Search
Search
About
Log in
Join
Experiences with
Interferon
Posts
Communities
1,145 public posts
Filter results
Bulsufan treatment
I did not want annual BMBs that my heam requires with Anagralide so started on
Interferon
3 yrs ago. I really want to come off INF if I can and the only thing I can seem to find in my research is Bulsulfan. Does anyone else have any experience of this regime, is it still prescribed?
I did not want annual BMBs that my heam requires with Anagralide so started on
Interferon
3 yrs ago. I really want to come off INF if I can and the only thing I can seem to find in my research is Bulsulfan. Does anyone else have any experience of this regime, is it still prescribed?
eastwood1932
in
MPN Voice
7 years ago
Deaf, a bit Down, but delighted NZ won first 2 America's cup final races!
I have been reading with interest about
interferon
, particularly the slow release sort, and am hoping that I might be able to be offered that, but am not sure if it is available in New Zealand?? Maybe one of you will know?
I have been reading with interest about
interferon
, particularly the slow release sort, and am hoping that I might be able to be offered that, but am not sure if it is available in New Zealand?? Maybe one of you will know?
stillkicking
in
MPN Voice
7 years ago
Interferon Alpha
Hi everyone, just been put on interferonAlpha, is there anybody that can share their experiences of this drug as it seems pretty scary the side effects and trying to get round self- injecting etc...
Hi everyone, just been put on interferonAlpha, is there anybody that can share their experiences of this drug as it seems pretty scary the side effects and trying to get round self- injecting etc...
Vennie
in
MPN Voice
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Pediatric Melanoma
After two surgeries (one to remove all of the tumor and the closest lymph node and another to remove the remaining lymph nodes), a year of
interferon
, and countless scans and blood tests - happy to say he is NED!
After two surgeries (one to remove all of the tumor and the closest lymph node and another to remove the remaining lymph nodes), a year of
interferon
, and countless scans and blood tests - happy to say he is NED!
stephanie83
Ambassador
in
Melanoma Caregivers
7 years ago
Treatment and monitoring for children with stage 3 melanoma
My son did a year on
interferon
(just finished in April) and now we are doing an ultrasound in July and a pet scan 6 months from his last one.
My son did a year on
interferon
(just finished in April) and now we are doing an ultrasound in July and a pet scan 6 months from his last one.
Toniff
in
Melanoma Caregivers
7 years ago
PEGULATED INTERFERON -BONE PAIN
Hi I've had ET for 7 years now and have been put on pegulated
interferon
after other treatments failed to control my platelet levels.
Hi I've had ET for 7 years now and have been put on pegulated
interferon
after other treatments failed to control my platelet levels.
Poppy21
in
MPN Voice
7 years ago
Minimal Residual Disease or Cure in MPNs? Rationales and perspectives on Combo Therapy with Interferon-alpha2 and Ruxolitinib
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - http://bit.ly/2tBjHVs
Cutting edge therapy for PV - MF patients who do not respond to Jakafi or Pegasys alone - http://bit.ly/2tBjHVs
PVReporter
in
MPN Voice
7 years ago
Hi all!
However, my 2 little girls are very challenging, (1 awaiting diagnosis of ADHD and their other Asperger's syndrome) I'm on
interferon
and find that I am sooo tired all the time!
However, my 2 little girls are very challenging, (1 awaiting diagnosis of ADHD and their other Asperger's syndrome) I'm on
interferon
and find that I am sooo tired all the time!
Essexdoll
in
MPN Voice
7 years ago
I'm new and clueless having been diagnosed Hypothyroid 23 years ago!
Thankfully HCV treatment (
interferon
and ribavirin) although seriously tough to go through was successful. For this I feel very blessed. Now I am going through the menopause which I am finding the most difficult of all. I am on HRT Tiblone 25mg as I could not tolerate the chills I was suffering.
Thankfully HCV treatment (
interferon
and ribavirin) although seriously tough to go through was successful. For this I feel very blessed. Now I am going through the menopause which I am finding the most difficult of all. I am on HRT Tiblone 25mg as I could not tolerate the chills I was suffering.
CILE
in
Thyroid UK
7 years ago
Anyone Else Hashimotos following Interferon Treatment?
Been hypo 11 years since
interferon
treatment and wondering if anyone else is in the same situation?What treatment / management have you found useful. Do you still have symptoms or other health issues?
Been hypo 11 years since
interferon
treatment and wondering if anyone else is in the same situation?What treatment / management have you found useful. Do you still have symptoms or other health issues?
MajorTom
in
Thyroid UK
7 years ago
Anagrelide and side effects
When I attended at the end of March she said she hadn't applied for the
interferon
as the weekly venesections and anagrelide are slowing getting things under control.
When I attended at the end of March she said she hadn't applied for the
interferon
as the weekly venesections and anagrelide are slowing getting things under control.
Dianne-Guisborough
in
MPN Voice
7 years ago
Greetings from Canterbury
Hi only just found this forum, I have had et for 16 years was fine for the first ten on hydrea and aspirin but then blood changed and got quite anaemic, doc put me on anagrelide then
interferon
, these treatments did not agree with me at all and now I am back on hydrea and still not right.
