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Rasagiline or Selegiline?
I was diagnosed with PD eight months ago and was put on sinemet (12.5/50) three tablets 3 times daily. I still have some tremor and other problems. My worst are painful muscles when walking. Today I saw a new Parkinson's Nurse and she suggested that an MAO-B inhibitor might suit me better ie Rasagiline
I was diagnosed with PD eight months ago and was put on sinemet (12.5/50) three tablets 3 times daily. I still have some tremor and other problems. My worst are painful muscles when walking. Today I saw a new Parkinson's Nurse and she suggested that an MAO-B inhibitor might suit me better ie Rasagiline
Trenny
in
Cure Parkinson's
9 years ago
medication .Generic or not .
has anyone noticed any difference when taking brand or Generis tablets . I have always kept an open minded on this and we have hAd over the years some different ones. the latest monthly dosset box contained his sinemet plus but was the original brand yellow oval . he is in the second week and
has anyone noticed any difference when taking brand or Generis tablets . I have always kept an open minded on this and we have hAd over the years some different ones. the latest monthly dosset box contained his sinemet plus but was the original brand yellow oval . he is in the second week and
cabbagecottage
in
Cure Parkinson's
9 years ago
Has anyone used a rivastigmine patch?
I had a memory test the other week and the result was not very good. The doctor suggested that I start using a rivostigmine patch. I am not very keen, having looked up the side effects, particularly nausea and vomiting, anxiety and possible kidney/liver damage. I am awaiting the results of a CT scan.
I had a memory test the other week and the result was not very good. The doctor suggested that I start using a rivostigmine patch. I am not very keen, having looked up the side effects, particularly nausea and vomiting, anxiety and possible kidney/liver damage. I am awaiting the results of a CT scan.
Trenny
in
Cure Parkinson's
9 years ago
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New diagnosis of Lewy Body
Hi! I was diagnosed with Parkinson's in Jan 2012. My new neurologist feel strongly that I have Lewy Body and Parkinson. I have quickly escalated to Sinemet 100/25 q 3 hrs. It seems to hold until the 3 hr marl. My question is does anyone have Lewy Body or is a caregiver and if so would you be so kind
Hi! I was diagnosed with Parkinson's in Jan 2012. My new neurologist feel strongly that I have Lewy Body and Parkinson. I have quickly escalated to Sinemet 100/25 q 3 hrs. It seems to hold until the 3 hr marl. My question is does anyone have Lewy Body or is a caregiver and if so would you be so kind
Annie11
in
Cure Parkinson's
9 years ago
IS THERE A NUMBER FOR ANYTHING
We all don't know what the next day will bring for any of us with or without PSP. Since my honey got rid of the UTI and his med Sinemet were raised from 25/100 to 25/250 and changed as when to take then. He takes them 3 times a day whole and then a half for the 4th dose. Turns out to be 4 times a day
We all don't know what the next day will bring for any of us with or without PSP. Since my honey got rid of the UTI and his med Sinemet were raised from 25/100 to 25/250 and changed as when to take then. He takes them 3 times a day whole and then a half for the 4th dose. Turns out to be 4 times a day
Auddonz
in
PSP Association
9 years ago
sinemet cr
I'd like to hear from those who have tried sinemet cr. I just started taking it this week along with regular sinemet and amantadine and it seems to be helping a great deal.
