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Interferon
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Treatment not working
Sadly, after 2 months of
interferon
my platelets reached 1100 a number I have never reached since I was diagnosed. My doctor seemed clueless when I asked her why isn't the treatment working so did this happen to anyone?
Sadly, after 2 months of
interferon
my platelets reached 1100 a number I have never reached since I was diagnosed. My doctor seemed clueless when I asked her why isn't the treatment working so did this happen to anyone?
Wadz
in
MPN Voice
5 years ago
Persistent cold symptoms with Pegasys?
One great side effect of being on Pegasys for the last 3 years is that I’ve had hardly any colds, as
interferon
helps combat the cold virus.
One great side effect of being on Pegasys for the last 3 years is that I’ve had hardly any colds, as
interferon
helps combat the cold virus.
AndyT
in
MPN Voice
5 years ago
Parotid removal and Hydroxychloroquine
I've had Sjogrens since
interferon
treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling. Am awaiting biopsy results, I've previously had mediastinal lymphoma.
I've had Sjogrens since
interferon
treatment 10 years ago and recently needed a troublesome parotid gland removed due to unidentified lumps and chronic pain and swelling. Am awaiting biopsy results, I've previously had mediastinal lymphoma.
MajorTom
in
The Australian Sjögren's Syndrome Association
5 years ago
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Pegasys
He has said in a few months I may need to start treatment other than aspirin and whereas previously he's mentioned hydroxy this has now changed to
interferon
. I've read up about it including side effects. Does anyone on here take it and how are you finding it?
He has said in a few months I may need to start treatment other than aspirin and whereas previously he's mentioned hydroxy this has now changed to
interferon
. I've read up about it including side effects. Does anyone on here take it and how are you finding it?
hall2
in
MPN Voice
6 years ago
New mpn
Hi diagnosed with ET 3 years ago age 28 been stable since now 31 and platelets high at 1560 started
interferon
last week last check platelets dropped to 1200!!
Hi diagnosed with ET 3 years ago age 28 been stable since now 31 and platelets high at 1560 started
interferon
last week last check platelets dropped to 1200!!
Samlowery17
in
MPN Voice
6 years ago
Advice
ET...I am being asked to take Hydra carbo but I have declined .... now am considering
interferon
... Still waiting for a buddy ...I’m so concerned about these treatments .. Grateful got any advice ... Melanie .
ET...I am being asked to take Hydra carbo but I have declined .... now am considering
interferon
... Still waiting for a buddy ...I’m so concerned about these treatments .. Grateful got any advice ... Melanie .
Melanie66
in
MPN Voice
6 years ago
Interferon advice please
Prior to
Interferon
I have been on Hydroxycarbamide for six years which controlled my platelets but was no longer working on my red cells, it could have also contributed to a skin cancer on my face so the decision was made to swap to
Interferon
.
Prior to
Interferon
I have been on Hydroxycarbamide for six years which controlled my platelets but was no longer working on my red cells, it could have also contributed to a skin cancer on my face so the decision was made to swap to
Interferon
.
jazzyb
in
MPN Voice
6 years ago
Ropeg versus HU/BAT results after 3 years
This is very interesting summary of trial results after 3 years. (CHR is Complete Haematological Response.) “After 36 months of treatment Ropeginterferon alfa-2b sustained higher CHR response rates compared to HU/BAT (70.5% vs. 51.4%; p=0.0122). Further, the composite endpoint, CHR including disease
This is very interesting summary of trial results after 3 years. (CHR is Complete Haematological Response.) “After 36 months of treatment Ropeginterferon alfa-2b sustained higher CHR response rates compared to HU/BAT (70.5% vs. 51.4%; p=0.0122). Further, the composite endpoint, CHR including disease
Paul123456
in
MPN Voice
5 years ago
PV and/or ET - JAK2+ - currently asymptomatic
In youtube.com discussions, there are mentioning about combining HU and Ruxolitinib or
Interferon
(etc); and another that is being researched (not in humans yet) is methotrexate that is relatively inexpensive and is already being used for rheumatoid arthritis (as the latter medicine also targets JAK2
In youtube.com discussions, there are mentioning about combining HU and Ruxolitinib or
Interferon
(etc); and another that is being researched (not in humans yet) is methotrexate that is relatively inexpensive and is already being used for rheumatoid arthritis (as the latter medicine also targets JAK2
Pat032018
in
MPN Voice
6 years ago
Help
interferon
might not be as affective,worried now getting bloods done tomorrow and phone hospital pharmacy in morning then go from there,been feeling nausea for a few weeks wondering if this could be the cause
interferon
might not be as affective,worried now getting bloods done tomorrow and phone hospital pharmacy in morning then go from there,been feeling nausea for a few weeks wondering if this could be the cause
Jbut
in
MPN Voice
6 years ago
Allow myself to introduce myself...
