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Lethargy
I have depression and Ehlers-Danlos syndrome, classical. I read something early this morning online about people are sometimes diagnosed wrongly with having hypochondriac or chronic fatigue syndrome or depression but really their problem is the Ehlers-Danlos syndrome so now I’m really wondering is what
I have depression and Ehlers-Danlos syndrome, classical. I read something early this morning online about people are sometimes diagnosed wrongly with having hypochondriac or chronic fatigue syndrome or depression but really their problem is the Ehlers-Danlos syndrome so now I’m really wondering is what
ribby
in
Ehlers-Danlos Support UK
5 years ago
Docusate sodium review; compared to psyllium
Things We Do for No Reason: Prescribing Docusate for Constipation in Hospitalized Adults. J. Hosp. Med. 2019 February;14(2):110-113. By: Robert J Fakheri, MD1, Frank M Volpicelli, MD. © 2019 Society of Hospital Medicine. https://www.journalofhospitalmedicine.com/jhospmed/article/193136/hospital-medicine
Things We Do for No Reason: Prescribing Docusate for Constipation in Hospitalized Adults. J. Hosp. Med. 2019 February;14(2):110-113. By: Robert J Fakheri, MD1, Frank M Volpicelli, MD. © 2019 Society of Hospital Medicine. https://www.journalofhospitalmedicine.com/jhospmed/article/193136/hospital-medicine
aspergerian
in
Cure Parkinson's
5 years ago
Is there anything that can be done to stop this tiredness, no energy, pain and weight gain.
I was diagnosed 17 and a half years ago after 5 years being unwell with no energy, dry skin, dry throat and bad headache's, also every joint in my body was in agony. It was my Rheumatologist who diagnosed me. Then 7 years ago I was diagnosed with hypothyroidism and now on 200mcg levothyoxine. But I've
I was diagnosed 17 and a half years ago after 5 years being unwell with no energy, dry skin, dry throat and bad headache's, also every joint in my body was in agony. It was my Rheumatologist who diagnosed me. Then 7 years ago I was diagnosed with hypothyroidism and now on 200mcg levothyoxine. But I've
AFCUK67
in
Thyroid UK
5 years ago
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Why are docs so eager to get us off prednisone?
Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot believe the number of joint replacements that the good people on this forum have collected. WAY above the norm, IMO. That’s why I’m TRYING to stay
Is it possible they “want you off it” to avoid deterioration of hips and knees? My mom had PMR and got avascular necrosis and had a hip replaced. I cannot believe the number of joint replacements that the good people on this forum have collected. WAY above the norm, IMO. That’s why I’m TRYING to stay
OutdoorsyGal
in
PMRGCAuk
5 years ago
Ongoing chronic pain
Hi everyone had spinal fusion surgery in 2004 after many many years of intense pain whilst trying to hold down a job in construction . To make it as short as possible I suffered with severe spinal pain for many years it was then decided surgery was needed to stabilise my spine . In my naivety I thought
Hi everyone had spinal fusion surgery in 2004 after many many years of intense pain whilst trying to hold down a job in construction . To make it as short as possible I suffered with severe spinal pain for many years it was then decided surgery was needed to stabilise my spine . In my naivety I thought
Doghouse6463
in
Pain Concern
5 years ago
Four years on and still feeling 20 years older
Hi, I had my PE four years ago, and was admitted to hospital on the 18/02/15. I had been feeling unwell several months prior with pains in the back/shortness of breath, but put it down to ongoing back issues and the affects of smoking 18-20 cigarettes a day. I was working full-time and travelling up
Hi, I had my PE four years ago, and was admitted to hospital on the 18/02/15. I had been feeling unwell several months prior with pains in the back/shortness of breath, but put it down to ongoing back issues and the affects of smoking 18-20 cigarettes a day. I was working full-time and travelling up
anji888
in
Anticoagulation Support
5 years ago
High heart rate momentary dips to 30s or 40s
In past few weeks, my Apple Watch shows rapid rise in heart rate when I go from reclining to sitting to standing position. Sometimes I feel a fluttering or pounding. The dip is just for a few seconds and then heat rate returns to normal (80s). This is happening more frequently. I have a joint replacement
In past few weeks, my Apple Watch shows rapid rise in heart rate when I go from reclining to sitting to standing position. Sometimes I feel a fluttering or pounding. The dip is just for a few seconds and then heat rate returns to normal (80s). This is happening more frequently. I have a joint replacement
Scaredofsurgery
in
Arrhythmia Alliance
5 years ago
Diagnosed.. Fibomyalgia and joint hypermobility!