I'd like to hear from those who have tried sinemet cr. I just started taking it this week along with regular sinemet and amantadine and it seems to be helping a great deal.
bicyclingwithpd
in
Cure Parkinson's
9 years ago
Is he on Sinemet?
i was on Sinemet and researched how the carbidopa depletes B6 which isnecessary for many metabolics, thats why people loose weight. I lost 65 # and started taking mega doses of B6, much better, and starting to gain weight, and my tremors are getting better, alot better, considering this is the major
i was on Sinemet and researched how the carbidopa depletes B6 which isnecessary for many metabolics, thats why people loose weight. I lost 65 # and started taking mega doses of B6, much better, and starting to gain weight, and my tremors are getting better, alot better, considering this is the major
Hidden
in
Cure Parkinson's
9 years ago
Lewy Body
Hi everyone, I was diagnosed with atypical Parkinson's 21/2 yrs ago..since then I have changed neurologists and now I've been told I have Lewy Body with dementia. Besides all of the cognitive issues I have Parkinson's physical symptoms...( muscle stiffness, balance issues, weight gain( I crave sugar
Hi everyone, I was diagnosed with atypical Parkinson's 21/2 yrs ago..since then I have changed neurologists and now I've been told I have Lewy Body with dementia. Besides all of the cognitive issues I have Parkinson's physical symptoms...( muscle stiffness, balance issues, weight gain( I crave sugar
Annie11
in
Cure Parkinson's
9 years ago
Stiffness and jerky walking
Can anyone suggest anything to make my walking smoother. I was dx in December and put onto increasing doses of sinemet 12.5/50 up to three tablets three times daily. I went onto the CR ones for a short while, but they didn't appear to suit me, so I am back on three tablets three times daily. I have
Can anyone suggest anything to make my walking smoother. I was dx in December and put onto increasing doses of sinemet 12.5/50 up to three tablets three times daily. I went onto the CR ones for a short while, but they didn't appear to suit me, so I am back on three tablets three times daily. I have
Trenny
in
Cure Parkinson's
9 years ago
Need tips for weight gain
I would greatly appteciate suggestions for gaining weight. I am 68 years old and was diagnosed 6 years ago and have lost about four pounds a year. I take sinemet and an agonist which diminishes my appetite. Also more foods make me feel bloated so I avoid them. Also the protein restriction caused loss
I would greatly appteciate suggestions for gaining weight. I am 68 years old and was diagnosed 6 years ago and have lost about four pounds a year. I take sinemet and an agonist which diminishes my appetite. Also more foods make me feel bloated so I avoid them. Also the protein restriction caused loss
Mmurrayha
in
Cure Parkinson's
9 years ago
Night
What does everyone do at night time? I usually take four sinemet during the day nothing at night, but now it's getting so bad at nighttime. I have to go tothe bathroom so many times and it's hard to walk. What does everyone do at night? Does everybody take medication at night too? And is the rytary helping
What does everyone do at night time? I usually take four sinemet during the day nothing at night, but now it's getting so bad at nighttime. I have to go tothe bathroom so many times and it's hard to walk. What does everyone do at night? Does everybody take medication at night too? And is the rytary helping
michaela13
in
Cure Parkinson's
9 years ago
Weak knees and collapse
Has anyone had their knees collapse and found a 'cure' or do I have to learn to live with it? I have had two collapses, six months apart, but it does destroy one's confidence. I was diagnosed with PD in December, but probably had it for at least two years before that. I am on eight sinemet (low dose)
Has anyone had their knees collapse and found a 'cure' or do I have to learn to live with it? I have had two collapses, six months apart, but it does destroy one's confidence. I was diagnosed with PD in December, but probably had it for at least two years before that. I am on eight sinemet (low dose)
Trenny
in
Cure Parkinson's
9 years ago
Leg pain
Sometimes I have terrible leg pain in my left leg. It is so bad I cannot bear weight on it. I don't know if it is low dopamine or too much. I have tried adjusting my Sinemet and eating a banana every day, but at times I still have the pain. I do the Big and Loud therapy every day and am active. Does
Sometimes I have terrible leg pain in my left leg. It is so bad I cannot bear weight on it. I don't know if it is low dopamine or too much. I have tried adjusting my Sinemet and eating a banana every day, but at times I still have the pain. I do the Big and Loud therapy every day and am active. Does
tobykeith
in
Cure Parkinson's
9 years ago
Sinemet and Half-Sinemet
My rheumy has told me to take one Sinemet Prolongued Release 'with my breakfast' and one 'Half-Sinemet PR' in the afternoon. I take the first tablet at about 9 o'clock, but am not sure when to take the second one. Is 2 pm too early as I am afraid of forgetting it altogether if I leave it until later.
