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Interferon
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Anaemia- CALR+ET
He doesn’t consider this is caused by
interferon
. He has ordered further haematinic assays. I eat a balanced diet so can’t understand why I’m anaemic- never have been. Would welcome suggestions as to how this has arisen and what I should do to combat it?
He doesn’t consider this is caused by
interferon
. He has ordered further haematinic assays. I eat a balanced diet so can’t understand why I’m anaemic- never have been. Would welcome suggestions as to how this has arisen and what I should do to combat it?
gilded
in
MPN Voice
1 year ago
Dry scalp/skin - ET & Interferon
I've been having Pegasys
interferon
for 2 years. I've always had a tendency for dry skin... not particularly bad... and all my life this has been managed with moisterisers. Over the last year I've noticed a deterioration in my skin in general but most annoyingly my scalp!
I've been having Pegasys
interferon
for 2 years. I've always had a tendency for dry skin... not particularly bad... and all my life this has been managed with moisterisers. Over the last year I've noticed a deterioration in my skin in general but most annoyingly my scalp!
cgcheets
in
MPN Voice
1 year ago
Erythromelalgia?
I came off Anagrelide just after this started as I’m starting new treatment shortly, probably peg
interferon
.
I came off Anagrelide just after this started as I’m starting new treatment shortly, probably peg
interferon
.
lizzziep
in
MPN Voice
1 year ago
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Besremi trial
We try to avoid
interferon
in patients that have a predisposition to autoimmune disease.
We try to avoid
interferon
in patients that have a predisposition to autoimmune disease.
wateron
in
MPN Voice
1 year ago
MPN Voice Vlogcasts – In Conversation With… Alisia O’Sullivan, ET patient & MPN Voice volunteer
Alisia then talks about her symptoms and medication, changing from Hydroxycarbamide, due to intolerance, to Pegylated
Interferon
which she tolerates very well. We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk.
Alisia then talks about her symptoms and medication, changing from Hydroxycarbamide, due to intolerance, to Pegylated
Interferon
which she tolerates very well. We hope that you enjoyed this conversation, please send feedback and any questions to info@mpnvoice.org.uk.
Mazcd
MPNVoice
in
MPN Voice
1 year ago
Peg Interferon 2b abd Hydroxy
Is anybody taking both together or can this happen when going to
interferon
from hydroxy ?
Is anybody taking both together or can this happen when going to
interferon
from hydroxy ?
Hidden
in
MPN Voice
1 year ago
CALR ET and hydroxyurea
He expressed that
interferon
is an option down the line but wanted to start here because he wants the counts to come down quicker. Can anyone share their experiences with hydroxyurea and especially CALR ET?
He expressed that
interferon
is an option down the line but wanted to start here because he wants the counts to come down quicker. Can anyone share their experiences with hydroxyurea and especially CALR ET?
dbus1417
in
MPN Voice
1 year ago
Why is the hct threshold for females 42/43 in USA but 45 in UK. I'm in UK and it troubles me......
I live in UK, have PV, and on
interferon
which is working well. My doc has always been happy with my count being 45 or under. Why in USA is the hit lower?
I live in UK, have PV, and on
interferon
which is working well. My doc has always been happy with my count being 45 or under. Why in USA is the hit lower?
Looolooo
in
MPN Voice
1 year ago
Ruxolitinib Versus Best Available Therapy for Polycythemia Vera Intolerant or Resistant to Hydroxycarbamide in a Randomized Trial
This includes recent data with pegylated
interferon
alpha-2b where despite showing the superiority of molecular response with this agent, correlation with clinical benefit has not yet been feasible, perhaps because of lower event rates in the frontline population, and has been explored in studies, for
This includes recent data with pegylated
interferon
alpha-2b where despite showing the superiority of molecular response with this agent, correlation with clinical benefit has not yet been feasible, perhaps because of lower event rates in the frontline population, and has been explored in studies, for
Manouche
in
MPN Voice
1 year ago
Switching from hydroxy carbamide to Peg interferon
Greetings All, I'd like your opinion about a considered change of meds from hydroxycarbamide to peg
interferon
that I take for my ET. I've been on hydroxy for 26 months now and gained weight (about 5 kg) despite being a habitual dieter.
Greetings All, I'd like your opinion about a considered change of meds from hydroxycarbamide to peg
interferon
that I take for my ET. I've been on hydroxy for 26 months now and gained weight (about 5 kg) despite being a habitual dieter.
Hidden
in
MPN Voice
1 year ago
Variations in Patient Response to interferons
I found this very interesting and wondering if anyone else on
interferon
has heard anything similar. I also found this reassuring since my goal is to eliminate the need for phlebotomies and am still waiting for that to happen after titrating up to 500 mcgs after a year on besremi.