Well after seeing specialist I have NOT got Lupus but he's confirmed I have Fibromyalgia and joint hypermobility.. Anyone who has ither and want to give me advice it would be much appreciated, got to make some changes I know. Especially at work 😑.. I'm glad I finally know and I can try to manage it.
Well after seeing specialist I have NOT got Lupus but he's confirmed I have Fibromyalgia and joint hypermobility.. Anyone who has ither and want to give me advice it would be much appreciated, got to make some changes I know. Especially at work 😑.. I'm glad I finally know and I can try to manage it.
Jetblack1
in
LUPUS UK
5 years ago
Post surgery blues.. are my conditions linked?
I was diagnosed as hypo just over a year ago after many years of symptoms, but with 'in range" results. For some reason I thought that once I was diagnosed and on a proper medication regime all would be fine... I have felt no relief from symptoms after being on initially 125 mg levothyroxine, now 50mg
I was diagnosed as hypo just over a year ago after many years of symptoms, but with 'in range" results. For some reason I thought that once I was diagnosed and on a proper medication regime all would be fine... I have felt no relief from symptoms after being on initially 125 mg levothyroxine, now 50mg
Lozza812
in
Thyroid UK
5 years ago
An Old but 'PRESSING' Problem
Dear All, Apart from, seemingly 'Endless' Crank Phone Calls, what other Problems have People- Members & Non-Members- been asking/ reporting? That, most 'Pressing' of Problems....CONSTIPATION- Yes that HARD problem (yet) again! Unfortunately the Answers haven't changed either, no Magic Wand- to fee our
Dear All, Apart from, seemingly 'Endless' Crank Phone Calls, what other Problems have People- Members & Non-Members- been asking/ reporting? That, most 'Pressing' of Problems....CONSTIPATION- Yes that HARD problem (yet) again! Unfortunately the Answers haven't changed either, no Magic Wand- to fee our
AndrewT
in
Vasculitis UK
5 years ago
Caregiver for 50 yr old Mom with Metastatic Melanoma
Hello all. New to this lovely community, I've been feeling the need to reach out to other to people going through similar experiences as mine. In 2017 my 48 yr old mother had a large tumor (golf ball sized) growing from her left leg. Initially the doctors did not think it was melanoma or in fact malignant
Hello all. New to this lovely community, I've been feeling the need to reach out to other to people going through similar experiences as mine. In 2017 my 48 yr old mother had a large tumor (golf ball sized) growing from her left leg. Initially the doctors did not think it was melanoma or in fact malignant
H_Daughter
in
Melanoma Caregivers
5 years ago
Yellow soft paraffin - update
Thank you everyone for your comments about the paraffin cream. I queried their usage of it and one of the nurses followed through, checked with pharmacy, and now Southampton General will NOT be using yellow paraffin for patients on oxygen! Thanks again everyone, without your support I might not have
Thank you everyone for your comments about the paraffin cream. I queried their usage of it and one of the nurses followed through, checked with pharmacy, and now Southampton General will NOT be using yellow paraffin for patients on oxygen! Thanks again everyone, without your support I might not have
Hidden
in
Lung Conditions Community Forum
5 years ago
Yellow soft paraffin BP
Hi, I've come across something this week which may help other oxygen users, maybe you l know this, but I didn't so just in case it helps someone else, I'm posting here. Yellow soft paraffin BP can be used as a lip salve when using oxygen. It is fantastic, the closest I've come to a lip balm and very
Hi, I've come across something this week which may help other oxygen users, maybe you l know this, but I didn't so just in case it helps someone else, I'm posting here. Yellow soft paraffin BP can be used as a lip salve when using oxygen. It is fantastic, the closest I've come to a lip balm and very
Hidden
in
Lung Conditions Community Forum
5 years ago
Hypermobility
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with it, he’s on calpol regularly but it’s not having a huge affect on his pain,. The doctor said to get him to sit still for half an hour every few hours but he is
Hello, I am looking for some advice, my 3 year old son has got joint hypermobility, he’s in pain every night to the point he is in tears with it, he’s on calpol regularly but it’s not having a huge affect on his pain,. The doctor said to get him to sit still for half an hour every few hours but he is
LavernAngela
in
Pain Concern
5 years ago
Micrographia and Anxiety
I voted today. As part of the identification process, I had to sign my name in front of an election judge. Despite my best efforts to keep calm, my "signature" was almost completely illegible. After voting, I went out to my car and signed the back of a dirty envelope. It isn't perfect, but it looks
I voted today. As part of the identification process, I had to sign my name in front of an election judge. Despite my best efforts to keep calm, my "signature" was almost completely illegible. After voting, I went out to my car and signed the back of a dirty envelope. It isn't perfect, but it looks
jimcaster
in
Cure Parkinson's
5 years ago
Diagnosed with Joint Hypermobility Syndrome but I’m not sure.
