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Postural Instability Gait Disorder PIGD
There apparently are two subtypes of Parkinsons. I am wondering whether or not I have PIGD. My only observable symptom is that I drag my left heel unless I concentrate on foot placement. As this is my only symptom (other than mild internally felt tremors in my left leg at times. I also note the
There apparently are two subtypes of Parkinsons. I am wondering whether or not I have PIGD. My only observable symptom is that I drag my left heel unless I concentrate on foot placement. As this is my only symptom (other than mild internally felt tremors in my left leg at times. I also note the
FMundo
in
Cure Parkinson's
10 years ago
Parkinson’s and GCA - which symptons are which?
I have GCA, dx Jan 2013 and in Dec 2014 was diagnosed with Parkinson’s. I am reducing Prednisolone by the slow method (currently from 9.5 to 9mg). I have been increasing the dose of sinemet and have reached two tablets three times a day which I have to stay on for three weeks. If there are no side effects
I have GCA, dx Jan 2013 and in Dec 2014 was diagnosed with Parkinson’s. I am reducing Prednisolone by the slow method (currently from 9.5 to 9mg). I have been increasing the dose of sinemet and have reached two tablets three times a day which I have to stay on for three weeks. If there are no side effects
Trenny
in
Cure Parkinson's
10 years ago
Sinemet
Is there anyone who is on or has been on sinemet that can tell me about any side effects they may have had or are now experiencing. Thanks 😊
Is there anyone who is on or has been on sinemet that can tell me about any side effects they may have had or are now experiencing. Thanks 😊
Annie81963
in
Cure Parkinson's
10 years ago
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Azilect
Has anyone had any problems taking azilect or zelapar with sinemet? Low blood pressure or the cheese thing? I notice that most people are on an mao and I wanted to try selegeline again.
Has anyone had any problems taking azilect or zelapar with sinemet? Low blood pressure or the cheese thing? I notice that most people are on an mao and I wanted to try selegeline again.
michaela13
in
Cure Parkinson's
10 years ago
Can I take Alendronic Acid later in the day?
I stopped Alendronic Acid six months ago, mainly because I *hate* having to wait an hour after taking it before I can have breakfast. As I take leflunomide also, it means a full hour and a half to wait. I am waiting for the result of of a dexascan. Two years ago I was Osteopaenic in one hip (-1.5).
I stopped Alendronic Acid six months ago, mainly because I *hate* having to wait an hour after taking it before I can have breakfast. As I take leflunomide also, it means a full hour and a half to wait. I am waiting for the result of of a dexascan. Two years ago I was Osteopaenic in one hip (-1.5).
Trenny
in
PMRGCAuk
10 years ago
Coming off Sinemet
Hi all and Heady in particular, I am new to posting here...I have been reading all your posts learning and waiting in the wings until I could find something genuine to contribute and maybe help. My husband Roy was diagnosed June 2013 with CBD after 2-3 years of extensive testing and re-testing! From
Hi all and Heady in particular, I am new to posting here...I have been reading all your posts learning and waiting in the wings until I could find something genuine to contribute and maybe help. My husband Roy was diagnosed June 2013 with CBD after 2-3 years of extensive testing and re-testing! From
DenB
in
PSP Association
10 years ago
Stopping taking drugs?
Hi all. Advise please! S wants to cut down on his drugs! None of them do that much good and is taking a shed full a day. Causes so many rows, as he never takes them on time, although I have alarms going off all over the place. At the moment it is still one thing he CAN do for himself, so I make
Hi all. Advise please! S wants to cut down on his drugs! None of them do that much good and is taking a shed full a day. Causes so many rows, as he never takes them on time, although I have alarms going off all over the place. At the moment it is still one thing he CAN do for himself, so I make
Heady
in
PSP Association
10 years ago
Mum diagnosed with PSP yesterday
So my mum who is 83 was diagnosed by the Nuerologist yesterday with PSP. Mum was admitted 5 weeks ago to hospital with a chest infection which turned out to be Pneumonia. During her stay in hospital and contracting 2 hospital acquired infections (an infection in her right lung and e coli in her urine
So my mum who is 83 was diagnosed by the Nuerologist yesterday with PSP. Mum was admitted 5 weeks ago to hospital with a chest infection which turned out to be Pneumonia. During her stay in hospital and contracting 2 hospital acquired infections (an infection in her right lung and e coli in her urine
Opope
in
PSP Association
10 years ago
hello all with pd
Ive just received some Zandopa powder and wonder who takes it with sinemet and if it has helped with the tremors and stiffness? How much do I take etc? Love to hear some one's feed back on Zandopa
Ive just received some Zandopa powder and wonder who takes it with sinemet and if it has helped with the tremors and stiffness? How much do I take etc? Love to hear some one's feed back on Zandopa
shirley46
in
Cure Parkinson's
10 years ago
New to all this
Hi , I am new to this site, my mum has recently been diagnosed with psp after a 4 year wait, I promised my mum years ago that she would never have to go into a home and I still stick to that promise no matter how hard this gets, its not because I think badly of them but just because it's her decision
Hi , I am new to this site, my mum has recently been diagnosed with psp after a 4 year wait, I promised my mum years ago that she would never have to go into a home and I still stick to that promise no matter how hard this gets, its not because I think badly of them but just because it's her decision
heinz57
in
PSP Association
10 years ago
Patch
Is anyone on the neupro patch without the use of sinemet? My neuro wants me to try the patch and get rid of the sinemet. Is that possible? Anyone have success with this? I'm on 25/100 4x a day, but need something else to reduce diskynesia and get me through the night.
