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thoracic/diaphragmatic endometriosis- keen to hear anyone else’s stories
Hi Ladies, have any of you had successful surgery to help with Thoracic/Diaphragmatic endometriosis? I was diagnosed with endo in 2011 and have had a couple of lap surgeries over the years but only confirmed/treated in pelvic area. After suffering symptoms of diaphragmatic endo for 5 years I reached
Hi Ladies, have any of you had successful surgery to help with Thoracic/Diaphragmatic endometriosis? I was diagnosed with endo in 2011 and have had a couple of lap surgeries over the years but only confirmed/treated in pelvic area. After suffering symptoms of diaphragmatic endo for 5 years I reached
Dolomite1989
in
Endometriosis UK
1 year ago
Where do you feel pain?
I'm currently waiting to have a lap to diagnose what I'm pretty confident is endo. I'm currently having 24/7 pain, this flare up has last about a month so far. I wanted to see if other people have similar pain - mine doesn't seem to generally be in my lower tummy like regular period pain. It tends
I'm currently waiting to have a lap to diagnose what I'm pretty confident is endo. I'm currently having 24/7 pain, this flare up has last about a month so far. I wanted to see if other people have similar pain - mine doesn't seem to generally be in my lower tummy like regular period pain. It tends
Banders93
in
Endometriosis UK
1 year ago
Difficult decision before a robot assisted laparoscopic prostatectomy planned for March
PSA 3.4. Gleason 7. MRI and biopsy diagnosed prostate carcinoma left lobe. In December 22 a PET/CT (238MBq F-18 PSMA) found moderate grade uptake involving the left peripheral zone of my prostate gland consistent with the known carcinoma and lower grade uptake involving the right lobe of my prostate
PSA 3.4. Gleason 7. MRI and biopsy diagnosed prostate carcinoma left lobe. In December 22 a PET/CT (238MBq F-18 PSMA) found moderate grade uptake involving the left peripheral zone of my prostate gland consistent with the known carcinoma and lower grade uptake involving the right lobe of my prostate
Hockeyforever
in
Prostate Cancer Network
1 year ago
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I had a ultrasound done which showed that my fallopian tubes and ovaries looked quite stiff or immobile and that would be a sign of endometriosis covering them, but could only be sure after a
laparoscopy
.
I had a ultrasound done which showed that my fallopian tubes and ovaries looked quite stiff or immobile and that would be a sign of endometriosis covering them, but could only be sure after a
laparoscopy
.
MeAnonymous
in
Endometriosis UK
2 years ago
Endometriosis?
My GP prescribed me laxido to edal.lwith the severe trapped wind pain and reluctantly referred me for a
laparoscopy
but when I attended the appointment it was way too painful and I couldn't go ahead with the procedure.
My GP prescribed me laxido to edal.lwith the severe trapped wind pain and reluctantly referred me for a
laparoscopy
but when I attended the appointment it was way too painful and I couldn't go ahead with the procedure.
BooPitstop
in
Endometriosis UK
2 years ago
laparoscopy
hi, Iv suffered with pain since I was 14 I’m now 24 and have my first
laparoscopy
coming up in about 7-8 weeks time, Looking for endo and having pcos cysts removed, I’m really nervous and would like to know what to expect? please lady’s leave me comments about your story’s and what to expect x
hi, Iv suffered with pain since I was 14 I’m now 24 and have my first
laparoscopy
coming up in about 7-8 weeks time, Looking for endo and having pcos cysts removed, I’m really nervous and would like to know what to expect? please lady’s leave me comments about your story’s and what to expect x
Chloee98
in
Endometriosis UK
2 years ago
Endo interfering with nerves?
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
HiExtensive endo was found during my lap in June 2021 - ovaries, bowel, diaphragm etc. I had my right ovary and tube removed. Four increasingly painful periods later, I reluctantly took my gynae' s advice and went on prostap for a year. It was great in that it stopped my periods, but I felt that the
Sloany
in
Endometriosis UK
1 year ago
looking for support ❤️
Hi this is my 1st post, iv been experiencing stomach pains etc for over 2 years now, currently waiting for
laparoscopy
as I know 100% it’s endo!
Hi this is my 1st post, iv been experiencing stomach pains etc for over 2 years now, currently waiting for
laparoscopy
as I know 100% it’s endo!
Michelle_2022
in
Endometriosis UK
2 years ago
laparoscopy results
has anyone has a lap for endo but while they were in there,found it was something else? i have my first lap in September and like everyone, am petrified that they wont fine anything. how do people cope with it when they dont find anything
has anyone has a lap for endo but while they were in there,found it was something else? i have my first lap in September and like everyone, am petrified that they wont fine anything. how do people cope with it when they dont find anything
Peppermints
in
Endometriosis UK
2 years ago
sulphur smell after laparoscopy?