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
Hi everyone. I’m looking for your thoughts. I have been suffering from considerable pain for a year now. I have alternating pain in my buttocks, pain in my left shoulder and at various other points in my back. I have nerve pain in one leg that travels to my foot. After a lot of physio both paid for and
browny52
in
Ehlers-Danlos Support UK
5 years ago
Tampenadol
My pain specialist has suggested trying Tampenadol 50mg twice a day for chronic back and leg pain. I've been on it a couple of days so far it's not been enough to cope with flare up pain during the day so I've had to either use oramorph or tramadol to cope . What doses are people on and how long do
My pain specialist has suggested trying Tampenadol 50mg twice a day for chronic back and leg pain. I've been on it a couple of days so far it's not been enough to cope with flare up pain during the day so I've had to either use oramorph or tramadol to cope . What doses are people on and how long do
Megnstan
in
Pain Concern
5 years ago
can any one advise me?
hello everyone ! can anyone advise me and my wife.we recently applied for and got carers allowance,it was even backdated 3 months.my wife has cared and looked after me for the last 25 years this was after a really bad case of guillane barre syndrome followed by the discovery of 3 large dvts in my left
hello everyone ! can anyone advise me and my wife.we recently applied for and got carers allowance,it was even backdated 3 months.my wife has cared and looked after me for the last 25 years this was after a really bad case of guillane barre syndrome followed by the discovery of 3 large dvts in my left
tobby1428
in
Care Community
5 years ago
Pain Relief Reduced by GP
Having had failed surgery in 1998 on my lower spine L5/S1 i was due to have a spinal fusion op 2years ago but was put on 60mg oxycodene 2ce a day and improved greatly tht i turned the op dwn! Recently my GP has reduced and continues to reduce my Oxycodene (Longtec) dwn to 20mg 2ce daily and im back to
Having had failed surgery in 1998 on my lower spine L5/S1 i was due to have a spinal fusion op 2years ago but was put on 60mg oxycodene 2ce a day and improved greatly tht i turned the op dwn! Recently my GP has reduced and continues to reduce my Oxycodene (Longtec) dwn to 20mg 2ce daily and im back to
Bunion10
in
Pain Concern
5 years ago
Feel like being ignored by Rheumatologist and GP not sure what to do next?
Hi guys, I posted here a while back because I had suspected EDS (probably Type 3), as I slipped a disc at 15 from stopping suddenly at the bottom of the stairs, my ligaments in my ankle are very loose and I have a lot of the other symptoms and commodities. I also have Vocal Cord Dysfunction Disorder
Hi guys, I posted here a while back because I had suspected EDS (probably Type 3), as I slipped a disc at 15 from stopping suddenly at the bottom of the stairs, my ligaments in my ankle are very loose and I have a lot of the other symptoms and commodities. I also have Vocal Cord Dysfunction Disorder
emilyhedgehog
in
Ehlers-Danlos Support UK
5 years ago
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