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8/4/23 Update questions for MO
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
To review, after 19 months on Lupron, Zytiga, prednisone, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga. Yea
alperk
in
Advanced Prostate Cancer
11 months ago
Radium-223 + Xtandi?
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
I’ve been on chemo (cabazitaxel + carboplatin) since Jan 2022 and also on Zometa and Lupron. PSA went from 1.3 in Jan 2023 to 11.7 this month. CT and Bone scans show bone mets somewhat stable but with activity, all bone no soft tissue. PET PSMA earlier this year did not show enough tracer activity
MechD
in
Advanced Prostate Cancer
11 months ago
Enhertu
Hi all. Wondering if anyone is using enhertu? And if so, your experience. I’m scheduled to start on August 21st. This will be my 6th treatment in 5 years and after 2 different oral chemo, my first infusion. Thank you.
Hi all. Wondering if anyone is using enhertu? And if so, your experience. I’m scheduled to start on August 21st. This will be my 6th treatment in 5 years and after 2 different oral chemo, my first infusion. Thank you.
Gypsypublisher
in
SHARE Metastatic Breast Cancer
11 months ago
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Why no maintenance medication?
I was diagnosed with stage 3C1, grade 3 endometrial cancer October 2022 and had surgery, chemo and 25 sessions external radiotherapy. I haven't been put on maintenance medication to prevent recurrence. Is this usual? Are others in this position? I live in the Uk.
I was diagnosed with stage 3C1, grade 3 endometrial cancer October 2022 and had surgery, chemo and 25 sessions external radiotherapy. I haven't been put on maintenance medication to prevent recurrence. Is this usual? Are others in this position? I live in the Uk.
KentWoman
in
SHARE Uterine Cancer Support
11 months ago
clinical trails for metastatic castrate resistant pc
It appears my husband may have become castrate resistant. PSA has risen from undetectable <.1 to now .2. We speak with oncologists on Wednesday. I believe he might have the possibility of radiation as a treatment bc he was oliogometastic at diagnosis 15 months ago. He had chemo along with hormones
It appears my husband may have become castrate resistant. PSA has risen from undetectable <.1 to now .2. We speak with oncologists on Wednesday. I believe he might have the possibility of radiation as a treatment bc he was oliogometastic at diagnosis 15 months ago. He had chemo along with hormones
Klunacat
in
Advanced Prostate Cancer
11 months ago
Just checking in.
I am a 61 year old woman who has been battling depression since 1990 and since then I've lost my daughter, my mum and my job all in the space of 2 years between June 2007 and June 2009 and having suffered multiple TIAs in January 2022 and then covid in February 2022, was diagnosed with stage 4 lung cancer
I am a 61 year old woman who has been battling depression since 1990 and since then I've lost my daughter, my mum and my job all in the space of 2 years between June 2007 and June 2009 and having suffered multiple TIAs in January 2022 and then covid in February 2022, was diagnosed with stage 4 lung cancer
sobs1962
in
Major Depressive Disorder (MDD) Support
8 months ago
Anyone from bolton
Ovarian Cancer stage 3 and a low grade diagnosed 2021 had carbo pacactaxal Then on maintenance tablets didn't work for me Recurrence 6 rounds caelix Had scan areas of disease waiting list now 4 - 6 weeks for biopsies to see if high grade or low Small area of fluid If high back to chemotherapy
Ovarian Cancer stage 3 and a low grade diagnosed 2021 had carbo pacactaxal Then on maintenance tablets didn't work for me Recurrence 6 rounds caelix Had scan areas of disease waiting list now 4 - 6 weeks for biopsies to see if high grade or low Small area of fluid If high back to chemotherapy
123george
in
My Ovacome
11 months ago
1st reccurence and a 1 year prognosis
my mum is currently tolerating her second line of chemo after a ‘significant’ reccurence just under a year after frontline. Her oncologist has supported her medical retirement and wrote her prognosis is less than a year. How can this possibly be :(
my mum is currently tolerating her second line of chemo after a ‘significant’ reccurence just under a year after frontline. Her oncologist has supported her medical retirement and wrote her prognosis is less than a year. How can this possibly be :(
Worrieddaughter95
in
My Ovacome
11 months ago
Remission after 2 months?
My consultant told me that I am in complete remission because of my very good blood results. But he also said that the treatment with chemotherapy (Obinutuzumab plus V.) had to carry on, otherwise the remission will not last. I thought remission means no treatment at all. He is talking everything
My consultant told me that I am in complete remission because of my very good blood results. But he also said that the treatment with chemotherapy (Obinutuzumab plus V.) had to carry on, otherwise the remission will not last. I thought remission means no treatment at all. He is talking everything
MalcT
in
CLL Support
11 months ago
Was Chemo "Successful"?
I just had my first PSA test after waiting to allow the results to mean something, after 10 rounds of doxytaxel. I was supposed to wait three months but for convenience pushed it by a week. I was hoping for a close to 0 PSA but that is not the case. I see my oncologist in a little more than a week
I just had my first PSA test after waiting to allow the results to mean something, after 10 rounds of doxytaxel. I was supposed to wait three months but for convenience pushed it by a week. I was hoping for a close to 0 PSA but that is not the case. I see my oncologist in a little more than a week
spencoid2
in
Advanced Prostate Cancer
11 months ago
on going chemo
Hi , I have another question please, I have just had my 4th chemo out of 6 and this is the worst I have felt . Fatigue ( extreme) feeling totally wiped out as if everything left my body !!!! Has anybody else had this , I have been to my doctor so not to worry myself to much ( but you do) !!!!!
