Search
Search
About
Log in
Join
Experiences with
Kineret
Posts
Communities
1,341 public posts
Filter results
Neck pain - any recommendations to supplement the medication?
Hi All I'm in Scotland and my dad was been diagnosed with PSP in Feb. His main complaint at the moment is the pain in his neck. He has started low dose of Sinemet, Carbidopa and levodopa and he is on waiting list for Physio. Just wondering if anyone has found anything that can supplement these to relieve
Hi All I'm in Scotland and my dad was been diagnosed with PSP in Feb. His main complaint at the moment is the pain in his neck. He has started low dose of Sinemet, Carbidopa and levodopa and he is on waiting list for Physio. Just wondering if anyone has found anything that can supplement these to relieve
Hidden
in
PSP Association
8 years ago
Sinemet Saga
Hoping for some advice. Started on sinemet earlier last month and gradually increased from 1/4 tab ( 25/100) 3x day to now I'm at 2 tabs 3 x day. After initial bad effects from it I've generally settled down, feeling no effects from them in the day but can still can get light headed and nauseous if I
Hoping for some advice. Started on sinemet earlier last month and gradually increased from 1/4 tab ( 25/100) 3x day to now I'm at 2 tabs 3 x day. After initial bad effects from it I've generally settled down, feeling no effects from them in the day but can still can get light headed and nauseous if I
grower
in
Cure Parkinson's
8 years ago
Sharing
Hello All, I am a 55 year old male, diagnosed in 2013 after a Dat scan. Iam left handed and had a slight tremor in left hand for about 2 years prior to diagnosis. I was a mechanic at UPS. Iam now retired and have been approved for Social Security Disability. My symptoms were no left arm swing, shortened
Hello All, I am a 55 year old male, diagnosed in 2013 after a Dat scan. Iam left handed and had a slight tremor in left hand for about 2 years prior to diagnosis. I was a mechanic at UPS. Iam now retired and have been approved for Social Security Disability. My symptoms were no left arm swing, shortened
jimbo112
in
Cure Parkinson's
8 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Parkinson's and Exercise question
Advice from the experts. I have a question regarding exercise and parkinson’s. I read everywhere how good exercise is for people with parkinson’s. Every time I start exercising for a few days, my symptoms get worse and it appears to me anyway that the disease appears to progress. I will get new symptoms
Advice from the experts. I have a question regarding exercise and parkinson’s. I read everywhere how good exercise is for people with parkinson’s. Every time I start exercising for a few days, my symptoms get worse and it appears to me anyway that the disease appears to progress. I will get new symptoms
talan001
in
Cure Parkinson's
8 years ago
DIPHENHYDRAMINE, therapeutic?
As I write this I am back to feeling well-managed. However a few days ago I bought a wrist cuff blood pressure device for my wife and became quite upset with my personal b/p measurements. The machine was about 35% high in its readings, of course. but until I visited a phaarmacy and had my b/p measured
As I write this I am back to feeling well-managed. However a few days ago I bought a wrist cuff blood pressure device for my wife and became quite upset with my personal b/p measurements. The machine was about 35% high in its readings, of course. but until I visited a phaarmacy and had my b/p measured
BUZZ1397
in
Cure Parkinson's
8 years ago
Nose bleeds
Has anyone had nosebleeds with Parkinsons? I bleed very little but I am not sure if it is related to the disease or its medications I am currently taking Sinemet, Amantadine and siliguine (probably spelled it wrong ) thank you!
Has anyone had nosebleeds with Parkinsons? I bleed very little but I am not sure if it is related to the disease or its medications I am currently taking Sinemet, Amantadine and siliguine (probably spelled it wrong ) thank you!
