi Peeps, I hope this UK sunshine has reached you over the last few days and that you are as well as you can be today. I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my Tocilizumab and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also
Hi Peeps, I hope this UK sunshine has reached you over the last few days and that you are as well as you can be today. I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my Tocilizumab and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also
Moomin8
in
NRAS
6 months ago
Letrozole
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
I saw the oncologist yesterday to discuss radiotherapy and hormone therapy.The plan for radiotherapy is on hold ATM because I have an ongoing issue with a seroma on the breast and underarm. During the meeting she said she would give me a prescription for Letrozole, I told her I wasn't happy to start
LindaLittleBear
in
My Breast Cancer Community
6 months ago
Treatment
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
My dears, after RP (Gleason 7, 4+3, infected 3 lymph nodes) and lymphadetectomy, radiation and hormone therapy for 39 months, my oncologist took me off hormone therapy with the recommendation of PSA control every 3 months. The last three PSA readings (every three months) were 0.01 / 0.00 / 0.00, I expect
adam1967adam
in
Advanced Prostate Cancer
6 months ago
Expectations
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
I have undergone 45 radiation treatments and am on my last month of Eligard. PSA is undetectable and my T is barely existent. No mets detected on prior pet scans. My Urologist and Oncologist are giving me congrats. I understand this is probably a temporary remission (g 4+3 - stage 2/3) but I wonder
Eadgbe
in
Advanced Prostate Cancer
6 months ago
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