Hey, hope someone out there has had this before? so I had excision surgery in April and everytime I went to loo either to wee or poop I would smell this very strong sulphur/chemical type smell?? I presumed it was from surgery as they pumped alsorts into your abdomen and used excision etc etc but I
Hey, hope someone out there has had this before? so I had excision surgery in April and everytime I went to loo either to wee or poop I would smell this very strong sulphur/chemical type smell?? I presumed it was from surgery as they pumped alsorts into your abdomen and used excision etc etc but I
Endo8701
in
Endometriosis UK
2 years ago
radical hysterectomy and prolapse bowel and bladder repair
Help please …. I am now 7th on list for this laparoscopic surgery. Getting anxious as date is coming after a 5 year wait ….. afraid it might be worse after operation. Has anyone any advice re recovery and what benefits have been. I am a fit 72 year old now. I am expecting it to be a general anaesthetic
Help please …. I am now 7th on list for this laparoscopic surgery. Getting anxious as date is coming after a 5 year wait ….. afraid it might be worse after operation. Has anyone any advice re recovery and what benefits have been. I am a fit 72 year old now. I am expecting it to be a general anaesthetic
Lynkeogh
in
Healthy Happy Woman
1 year ago
Retroperitoneal Nodule .Anyone experiencing?
hi,I was diagnosed in June ,now waiting for multidisciplinary operation.My symptoms started September 21 .I have had constant pain in several areas ,but for the last few months my lower spine is unbearable and it’s now spread to the right hand side not going down my leg or bum so not thinking sciatica
hi,I was diagnosed in June ,now waiting for multidisciplinary operation.My symptoms started September 21 .I have had constant pain in several areas ,but for the last few months my lower spine is unbearable and it’s now spread to the right hand side not going down my leg or bum so not thinking sciatica
K2023
in
Endometriosis UK
1 year ago
bloating!
hello, so I had a
laparoscopy
and cyst removal just under a week ago, and my bloating of awful! No trapped wind, but tummy is so big and swollen. Just wondering how long this is supposed to last for and if there is anything I can do to help it go down?
hello, so I had a
laparoscopy
and cyst removal just under a week ago, and my bloating of awful! No trapped wind, but tummy is so big and swollen. Just wondering how long this is supposed to last for and if there is anything I can do to help it go down?
Ruby_groucott
in
Endometriosis UK
2 years ago
Pain Specialist conversation
I had an exploratory
laparoscopy
in 2019 looking for endometriosis but was told that only normal lesions were found and that I do not have endometriosis which shattered my world.
I had an exploratory
laparoscopy
in 2019 looking for endometriosis but was told that only normal lesions were found and that I do not have endometriosis which shattered my world.
Cathrynsr97
in
Pelvic Pain Support Network
1 year ago
Excision - is it worth it?
I have recently seen an endo specialist who advised I have a lap and excision after seeing my left ovary is stuck to my pelvic wall, I have a blocked tube and a nodule on my rectum seen on a TV ultrasound with a specialist sonographer. However, I am really worried I will get adhesions following excision
I have recently seen an endo specialist who advised I have a lap and excision after seeing my left ovary is stuck to my pelvic wall, I have a blocked tube and a nodule on my rectum seen on a TV ultrasound with a specialist sonographer. However, I am really worried I will get adhesions following excision
L110
in
Endometriosis UK
1 year ago
Pouch of Douglas - BSGE referral?
Hello, I've had another disappointing appointment post-Lap, where I again didn't see my actual consultant. This is in general gynae. The only thing I know is that they found one patch of endometriosis in my Pouch of Douglas and diagnosed Mild Endometriosis. I have been on Decapeptyl for a year, I'd had
Hello, I've had another disappointing appointment post-Lap, where I again didn't see my actual consultant. This is in general gynae. The only thing I know is that they found one patch of endometriosis in my Pouch of Douglas and diagnosed Mild Endometriosis. I have been on Decapeptyl for a year, I'd had
atealdeer
in
Endometriosis UK
1 year ago
Symptom diary for diagnosis, while on the combined pill? Do I even have a cycle?
I'm on the waiting list for a
laparoscopy
, having to wait at least 12 months. I'm sure many of you can relate to the anxiety that comes with the waiting? The hospital won't help me any further while I'm on the waiting list.
I'm on the waiting list for a
laparoscopy
, having to wait at least 12 months. I'm sure many of you can relate to the anxiety that comes with the waiting? The hospital won't help me any further while I'm on the waiting list.
Mountainliving
in
Endometriosis UK
2 years ago
Mirena coil?
I have a laproscopy scheduled soon and my doctor suggested I get a Mirena coil placed in. May I please ask if anyone has had this coil placed in? What was the removal procedure like?
I have a laproscopy scheduled soon and my doctor suggested I get a Mirena coil placed in. May I please ask if anyone has had this coil placed in? What was the removal procedure like?
Hazel_Eyes
in
Endometriosis UK
1 year ago
Finally! Nerves are kicking in
I am finally having my diagnostic lap on Friday.... I am seeing a BCSG endo spealisits (as paid for that private but having procedure through nhs) Its been a longggggggggggggggggggggggggg road. Just waiti g for op was 20months but years and years of back and forth to gps with pelvic/abdo/bowel problems
I am finally having my diagnostic lap on Friday.... I am seeing a BCSG endo spealisits (as paid for that private but having procedure through nhs) Its been a longggggggggggggggggggggggggg road. Just waiti g for op was 20months but years and years of back and forth to gps with pelvic/abdo/bowel problems
Darlingdiva
in
Endometriosis UK
1 year ago
Employment and Endometriosis
I’m currently recovering from my
laparoscopy
surgery but I feel so anxious and this kind of pressure about finding a new job asap especially with current cost of living crisis we’re all facing.
I’m currently recovering from my
laparoscopy
surgery but I feel so anxious and this kind of pressure about finding a new job asap especially with current cost of living crisis we’re all facing.
QuietStorm1
in
Endometriosis UK
2 years ago
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