Search
Search
About
Log in
Join
Experiences with
Kineret
Posts
Communities
1,331 public posts
Filter results
Sinemet side effect?
Good morning all 🙂 I would be very grateful if anyone has heard of sinemet causing bleeds. I have been very poorly since last Friday when I started passing blood. I was taken to a&he which was awful as he was a dr with attitude. He dismissed me without doing lupus bloods as I also have lupus. And said
Good morning all 🙂 I would be very grateful if anyone has heard of sinemet causing bleeds. I have been very poorly since last Friday when I started passing blood. I was taken to a&he which was awful as he was a dr with attitude. He dismissed me without doing lupus bloods as I also have lupus. And said
Bea6
in
Cure Parkinson's
7 years ago
Sinemet side effect
I have Parkinson symptoms 5 years ago and formally diagnosed last October and started Sinemet , I noticed phlegm postnatal drip and hacking cough about 1-2 hours of taking it, anyone having this happen? I also noticed mild swelling around my ankles and feet and water retention all over so that my dress
I have Parkinson symptoms 5 years ago and formally diagnosed last October and started Sinemet , I noticed phlegm postnatal drip and hacking cough about 1-2 hours of taking it, anyone having this happen? I also noticed mild swelling around my ankles and feet and water retention all over so that my dress
Mimanmetty
in
Cure Parkinson's
7 years ago
Suggestions for timing food and medications?
I have read many posts about the importance of spacing your Sinemet from your food in order to get the most benefit from Sinemet. I take 3doses a day 5 hours apart. I have been eating with each dose because when i took it in the morning it was making me throw up. I did not feel any improvement so my
I have read many posts about the importance of spacing your Sinemet from your food in order to get the most benefit from Sinemet. I take 3doses a day 5 hours apart. I have been eating with each dose because when i took it in the morning it was making me throw up. I did not feel any improvement so my
moparkie715
in
Cure Parkinson's
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Need Advise
I take Senemet, 25-100, three times a day. I understand that the 100 stands for the mg of L-dopa in the prescription. I'm trying to substitute Macuna Purins for at least one of the Senemet daily. The Macuna I have says it is 15 mg per tab. Is there a way to calculate the amount of Macuna to take? Hopefully
I take Senemet, 25-100, three times a day. I understand that the 100 stands for the mg of L-dopa in the prescription. I'm trying to substitute Macuna Purins for at least one of the Senemet daily. The Macuna I have says it is 15 mg per tab. Is there a way to calculate the amount of Macuna to take? Hopefully
roncourtney
in
Cure Parkinson's
7 years ago
The Medical Mafia
This week I went to see my doctor and spoke to him about Mucuna Prereins. As expected I received a rather cold reply and advised to get back on Sinemet and forget this hocus-pocus stuff. We spoke about seeing a naturopath and he scoffed at the idea stating that it wasn't necessary. I'm not surprised
This week I went to see my doctor and spoke to him about Mucuna Prereins. As expected I received a rather cold reply and advised to get back on Sinemet and forget this hocus-pocus stuff. We spoke about seeing a naturopath and he scoffed at the idea stating that it wasn't necessary. I'm not surprised
Lmji
in
Cure Parkinson's
7 years ago
Mucuna Prereins
Hi I was diagnosed with PD seven years ago my neurologist has me on Sinemet100 mg tablet 3 to 4 times a day, sifrol er x 1 and Azilect x 1. Last week I started using mucuna prereins (MP) It's much more effective and lasts longer. I got my m/p from China and its 98% l dopa. I've stopped taking
Hi I was diagnosed with PD seven years ago my neurologist has me on Sinemet100 mg tablet 3 to 4 times a day, sifrol er x 1 and Azilect x 1. Last week I started using mucuna prereins (MP) It's much more effective and lasts longer. I got my m/p from China and its 98% l dopa. I've stopped taking
Lmji
in
Cure Parkinson's
7 years ago
Parkies, need your advice on Mucuna pruriens dosage!