My rheumy has told me to take one Sinemet Prolongued Release 'with my breakfast' and one 'Half-Sinemet PR' in the afternoon. I take the first tablet at about 9 o'clock, but am not sure when to take the second one. Is 2 pm too early as I am afraid of forgetting it altogether if I leave it until later.
Trenny
in
Cure Parkinson's
9 years ago
MORE FRUSTRATED
After spending a week in the hospital because my darling husband could not get out of bed unassisted and slid to the floor. Could not lift himself up and I am not strong enough to help him. Called 911 and they picked him up and tried to convince him to go to the hospital. He refused. This goes back about
After spending a week in the hospital because my darling husband could not get out of bed unassisted and slid to the floor. Could not lift himself up and I am not strong enough to help him. Called 911 and they picked him up and tried to convince him to go to the hospital. He refused. This goes back about
Auddonz
in
Cure Parkinson's
10 years ago
What monthly blood tests should I have if I am on Sinemet?
I have a blood test due for my GCA and wondered if I should add anything else for my Parkinson's medication? I have been on increasing doses of Sinemet 12.5/50 for three months. I am currently on 2 three times daily.
I have a blood test due for my GCA and wondered if I should add anything else for my Parkinson's medication? I have been on increasing doses of Sinemet 12.5/50 for three months. I am currently on 2 three times daily.
Trenny
in
Cure Parkinson's
10 years ago
Has anyone been given anakinra (Kineret) for their SS?
Anakinra is sometimes used in difficult-to-treat Sweet's syndrome when most other treatments have failed. Has anyone been treated with anakinra, and did it work for you? Thanks.
Anakinra is sometimes used in difficult-to-treat Sweet's syndrome when most other treatments have failed. Has anyone been treated with anakinra, and did it work for you? Thanks.
Shell567
Sweet's Syndrome UK
in
Sweet's Syndrome UK
10 years ago
Normal pressure hydrocephalus
Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and they all dismiss it but given how similar the symptoms are I would like someone to at least consider the possibility ! P is getting worse by the day, mobility, falls
Normal pressure hydrocephalus, has anyone asked about the similarities to the symptoms of PSP ? I have asked every doctor we have seen and they all dismiss it but given how similar the symptoms are I would like someone to at least consider the possibility ! P is getting worse by the day, mobility, falls
NanBabs
in
PSP Association
10 years ago
Mucuna Purens as a source of dopamine
I am seriously contemplating mucuna purens for my P D--==PROBABLY CONTRARY TO MY NEURO'S ADVICE. Has anyone used M P successfully and at what doses.? Now I take sinemet , azilect, and comtan. I would appreciate any advice or suggestions or warnings,etc.
I am seriously contemplating mucuna purens for my P D--==PROBABLY CONTRARY TO MY NEURO'S ADVICE. Has anyone used M P successfully and at what doses.? Now I take sinemet , azilect, and comtan. I would appreciate any advice or suggestions or warnings,etc.
rustjudge
in
Cure Parkinson's
10 years ago
Another change in Rose
Hi followers and friends posted a few days ago about Rose having a good reaction from sinemet to madopar.we'll today, i went to visi5 and she looked terrible. staff were about to call me her blood pressure was very low and she was very shaky and moaning. She only opened her eyes a little and only ate
Hi followers and friends posted a few days ago about Rose having a good reaction from sinemet to madopar.we'll today, i went to visi5 and she looked terrible. staff were about to call me her blood pressure was very low and she was very shaky and moaning. She only opened her eyes a little and only ate
nannygoon
in
PSP Association
10 years ago
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