I found this very interesting and wondering if anyone else on
interferon
has heard anything similar. I also found this reassuring since my goal is to eliminate the need for phlebotomies and am still waiting for that to happen after titrating up to 500 mcgs after a year on besremi.
mfh7
in
MPN Voice
1 year ago
No meds except warfrin
Hi is there anyone with PV been on hydroxy then pegusus
interferon
but due to negative side effects of both of these are currently taking warfrin only.Adiewon
Hi is there anyone with PV been on hydroxy then pegusus
interferon
but due to negative side effects of both of these are currently taking warfrin only.Adiewon
Hidden
in
MPN Voice
1 year ago
Anyone on interferon who has retinoschisis?
Hello I have ET and am getting more and more interested in changing from hydroxycarbemide to
interferon
Pegasus. I did note that a rare side effect is to cause problems with the retina.
Hello I have ET and am getting more and more interested in changing from hydroxycarbemide to
interferon
Pegasus. I did note that a rare side effect is to cause problems with the retina.
Na56
in
MPN Voice
1 year ago
Ruxolitinib is intolerant, what should I do
Maybe it's because my situation is worse, because I've been feeling like I have PMF since 2012, but I wasn't diagnosed or intervened until 2017 when I was diagnosed and used
interferon
. I noticed that I began to have an intolerant reaction to Ruxolitinib when I was taking it for about 3 years.
Maybe it's because my situation is worse, because I've been feeling like I have PMF since 2012, but I wasn't diagnosed or intervened until 2017 when I was diagnosed and used
interferon
. I noticed that I began to have an intolerant reaction to Ruxolitinib when I was taking it for about 3 years.
merlisa
in
MPN Voice
5 months ago
Interferon and CMR according to ChatGPT
While
interferon
therapy can help reduce the size of tumors and the number of cancer cells in the body, it is not always able to achieve a complete molecular response (CMR).
While
interferon
therapy can help reduce the size of tumors and the number of cancer cells in the body, it is not always able to achieve a complete molecular response (CMR).
Manouche
in
MPN Voice
1 year ago
Update appointment
Hi all, Been on 90mg pegasys
interferon
alpha 4 weeks now ,no side effects apart from a little cold tired after I've inject myself,after few days a do feel good in myself,my tinglings are still here in my feet not such much in my hands comes and goes,still get slightly headaches which I take paracetamols
Hi all, Been on 90mg pegasys
interferon
alpha 4 weeks now ,no side effects apart from a little cold tired after I've inject myself,after few days a do feel good in myself,my tinglings are still here in my feet not such much in my hands comes and goes,still get slightly headaches which I take paracetamols
Jody00
in
MPN Voice
1 year ago
ET JAK2 Positive
I have been on Aspirin and because my symptoms are not improving and have left me basically incapacitated my team are planning to start me on
Interferon
Alpha . I am kindly asking how’s the treatment and the side effects?? Does it worsen the fatigue or make it better ?? Thanks
I have been on Aspirin and because my symptoms are not improving and have left me basically incapacitated my team are planning to start me on
Interferon
Alpha . I am kindly asking how’s the treatment and the side effects?? Does it worsen the fatigue or make it better ?? Thanks
Afya23
in
MPN Voice
1 year ago
Discovery of a signaling feedback circuit that defines interferon responses in myeloproliferative neoplasms- Published: 01 April 2022
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
This gets a little deep, but nonetheless may explain some things:
Abstract
Interferons (IFNs) are key initiators and effectors of the immune response against malignant cells and also directly inhibit tumor growth. IFNα is highly effective in the treatment of myeloproliferative neoplasms (MPNs
PhysAssist
in
MPN Voice
1 year ago
Stay on Bomedemstat or....not?
I may likely go back on H.U or try
interferon
, but the fatigue I hate. I guess I'm asking for your thoughts on my situation knowing it is support I'm seeking. Namaste
I may likely go back on H.U or try
interferon
, but the fatigue I hate. I guess I'm asking for your thoughts on my situation knowing it is support I'm seeking. Namaste
givingITMybest
in
MPN Voice
1 year ago
Risks of Pegasus?
I'm 79, with ET and JAK2. At present I take 500mg Hydroxy and 4×0.5 Anagrelide daily. My platelet count is 660 and slowly rising. I asked my consultant about changing to Pegasys but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will
I'm 79, with ET and JAK2. At present I take 500mg Hydroxy and 4×0.5 Anagrelide daily. My platelet count is 660 and slowly rising. I asked my consultant about changing to Pegasys but she said that interferons are not advised for the over-60s. Is this right? Why would my age make any difference? And will
Sivasi
in
MPN Voice
9 months ago
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