PV, Botox & Blood Thinners

[PVKween]

Hi MPN Community!

I have looked at past posts regarding having PV and getting Botox, however, I just wanted people's input regarding whether they get Botox AND are on blood thinners.

I know its not a TOP priority, but I loved my frozen face 😁, and I have one of my best friends wedding in September, I'd love to have it again for the event. Some of you will all understand this would feel like a bit of normality after being up-ended after discovering my JAK2 mutation. I'm early days of diagnosis (Nov 2023) but its felt like a long slog of not feeling like the me due to side effects of the medications & PV.

I am on Peg Interferon and Blood Thinners (Apixaban) as I had a clot, so I am High Risk PV.

I, of course, will check with my Hematologist, but some anecdotal examples would be good to hear! For context I'm in the UK.

[KLCTJC]

As most of y’all know I work in dermatology. So it is a crime if I don’t take advantage of what we have to offer.😆. I have Botox every few months. I am on ASA and Besremi. I have no problems. I don’t do fillers just because I don’t want to. I asked Dr V at MDA years ago and he said it was fine. And I haven’t had any issues. So, I think you would be ok. If you are on a blood thinner like xarleto or plavix, etc. May need to hold a day or so. They should tell you. No big issues with bleeding and Botox but bruising. I don’t stop my ASA and I haven’t had an issue. Talk to your doctor but I have done it for years.

[PVKween in reply to KLCTJC]

Thank you! I'm going to get something from my consultant to make sure I have the all clear, but this has given me lots of hope!

[K-itty]

I have both Botox and filler...have been doing Botox since my diagnosis of ET/PV 2016 and added filler over the years. I am 70 years young this month and started on a low dosage of Jakafi last year when Hydroxyurea proved to be too much for my system. I have had no problems or side effects from either Botox or fillers to date, other than some bruising at the injection site. I've come to accept I'll bruise, however I do eliminate aspirin and Ibuprofen several days before my service to hopefully cut back on any bruising and any bleeding that may occur. Otherwise, I just live with them, as they are minor and fade in a week. I use some coverup cream if I'm concerned. I have had people say " you have a smudge on your face, etc " to which I usually just tell them the truth and laugh about it!.

[PVKween in reply to K-itty]

Thank you! I bruise so easily anyway, I can cope with that! I'm going to get my Botox after I speak with my Dr. I'm determined. Saw myself on a Zoom call today and I REALLY want that Botox 😅