I had issues with fatigue, brain fog, anger management, altered bowel habit, etc on the hydroxycarbamide and have recently changed (Sept) to the Pegasys
Interferon
.
I had issues with fatigue, brain fog, anger management, altered bowel habit, etc on the hydroxycarbamide and have recently changed (Sept) to the Pegasys
Interferon
.
Not2bad
in
MPN Voice
6 years ago
MF with falling Hb: what drugs to go to next?
Mentioned
Interferon
and both higher and lower doses of Jakafi. Sorry about the similarity with my last post Anyone been in a similar situation, esp trying
Interferon
with Jakafi? Jane
Mentioned
Interferon
and both higher and lower doses of Jakafi. Sorry about the similarity with my last post Anyone been in a similar situation, esp trying
Interferon
with Jakafi? Jane
jane13
in
MPN Voice
6 years ago
Nauseous with ET
till Dec,but just wondering if it could be long time effect of
interferon
injection,will see gp next week but I always feel the gp doesn't know much about my condition any help or advice would be great thanks
till Dec,but just wondering if it could be long time effect of
interferon
injection,will see gp next week but I always feel the gp doesn't know much about my condition any help or advice would be great thanks
Jbut
in
MPN Voice
6 years ago
Experience with Pegasys
A new
interferon
should be approved by the end of the year (Ropeginterferon) which apparently has a much longer elimination half life, less frequent dosing (1 injection every 2 weeks during treatment phase and 1 per month in maintenance phase), and better safety & tolerability.
A new
interferon
should be approved by the end of the year (Ropeginterferon) which apparently has a much longer elimination half life, less frequent dosing (1 injection every 2 weeks during treatment phase and 1 per month in maintenance phase), and better safety & tolerability.
welshhuw
in
MPN Voice
6 years ago
Does Interferon affect BMB results?
Was on hydroxyurea for 3 years, now on Roferon A (
interferon
) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether
interferon
can affect the results.
Was on hydroxyurea for 3 years, now on Roferon A (
interferon
) 3 x weekly for 10 months. I have just started noticing an improvement with symptoms but i would like to request a BMB and was wondering whether
interferon
can affect the results.
fee13
in
MPN Voice
6 years ago
Peg Interferon and lower phosphate levels
Hi all, The last couple of blood tests I have had my phosphate level is below normal. I have been told normal is 0.8 and my readings have been 0.62 followed by 0.64. Between these 2 readings I had a phosphate top up in the form of a kind of electrolyte drink for a week. My symptoms are muscle aches and
Hi all, The last couple of blood tests I have had my phosphate level is below normal. I have been told normal is 0.8 and my readings have been 0.62 followed by 0.64. Between these 2 readings I had a phosphate top up in the form of a kind of electrolyte drink for a week. My symptoms are muscle aches and
Jocko
in
MPN Voice
6 years ago
Pegasy and interferon dosage
My heamo prescribed for me Pegasy 135mcg, he said dosage is same like roteferon 3UI, one weakly.Last year I was on only 3ui roteferon weakly , but stopped becouse of bad side effect . In last 12 month I have 9 venosection becouse my hct was 48 , platets always stable all 12 month 420 , rbc5,6, wbc
My heamo prescribed for me Pegasy 135mcg, he said dosage is same like roteferon 3UI, one weakly.Last year I was on only 3ui roteferon weakly , but stopped becouse of bad side effect . In last 12 month I have 9 venosection becouse my hct was 48 , platets always stable all 12 month 420 , rbc5,6, wbc
Lilly1958
in
MPN Voice
6 years ago
My Hep B journey...
To cut a long story short, I was offered a couple of treatments but opted to have pegylated
interferon
2a injections which I did myself weekly.
To cut a long story short, I was offered a couple of treatments but opted to have pegylated
interferon
2a injections which I did myself weekly.
Hb39
in
British Liver Trust
6 years ago
Today's Rheumy Appt: Wish You'd Been There! 👍⭐️🌈
It's called DEFINITION ( DEFining
Interferon
mediated autoimmune condITIONS) The young Spanish medic was there to give me a 10 min cognitive test because they are going to tie brain fog into the research. I think this is all quite good stuff in terms of attempts made to understand us better.
It's called DEFINITION ( DEFining
Interferon
mediated autoimmune condITIONS) The young Spanish medic was there to give me a 10 min cognitive test because they are going to tie brain fog into the research. I think this is all quite good stuff in terms of attempts made to understand us better.
Lupiknits
in
LUPUS UK
6 years ago
Delaying Treatment No More - Pegasys, here I come.
I was debating for a while and speaking with another MPN specialist, I am going to start my peg
interferon
treatment this week. My platelets have increased from the 800s to now 960. I had some questions regarding the most recent blood work that I had done.
I was debating for a while and speaking with another MPN specialist, I am going to start my peg
interferon
treatment this week. My platelets have increased from the 800s to now 960. I had some questions regarding the most recent blood work that I had done.
annem22
in
MPN Voice
6 years ago
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