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Experiences with
Interferon
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3 Oct 2023 Sleep issue solved so far I think
Interferon
beta 1b and I have the scarring to prove it. The wife likes to tease me about all the lumps in my butt. No soft fat for her to pinch. Ahh well this is life with a chronic incurable disease. I HOPE YOU CAUGHT THAT.There is no cure for this, no matter what somenody says.
Interferon
beta 1b and I have the scarring to prove it. The wife likes to tease me about all the lumps in my butt. No soft fat for her to pinch. Ahh well this is life with a chronic incurable disease. I HOPE YOU CAUGHT THAT.There is no cure for this, no matter what somenody says.
RoyceNewton
in
My MSAA Community
8 months ago
Changing blood results x
Hi, I'm on 90mcg of Pegasys
Interferon
at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this?
Hi, I'm on 90mcg of Pegasys
Interferon
at present and my HCT and platelets are finally reducing without venesection which it good....but my most recent plasma viscosity was 185...and my RDW was 18% which it has been for a while. Should I be concerned about this?
RCBr
in
MPN Voice
1 year ago
Immune Responses + Autoimmune Myelofibrosis
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
There were some posts a few weeks ago on adverse immune responses after vaccination for people using interferons. I had this experience while transitioning form HU to Peg, firstly with a covid jab last December and secondly with the first of the Shingrix jabs in March, which triggered, at the very least
LongETinUS
in
MPN Voice
6 months ago
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ET and RA
Lucky me, but I’m still standing 😁 I’ve been put on Adalimumab and was interested to know if anyone has experience of taking it with peg
interferon
and if they have any side effects and have found a way to inject the pen without it being horrendously painful.
Lucky me, but I’m still standing 😁 I’ve been put on Adalimumab and was interested to know if anyone has experience of taking it with peg
interferon
and if they have any side effects and have found a way to inject the pen without it being horrendously painful.
Jynx93
in
MPN Voice
1 year ago
Bloodshot eyes, interferon
Wondering whether
Interferon
can affect the eyes?
Wondering whether
Interferon
can affect the eyes?
Mpn71
in
MPN Voice
1 year ago
Coping with itchiness and side effects of peg-interferon
Hi everyone, I'm new to this forum and relatively new to pegylated
interferon
. I haven't really had the side effects I was expecting but after a month or so on it my skin is now so itchy that it's extremely painful to shower or to have any water touch my skin, basically.
Hi everyone, I'm new to this forum and relatively new to pegylated
interferon
. I haven't really had the side effects I was expecting but after a month or so on it my skin is now so itchy that it's extremely painful to shower or to have any water touch my skin, basically.
emcee19
in
MPN Voice
1 year ago
interferon alpha effectiveness for ET
hi again 😃 I recently asked how long it takes for
interferon
alpha perg to start working and decrease my platelet count. My diagnosis is ER (triple negative). I have been injecting weekly for 12 weeks now, 8 weeks at 90mg and the last 4 weeks at 135mg.
hi again 😃 I recently asked how long it takes for
interferon
alpha perg to start working and decrease my platelet count. My diagnosis is ER (triple negative). I have been injecting weekly for 12 weeks now, 8 weeks at 90mg and the last 4 weeks at 135mg.
Maxamber
in
MPN Voice
1 year ago
Event-free survival in patients with polycythemia vera treated with Besremi versus best available treatment
»Normal life expectancy may be achievable in PV based on comparable overall survival in
interferon
-treated patients and a matched US population (p = 0.3), contrasting with shortened survival (p = 0.03) in non-
interferon
treated patients at the same academic center [3].
»Normal life expectancy may be achievable in PV based on comparable overall survival in
interferon
-treated patients and a matched US population (p = 0.3), contrasting with shortened survival (p = 0.03) in non-
interferon
treated patients at the same academic center [3].
Manouche
in
MPN Voice
9 months ago
Response to sunscreen question.
At my hospital appointment yesterday I was all geared up to a probable change from HU to
Interferon
until my consultant said that this was a drug prescribed a number of years ago and is not used much now to which I responded with with a suggestion he has a look on this site, it is very commonly used
At my hospital appointment yesterday I was all geared up to a probable change from HU to
Interferon
until my consultant said that this was a drug prescribed a number of years ago and is not used much now to which I responded with with a suggestion he has a look on this site, it is very commonly used
Janis12
in
MPN Voice
1 year ago
Tysabri for me
My doctor recommended Tysabri which was new at the time and it was recommended to be used only—not in combination with any other
interferon
or MS drug.