Is anyone on the neupro patch without the use of sinemet? My neuro wants me to try the patch and get rid of the sinemet. Is that possible? Anyone have success with this? I'm on 25/100 4x a day, but need something else to reduce diskynesia and get me through the night.
michaela13
in
Cure Parkinson's
10 years ago
Stalevo meds for pd
Hi ,I've been stalevo for quite a few months ,I think I'm better on stalevo than sinemet I had pain every time I took the pain four times a day.went bk to neurologist he put me on higher dose age every 3 hours 150/25 I know take it 6 times a day and was missing my times and not being very punctual
Hi ,I've been stalevo for quite a few months ,I think I'm better on stalevo than sinemet I had pain every time I took the pain four times a day.went bk to neurologist he put me on higher dose age every 3 hours 150/25 I know take it 6 times a day and was missing my times and not being very punctual
Shol
in
Cure Parkinson's
10 years ago
Help!
I feel like I am sinking into despair. This is the 4th neurologist I've been to. I'm on sinemet 25/100 4x day. I tried selegeline but had so much dyskinesia I had to stop. I tried the patch for 2 months with no result, but only got worse. Now my new neuro prescribed Requip. But i didn't realize that
I feel like I am sinking into despair. This is the 4th neurologist I've been to. I'm on sinemet 25/100 4x day. I tried selegeline but had so much dyskinesia I had to stop. I tried the patch for 2 months with no result, but only got worse. Now my new neuro prescribed Requip. But i didn't realize that
michaela13
in
Cure Parkinson's
10 years ago
Newly diagnosed-starting sinemet in increasing doses
My consultant has suggested that I ‘gradually introduce low strength (12.5/50) Sinemet with half a tablet three times daily over a few days and then gradually increase further to a whole tablet three times daily over the next few days’. She then says to increase further at weekly intervals if necessary
My consultant has suggested that I ‘gradually introduce low strength (12.5/50) Sinemet with half a tablet three times daily over a few days and then gradually increase further to a whole tablet three times daily over the next few days’. She then says to increase further at weekly intervals if necessary
Trenny
in
Cure Parkinson's
10 years ago
Requip
A new neurologist wants me to take re quip with the sinemet and then reduce the sinemet. I am taking 25/100 4x of sinemet at present. Has anyone done this with success? The sinemet gives me swallowing problems and dyskinesia. Also anyone take LDN with requip? I am also having major problems with off
A new neurologist wants me to take re quip with the sinemet and then reduce the sinemet. I am taking 25/100 4x of sinemet at present. Has anyone done this with success? The sinemet gives me swallowing problems and dyskinesia. Also anyone take LDN with requip? I am also having major problems with off
michaela13
in
Cure Parkinson's
10 years ago
Is it worth changing from madopar to sinemet
Hi all, i am on 2 x 125mg madopar and 0.7 mg pramipexole 3 times a day and amandatine 100 mg 2 times a day, I find that the medication doesn't seem to help the stiffness too much, has anybody changed from madopar and found that changing to sinemet has worked better. I thought it may be worth changing
Hi all, i am on 2 x 125mg madopar and 0.7 mg pramipexole 3 times a day and amandatine 100 mg 2 times a day, I find that the medication doesn't seem to help the stiffness too much, has anybody changed from madopar and found that changing to sinemet has worked better. I thought it may be worth changing
martinn1962
in
Cure Parkinson's
10 years ago
Parkinsonism
Is Parkinsonism an early stage of Parkinson's? That is my most recent diagnosis. All the drugs I've tried -- sinemet, neurontin, amantidine, etc -- have backfired and resulted in a wild exacerbation of all my symptoms. In many ways I look like a classic PD person but not in others. I had a DaT scan which
Is Parkinsonism an early stage of Parkinson's? That is my most recent diagnosis. All the drugs I've tried -- sinemet, neurontin, amantidine, etc -- have backfired and resulted in a wild exacerbation of all my symptoms. In many ways I look like a classic PD person but not in others. I had a DaT scan which
Beckey
in
Cure Parkinson's
10 years ago
Nighttime
What does everyone do at night? I'm not taking anything but need something to get to the bathroom. I'm o on sinemet 25/100 4x during the day and LDN.
What does everyone do at night? I'm not taking anything but need something to get to the bathroom. I'm o on sinemet 25/100 4x during the day and LDN.
michaela13
in
Cure Parkinson's
10 years ago
What I don't get is...
The meds that are supposed to help have the opposite effect! When I try any of these meds -- sinemet, amantidine, even neurontin -- the tremor, which is in my right arm/hand, spreads to my right leg, head and voice and speeds up too. I feel like I've gone from the "wash" cycle to the "spin" cycle! Have
The meds that are supposed to help have the opposite effect! When I try any of these meds -- sinemet, amantidine, even neurontin -- the tremor, which is in my right arm/hand, spreads to my right leg, head and voice and speeds up too. I feel like I've gone from the "wash" cycle to the "spin" cycle! Have
Beckey
in
Cure Parkinson's
10 years ago
Shortness of breath,rapid breathing,difficulty swallowing,frequently after a meal.Weakness.
Any suggestions would be appreciated, taking 5 25/100 sinemet, 1 cr sinemet, 4mg neupro patch daily. Have had PD 8 years,also have RA. Breathing problems keep me in bed, am 88 yr.old female. Thanks
Any suggestions would be appreciated, taking 5 25/100 sinemet, 1 cr sinemet, 4mg neupro patch daily. Have had PD 8 years,also have RA. Breathing problems keep me in bed, am 88 yr.old female. Thanks
arthur84
in
Cure Parkinson's
10 years ago
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