Migraines and ET (treated with interferon)

[Rochyne]

Hi!

I have always suffered migraines, they used to be a lot worse and then after commencing treatment for my ET (high platelets) they calmed down a lot.

On Thursday night I was hit with a massive one, and then yesterday ended up in hospital with it.

The neurologist said that migraines can change, particularly in females and with my underlying issues. The whole thing wasn't well managed, communication was awful and I ended up there for 9 hours. To be sent home with nothing but a worse condition.

It's slightly better this morning but still pretty debilitating.

Any tips /questions I should be asking/things I should be doing?

Thanks

[Cat00]

How often do you get them?

[Rochyne in reply to Cat00]

It used to be every couple of weeks, but only mild ones. This one is still going. It's also different than usual so I'm not sure if they're changing or being triggered by the interferon

[Cat00 in reply to Rochyne]

If you get them that often you should be put on a preventative medication, you'd obviously have to go to a doctor to find an appropriate one that doesn't interfere with other drugs you are on. Have you been given triptans for the attacks? Bc migraines effect blood vessels in the brain I would be worried about your ET and the effects of migraine medication.

If you can't go on meds the main things you can do are to keep your sleep habits as regular as you can and try and keep your stress levels as low as possible. Various people will probably tell you avoid all kinds of food triggers but I don't believe in food triggers unless you are gluten intolerant, but that's just my opinion!

[Frodo]

"Migraines can change" may well be true but is one of those medical platitudes that is really of no help to anyone.

According to what I've read, platelet aggregation seems to be a feature of migraine, and apparently this is why some people who are given Warfarin for other reasons find that their migraine goes completely. You could see your doctor to ask whether trying mini aspirin or clopidogrel as a preventive might be appropriate in your case. Don't try anything without seeing your doctor especially if you have other underlying conditions.

Have you been tested for antiphospholipid antibodies?

You need to see a headache specialist rather than a general neurologist and do a lot of research yourself to try and establish what is exacerbating your particular migraines. You might need to see a different kind of specialist as well, such as a rheumatologist or endocrinologist.

[arethamorce]

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