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Update and Adventure Buddy!
Just an update, and frustration vent (pardon me for venting, but not many places I can do that!) I've been, over the last month, slowly getting worse. Neuro said to wait till my appointment in May, and we kinda had to for a bit, because we are doing, as I said in a comment, what I'm calling the insurance
Just an update, and frustration vent (pardon me for venting, but not many places I can do that!) I've been, over the last month, slowly getting worse. Neuro said to wait till my appointment in May, and we kinda had to for a bit, because we are doing, as I said in a comment, what I'm calling the insurance
MSFlea
in
My MSAA Community
4 days ago
Daridexorant / quvuviq and RLS
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Just wondering if anyone else has experience of this sleep aid and RLS? I have bought (not available in my region on NHS yet) a month’s supply of 50mg tablets and ….. I am sleeping normally!!!! It is a new drug to the UK but tried and tested in USA I believe? Apparently minimal side effects. I have
Lacey_
in
Restless Legs Syndrome
4 days ago
GPs! Lack of knowledge.
Continuation of RLS with GP. Ferritin levels are 50, normal apparently! I take Ropinirole 4mg and 210mg iron tablets to try and raise Ferritin. The GP keep stating that my levels are normal and there was very little she could do or suggest…her knowledge was very limited. How would you continue this
Continuation of RLS with GP. Ferritin levels are 50, normal apparently! I take Ropinirole 4mg and 210mg iron tablets to try and raise Ferritin. The GP keep stating that my levels are normal and there was very little she could do or suggest…her knowledge was very limited. How would you continue this
Standing123
in
Restless Legs Syndrome
4 days ago
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UPDATE on Iron and Vitamin D
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
I just talked to my Doctor and he is putting me on 50,000 1 tablet a week vitamin D and has put me in for Iron infusion. I was surprised he said that I was iron deficient (not Anemic) but this is going in the wrong direction and is getting out of control and I need my iron to be closer to 100 (shocked
Batty1
in
Thyroid UK
5 days ago
Iron Supplement
Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to
Hello, I recently started taking iron supplements as my level was 90 and it's advised should be over 100. I have now had black diarrhea for three weeks and the worst stomach acid. I have now stopped the iron supplements. Does anyone have any advice on what my next step should be. I have not spoken to
Thebarber
in
Restless Legs Syndrome
5 days ago
helvella - Thyroid Blog
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
You might or might not know that I have been accumulating information about thyroid issues in my blog - I have created a significant number of pages now. Many will be aware of some of the specific pages which I link to quite regularly. But you might not have realised what else is there. Below is a copy
helvella
Thyroid UK
in
Thyroid UK
6 days ago
Immunoglobulin treatment
Hi all hope your all keeping well.I wanted to ask if anyone else is or has had Immunoglobulin treatment. I already have bronchectasis in both lungs and asthma i also has a lung segmentation on my left lung and had some relief for a few years but after that was constantly suffering with infection after
Hi all hope your all keeping well.I wanted to ask if anyone else is or has had Immunoglobulin treatment. I already have bronchectasis in both lungs and asthma i also has a lung segmentation on my left lung and had some relief for a few years but after that was constantly suffering with infection after
Carkaisabellacolin
in
Lung Conditions Community Forum
6 days ago
Iron ranges changed
Has anyone noticed Iron Levels changed? Mine went from range 30-100 to Range 13-100. My recent ferritin was Curious
Has anyone noticed Iron Levels changed? Mine went from range 30-100 to Range 13-100. My recent ferritin was Curious
Batty1
in
Thyroid UK
6 days ago
How long to stop multivitamins & biotin etc before iron panel blood test
Hi, Just a quickie as have searched & can't see the info. Ordered a medichecks iron panel blood test & how long prior to the test do I have to stop multivitamins etc that contain iron and biotin? Thank you!
Hi, Just a quickie as have searched & can't see the info. Ordered a medichecks iron panel blood test & how long prior to the test do I have to stop multivitamins etc that contain iron and biotin? Thank you!
TheCatsWhiskers
in
Thyroid UK
6 days ago
My Gabapentin Dilemma
Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over 30-40 years. Fortunately I don’t have RLS attacks during the day but have them almost every night after I fall asleep. On high doses of Gabapentin
Help! I need some advice regarding my Gabapentin treatments. This is my first post so I hope I don’t ramble too much. I’m over 70 years old with RLS for over 30-40 years. Fortunately I don’t have RLS attacks during the day but have them almost every night after I fall asleep. On high doses of Gabapentin
Sleepless82
in
Restless Legs Syndrome
6 days ago
How to handle going off mirapex
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
My neurologist decided to take me off mirapex. This is a new neurologist since mine retired. She specializes in sleep problems. I also have sleep apnea. I dont know why she decided to take me off mirapex. When she told me I was in a state of shock. I also take oxycodone. She is taking me off
lorri214
in
Restless Legs Syndrome
7 days ago
medicheck results, what to do next?