Hi All, Ron does not do well on Sinemet, so I've been substituting MP. His Sinemet is 25/100 and I just bought Now Dopa Mucuna and was using Solaray, but just guessing at dosage. But I have seen posts by several of you guys for formulas, but can't locate them now! He doesn't have much movement disorder
Hi All, Ron does not do well on Sinemet, so I've been substituting MP. His Sinemet is 25/100 and I just bought Now Dopa Mucuna and was using Solaray, but just guessing at dosage. But I have seen posts by several of you guys for formulas, but can't locate them now! He doesn't have much movement disorder
Lynnie1
in
Cure Parkinson's
7 years ago
SINEMET-HOW LONG AFTER STARTING DO YOU FEEL BETTER?n
HELLO FRIENDS~ i have been taking CL Sinemet for 6wks and dont feel any changes yet 25/100 3 x daily am i expecting to much too soon? I recently was diagnosed and have had symptoms for at least 3 yrs very mild but they are there.lt tremors on right side only gait changes and stiffness
HELLO FRIENDS~ i have been taking CL Sinemet for 6wks and dont feel any changes yet 25/100 3 x daily am i expecting to much too soon? I recently was diagnosed and have had symptoms for at least 3 yrs very mild but they are there.lt tremors on right side only gait changes and stiffness
RS313
in
Cure Parkinson's
7 years ago
Meds and injury
As I have written here I fell quite badly just over two months ago and broke my arm. I was racing with my grandson...he gets to win from now on. The question I have is that prior to the fall I was taking three or four 25/100 sinemet a day. Since falling I am taking five to six. Has anybody else experienced
As I have written here I fell quite badly just over two months ago and broke my arm. I was racing with my grandson...he gets to win from now on. The question I have is that prior to the fall I was taking three or four 25/100 sinemet a day. Since falling I am taking five to six. Has anybody else experienced
Enidah
in
Cure Parkinson's
7 years ago
A shot of hope
A potential case of remission of Parkinson’s disease DOI 10.1515/jcim-2016-0019 Received March 14, 2016; accepted May 24, 2016 Abstract: We present the case of a 78-year-old male who,16 years ago, was diagnosed with Parkinson’s disease(PD) by a neurologist. He initially presented with lef thand tremor
A potential case of remission of Parkinson’s disease DOI 10.1515/jcim-2016-0019 Received March 14, 2016; accepted May 24, 2016 Abstract: We present the case of a 78-year-old male who,16 years ago, was diagnosed with Parkinson’s disease(PD) by a neurologist. He initially presented with lef thand tremor
Xenos
in
Cure Parkinson's
7 years ago
Sinemet SR
Hi Everyone, My good friend takes 4 x Sinemet 25/100 a day and has trouble with very bad stiffness and difficulty getting up in the night. Does anyone know whether taking a Sinemet SR as her last dose at 7pm instead of the normal dose perhaps help her during the night? Her PD Doctor has only suggested
Hi Everyone, My good friend takes 4 x Sinemet 25/100 a day and has trouble with very bad stiffness and difficulty getting up in the night. Does anyone know whether taking a Sinemet SR as her last dose at 7pm instead of the normal dose perhaps help her during the night? Her PD Doctor has only suggested
Seashore60
in
Cure Parkinson's
7 years ago
Sinemet??
My doctor upped me from 2 to 4 pills a day. It seems to help except during stressful times. I notice when I'm frazzled, i have hard tremors. My question is to those that take sinemet, what does it do for you? Do your tremors go away completely ? How long does a pill seem to be effective ? Nauseous?
My doctor upped me from 2 to 4 pills a day. It seems to help except during stressful times. I notice when I'm frazzled, i have hard tremors. My question is to those that take sinemet, what does it do for you? Do your tremors go away completely ? How long does a pill seem to be effective ? Nauseous?
Kathy_M
in
Cure Parkinson's
7 years ago
If Mucana is only Levadopa - then where is carbidopa coming from ? Also any one tried using light therapy . PLEASE LET ME KNOW .
Given that mom is recovering from pneumonia - her daytime sleepiness is really bad and her off times (low energy times more ). . mucana . We just reintroduced Mucana for mom (every alternate dose ) . 1.5tsps total - four doses. What do folks take with mucana to make it a levodopa plus carbidopa . I
Given that mom is recovering from pneumonia - her daytime sleepiness is really bad and her off times (low energy times more ). . mucana . We just reintroduced Mucana for mom (every alternate dose ) . 1.5tsps total - four doses. What do folks take with mucana to make it a levodopa plus carbidopa . I
mymomhaspd
in
Cure Parkinson's
7 years ago
How to deal with food blocking sinemet?
