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Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
4 months ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
Mascouche
in
Advanced Prostate Cancer
4 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
4 months ago
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ADT and Increased Blood Sugar
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
Prior to my diagnosis, my morning blood sugar levels were just on the cusp of normal ranging from 99 to 120 each morning. My primary care physician prescribed Metformin, which seemed to reduce or maintain these levels. I have been taking Orgovyx since 9/23 and expect to complete the regimine in early
805guy
in
Prostate Cancer And Gay Men
2 months ago
Cabazitaxel treatment
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
Luylu
in
Prostate Cancer Network
4 months ago
Still depressed after ECT
I recently had ECT done (14treatments) I was feeling like it had changed my life and I was able to live again. But now I am back to feeling low moods, no motivation, and all the other symptoms associated with depression and anxiety. I was in a treatement facility and recently came back home, so maybe
I recently had ECT done (14treatments) I was feeling like it had changed my life and I was able to live again. But now I am back to feeling low moods, no motivation, and all the other symptoms associated with depression and anxiety. I was in a treatement facility and recently came back home, so maybe
Jersey24
in
Anxiety and Depression Support
7 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
4 months ago
Memory issues ??
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues. To start it was around a year ago ,my gp thought I'd had a stroke as I
Hi 👋 I havnt posted in a while ,however I have had long standing JCA/RA among the rest that goes with it like MCTD . So after years of intense treatment from the age of 11 . I now find myself at the age of 60 with memory issues. To start it was around a year ago ,my gp thought I'd had a stroke as I
Weemillie
in
NRAS
7 months ago
positive thinking
chris turner here 65 yr old male married over 40 yrs to cindy who has done so much as have her family to help me battle with liver disease/fibromyalgia/pht/enlarged spleen/liver diabetet type 2.other bits and bobs to deal with .ex butcher of 40 yrs ex biker 40yrs too ,no longer able to ride anymore and
chris turner here 65 yr old male married over 40 yrs to cindy who has done so much as have her family to help me battle with liver disease/fibromyalgia/pht/enlarged spleen/liver diabetet type 2.other bits and bobs to deal with .ex butcher of 40 yrs ex biker 40yrs too ,no longer able to ride anymore and
chrisuk
in
British Liver Trust
7 months ago
My prostate journey and testosterone side effects
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The
PT49
in
Prostate Cancer Network
4 months ago
Is the end in sight???
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment
Stopalready
in
Endometriosis UK
4 months ago
what to try next?
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places
KML22
in
Endometriosis UK
4 months ago
Accuracy doubtful due to fusion hardware?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
L5/S1 hardware new since last dexa scan. The tech did ask for an opinion from a co-worker as she felt the imaging was being distorted due to the hardware, but was told it would not impact the readings. take hrt, d3/k2 and am active! Any thoughts?
Jeaniem130
in
Bone Health and Osteoporosis UK
4 months ago
QoL Recent hike in Japan .. Mount Fuji
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Been enjoying a hike near our vacation condo .. get out and move… I’m almost 3 months out after last ADT .. 5 months radiation a subtle feel of testosterone may be returning. Did 9 months ADT so still feeling the effects.. but have to say for every day I wake up at 6am tired and not feeling well.. I
Yokohama2023
in
Advanced Prostate Cancer
4 months ago
Experience, thus far with Lupron and Abiraterone
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
I am 78 years old. I was diagnosed in May 2022 with PCa after my PSA was measured at 23.79. I have no other health issues. Following the determination that PCa was still within the prostrate capsule and had not spread to any other organ, I was placed on Lupron (6 monthly IM injections for 2 years). Clinically
Sanctus
in
Advanced Prostate Cancer
9 months ago
any similar stories extensive metastatic prostate cancer
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
hello! I’ve been on here for a few weeks reading everyone’s posts, which have been helpful. My dad recently found out he has extensive Mets throughout his skeleton, although we have been battling this disease for almost 5 years now, things have taken a turn. He has been on ADT since January, and tolerating
Concerneddaughter123
in
Advanced Prostate Cancer
4 months ago
Hair Loss on Yuflyma
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
Hi everyone I have been on Yuflyma for 6 weeks and have noticed an increasing amount of hair loss. I am also on Folic acid seven days a week as I was previously on Methotrexate , but stopped the methotrexate a few weeks ago. I had been on Methotrxate since May of last year, both tablets and then metoject
MDWinter23
in
NRAS
4 months ago
So the odds we all read about... are they true?
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
When my husband (age 52) was diagnosed with metastatic prostate cancer two and a half years ago, he was told the outlook was "grim." Everything we read told us once it moves to the bone (his has) then you're looking at months, not years, of life left. He had TEMPUS done, which was basically the oncologist
Anatalya
in
Advanced Prostate Cancer
4 months ago
PSA Nadir 6 Months After Primary RT Correlates With Prostate Cancer Outcomes — Or does it?, MedPage Today May 22, 2024
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
[i]This article from MedPage Today is reproduced in full along with the link to the full access editorial comment is also provided. However, it has numerous hyperlinks to the the research cited within. The link to the MedPage article provides those links. [/i] [i]* * *[/i]
PSA Nadir 6 Months After
cujoe
in
Fight Prostate Cancer
4 months ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
4 months ago
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