Hoffman123
in
Cure Parkinson's
8 years ago
“emergency room” PT 2 - amantadine, benadryl and tremor dominant prognosis
I have just returned from second visit to my neuro in three weeks. I want to update my fellow parkies and especially those that have been following my adventure. After three years no drugs, I recently experienced trial run (about 1 month) let’s say of first sinemet and then, after stopping sinemet
I have just returned from second visit to my neuro in three weeks. I want to update my fellow parkies and especially those that have been following my adventure. After three years no drugs, I recently experienced trial run (about 1 month) let’s say of first sinemet and then, after stopping sinemet
Hidden
in
Cure Parkinson's
9 years ago
Feeling my way
I have started my third attempt with l/c and am having problems. Diagnosed just over two years ago I was then started on Madopar ramped up too quickly, after a week I couldn't move I felt so ill so stopped. A month later I tried it with Sinemet, same reaction. So the past couple of years I've just been
I have started my third attempt with l/c and am having problems. Diagnosed just over two years ago I was then started on Madopar ramped up too quickly, after a week I couldn't move I felt so ill so stopped. A month later I tried it with Sinemet, same reaction. So the past couple of years I've just been
grower
in
Cure Parkinson's
9 years ago
Irregular heart beat
My husband has had Parkinsons for 6 years. He takes Sinemet and entacapone. Shortly after taking his medication (every 3hours) he feels very weak . When I check his BP it is often very low and shows "irregular heart beat" I feel it is the medication rather than "off" time. I don't often contribute to
My husband has had Parkinsons for 6 years. He takes Sinemet and entacapone. Shortly after taking his medication (every 3hours) he feels very weak . When I check his BP it is often very low and shows "irregular heart beat" I feel it is the medication rather than "off" time. I don't often contribute to
leojohn
in
Cure Parkinson's
9 years ago
Have you considered DBS? It is recommended for people with midstage PD who for whom meds are no longer working well!
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
Don't wait too long to get DBS--' if you're Parkinson's gets too severe it won't work as well . Also you might not get accepted into a program - if Sinemet stops working entirely you won't be able to find a program that will take you! There are surgeons around that can do DBS on you when you are asleep
sdekozan
in
Cure Parkinson's
9 years ago
Blood Results from Blue Horizon
Hi, I wonder what anyone thinks of my latest results? I am taking Sinemet for Parkinsons. I also have double vision and cough Free T4 17.1 11-26 pmol/L TSH 0.02 0.35-4.5 uU/mL Free T3
Hi, I wonder what anyone thinks of my latest results? I am taking Sinemet for Parkinsons. I also have double vision and cough Free T4 17.1 11-26 pmol/L TSH 0.02 0.35-4.5 uU/mL Free T3
MOGREGOR
in
Thyroid UK
9 years ago
Knowledge is Power: understanding our medications.
Since having PD I have become just a little obsessed with reading and understanding all I can about it and this is a bit of what I have learned. I hope it is useful to somebody. I was going to put some of this in a reply post but it is general information. It is not meant to be advice about your
Since having PD I have become just a little obsessed with reading and understanding all I can about it and this is a bit of what I have learned. I hope it is useful to somebody. I was going to put some of this in a reply post but it is general information. It is not meant to be advice about your
Hikoi
in
Cure Parkinson's
9 years ago
DBS
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
I had DBS this fall 9/2015 I had real positive 'improvement before it was turned on in Oct. I had less shaking, could roll over in bed had great stamina. Dr. turned it on and turned way up it contorted my face now I have trouble speaking clearly but have cut my sinemet in half. I have more shaking
adkseaman
in
Cure Parkinson's
9 years ago
Hello I would like to introduce myself.