My doctor recommended Tysabri which was new at the time and it was recommended to be used only—not in combination with any other
interferon
or MS drug.
disconcerting
in
My MSAA Community
1 year ago
.intC58
I left the office that day with an
interferon
that I take three days aweek. That doctor saved my life. I have embraced living with MS.
I left the office that day with an
interferon
that I take three days aweek. That doctor saved my life. I have embraced living with MS.
MintC58
in
My MSAA Community
3 months ago
Why isn’t interferon alpha working for me?
I have been injecting
interferon
alpha 90mg for 8 weeks , 2 blood tests 4 weeks apart showed a reduction of 3 and 17, total 20 in 2 months.
I have been injecting
interferon
alpha 90mg for 8 weeks , 2 blood tests 4 weeks apart showed a reduction of 3 and 17, total 20 in 2 months.
Maxamber
in
MPN Voice
1 year ago
Besremi - Dosing Change
It's an innovative, long-acting
interferon
that you take once every 2 weeks. After maintaining stable blood levels for 1 year, you may be able to take BESREMi once every 4 weeks." I hope this is the dose that will work to bring back my blood counts to normal.
It's an innovative, long-acting
interferon
that you take once every 2 weeks. After maintaining stable blood levels for 1 year, you may be able to take BESREMi once every 4 weeks." I hope this is the dose that will work to bring back my blood counts to normal.
Pat032018
in
MPN Voice
1 year ago
Burning hands and feet
Well here goes they had me on 45 mg of
interferon
3 times a week everything fine until 3 weeks ago now we have burning with cold hands and feet.Started mainly evenings and late afternoon now after latest dose all day.,with pins and needles thrown in for good measure.
Well here goes they had me on 45 mg of
interferon
3 times a week everything fine until 3 weeks ago now we have burning with cold hands and feet.Started mainly evenings and late afternoon now after latest dose all day.,with pins and needles thrown in for good measure.
Spanelmad
in
MPN Voice
1 month ago
PV, Botox & Blood Thinners
I am on Peg
Interferon
and Blood Thinners (Apixaban) as I had a clot, so I am High Risk PV. I, of course, will check with my Hematologist, but some anecdotal examples would be good to hear! For context I'm in the UK.
I am on Peg
Interferon
and Blood Thinners (Apixaban) as I had a clot, so I am High Risk PV. I, of course, will check with my Hematologist, but some anecdotal examples would be good to hear! For context I'm in the UK.
PVKween
in
MPN Voice
2 months ago
Weekly chills after IFN injection
Just a quick question for you all, I have had to recently wean off some other medication in the last couple of weeks (non related) to to my ET, Calr I have noticed I am suffering the chills the day following my
interferon
injection.
Just a quick question for you all, I have had to recently wean off some other medication in the last couple of weeks (non related) to to my ET, Calr I have noticed I am suffering the chills the day following my
interferon
injection.
Grendall
in
MPN Voice
1 year ago
Can you come off Thyroxine permanently?
I have been on Thyroxine for around 8yrs due to
Interferon
causing my thyroid to become very overactive at first then becoming underactive! The question i would like to ask is i have read that if your thyroid numbers are normal then you could possibly come off Thyroxine!
I have been on Thyroxine for around 8yrs due to
Interferon
causing my thyroid to become very overactive at first then becoming underactive! The question i would like to ask is i have read that if your thyroid numbers are normal then you could possibly come off Thyroxine!
ballie52
in
Thyroid UK
1 year ago
New question Can interferon injections cause High BP ?
Can
interferon
injections cause high BP ? Does anybody have high BP and can still use
interferon
?
Can
interferon
injections cause high BP ? Does anybody have high BP and can still use
interferon
?
Hidden
in
MPN Voice
1 year ago
Aching throbbing hips and legs and feeling tired
Im hoping the
interferon
injection will start to kick in Thanks in advance
Im hoping the
interferon
injection will start to kick in Thanks in advance
Blonde25
in
MPN Voice
1 year ago
peg dosage raised-
Taking two aspirins and
interferon
peg for 2 months at 180 weekly dosage. Dr has now raised to 1 x 180 shot and mid week 135 shot. Has anyone else done this? Have you gad many sideaffects? . How long til numbers start dropping. My son is 19
Taking two aspirins and
interferon
peg for 2 months at 180 weekly dosage. Dr has now raised to 1 x 180 shot and mid week 135 shot. Has anyone else done this? Have you gad many sideaffects? . How long til numbers start dropping. My son is 19
Maccamum
in
MPN Voice
1 year ago
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