Hi , I have another question please, I have just had my 4th chemo out of 6 and this is the worst I have felt . Fatigue ( extreme) feeling totally wiped out as if everything left my body !!!! Has anybody else had this , I have been to my doctor so not to worry myself to much ( but you do) !!!!!
Cazy1010
in
My Ovacome
11 months ago
Support Group
Good Morning, I am a newbie. I live in Suffolk, near Ipswich and was wondering whether there were any others near me who would be interested if I were to set up a local support group to meet up. I had stage 3 ovarian in September 2021. I was operated on and had 6 lots of chemo. To date I have
Good Morning, I am a newbie. I live in Suffolk, near Ipswich and was wondering whether there were any others near me who would be interested if I were to set up a local support group to meet up. I had stage 3 ovarian in September 2021. I was operated on and had 6 lots of chemo. To date I have
Greengecko67
in
My Ovacome
11 months ago
Update treatment
it’s been about, half a year sinc[i]e i thought i had some options for the treatment i needed[/i] [i]I posted this dilemma here, and got a lot of responce to it. My thanks for this.[/i] [i]But unfortunately, there were no options for me, and the FCR was scheduled.[/i] [i]The first time, about two
it’s been about, half a year sinc[i]e i thought i had some options for the treatment i needed[/i] [i]I posted this dilemma here, and got a lot of responce to it. My thanks for this.[/i] [i]But unfortunately, there were no options for me, and the FCR was scheduled.[/i] [i]The first time, about two
Renefaassen
in
CLL Support
11 months ago
Any tips welcome on how to tolerate chemo
As you know, my 88 year old warrior of a father, has battled his cancer HARD for 16 years. He has been optimistic despite all of this, and has always KNOWN he can beat this. A great attitude to have. He has declined quite a bit after having a spontaneous fracture of his pelvis 8 weeks ago - after 5
As you know, my 88 year old warrior of a father, has battled his cancer HARD for 16 years. He has been optimistic despite all of this, and has always KNOWN he can beat this. A great attitude to have. He has declined quite a bit after having a spontaneous fracture of his pelvis 8 weeks ago - after 5
dadsdrdawn
in
Advanced Prostate Cancer
11 months ago
New MRI finding
Yesterday I had an MRI due to some back pain. I had an MRI, pet scan in February and clean CAT scan in June. Plus all of my labs have been perfect. Now they’re telling me that they see a 2.1 CM metastasis on my L2 area of my spine. I am a bit freaked out but I’m trying to wrap my head around this.
Yesterday I had an MRI due to some back pain. I had an MRI, pet scan in February and clean CAT scan in June. Plus all of my labs have been perfect. Now they’re telling me that they see a 2.1 CM metastasis on my L2 area of my spine. I am a bit freaked out but I’m trying to wrap my head around this.
Flavia100
in
SHARE Metastatic Breast Cancer
11 months ago
Mylo Fibrosis, et al
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
Hello. I'm new to this community and frankly new to social networking on health. My abbreviated story is that I transitioned to Mylo Fibrosis (MF) a few years ago, after dealing with Polycythemia Vera (PV) for 25+ years (I'm 66 years old). The PV regimen was inclusive of Phlebotomies, meds such as Agrilyn
luvinretirement
in
MPN Voice
11 months ago
Helperwifey
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy and has been taking Orgovyx and Nubeqa since his diagnosis. I am interested in exploring more holistic approaches in going foward with his treatment.
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy and has been taking Orgovyx and Nubeqa since his diagnosis. I am interested in exploring more holistic approaches in going foward with his treatment.
Helperwifey
in
Prostate Cancer Caregivers
11 months ago
Helperwifey
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy. He has taken Orgovyx and Nubeqa since his diagnosis. I am exploring holistic adjunctive therapy for him.
I am the wife of a husband who has advanced prostate cancer. He has just finished 6 rounds of Taxotere chemotherapy. He has taken Orgovyx and Nubeqa since his diagnosis. I am exploring holistic adjunctive therapy for him.
Helperwifey
in
Advanced Prostate Cancer
11 months ago
fatigue
Just had my 4th round of chemo out of 6 !!!! Getting there after being delayed over my blood work but it’s this fatigue 😢 even after recovering before next round I’m still so so tired , any help or advice
Just had my 4th round of chemo out of 6 !!!! Getting there after being delayed over my blood work but it’s this fatigue 😢 even after recovering before next round I’m still so so tired , any help or advice
Cazy1010
in
My Ovacome
11 months ago
Hello strangers.
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
Hello, just thought that having been banned from the Cllforum years ago for no good reason, I would catch up with what has been happening to some of the people I liked so much. (I was banned for complaining about the ALT-MED stuff that used to appear so regularly there, and the fact that it was treated
andysnat
in
CLL Support
11 months ago
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