I have posted my results before from Medichecks and I persuaded my youngest daughter to take the thyroid and vitamin test recently due to her symptoms of lethargy and the fact that not only I have hypothyroidism but also her Dad and older sister. Her iron plus Vit D were all low so she is now taking
I have posted my results before from Medichecks and I persuaded my youngest daughter to take the thyroid and vitamin test recently due to her symptoms of lethargy and the fact that not only I have hypothyroidism but also her Dad and older sister. Her iron plus Vit D were all low so she is now taking
BrocksfieldJo
in
Thyroid UK
7 days ago
Infusions
Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.
Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.
36Hele
in
Pernicious Anaemia Society
7 days ago
Gorgeous holiday run
It's been 2 months since I last posted, apart from questing replies. So what's been going on? Life has been busy as a grandparent, helping out even more now my daughter in law has returned to work. As they live a 2 hour drive from us, this has involved many overnight stays, with interrupted exercise
It's been 2 months since I last posted, apart from questing replies. So what's been going on? Life has been busy as a grandparent, helping out even more now my daughter in law has returned to work. As they live a 2 hour drive from us, this has involved many overnight stays, with interrupted exercise
Sax64
Graduate10
in
Bridge to 10K
8 days ago
Burenorphine side effects
I am still struggling with nausea despite buprenorphine success on RLS front. In my daily diary today I wrote:- QUOTE I took a total of 400mcg buprenorphine yesterday (100 in morning, 100 in evening and 200mcg at bedtime using tablet cutter. Nausea side effect still a problem. I have stopped taking
I am still struggling with nausea despite buprenorphine success on RLS front. In my daily diary today I wrote:- QUOTE I took a total of 400mcg buprenorphine yesterday (100 in morning, 100 in evening and 200mcg at bedtime using tablet cutter. Nausea side effect still a problem. I have stopped taking
davchar23
in
Restless Legs Syndrome
8 days ago
Buprenorphine @ 2 weeks, issues
Hi, I've been on buprenorphine (suboxone 2.0mg as i'm in USA) for little more than 2 weeks. This is after augmenting on pramipexole, getting off that last year, and having some moderate but transient response to IV Iron 5 mos ago that has mostly gone away (despite my ferritin levels still being 300)
Hi, I've been on buprenorphine (suboxone 2.0mg as i'm in USA) for little more than 2 weeks. This is after augmenting on pramipexole, getting off that last year, and having some moderate but transient response to IV Iron 5 mos ago that has mostly gone away (despite my ferritin levels still being 300)
Avart
in
Restless Legs Syndrome
9 days ago
Update on Weaning off of Pramipexole
Hello Everyone, I am posting in case this might be helpful to those going through getting off Pramipexole (PRAM) or thinking about it. I posted last Sunday about not feeling comfortable reducing the PRAM, but through encouragement on this site, I took the deep dive. I was taking .25 for about 5 years
Hello Everyone, I am posting in case this might be helpful to those going through getting off Pramipexole (PRAM) or thinking about it. I posted last Sunday about not feeling comfortable reducing the PRAM, but through encouragement on this site, I took the deep dive. I was taking .25 for about 5 years
abby1003
in
Restless Legs Syndrome
9 days ago
Previous enlarged nodule, mnth later sore throat?
Hi guys, sorry that heading isnt very good , not sure what to put on it. So I previously had an enlarged 2.6cm benign Nodule (after Biopsy), along with another 3 on both sides on my thyroids. They said my thyroid function was fine. I am due to get bloods done again in 3 weeks. I have done a month
Hi guys, sorry that heading isnt very good , not sure what to put on it. So I previously had an enlarged 2.6cm benign Nodule (after Biopsy), along with another 3 on both sides on my thyroids. They said my thyroid function was fine. I am due to get bloods done again in 3 weeks. I have done a month
madeline05
in
Thyroid UK
9 days ago
Morning Horrors
I have been struggling with anxiety and depression for nearly five years now. In addition to the usual anti-anxiety and anti-depression drugs, I have tried: Lithium, Ketamine Trials, ECT and Magnetic Stimulation. My current cocktail is: Sertraline 200mg AM, Methylphenidate 36mg AM, Lorazepam 1mg AM,
I have been struggling with anxiety and depression for nearly five years now. In addition to the usual anti-anxiety and anti-depression drugs, I have tried: Lithium, Ketamine Trials, ECT and Magnetic Stimulation. My current cocktail is: Sertraline 200mg AM, Methylphenidate 36mg AM, Lorazepam 1mg AM,
PillJunkie
in
Anxiety and Depression Support
9 days ago
SUPPLEMENTS FOR RLS?
I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN C+E FOR ABSORBENT OR IRON THAT I AM PRESENTLY ON. I WANT TO ONLY TAKE WHAT IS NECESSARY. NEED YOUR ADVICE THANK YOU
I AM COMING OFF OF PREGABALIN, I AM ON 200MG PRESENTLY. I WANT TO START SUPPLEMENTS AND WANT TO MAKE SURE I AM DOING THE RIGHT THING. MAGNESIUM+B6 VITAMIN C+E FOR ABSORBENT OR IRON THAT I AM PRESENTLY ON. I WANT TO ONLY TAKE WHAT IS NECESSARY. NEED YOUR ADVICE THANK YOU
piggytails
in
Restless Legs Syndrome
9 days ago
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