My name is Mary Myrtle and I was diagnosed with CBD in January 2013 but had symptoms well before that. I am new to this forum and would like to share information with you. I have tried a range of medications such as baclofen etc and none of them seemed to have any beneficial effects. I am currently taking
My name is Mary Myrtle and I was diagnosed with CBD in January 2013 but had symptoms well before that. I am new to this forum and would like to share information with you. I have tried a range of medications such as baclofen etc and none of them seemed to have any beneficial effects. I am currently taking
MaryMyrtle
in
PSP Association
9 years ago
sinemet constipation
May be coincidental. No constipation since starting sinemet last Sunday, 4 days regular bowel movement and twice yesterday. I keep a record of my bowel movement so that leads me to believe the credit goes to sinemet. I will take that symptom, if it continues, to my discussion with my neuro on the 24th
May be coincidental. No constipation since starting sinemet last Sunday, 4 days regular bowel movement and twice yesterday. I keep a record of my bowel movement so that leads me to believe the credit goes to sinemet. I will take that symptom, if it continues, to my discussion with my neuro on the 24th
Hidden
in
Cure Parkinson's
9 years ago
sinemet & mirapex
i'm wondering who has taken both sinemet and mirapex recently, then quit mirapex. i'm considering getting off mirapex and adding mucuma. am i nuts to consider this? i started mirapex sep 2012 and take 1mg 2x daily. i started sinemet nov 2014 and take 25-100 2x daily. (dr. recommended 3x daily for each
i'm wondering who has taken both sinemet and mirapex recently, then quit mirapex. i'm considering getting off mirapex and adding mucuma. am i nuts to consider this? i started mirapex sep 2012 and take 1mg 2x daily. i started sinemet nov 2014 and take 25-100 2x daily. (dr. recommended 3x daily for each
maulparking
in
Cure Parkinson's
9 years ago
Macuna
Has any medical professional or pharmacologist suggested what the dosage should be for macuna? Also can you take sinemet with this product and are there any reactions to taking both of them?
Has any medical professional or pharmacologist suggested what the dosage should be for macuna? Also can you take sinemet with this product and are there any reactions to taking both of them?
Hidden
in
Cure Parkinson's
9 years ago
Tips on Taking Your Medications
http://www.ec-online.net/knowledge/articles/parkmeds.html •Take your medications precisely on time. Missing a dose by as little as 15 to 30 minutes can result in a sudden "off" period which may last for hours. If you have missed a Sinemet dose by 30 minutes or less, chewing the tablets (tastes like
http://www.ec-online.net/knowledge/articles/parkmeds.html •Take your medications precisely on time. Missing a dose by as little as 15 to 30 minutes can result in a sudden "off" period which may last for hours. If you have missed a Sinemet dose by 30 minutes or less, chewing the tablets (tastes like
Hidden
in
Cure Parkinson's
9 years ago
"A Type of Parkinson's that Does Not Respond to Any Medications"...the neurologist said about my dad. Anyone know about this?
My dad, who's about 70 and diagnosed with PD about 10 year ago was told by his 2nd neurologist that he has a type of Parkinson's that "does not respond to any of the medications". He suggested sending my dad to Vanderbilt Research Hospital (I think for possible surgery, which thoroughly scared both
My dad, who's about 70 and diagnosed with PD about 10 year ago was told by his 2nd neurologist that he has a type of Parkinson's that "does not respond to any of the medications". He suggested sending my dad to Vanderbilt Research Hospital (I think for possible surgery, which thoroughly scared both
rsacdoolittle
in
Cure Parkinson's
9 years ago
Is it just me?
A question posted to all out there in the PD world.. Because I've only ever been on one medication, Sinemet, I am ignorant of every other medication out there. I am being treated by a very sought out Dr. Who shall remain nameless, I had to wait over a year for an appointment and when he did see memhe
A question posted to all out there in the PD world.. Because I've only ever been on one medication, Sinemet, I am ignorant of every other medication out there. I am being treated by a very sought out Dr. Who shall remain nameless, I had to wait over a year for an appointment and when he did see memhe
Chris0846
in
Cure Parkinson's
9 years ago
1
...
53
54
55
...
68
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
1178 results
Restless Legs Syndrome
71 results
PSP Association
56 results
View top 10 communities
Sort by
Most Relevant
Newest