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B1 HDT Protocol with Sinemet
Does anyone happen to know should the thiamine be taken before, after, or at the same time as sinemet?Or does it even matter?
Does anyone happen to know should the thiamine be taken before, after, or at the same time as sinemet?Or does it even matter?
lionessroar
in
Cure Parkinson's
3 months ago
Request for Information
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Request for Information Hi from the UK, I take trihexyphenidyl (2 mg 2 x day) I want to take Citicoline but I’m sure I read somewhere that the two are not compatible as one stops the other from working. I’d be very glad if anyone has any experience of this. I am twenty years in and have been taking
Palmar
in
Cure Parkinson's
4 months ago
IPX203 shows sustained safety, efficacy in RISE-PD extension trial
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Using IPX203, an extended-release formulation of carbidopa/levodopa (CD/LD), was associated with a sustained control of symptoms for Parkinson’s disease patients who participated in the open-label extension of the RISE-PD Phase 3 trial. Final results from the nine-month extension study (NCT03877510
Farooqji
in
Cure Parkinson's
4 months ago
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Frightening Experience
Last night, we were returning from the mall and when we reached home, I could not get out of the car. My wife was driving as she always does. I had started the day off with a later than usual dose of Sinemet (25/250) and had given enough time - about an hour for the most recent dose to kick in. Yet
Last night, we were returning from the mall and when we reached home, I could not get out of the car. My wife was driving as she always does. I had started the day off with a later than usual dose of Sinemet (25/250) and had given enough time - about an hour for the most recent dose to kick in. Yet
pdpatient
in
Cure Parkinson's
4 months ago
Interesting paper
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8634393/ Dietary approaches to supplement Sinemet therapy.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8634393/ Dietary approaches to supplement Sinemet therapy.
pdpatient
in
Cure Parkinson's
4 months ago
Mucuna without Sinemet?
Can anyone tell me how to get more symptom relief from just taking mucuna, (specifically NOW brand) alone, WITHOUT taking any Sinemet? I’ve read about green tea enhancing its effectiveness….any other ideas?
Can anyone tell me how to get more symptom relief from just taking mucuna, (specifically NOW brand) alone, WITHOUT taking any Sinemet? I’ve read about green tea enhancing its effectiveness….any other ideas?
Ob6842
in
Cure Parkinson's
4 months ago
Horizant tapering
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
Dear All: Apologies- I might be unintentionally reposting this: I have been on Horizant for about seven months, at 600mg in the morning and 600mg in the evening (1,200 mg total). Before that, I was on 600mg Gabapentin daily for two years. Recently, my doctor and I have agreed to reduce my Horizant
JustVisiting23
in
Restless Legs Syndrome
4 months ago
Need advice on my tremor symptoms
Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am taking mucana, b1, l-tyryosine, b complex and magnesium. I am a year away from diagnosis. Is this typical of PD? My Dr. is unsure as well. He is going to probably put me on sinemet to see how I respond
Hi all, I would very much appreciate some advice on my symptoms. I am not on medication yet but am taking mucana, b1, l-tyryosine, b complex and magnesium. I am a year away from diagnosis. Is this typical of PD? My Dr. is unsure as well. He is going to probably put me on sinemet to see how I respond
Hope-full1970
in
Cure Parkinson's
5 months ago
Bladder problems..... the saga continues......
Well husband has has his bladder control review report. We alreeady know only part of it is functional. (we've been enquiring about a catheter. I guess this is the 1st step).The conclusion. His diabetic medication needs reviewing. His Sinemet may be causing the problem (even though it started long before
Well husband has has his bladder control review report. We alreeady know only part of it is functional. (we've been enquiring about a catheter. I guess this is the 1st step).The conclusion. His diabetic medication needs reviewing. His Sinemet may be causing the problem (even though it started long before
Schmall
in
Multiple System Atrophy Trust
5 months ago
any CARNIVORE DIETers out there?
As an experiment, I've gone Carnivore! I have been hearing a lot of amazing testimonials recently. Many are from doctors that have done this themselves. I figured I'd try it out myself. What's the worst that can happen? I already have Parkinsons Disease! I know, I know! What about FIBERRRRR? What
As an experiment, I've gone Carnivore! I have been hearing a lot of amazing testimonials recently. Many are from doctors that have done this themselves. I figured I'd try it out myself. What's the worst that can happen? I already have Parkinsons Disease! I know, I know! What about FIBERRRRR? What
bassofspades
in
Cure Parkinson's
5 months ago
PD with Peripheral neuropathy ? (not diabetic) Taking Sinemet with Gabapentin...
These 2 drugs make me dizzy and spacy I can barely function as day goes on.Anyone out there have some advice? I'm at my wits end!!
