Pegasys Interferon

[Not2bad]

Hi

Just a wee update - still got MF, still coping 'not too bad' - in fact I'm doing better than that as a result of changing medication to Pegasys from Hydroxy.

I had suffered incredible fatigue with the Hydroxy and the platelets hadn't really come down as much as the Haem expected.

I have found it easy enough to take the Pegasys - plenty of 'soft' areas to inject!

I've been put on a low dose - 45 every week, the hardest part of the process is flushing the 45 that I don't need (the syringes are pre-filled with 90).

I've been on the Pegasys a few months now and am feeling much better - energy levels, concentration etc have all improved and the platelets count was down to 474 at the last visit - can't be bad to that!

My visits to the Haem have gone out to 6 weeks and if the next one goes well then it may go out to 8 weeks.

Anyway - that's it for now - I still come on here every day and it's great to read the tips and advice from other people in the same position.

[Helpatlast]

Well done glad to hear your news that you are doing well on Peg - I started it in November - as you say not so bad injecting is it! May you continue to benefit

[shiftzz]

Been in pega for 14 months, plus low dosage hydroxycarbamide 4 x 500 mg a week. Numbers are OK, but I still have regular venesections. Pega slow to make significant change, now on 135.

[Bluetop]

Good to hear! Good news.

[charl17]

I don't know if there is any way to avoid the waste with a pre-loaded syringe. I use a 180 mcg 1 ml vial. My hematologist at Moffitt Cancer Center in Tampa says inject half the vial and then use the other half of the vial for the next injection. They do this all the time and don't have problems. I use cheap half ml syringes that are used commonly with insulin. The injections are painless.