Experiences with
Kidney cancerWhere to find help and support
You and your loved ones will be supported throughout your treatment by a group of specialists.
The clinical nurse specialist, or another member of your specialist team will be able to give you information on local support services that you may find helpful.
There are also national cancer charities that offer support and information about kidney cancer.
Kidney Cancer UK
Information and support for anyone affected by kidney cancer.
- Website: https://www.kcuk.org.uk/
- Helpline: 0800 002 9002
- Kidney Cancer UK: Talk to a nurse service
- Kidney Cancer UK: online community
Macmillan Cancer Support
A charity for anyone affected by cancer that offers online and telephone support.
- Website: www.macmillan.org.uk
- Helpline: 0808 808 00 00
- Macmillan Cancer Support: support line service
- Macmillan Cancer Support: online forum
- Macmillan Cancer Support: find local support services
Cancer Research UK
A charity that provides information about cancer, plus online support and information about clinical trials.
- Website: www.cancerresearchuk.org
- Nurse helpline: 0808 800 4040
- Cancer Research UK: ask a nurse service
- Cancer Research UK: online cancer chat forum
- Cancer Research UK: find a clinical trial service
Maggie's Centres
Practical, emotional and social support for anyone affected by cancer.
- Website: https://www.maggies.org/
- Helpline: 0300 123 1801
- Maggie's centres
- Maggie's support groups
Marie Curie
Care and support for anyone affected by a terminal illness.
- Website: www.mariecurie.org.uk
- Helpline: 0800 090 2309
- Marie Curie: patient services
Main tests for kidney cancer
If your GP refers you to a specialist because they think you could have kidney cancer, you’ll usually have some tests and scans.
These may include:
- an ultrasound scan
- a CT scan
- a cystoscopy – a camera is passed through the tube that carries pees out of your body (urethra) to look inside your bladder
- using a needle to collect a small sample of cells from 1 of your kidneys (biopsy) for testing
Who is more likely to get kidney cancer
Anyone can get kidney cancer, but some things can increase your chances of getting it.
You may be more likely to get it if you:
- have a close relative with kidney cancer
- smoke
- are overweight or living with obesity
- have high blood pressure
- have certain inherited genetic conditions, such as tuberous sclerosis
- are having long-term dialysis for chronic kidney disease
How to reduce your chances of getting kidney cancer
You cannot always prevent kidney cancer. But making healthy changes can lower your chances of getting it.
try to lose weight if you're overweight
make lifestyle changes if you have high blood pressure, such as cutting back on salt, alcohol and caffeine
Main treatments for kidney cancer
The treatment you have for kidney cancer will depend on:
- the type of kidney cancer you have
- where it is and how big it is
- if it has spread
- your general health
Treatment may include surgery, cryotherapy, radiofrequency ablation, targeted medicines, radiotherapy or chemotherapy.
The specialist care team looking after you will:
- explain the treatments, benefits and any side effects
- work with you to create a treatment plan that is best for you
- help you manage any side effects
Main symptoms of kidney cancer
Often there are no obvious symptoms of kidney cancer. It’s usually diagnosed when testing for something else.
When there are symptoms, they can include:
- blood in your pee
- a lump or swelling in your back, under your ribs, or in your neck
- pain between your ribs and waist that does not go away
- loss of appetite or losing weight without trying to
- feeling tired or having no energy
- a high temperature that does not go away
- sweating a lot, including at night
- your pee is smelly, cloudy or has blood in it
- it is painful to pee or you need to pee suddenly or more often
- you have a pain in your back, under your ribs that does not go away
- you have pain in your genitals
- you have a lump or swelling in your back, under your ribs, or in your neck
It’s important to get help as soon as possible as the symptoms can be similar to a kidney infection , which can be serious if it's not treated quickly.
Get help from 111 online or call 111.
- lost a noticeable amount of weight
- a high temperature that does not go away
- no energy or extreme tiredness (fatigue)
Some of these symptoms are common and can be caused by many different conditions.
Having them does not definitely mean you have kidney cancer. But it's important to get them checked by a GP.
This is because if they're caused by cancer, finding it early can mean it’s more treatable.
Related links
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