I know about food containing protein blocking the absorption of sinemet, but I seem to have a high degree of need for protein in my diet. How should I best manage this problem? Protein does interfere with my sinemet, but I have tried just eating vegetables and fruit during the day but it doesn't hold
I know about food containing protein blocking the absorption of sinemet, but I seem to have a high degree of need for protein in my diet. How should I best manage this problem? Protein does interfere with my sinemet, but I have tried just eating vegetables and fruit during the day but it doesn't hold
Blackfeather
in
Cure Parkinson's
7 years ago
Sinemet. Must we?
Do we all have to take sinemet? Is Rytary an alternative? Has anyone moved off sinemet and onto Rytary? In my last appointment, my neuro prescribed amantidine along with sinemet. As my sinemet wears off, I'd been getting a painful dystonia in my right foot. It is so bad I can't drive or walk. So far
Do we all have to take sinemet? Is Rytary an alternative? Has anyone moved off sinemet and onto Rytary? In my last appointment, my neuro prescribed amantidine along with sinemet. As my sinemet wears off, I'd been getting a painful dystonia in my right foot. It is so bad I can't drive or walk. So far
Beckey
in
Cure Parkinson's
7 years ago
Azilect withdrawal
I was on Azilect for five years with a tyramine free diet no side effects. New Neurologist took me off it saying the trials had not shown good results I had been coping well with Stalevo x 5 times a day until an extremely stressful yr due to death threats by my daughter's estranged husband on my
I was on Azilect for five years with a tyramine free diet no side effects. New Neurologist took me off it saying the trials had not shown good results I had been coping well with Stalevo x 5 times a day until an extremely stressful yr due to death threats by my daughter's estranged husband on my
Maxkas
in
Cure Parkinson's
7 years ago
Caregiver to husband with extreme fatigue
Caregiver of husband diagnosed in March. Just a newbie learning the ropes, and taking one day at a time. It is taking 6 months to get an appointment with the movement disorder at Duke, my husband is very discouraged with all the fatigue, fortunately he doesn't have a resting tremor but all other symptoms
Caregiver of husband diagnosed in March. Just a newbie learning the ropes, and taking one day at a time. It is taking 6 months to get an appointment with the movement disorder at Duke, my husband is very discouraged with all the fatigue, fortunately he doesn't have a resting tremor but all other symptoms
Tagalong
in
Cure Parkinson's
7 years ago
Dyskinesia
8 years from dx I am suffering more fre quent bouts of dyskinesia which I cannot see any pattern for in relation to meds which are: 4 sinemet puls a day, Aalea t 1 mg per day and neuropatches 8 mg. My pd nurse gave me a monitor to wear for a week but a month on I have yet hear the conclusions if any
8 years from dx I am suffering more fre quent bouts of dyskinesia which I cannot see any pattern for in relation to meds which are: 4 sinemet puls a day, Aalea t 1 mg per day and neuropatches 8 mg. My pd nurse gave me a monitor to wear for a week but a month on I have yet hear the conclusions if any
paddyfields
in
Cure Parkinson's
7 years ago
Feel like I am walking on a boat
Hello, I was diagnosed in February. I don't have any tremor but feel funny when I walk. I feel like I am walking on a boat is the best way to describe this. I am on sinamet 25-250 3 times per day. I don't really feel the sinemet does anything for me. Does anyone else feel funny when they walk?
Hello, I was diagnosed in February. I don't have any tremor but feel funny when I walk. I feel like I am walking on a boat is the best way to describe this. I am on sinamet 25-250 3 times per day. I don't really feel the sinemet does anything for me. Does anyone else feel funny when they walk?
morgalina
in
Cure Parkinson's
7 years ago
Side effects from Leva/carba
Hi New to this site having been diagnosed in 2013 but showing symptoms a few years earlier. I had broken my wrist and after it healed noticed tremor whichi thought was nerve related. I've managed to keep my PD at bay by going to the gym (reluctantly) and playing a lot of tennis play in winter and
Hi New to this site having been diagnosed in 2013 but showing symptoms a few years earlier. I had broken my wrist and after it healed noticed tremor whichi thought was nerve related. I've managed to keep my PD at bay by going to the gym (reluctantly) and playing a lot of tennis play in winter and
Fb41445
in
Cure Parkinson's
7 years ago
1
...
44
45
46
...
67
Next page
10
20
30
40
50
60
Filter results
Clear filters
Posted in
All communities
Cure Parkinson's
1170 results
Restless Legs Syndrome
69 results
PSP Association
56 results
View top 10 communities
Sort by
Most Relevant
Newest