Experiences with

L-2-hydroxyglutaric aciduria

I'm having trouble getting my heart steady after my last ablation and have been thinking about supplementing arginine and taurine, (on the usual a-fib sufferer basis of trying anything that might help.) It's not established clinical practice and I can only think a GP or EP would be wary. Plenty of anecdotes

I took a herbal drug called L-Arginine a many years ago back in 2010. After taking the tablets in the afternoon, I went to sleep but I woke up with burning eyes and hands. Since then, I get burning sensation in my eyes and palm very often. Did anyone experienced same problem with any herbs?

Electrolyte’s imbalance role in atrial fibrillation: Pharmacological management https://arrhythmia.biomedcentral.com/articles/10.1186/s42444-022-00065-z and Elimination of cardiac arrhythmias using oral taurine with l-arginine with case histories: Hypothesis for nitric oxide stabilization of the sinus

Hi All, I just found out last week my first FET failed. I couldn't get my lining up above 6.3mm and the clinic were happy to go ahead as I had a lovely triple line and even during my egg collection my lining only made it to 6.8mm. I was taking pomegranate juice and l-arginine throughout to hopefully

Hello All, Am wondering if anyone has had experience with Arginine for microvascular angina? Was recently prescribed and can't really tell if working...seems sometimes yes and sometimes no. I am 78 and have had two myocardial infarctions in three years. Overall feel ok, but limited activity. Thank

After carefully researching more about my condition, I have come to the conclusion that I am currently suffering from Penile adhesions. This usually happens when a) improper circumcision b) skin isn't pulled back after a circumcision. This required a Penile adhesion surgery to correct itself. Could

Things have recently been fine with me, the swelling on the inner foreskin still remains and the leftover skin is still stuck. I have been proscribed an L-Arginine gel to treat this issue and Lidocaine and Prilocaine gel for my sensitivity. I recently tried wearing an underwear

Has anyone here used magnesium or L arginine for atrial fibrillations? If yes, and you had good results, what were the dosages and how often daily? Thank you.

Please give me access to your Zoom discussion on why steroids increase blood sugar etc. on 3rd April. I was diagnosed with PMR since 2023 and take Prednisolone. I am in Cape Town, only one hour difference at that time. Thank you and regards Michelle

Update - HOUSE FULL - sorry this is so over-subscribed so we cannot accept any more requests on this occasion From feedback this was very well received last week so we're going to repeat it. I'm going to be leading a discussion on this hosted by the Yorkshire PMRGCAuk support group and anyone

In November my HbA1c was 47 , prediabetic I was told, but my GP was calm, saying steroids caused it and should go when you stop.... still, not ideal . On advice here on forum I reduced carbs ... not drastically but cut out most rice, potatoes, bread, pasta ....and this weeks blood test its 41. Whether

I'm going to be leading a discussion on this for the Yorkshire group and anyone interested in the topic is also welcome to join us. I've written several posts about this in the past including what I learned from wearing a Continuous Glucose Monitor (CGM). If interested send an email to yorkshire@pmrgca.org.uk

Hello , I've not been here for quite a while but I need some advice, please. Do any of you lovely people out there know if there is a co-relation between lowering my levo dosage from 100 to 75 ( been on 100 for over 10 years but GP lowered it because of blood test about 6 month ago) and my type 2 diabetes

Hello :) I am a 27-year old male who accidentally discovered that I was a type 2 diabetic, 4 years back. My RBS was close to 300 and HbA1C was 13. At that time, I didn't even these are some serious numbers. I took diabetes very casually. I visit doc, take amaryl m1 and janumet 1000/50, and when HbA1c

Further to my post and the many responses about Type 2 diabetes, I was just digging out my blood test results for the last year, and I see that even before I started taking steroids last March my blood sugar was high at 46 and then three months later it was 48 and now it is 49. Maybe pred did not help

I’ve just had a text from my GP that due to changes regarding LDL levels and lipid targets my cholesterol results are above target recommending medication presumably statins. Before I respond could I ask if there are any issues taking statins with PMR and prednisolone? I am reluctant to take yet

Thank you for all the comments re pred-induced diabetes and just to say I read your posts TangoCharlie with interest. I had watched an episode of the Glucose Godess but frankly I was a bit bewildered. I had an appt with my GP on Thursday. In the 3 minute consultation she said that I needed to take medication

Hi I have been in W&W since 2020 and so far so good (ish) Just had my lipid profile back and my cholesterol is elevated. There is so much conflicting stuff regarding cholesterol and whether it is linked to a shorter time to treatment etc. I really don't want to go down the statins road and wondered

I have written a fair few times on my adventures with PMR which started in early 2017.Been up and down on various levels of prednisone then in May 24 my Rheumatology dept decided enough they wanted me off prednisone. After several blood tests and an ex Ray I was started on 10mg METHOTREXATE once a week

Thanks to this forum I have just found out I can't take multivitamins with Iodine in. Well, that's the last 2 years of me taking multivitamins out the window then!! What a nightmare. Does anyone have any vitamins they recommend that do not contain Iodine? Zooki is a good brand but theirs do. I also