These 2 drugs make me dizzy and spacy I can barely function as day goes on.Anyone out there have some advice? I'm at my wits end!!
Lyrics19
in
Cure Parkinson's
5 months ago
K0706 Clinical Trial
I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or disruptive symptoms, just an annoying leg tremor, fatigue and stiffness. I see a PT and exercise, which really helps with the stiffness. I'm postponing
I'm recently diagnosed and have not started any PD meds, though my neurologist says Sinemet would probably help my symptoms. I'm not having terrible or disruptive symptoms, just an annoying leg tremor, fatigue and stiffness. I see a PT and exercise, which really helps with the stiffness. I'm postponing
Salted
in
Cure Parkinson's
6 months ago
Get off Sinemet?
My husband does not have tremors, but definitely has drooling, is stooped, is stiff and slow, at times has fast gait and/ or severe hesitation with moving, all classic PD symptoms as well as has some cognitive decline. Diagnosed with atypical PD in May 2022. He is doing many wonderful alternative therapies
My husband does not have tremors, but definitely has drooling, is stooped, is stiff and slow, at times has fast gait and/ or severe hesitation with moving, all classic PD symptoms as well as has some cognitive decline. Diagnosed with atypical PD in May 2022. He is doing many wonderful alternative therapies
Kat343
in
Cure Parkinson's
6 months ago
Parkinson's wife
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
My husband was diagnosed about 4 years ago though I suspect Parkinsons was developing long before that. Main problem - neither Sinemet or Madopar has any effect on bradykinesia or tremor (let alone the non motor symptoms)and increasing medication e.g. Neupro patch = rotigotine dopamine agonist only
veronicacoath
in
Cure Parkinson's
6 months ago
Food and "off" times
Hi Everyone! Recently I've had frustrating issues with eating a meal followed by "off" times of a few hours. I know about keeping proteins away from sinemet as they compete for the same receptors in the gut. I can time my dose of sinemet (a generic, 25/100, 3 x day) an hour before eating a meal, feeling
Hi Everyone! Recently I've had frustrating issues with eating a meal followed by "off" times of a few hours. I know about keeping proteins away from sinemet as they compete for the same receptors in the gut. I can time my dose of sinemet (a generic, 25/100, 3 x day) an hour before eating a meal, feeling
PDFree
in
Cure Parkinson's
6 months ago
Practical suggestions for PWP.....Hedge against medication scarcity.
With the increasing prospect of medication scarcity as most of our meds in the U.S. and elsewhere are manufactured predominantly in China and India, we should all take measures to protect ourselves. I always reorder my meds on time even if i still have some remaining. I save the rest. At times i
With the increasing prospect of medication scarcity as most of our meds in the U.S. and elsewhere are manufactured predominantly in China and India, we should all take measures to protect ourselves. I always reorder my meds on time even if i still have some remaining. I save the rest. At times i
beehive23
in
Cure Parkinson's
6 months ago
Sinemet? Too much or not enough?
I’ve been on sinemet for 14 years and my average dose has been 1, sometimes 1 1/2 pills every 3 to 4 hours. I’m on no other medication, just the sinemet. I do use other things though like supplements and cbc and I stick to a strict diet and exercise plan, all geared towards the Parkinson’s and so far
I’ve been on sinemet for 14 years and my average dose has been 1, sometimes 1 1/2 pills every 3 to 4 hours. I’m on no other medication, just the sinemet. I do use other things though like supplements and cbc and I stick to a strict diet and exercise plan, all geared towards the Parkinson’s and so far
Mimi828
in
Cure Parkinson's
6 months ago
Checking in
Hello, everyone. After about 2 year break decided to check in on this platform. My dad is 88 now and has had Parkinson's for about 9 years. I was doing a lot of research when he got sick to find a magic cure/help for his condition. Started with Mucuna, which never helped with tremors, and B vitamin therapy
Hello, everyone. After about 2 year break decided to check in on this platform. My dad is 88 now and has had Parkinson's for about 9 years. I was doing a lot of research when he got sick to find a magic cure/help for his condition. Started with Mucuna, which never helped with tremors, and B vitamin therapy
texasL
in
Cure Parkinson's
6 months ago
Fava Beans for Parkinson's?
This is a very good post that discusses the use of Fava Beans as a source of Levodopa and as a natural addition or adjunct to Sinemet. https://www.scienzavegetariana.it/nutrizione/favabeans.html
This is a very good post that discusses the use of Fava Beans as a source of Levodopa and as a natural addition or adjunct to Sinemet. https://www.scienzavegetariana.it/nutrizione/favabeans.html
pdpatient
in
Cure Parkinson's
6 months ago
UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
rsacdoolittle
in
Cure Parkinson's
6 months ago
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