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Polycystic Kidney disease & receiving a Kidney transplant
If you had a transplant and it was due to polycystic kidney disease (PKD), I would like to know if you had the first year low white blood counts and low hemoglobin. 7 mos post transplant my spouse that found out he had PKD at age 30 (now 59), is having since mid March major hemoglobin low numbers. I
If you had a transplant and it was due to polycystic kidney disease (PKD), I would like to know if you had the first year low white blood counts and low hemoglobin. 7 mos post transplant my spouse that found out he had PKD at age 30 (now 59), is having since mid March major hemoglobin low numbers. I
Gardner-NY
in
Kidney Transplant
5 years ago
How exciting.....
Morning everyone, I was wondering if any of my Royal Free transplant buddies are attending the celebration event on 12th July at the Emirates stadium? My wonderful hospital completed their 2000th Liver Transplant (yes 2000th) in December 2018 đź’š. Royal Free transplant recipients have been invited to
Morning everyone, I was wondering if any of my Royal Free transplant buddies are attending the celebration event on 12th July at the Emirates stadium? My wonderful hospital completed their 2000th Liver Transplant (yes 2000th) in December 2018 đź’š. Royal Free transplant recipients have been invited to
nickiwj
in
British Liver Trust
5 years ago
Cardiomyopathy
Hi everyone, I am new here, been following people’s journeys since Feb and not yet commented. I suffer from severe anxiety and heart palpitations. around 2 years ago we found out that my dad has heart failure, his mum had cardiomyopathy which runs through the family and also 2/3of his uncles have died
Hi everyone, I am new here, been following people’s journeys since Feb and not yet commented. I suffer from severe anxiety and heart palpitations. around 2 years ago we found out that my dad has heart failure, his mum had cardiomyopathy which runs through the family and also 2/3of his uncles have died
Fiona1989
in
British Heart Foundation
5 years ago
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Leg, Feet pains
I had a Liver Transplant Oct 2016 due to Liver Cancer. A few months after, I experienced horrendous pains in my legs and feet, in particular my right. The QE, Birmingham dismiss my medication is the cause. I am on Tacrolimus and Mycrophenolate. I have developed a dropped foot, swollen foot, constant
I had a Liver Transplant Oct 2016 due to Liver Cancer. A few months after, I experienced horrendous pains in my legs and feet, in particular my right. The QE, Birmingham dismiss my medication is the cause. I am on Tacrolimus and Mycrophenolate. I have developed a dropped foot, swollen foot, constant
DENRO
in
British Liver Trust
5 years ago
Who I am
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
I lived with severe COPD for 10 years with16% lung capacity. Almost seven years ago I received a double lung transplant. I am now An activist for COPD, the American Lung Association, smoking cessation,and organ donation.
orlanw
in
Lung Conditions Community Forum
5 years ago
Should I ask for more tests or being assessed for a transplant?
I am a woman, not yet 62. Though diagnosed about 7y ago, when I was told I probably have a liver transplant in my future, I have always been pretty much asymptomatic. I now have NASH cirrohosis, end stage-- had a variceal bleed over the new year, they did an endoscopy, found three varices, but because
I am a woman, not yet 62. Though diagnosed about 7y ago, when I was told I probably have a liver transplant in my future, I have always been pretty much asymptomatic. I now have NASH cirrohosis, end stage-- had a variceal bleed over the new year, they did an endoscopy, found three varices, but because
taar
in
British Liver Trust
5 years ago
Test to be done to check further working of kidney and how to lessen immunosupperants??
My father is 64 years of age and underwent kidney transplant 4 years ago now the creatine level has up to 1.5 what are the precaution that i must take to avoid any further damage to kidneys and also is there any way to lessen immunosuppressants.
My father is 64 years of age and underwent kidney transplant 4 years ago now the creatine level has up to 1.5 what are the precaution that i must take to avoid any further damage to kidneys and also is there any way to lessen immunosuppressants.
Bagweaniket
in
Kidney Transplant
5 years ago
Hi!