Hi only just found this forum, I have had et for 16 years was fine for the first ten on hydrea and aspirin but then blood changed and got quite anaemic, doc put me on anagrelide then
interferon
, these treatments did not agree with me at all and now I am back on hydrea and still not right.
Rastavapa
in
MPN Voice
8 years ago
Platelets up
I was told that it was nothing to worry about, but in the next breath, I was told that if they go over 1000, then because of my age (45),I would probably be put on
interferon
. I've done some reading and can't say that I like the sound of the side effects much.
I was told that it was nothing to worry about, but in the next breath, I was told that if they go over 1000, then because of my age (45),I would probably be put on
interferon
. I've done some reading and can't say that I like the sound of the side effects much.
westie71
in
MPN Voice
8 years ago
Stabilising platelets
My heamotologist doesn't seem to think it's abnormal and I did mention a change of medication but she said
interferon
has side effects and she isn't keen on it and I know I can't have anagrelide due to a heart defect .
My heamotologist doesn't seem to think it's abnormal and I did mention a change of medication but she said
interferon
has side effects and she isn't keen on it and I know I can't have anagrelide due to a heart defect .
Hidden
in
MPN Voice
8 years ago
Tinnitus & ET / medication
turns up some possible links to aspirin, which I've been on for 14 years, but probably not linked in low doses and also to
interferon
, which I've been on for 18 months, but not as a common side effect. Has anyone else on here with ET experienced problems with tinnitus and identified a cause?
turns up some possible links to aspirin, which I've been on for 14 years, but probably not linked in low doses and also to
interferon
, which I've been on for 18 months, but not as a common side effect. Has anyone else on here with ET experienced problems with tinnitus and identified a cause?
AndyT
in
MPN Voice
8 years ago
Does anyone have any info whether Interferon is contraindicated if you have a history of PE or other thrombolytic event ?
I just wonder if anyone has any information regarding whether
interferon
is contraindicated for people who have had a previous thrombolytic event and why . Also if anyone with a history of thrombolytic events is on pegasys
interferon
. I'm a proper awkward child !
I just wonder if anyone has any information regarding whether
interferon
is contraindicated for people who have had a previous thrombolytic event and why . Also if anyone with a history of thrombolytic events is on pegasys
interferon
. I'm a proper awkward child !
Dianne-Guisborough
in
MPN Voice
8 years ago
Anyone heard of PV patients going into remission on Pegylated Interferon?
Her doctor prescribed her pegylated
interferon
and her blood levels rapidly dropped in the space of a six months to what is classed as 'normal'. Once she reached this stage her doctor stopped her medication and her blood levels have not really changed since coming off the medication.
Her doctor prescribed her pegylated
interferon
and her blood levels rapidly dropped in the space of a six months to what is classed as 'normal'. Once she reached this stage her doctor stopped her medication and her blood levels have not really changed since coming off the medication.
LondonKid
in
MPN Voice
8 years ago
Unbearable night cramps in legs/bone pain after upping interferon - related?
Interferon
a month ago. No side effects. Last week they upped my dosage to 180mcg/weekly. Initially I was fine, but in the middle of the night I woke with excruciating leg pain/bone pain - like constant cramps in both legs. It lasted all night. This has gone on for 3 days now.
Interferon
a month ago. No side effects. Last week they upped my dosage to 180mcg/weekly. Initially I was fine, but in the middle of the night I woke with excruciating leg pain/bone pain - like constant cramps in both legs. It lasted all night. This has gone on for 3 days now.
SharonIsHopeful
in
MPN Voice
8 years ago
Interferon
Could anyone advise me about pains with
Interferon
. My husband has been on it for 3 months, my observations are that it's pretty horrendous. He is experiencing many issues, fatigue,depression, painful joints and muscles. He is considering stopping treat mentioned as feel he cannot cope.
Could anyone advise me about pains with
Interferon
. My husband has been on it for 3 months, my observations are that it's pretty horrendous. He is experiencing many issues, fatigue,depression, painful joints and muscles. He is considering stopping treat mentioned as feel he cannot cope.
charlie98
in
MPN Voice
8 years ago
Hi im new on here and first time posting...have hyperthyroidism past 2yrs and was toxic before xmas
Sorry for the long post but feeling frustrated atm...on neo merc 30mgs whilst toxic tho now reduced to 20mgs until i see her again...have progressive ms and recently found out the
interferon
injections i was on for many years prob destroyed thyroid...am waiting on ultrasound of thyroid as i seem to have
Sorry for the long post but feeling frustrated atm...on neo merc 30mgs whilst toxic tho now reduced to 20mgs until i see her again...have progressive ms and recently found out the
interferon
injections i was on for many years prob destroyed thyroid...am waiting on ultrasound of thyroid as i seem to have
buddy11
in
Thyroid UK
8 years ago
1
...
47
48
49
...
58
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
MPN Voice
865 results
My MSAA Community
41 results
LUpus Patients Understanding and Support
32 results
View top 10 communities
Sort by
Most Relevant
Newest