Hello everyone! I recently received a kidney transplant this past weekend and I was just curious about how many of you who had also received one have been feeling the first couple days/weeks. I’m terribly bloated and this pain is crazy. Thank god for painkillers right? lol. Has anyone had the stent
Hello everyone! I recently received a kidney transplant this past weekend and I was just curious about how many of you who had also received one have been feeling the first couple days/weeks. I’m terribly bloated and this pain is crazy. Thank god for painkillers right? lol. Has anyone had the stent
Hidden
in
Kidney Disease
5 years ago
does enalapril reduce kidney function
does enalapril medication make ur kidney function or gfr decrease . very concern my gfr when from being normal for my kidney transplant to one point 6 gfr really worried but at the same time in hope that the reason it decrease because of this medication and because i didnt drink enough water was feeling
does enalapril medication make ur kidney function or gfr decrease . very concern my gfr when from being normal for my kidney transplant to one point 6 gfr really worried but at the same time in hope that the reason it decrease because of this medication and because i didnt drink enough water was feeling
jennifer24
in
Early CKD Support
5 years ago
POST BMT 1-Year & 7 Months, BOY OH BOY!!!
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
“Ring the bells that still can ring Forget your perfect offering There is a crack, a crack in everything That’s how the light gets in.” Leonard Cohen “Anthem,” The Future album 1992 It has been far to long since my last post but boy have we been through the ringer!! I do want to apologize for
NMMP
in
CLL Support
5 years ago
Steroids and BK virus
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
Six months after my 2nd kidney transplant I started rejecting and they discovered I had the BK virus so they took mr off MMF and kept me on Adoport and added Prednisolone which is now at 10mg per day and have been on this now for 18 months and have been told I will have to stay on this dose always .
smashandgrab
in
Kidney Transplant Patient Support
5 years ago
TigerBalm
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Morning All, Just a quick question... I am a kidney transplant patient with painful arthritis. Someone has recomended Tiger Balm.... Does anyone else use this? Is it ok with transplant meds? Thanks Mgt
Mgt8
in
Kidney Transplant Patient Support
5 years ago
Devastated is this the end?
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
My husband has had a cirrhotic liver and alcoholic liver disease for a number of years coupled with all the complications this brings. He has now been abstinent for 4 and a half years, as I write he is spending his 17th night in hospital, this is his 3rd stay this year. In January this year he was told
Billfury
in
British Liver Trust
5 years ago
Update on My Father's Cirrhosis - Seems Stable
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
Hello, As we found out about my father's Cirrhosis in February after we noticed his swollen stomach. His Ascites of 2.5ltr was drained in on Feb 23, 2019. It was followed by Endoscopy where grade 3 varices were diagnosed. He never had bleeding, but doctors recommended banding, so he had it done in
zvhipp
in
British Liver Trust
5 years ago
Newbie ...
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
Hi, I've just joined this group. I was diagnosed with leukaemia in 2010 and had a bone marrow transplant in 2011. Unfortunately that didn't work properly so I went onto a new drug to control it. This drug was really good at controlling the rare mutation I have, but came with a lot of cardio-vascular
SomersetJo
in
British Heart Foundation
5 years ago
Ventolin Inhaler -Alternative
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Good evening everyone, I have taken my Ventolin Inhaler for many years of me having COPD and Bronchiectasis, I am now stage 4 COPD and awaiting a lung transplant. Although I have to regularly take lots of medication daily as well as nebulisers I have noticed that my Ventolin Inhaler doesn’t seem to work
Joseph260268
in
Lung Conditions Community Forum
5 years ago
AmazonSmile - charity donations
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
There maybe a few people out there who may not be aware of AmazonSmile. I daresay we all buy something from Amazon on a regular bases. (I for one buy my printer ink cartridges from Amazon, and I also got my "Liver Transplant" T-shirt from them). If a person was to register with AmazonSmile and place
Hidden
in
British Liver Trust
5 years ago
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve.
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
Russell was diagnosed with a lethal cancer called non-hodgkin’s lymphoma in 2016 and conventional treatments gave only a temporary reprieve. He refused stem cell transplant therapy after researching it, and instead started his own research. He was later treated for Graves’ disease which led him to LDN
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Decompensated to compensated?
Hi all, I'm new to here but very concerned about my dad. He has been diagnosed with cirrhosis a few months ago but his tummy is full of fluid (ascites) which is his main issue. He also has varices but thankfully has never had a bleed. As his liver is now decompensated my question is this. Is it possible
Hi all, I'm new to here but very concerned about my dad. He has been diagnosed with cirrhosis a few months ago but his tummy is full of fluid (ascites) which is his main issue. He also has varices but thankfully has never had a bleed. As his liver is now decompensated my question is this. Is it possible
Hidden
in
British Liver Trust
5 years ago
I have TP53
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
I was told I will not react to chemo (anymore) and based on my mutations is either CarT or Stem Cell Transplant. I am deadly afraid of the latter and can't afford CarT. Are there any Clinical trials for CarT at this point? Presently I am on Ibrutinib (have been for 10 months and doing relatively well
Doremefasol
in
CLL Support
5 years ago
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